Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

33,313 members•24,543 posts

All posts for October 2019

Entonox and PA

Hello. Yesterday I had a small procedure and was offered gas and air. I declined as I said I thought nitrous oxide was something not good for those with PA....

Hello. Yesterday I had a small procedure and was offered gas and air. I declin...

LadyBothwell

•5 years ago

17 Replies

Autoimmunie Atrophic Gastritis

Hi, I'm writing on behalf of my sister. She has had gastro problems for years and 2 years ago it got really bad and has intolerances to many foods. She showed...

Hi, I'm writing on behalf of my sister. She has had gastro problems for years a...

Bilbao

•5 years ago

4 Replies

What's your weirdest PA symptom?

Reading other people's stories has been so helpful and gives me such hope. Really appreciate all the sharing. I've also been enlightened about symptoms that I...

Reading other people's stories has been so helpful and gives me such hope. Reall...

Emmers5

•5 years ago

35 Replies

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Petition - from Tracey Witty's blog.

A mother is trying to get Parliament to debate her request for a full inquiry into the death of her son where an untreated B12 deficiency may have played a...

A mother is trying to get Parliament to debate her request for a full inquiry in...

fbirder

•5 years ago

21 Replies

Doc Martin

Nice little mention about Pernicious Anaemia on Doc Martin last night :)

pitney

•5 years ago

6 Replies

Low Fasting Gastrin.

Hey guys, I had a blood test done recently and got some of the normal tests done. I got a CBC and HGB/HCT came back normal and I got an MMA test done and it...

Hey guys, I had a blood test done recently and got some of the normal tests done...

lownskater52

•5 years ago

6 Replies

New to the site and navigating confusing symptoms from teh USA

I’m new to this site, 37 and living in the USA. Probably like many of you, I’ve found this site from hours of research on my bizarre symptoms. I’ve been...

I’m new to this site, 37 and living in the USA. Probably like many of you, I’ve ...

Hidden

•5 years ago

28 Replies

What blood tests need to be done on a regular basis for PA?

What blood tests need to be done on a regular basis for PA? About 6 years ago, my local gastroenterologist office confirmed PA. They were writing the script...

What blood tests need to be done on a regular basis for PA? About 6 years ago, m...

rosehill

•5 years ago

16 Replies

Injecting once per week but B12 levels have dropped by over 50% in 7 months

Hello All, I have been self injecting once per week for almost three years. My levels were over the limit, but thanks to my neurologist, (I have neurological...

Hello All, I have been self injecting once per week for almost three years. My ...

HKAnne

•5 years ago

13 Replies

In B12 deficiency, dizziness/ unsteady gait/ balance problem is a major symptom. Can you describe exactly what happens to you while walking?

When I start walking ( at home or out on the street) for first few minutes everything will be fine then I experience unsteadyness. Nothing spins around, I...

When I start walking ( at home or out on the street) for first few minutes every...

nkindia

•5 years ago

17 Replies

Naproxen

Hello, Is taking Naproxen likely to cause problems with my B12 regime? I have injections every 5 weeks. Thanks.

Hello, Is taking Naproxen likely to cause problems with my B12 regime? I have in...

sueeaton

•5 years ago

16 Replies

Just diagnosed

Hello all. I was just diagnosed with pernicious anemia that is a result of autoimmune atrophic gastritis (also just diagnosed). Currently just taking high...

Hello all. I was just diagnosed with pernicious anemia that is a result of auto...

heartofstone

•5 years ago

19 Replies

New member

I'm new to this. Been worried about my health for a few months. Getting tireder and more lethargic all the time. Cramps , backache, numb feet, balance...

I'm new to this. Been worried about my health for a few months. Getting tirede...

Hidden

•5 years ago

9 Replies

Improvement Timeline after starting B12 deficiency treatment.

I wish there was a specific thread here where we could read about improvements/ changes after starting treatment. Lab test showed my B12 was 99 pg/ml. So far I...

I wish there was a specific thread here where we could read about improvements/ ...

nkindia

•5 years ago

25 Replies

How to open B12 ampules from amazon/germany

I have been self injecting for years, and here in the US, I would receive B12 in little bottles with a plastic top that you would pry off. There would be a...

I have been self injecting for years, and here in the US, I would receive B12 in...

rosehill

•5 years ago

12 Replies

Just Had a Very Scary Revelation About My Temperature Regulation. Spinal Cord Degeneration.

Hey everybody, I just found the answer as to why I've been having so much trouble in a new desert climate. I have spinal degeneration from b12 deficiency....

Hey everybody, I just found the answer as to why I've been having so much troubl...

lownskater52

•5 years ago

12 Replies

Folate deficiency at 24 years old?

Hi. For the past two years I have been with a heamotologist because of my folic acid and b12 deficiency. I have had a gastroscopy and colonoscopy recently and...

Hi. For the past two years I have been with a heamotologist because of my folic ...

SLV94

•5 years ago

12 Replies

B12 and acne. Will reducing dose help?

Hi, I’m supplementing with Jarrows b12 sublingual 1000mcg lozenges, one a day. I have low b12 but the only symptom I appear to have is hairloss. Since I’ve...

Hi, I’m supplementing with Jarrows b12 sublingual 1000mcg lozenges, one a day. I...

Sarahlouise1980

•5 years ago

16 Replies

Gait and proprioception problems without SACD?

I'm currently receiving injections for a B12 deficiency which was diagnosed by my neurologist. The pins and needles in arms and legs are what alerted him to...

I'm currently receiving injections for a B12 deficiency which was diagnosed by m...

theverytiredperson

•5 years ago

11 Replies

Gastroenterologist

I had an appointment with a gastroenterologist yesterday who didnt say much but listened attentively as i listed off symptoms. He took lots of notes as I...

I had an appointment with a gastroenterologist yesterday who didnt say much but ...

Luac

•5 years ago

1 Reply

Stomach problems

Hi, I've started to SI once a week about 3,5 months ago. I went downhill very fast (existing symptoms getting worse) after our move to Singapore. Somehow, my...

Hi, I've started to SI once a week about 3,5 months ago. I went downhill very fa...

Heidiv

•5 years ago

8 Replies

GET YOUR B12 IN! Doctor May Stop Suddenly!

Hi all, My partner, who has terminal cancer, and who has been receiving B12 shots every month for the last 20 years (give or take the few periods when the...

Hi all, My partner, who has terminal cancer, and who has been receiving B12 shot...

SnappySam

•5 years ago

6 Replies

Which consultant

Hi . As recently posted I start my injections on Monday and wanted to keep on the front foot with fighting this issue. When I see my GP next week I would like...

Hi . As recently posted I start my injections on Monday and wanted to keep on th...

Chalky1064

•5 years ago

3 Replies

Cloudy with a Chance of Pain? Smartphone study shows pain more likely on humid, windy days

Although not strictly on-topic, so many here have reported pain issues, I thought this of at least passing interest. Cloudy with a Chance of...

Although not strictly on-topic, so many here have reported pain issues, I though...

helvella

•5 years ago

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Looking for guidance

I stumbled across this page during one of my many google symptom searches hoping to find someone with a similar experience. I’m 34. I have three children and...

I stumbled across this page during one of my many google symptom searches hoping...

Ashley820

•5 years ago

45 Replies

Having a Hard Night. Muscle Atrophy.

Hey everybody, Havent posted on here in a while. Been trying to give it time and hopefully see some progress. I'm coming up on my 6 months of treatment and...

Hey everybody, Havent posted on here in a while. Been trying to give it time an...

lownskater52

•5 years ago

4 Replies

Good write up

https://theconversation.com/vitamin-b12-deficiency-what-is-pernicious-anaemia-and-why-can-it-be-so-dangerous-125389

https://theconversation.com/vitamin-b12-deficiency-what-is-pernicious-anaemia-an...

Ritchie1268

•5 years ago

2 Replies

L glutamine

Anyone tried l glutamine for leaky gut syndrome. An amino acid which is apparently good for gut microbiome. Ant thoughts welcome

Anyone tried l glutamine for leaky gut syndrome. An amino acid which is apparen...

hendry

•5 years ago

11 Replies

Good article on the problems PA victims face regarding diagnosis and treatment.

This article examines the problems PA sufferers face....

fbirder

•5 years ago

2 Replies

PA? Advice please

Hi, after some advice please. I’m still slightly shocked after visiting the doctor yesterday. I’ve had pins and needles in my arms and fingers for a number of...

Hi, after some advice please. I’m still slightly shocked after visiting the doct...

Chalky1064

•5 years ago

5 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All posts(113)

All things Pernicious Anaemia Society(113)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2019

Entonox and PA

Autoimmunie Atrophic Gastritis

What's your weirdest PA symptom?

Petition - from Tracey Witty's blog.

Doc Martin

Low Fasting Gastrin.

New to the site and navigating confusing symptoms from teh USA

What blood tests need to be done on a regular basis for PA?

Injecting once per week but B12 levels have dropped by over 50% in 7 months

In B12 deficiency, dizziness/ unsteady gait/ balance problem is a major symptom. Can you describe exactly what happens to you while walking?

Naproxen

Just diagnosed

New member

Improvement Timeline after starting B12 deficiency treatment.

How to open B12 ampules from amazon/germany

Just Had a Very Scary Revelation About My Temperature Regulation. Spinal Cord Degeneration.

Folate deficiency at 24 years old?

B12 and acne. Will reducing dose help?

Gait and proprioception problems without SACD?

Gastroenterologist

Stomach problems

GET YOUR B12 IN! Doctor May Stop Suddenly!

Which consultant

Cloudy with a Chance of Pain? Smartphone study shows pain more likely on humid, windy days

Looking for guidance

Having a Hard Night. Muscle Atrophy.

Good write up

L glutamine

Good article on the problems PA victims face regarding diagnosis and treatment.

PA? Advice please

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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