Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,947 members • 23,087 posts

All posts for June 2017

Hi not bin on for a while

Hi iv managed to get my medical notes for legal reasons regarding previous posts through a terereible period im now deficiant in vitamen d which is probly the...

Hi iv managed to get my medical notes for legal reasons regarding previous posts...

•7 years ago

Some help please GP going to stop Injections after ten years due to high B12 in blood

My husband has been having B12 injections for about ten years now, we went to our GP due to my husband having the same symptoms that he was having befor he...

My husband has been having B12 injections for about ten years now, we went to ou...

•7 years ago

A win!!

Hi, I haven't posted here for a while but wanted to update with some good news. My injections were stopped 4 years ago and at the time I didn't question it....

Hi, I haven't posted here for a while but wanted to update with some good news. ...

•7 years ago

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Are GPs willing to learn about PA and B12 deficiency?

Blog post on Martyn Hooper's blog https://www.martynhooper.com/2017/06/24/its-not-all-negative/ Positive news about GP willing to pass on PAS info. Martyn...

Blog post on Martyn Hooper's blog https://www.martynhooper.com/2017/06/24/its-n...

•7 years ago

Be the first to reply

b12 without loading dose?

Can anyone give me any advice on b12 injections ? My nuerologist said my levels were low and sent a letter to my doc, stating immediate b12 injections...

Can anyone give me any advice on b12 injections ? My nuerologist said my levels ...

•7 years ago

B12 and folate level

Hi, I have had a b12 deficiency for approx 20 years. Despite the 3 monthly injections I am still very tired all of the time. On my last blood test my b12 level...

Hi, I have had a b12 deficiency for approx 20 years. Despite the 3 monthly injec...

•7 years ago

What to do if doctor won't test B12?

I have suffered from tiredness for years and doctor puts it down to " just me". I switched to seeing other doctor who to,d me that in fact I have fluctuating...

I have suffered from tiredness for years and doctor puts it down to " just me". ...

•7 years ago

Running marathons and PA

New to this forum despite having had PA for 10 years. I have managed quite well on 12 weekly jabs and living a busy lifestyle but have in the last 2 years...

New to this forum despite having had PA for 10 years. I have managed quite well...

•7 years ago

Young, scared, confused.

Hello, I am not sure if I have joined the correct forum and if anyone can offer me some comfort and reassurance. So I have a low reading of MCHC AND MCH from...

Hello, I am not sure if I have joined the correct forum and if anyone can offer...

•7 years ago

Medichecks B12 results advice please

Hello, thanks to everyone who replied to my post on here last week, it was so helpful that I decided to get my B12 checked privately. As I said in my other...

Hello, thanks to everyone who replied to my post on here last week, it was so he...

•7 years ago

Active b12 high do I have p.a?

Good morning Can anybody see what they make of this please, In march I started my own treatment of inject b12, hadn't been tested for b12 but the doctors waste...

Good morning Can anybody see what they make of this please, In march I started m...

•7 years ago

Advice on supplementation amounts

Hi, I wonder if anyone can give me advice on B12 supplementation. I am trying to get my B12 level up high because of neurological symptoms. I Have been taking...

Hi, I wonder if anyone can give me advice on B12 supplementation. I am trying t...

•7 years ago

New To This

Hi, I've just been told today after around 2+ years of feeling drained,tired,fatigued,mardy,depressed and just plain down that my B12 levels are low apparently...

Hi, I've just been told today after around 2+ years of feeling drained,tired,fat...

•7 years ago

Lesson learned!

Over the last year, I have gradually built up my stamina and fitness to the point where I can do a 3 mile walk several times a week. So, when a friend asked if...

Over the last year, I have gradually built up my stamina and fitness to the poin...

•7 years ago

New to Health Unlocked

Hi I am pleased to read everyone's posts and to be part of the PAS community. I have had B12 deficiency for a number of years now at least 10 years and never...

Hi I am pleased to read everyone's posts and to be part of the PAS community. I...

•7 years ago

Hi has lm new to this, I start my B12 on Monday,witch lv got to have injection every wk. His this how everyone started off...

Hi has lm new to this B12 witch I start mine on Monday for five wks of injections.Dose anyone no this his why my skin his so bad for the lack of B12.

Hi has lm new to this B12 witch I start mine on Monday for five wks of injection...

•7 years ago

Tired after b12 injections

Hello I was diagnosed with PA Nov. 2016. Injections started Dec. 2016. Every time I get an injection, I have to sleep. So I started self injecting at night....

Hello I was diagnosed with PA Nov. 2016. Injections started Dec. 2016. Every t...

•7 years ago

Supplements after injections guidance please

Hi, I finished my 6 loading B12 injections last Friday and now in between changing doctors because of me realising how bad my previous one was. He said that a...

Hi, I finished my 6 loading B12 injections last Friday and now in between changi...

•7 years ago

Brick Wall Syndrome

Just had B12 injection number 5, not feeling much better, a slight improvement on my energy level but thats it. The history is my B12 serum test came back...

Just had B12 injection number 5, not feeling much better, a slight improvement o...

•7 years ago

PPI (as in medication, not the other!)

Me again. Sorry. Part of my problem of b12d is heartburn, gastric reflux etc, so what is there I can do to cope with it without taking PPI's? I've cut out a...

Me again. Sorry. Part of my problem of b12d is heartburn, gastric reflux etc, so...

•7 years ago

Suffuring and losing hope to recover

Hi, am new to this forum, I was suffuring from anxiety and panic attacks since 2009 and my health going down till this April 2017 got checked for b12 ! I got...

Hi, am new to this forum, I was suffuring from anxiety and panic attacks since 2...

•7 years ago

New here

I am here to ask about more testing before starting B12 and folate, I spoke to GP today and he has started me on cyanocobalamin tablets and 210mg ferrous...

I am here to ask about more testing before starting B12 and folate, I spoke to G...

•7 years ago

somebody listened to me at last !

Well, I am writing to you all with good news. Saw the new GP at the new practice last Tuesday for my bloods doing and today I went in and they have started me...

Well, I am writing to you all with good news. Saw the new GP at the new practice...

•7 years ago

Test results advice appreciated

Hi I have hashis, and a fatty liver with the following blood test results, VITAMIN B12 248 pmol/L 140.00 - 724.00 FOLATE (SERUM) *2.89 ug/L 2.91 - 50.00...

Hi I have hashis, and a fatty liver with the following blood test results, VIT...

•7 years ago

Advice greatly appreciated

Hi, last year I started to feel really rubbish and after some research online about my symptoms I figured it was B12 deficiency. I was given a blood test and...

Hi, last year I started to feel really rubbish and after some research online ab...

•7 years ago

Tired all the time

I've had my loading doses, I am having my next one in 3 weeks, however, I am so tired and aching, do I need my next dose sooner?

I've had my loading doses, I am having my next one in 3 weeks, however, I am so ...

•7 years ago

Awareness

Hi. I am so very grateful to have the support and understanding from this community. Having a poor relationship with my GP surgery, caused by years of...

Hi. I am so very grateful to have the support and understanding from this commun...

•7 years ago

NDT dose

Hi all I have been self medicating with NDT for about 14 months now and can I say I am delighted with the outcome :) My question is this - has anyone found a...

Hi all I have been self medicating with NDT for about 14 months now and can I sa...

•7 years ago

Blood Pressure Rises When I Receive B-12 Shot

Here is my anemia backstory; I was first diagnosed with anemia about 4 years ago. I had been chewing on ice and someone told me it was a symptom of low iron....

Here is my anemia backstory; I was first diagnosed with anemia about 4 years ago...

•7 years ago

Low ferritin/b12, other things!

Hello, I recently went to the GP as my periods are ridiculously heavy since I had my second child (who is now three, but I put off going to the GP). I am...

Hello, I recently went to the GP as my periods are ridiculously heavy since I ha...

•7 years ago

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

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