Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for January 2022

B12 supplier for UK

Hello all I have just tried to order B12 ampules from VetsandApode and It flashed up only supplies to Germany. Did I imagine it?? I've completely forgotton...

Hello all I have just tried to order B12 ampules from VetsandApode and It flashe...

smilingjane

•2 years ago

17 Replies

Should I have been tested for PA before starting loading doses?

Hi everyone, I'm currently on my loading doses and have a sneaking worry that my treatment/investigatons into PA aren't as efficient as I'd previously thought...

Hi everyone, I'm currently on my loading doses and have a sneaking worry that my...

franrose

•2 years ago

21 Replies

Burning mouth

Hi..I am a 61yr old female waiting for blood tests ..Full blood test,B12 and Folic acid..I recently had a routine blood test re my thyroid..I was taking meds...

Hi..I am a 61yr old female waiting for blood tests ..Full blood test,B12 and Fol...

debbiejayn

•2 years ago

35 Replies

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The difference between intrinsic factor antibody test and MMA

Hi all and thanks in advance for any help. I have long suspected I have a B12 problem even though my active B12 blood tests are showing ok. I understand that...

Hi all and thanks in advance for any help. I have long suspected I have a B12 pr...

PurpleNel

•2 years ago

24 Replies

Thanks to all

I'd like to Thank all for the advice, support, and encouragement. It is truly a roller coaster that never seems to end. I'm going to take the advice to...

I'd like to Thank all for the advice, support, and encouragement. It is truly a...

Nana321

•2 years ago

3 Replies

Hormones

Sorry for constantly posting but no where else to turn. Does anyone know Is there any specialist I can go to who specialise in B12 in the Essex (England)...

Sorry for constantly posting but no where else to turn. Does anyone know Is ther...

Hidden

•2 years ago

4 Replies

PA?

Hi all..I recently had a blood test to check my levels re my thyroid as I have been taking meds for Graves disease..The doc rang me back within 3 hours to say...

Hi all..I recently had a blood test to check my levels re my thyroid as I have b...

debbiejayn

•2 years ago

6 Replies

No change!

Hi I’ve had 6 jabs over last 3 weeks, still no change, someone said something about cofactors? Can anyone enlighten me? Hope your all having a good day x

Hi I’ve had 6 jabs over last 3 weeks, still no change, someone said something ab...

Hidden

•2 years ago

2 Replies

Is this Legit?

Does anyone know about the website Perniciousanemia.org which calls itself Pernicious Anemia Relief made in Israel with ❤️ By Regev Elya? He sells...

Does anyone know about the website Perniciousanemia.org which calls itself Perni...

IMOKUOK

•2 years ago

7 Replies

Does folic acid deficiency make people have time off sick ?

Is anyone ever off work sick with folic acid deficiency ?

E44E44

•2 years ago

1 Reply

Testing please

Hi, I’m still waiting on the intrinsic factor and pareital tests. I have a feeling they will be normal since 50% false negative. What tests does one then do if...

Hi, I’m still waiting on the intrinsic factor and pareital tests. I have a feeli...

Ecf123

•2 years ago

8 Replies

Low iron and ferritin levels?

I have low iron. My HB is 9 and my ferritin levels are just 4. I also have many vitamin b12 and folate deficiency symptoms but my GP says my levels are fine...

I have low iron. My HB is 9 and my ferritin levels are just 4. I also have many ...

rustydog

•2 years ago

15 Replies

Fibromygalia

Any info on this please post thanks

Mozza127

•2 years ago

7 Replies

New normal???

Has anyone gotten back to normal after severe B12 depletion? Yes, I feel better, more stable emotionally, but I'm still exhausted most of the time. I have no...

Has anyone gotten back to normal after severe B12 depletion? Yes, I feel better,...

Nana321

•2 years ago

23 Replies

Pernicious anaemia with normal b12-ncbl

There are several internet references regarding normal b12 levels in pernicious anaemia,.

There are several internet references regarding normal b12 levels in pernicious ...

Hidden

•2 years ago

3 Replies

Is there any relationship between teeth hypersensitivity and B12 deficiency?

All of a sudden my molar tooth which was already filled started to ache so badly. My dentist was told me it requires root canal almost a year ago but it was...

All of a sudden my molar tooth which was already filled started to ache so badly...

Hamayeshguy

•2 years ago

11 Replies

Blood result.

Hi all not sure where to put this one. I've just got the results back from my last bloods. FBC all normal t4 fine t3 fine but my tsh was 4.9. I'm getting a...

Hi all not sure where to put this one. I've just got the results back from my la...

Darcey14

•2 years ago

2 Replies

My journey

Been so tired for maybe 2 years now but just put it down to work, looking after grandkids. Have had cardiac problems which are under control with an implanted...

Been so tired for maybe 2 years now but just put it down to work, looking after ...

Weeeck1951

•2 years ago

2 Replies

Magnesium for anxiety ?

Hi I self inject B12 every 2 weeks and with usual absorption problems that come with it, I wanted to know if anyone has any experience and knows how many mg...

Hi I self inject B12 every 2 weeks and with usual absorption problems that come ...

Ryaan

•2 years ago

13 Replies

Akey breaky bones

Since my injections have been done closer together every 3 weeks I have never had akey bones and muscles feed back welcome thanks

Since my injections have been done closer together every 3 weeks I have never ha...

Mozza127

•2 years ago

2 Replies

Different brands and how best to buy?

Does anyone have an opinion on Pascoe vs Hevert hydroxo and is it better to buy through Amazon de. or direct from a pharmacy?

Does anyone have an opinion on Pascoe vs Hevert hydroxo and is it better to buy ...

MorningMist

•2 years ago

7 Replies

Menopause

I just read q post where Nackerpan said her symptoms started at the time of the menopause. I could relate to that. I wonder if hormones play a big part in...

I just read q post where Nackerpan said her symptoms started at the time of the ...

Welsh15

•2 years ago

14 Replies

Hello everyone and thank you for allowing me to join today and help me in my journey being newly diagnosed with pernicious anemia

Are the injections painful ? How long till I feel better? Thanks Loveslife123

Loveslife123

•2 years ago

11 Replies

Can I get an accurate b12 level

Does active b12 measure accurately once you have been self injecting? My gp has offered more blood tests but can’t seem to get that ordinary serum b12 will be...

Does active b12 measure accurately once you have been self injecting? My gp has ...

Mag999

•2 years ago

2 Replies

B2 vitamin

I have recently come across having low B2 causing low mode, fatigue, skin problems, hair falling out etc. I have had some of the symptoms of low B2 I know my...

I have recently come across having low B2 causing low mode, fatigue, skin proble...

LittleA

•2 years ago

7 Replies

B12/Folate

Hey all! I’ve been battling many deficiencies for a long time. Last year while taking glutathione, all of my memories disappeared, and I was completely numb....

Hey all! I’ve been battling many deficiencies for a long time. Last year while t...

Flourishingwillo

•2 years ago

5 Replies

What can I expect from my loading doses?

Hi everyone, I'm starting my loading dose with the practice nurse tomorrow, second one on Thursday and then two more next week on an unconfirmed date. Is there...

Hi everyone, I'm starting my loading dose with the practice nurse tomorrow, seco...

franrose

•2 years ago

16 Replies

Toes

Does anyone else suffer with cramps in their toes and feet especially at night? I'm also finding I occasionally get shooting nerve pain under my big toes. I'm...

Does anyone else suffer with cramps in their toes and feet especially at night? ...

Bakingcat

•2 years ago

7 Replies

Books for B12Deficiency

Could it be b12" by sally Palochuk. RN, BSN. And Jeffrey J. STUART DO. Her videos are on utube. Highly recommended. Do you suffer from fatigue, depression,...

Could it be b12" by sally Palochuk. RN, BSN. And Jeffrey J. STUART DO. Her vide...

Heididog20

•2 years ago

1 Reply

Is DMG or ( previously b15) is required to take ?

Dimethylglycine or DMG has some vital role in brain functioning along with B12 but it's not added to b complex because it's not considered b vitamin anymore...

Dimethylglycine or DMG has some vital role in brain functioning along with B12 b...

Hamayeshguy

•2 years ago

1 Reply

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2022

B12 supplier for UK

Should I have been tested for PA before starting loading doses?

Burning mouth

The difference between intrinsic factor antibody test and MMA

Thanks to all

Hormones

PA?

No change!

Is this Legit?

Does folic acid deficiency make people have time off sick ?

Testing please

Low iron and ferritin levels?

Fibromygalia

New normal???

Pernicious anaemia with normal b12-ncbl

Is there any relationship between teeth hypersensitivity and B12 deficiency?

Blood result.

My journey

Magnesium for anxiety ?

Akey breaky bones

Different brands and how best to buy?

Menopause

Hello everyone and thank you for allowing me to join today and help me in my journey being newly diagnosed with pernicious anemia

Can I get an accurate b12 level

B2 vitamin

B12/Folate

What can I expect from my loading doses?

Toes

Books for B12Deficiency

Is DMG or ( previously b15) is required to take ?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive