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Pernicious Anaemia Society

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All posts for June 2022

When a Lie pays off !

About a month ago daughter in law came over, asked how she was, she broke down crying. She said she felt awful in so much pain, sat her down and asked about...

About a month ago daughter in law came over, asked how she was, she broke down c...

Hidden

•2 years ago

27 Replies

Back in stock

https://www.versandapo.de/vitamin-b12-depot-panpharma-1000-mygml-iniecto-lsg-10x1ml-pzn-16199653

https://www.versandapo.de/vitamin-b12-depot-panpharma-1000-mygml-iniecto-lsg-10x...

SallyRees

•2 years ago

6 Replies

B12 and supplies from Germany.....

As you are all well too familiar Panpharma B12 Depot sells out in a flash. So....... Pasco 1.5ml and Hervert 2000ml(1ml) Hydroxy... are these exactly the same...

As you are all well too familiar Panpharma B12 Depot sells out in a flash. So.....

WorkingProgress

•2 years ago

9 Replies

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Mouth Pain

I haven't been diagnosed yet , I have an appointment with a new Rheumatologist in week mine retired. I had blisters and horrible pain in my mouth ( started 3...

I haven't been diagnosed yet , I have an appointment with a new Rheumatologist i...

HMBradley53

•2 years ago

4 Replies

Wow!

www.versandapo.de notified me they had B12 back in stock and it was gone within an hour! 💥

www.versandapo.de notified me they had B12 back in stock and it was gone within ...

SallyRees

•2 years ago

8 Replies

B12 Injections. Help please.

Hi all, hope everyone is well. Could someone please help me with B12 injections. I received some today from Germany, but I must have ordered 2ml instead of...

Hi all, hope everyone is well. Could someone please help me with B12 injections....

Mannequin18

•2 years ago

12 Replies

Ordering

Hi I need to order some more Hydroxocobalin Ampoules. Can any one explain how to use google Chrome for translation.I have been on the site pharma but the...

Hi I need to order some more Hydroxocobalin Ampoules. Can any one explain how to...

Chocolate41

•2 years ago

12 Replies

B12 deficiency with COVID-19

I am at the tail end of covid.I had been feeling a lot better but over the past couple of days I seem worse.No energy again and lethargic.I have 12 wkly...

I am at the tail end of covid.I had been feeling a lot better but over the past...

Chocolate41

•2 years ago

4 Replies

In a bit of a tizz

I am not having any luck ordering B12 from Germany. Just told because they are Pharmacy products they are not available for posting to England. I did get a...

I am not having any luck ordering B12 from Germany. Just told because they are ...

3rdNettydoon

•2 years ago

5 Replies

B12 Injections from Europe

I've been purchasing B12 Ampoules from mycare.de in Germany but they've now stopped shipping to the UK post Brexit. Has anybody purchased supplies recently...

I've been purchasing B12 Ampoules from mycare.de in Germany but they've now stop...

Tofudave

•2 years ago

5 Replies

Folic acid and iron

Hello, I asked my doc if I should take iron and folic acid and he said I could buy otc ones, so I did and took one each. I am feeling a little jittery and a...

Hello, I asked my doc if I should take iron and folic acid and he said I could b...

EllaNore

•2 years ago

8 Replies

I know a negative IF test result can be inaccurate but can a positive one be false?

I've not been well since the middle of 2020, nothing to really put your finger on but headaches, tiredness, feeling like you're coming down with something but...

I've not been well since the middle of 2020, nothing to really put your finger o...

Tinglypalps

•2 years ago

5 Replies

Which other tests should I have with PA

Good morning everyone. This morning I have an appointment with my GP and in a couple of days I have an appointment with the gastroenterologist. I don't know...

Good morning everyone. This morning I have an appointment with my GP and in a co...

EllaNore

•2 years ago

4 Replies

B12 level 364pmol/l two months after loading doses - Low or normal level?

My GP has said that my B12 is normal now and no more treatment is needed after loading doses in April. I did have a B12 level of 80pmol/l before loading doses...

My GP has said that my B12 is normal now and no more treatment is needed after l...

Rippers101

•2 years ago

7 Replies

loading doses of 6 over 3 weeks

Hello, Recently been diagnosed as having B12 deficiency,i have had 6 injections over 3 weeks ,approx 4 days later nurse came and took bloods,a few days later...

Hello, Recently been diagnosed as having B12 deficiency,i have had 6 injections ...

jessicavincent

•2 years ago

9 Replies

Donating blood

Hi all I'm lucky enough to still be able to donate blood and am due to go this evening after work. I am getting my B12 jab from the nurse at lunch time so...

Hi all I'm lucky enough to still be able to donate blood and am due to go this e...

Annielecurie

•2 years ago

2 Replies

Oral v injection

Good morning I work in the NHS predominantly with elderly patients . Since the pandemic all my patients have been prescribed oral b12. Many of these patient...

Good morning I work in the NHS predominantly with elderly patients . Since the ...

Kapat1

•2 years ago

7 Replies

b12 lack of performance from medics

Hi do you find that medical profession do not inform of symtoms or explain one doc says one thing one says another A Gastroenterology informed mysekfvof the...

Hi do you find that medical profession do not inform of symtoms or explain one d...

Casasue

•2 years ago

1 Reply

Burning lower legs and feet after B12 injection

Hi After my last B12 injection over a month ago I noticed my legs had a burning sensation in the lower legs below the knees and the feet. Does anyone know...

Hi After my last B12 injection over a month ago I noticed my legs had a burning...

mistygrey

•2 years ago

13 Replies

B12 Test Kits

Could anyone recommend a reliable B12 Test Kit, UK please? Reason I ask is just having changed location and obviously got a new GP, for the first time today I...

Could anyone recommend a reliable B12 Test Kit, UK please? Reason I ask is just ...

boo16

•2 years ago

3 Replies

MMA homocysteine testing, Creon

Is it worth getting mma and homocysteine levels checked once on b12 injections? I’m not responding well as I’m still have lots of original symptoms and have...

Is it worth getting mma and homocysteine levels checked once on b12 injections? ...

Mag999

•2 years ago

17 Replies

Help with B12 and PA diagnosis? In UK

Hi I am trying to figure out if I have a b12 problem still despite the 12 weekly b12 injections I get at the Gp surgery in the UK. My original intrinsic factor...

Hi I am trying to figure out if I have a b12 problem still despite the 12 weekly...

mistygrey

•2 years ago

15 Replies

Mystery bloods

Hi I've had problems with my bloods for ages. Probably 5 years now. I've had 3 blood transfusions also a Iron infusion plus B12 injections and still feel...

Hi I've had problems with my bloods for ages. Probably 5 years now. I've had 3 b...

Thamesambulance

•2 years ago

22 Replies

Ordering B12 depot ampoules ( Hydroxocobalamin) from www.versandapo.de

I have noticed that the above German online pharmacy ,which many of us use, is having difficulties in maintaining stocks of Panpharma B12 depot . I was...

I have noticed that the above German online pharmacy ,which many of us use, is ...

wedgewood

•2 years ago

21 Replies

High B12 levels not supplementing please can someone help advice

I am quite new here please can someone advise if I should be concerned that my B12 levels which too high according to my Dr and also Medichecks which tell me...

I am quite new here please can someone advise if I should be concerned that my B...

Timetraveler67

•2 years ago

44 Replies

Antibiotics while on EOD B12 injections

Has anyone had any experience of antibiotic (specifically Flucloxacillin) while having EOD or daily B12 injections? I’m on a course of oral antibiotics for a...

Has anyone had any experience of antibiotic (specifically Flucloxacillin) while ...

jeremycat_

•2 years ago

1 Reply

Frustrated with NHS

To keep a long story short, I have been suffering with the following symptoms for nearly 5 years now: - Extreme fatigue (could curl up on the floor and fall...

To keep a long story short, I have been suffering with the following symptoms fo...

Jwal90

•2 years ago

15 Replies

IT problem

For the last couple of days 'Alerts' don't open. Just keeps looping Tried turning g my phone on and off ect . Anyone else fiding this? A visitor on the...

For the last couple of days 'Alerts' don't open. Just keeps looping Tried turn...

Nackapan

•2 years ago

6 Replies

Buying B12 ampoules

Hi everybody... I am giving my Gp till tomorrow to agree to prescribe the B12 injections I need, and if no joy I am going to have to resort to ordering......

Hi everybody... I am giving my Gp till tomorrow to agree to prescribe the B12 in...

Lincsangel

•2 years ago

6 Replies

Shortness of breath

Hi, I suffer from intermittent periods of "air hunger" or shortness of breath when I am sleeping. It wakes me up suddenly and I feel like I am suffocating....

Hi, I suffer from intermittent periods of "air hunger" or shortness of breath wh...

EiCa

•2 years ago

84 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2022

When a Lie pays off !

Back in stock

B12 and supplies from Germany.....

Mouth Pain

Wow!

B12 Injections. Help please.

Ordering

B12 deficiency with COVID-19

In a bit of a tizz

B12 Injections from Europe

Folic acid and iron

I know a negative IF test result can be inaccurate but can a positive one be false?

Which other tests should I have with PA

B12 level 364pmol/l two months after loading doses - Low or normal level?

loading doses of 6 over 3 weeks

Donating blood

Oral v injection

b12 lack of performance from medics

Burning lower legs and feet after B12 injection

B12 Test Kits

MMA homocysteine testing, Creon

Help with B12 and PA diagnosis? In UK

Mystery bloods

Ordering B12 depot ampoules ( Hydroxocobalamin) from www.versandapo.de

High B12 levels not supplementing please can someone help advice

Antibiotics while on EOD B12 injections

Frustrated with NHS

IT problem

Buying B12 ampoules

Shortness of breath

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive