Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,951 members • 23,090 posts

All posts for August 2023

Meds and PA

I totally see the influence of big pharmaceutical companies' involvement in the manipulation and control of how diseases like this are dealt with. No money in...

I totally see the influence of big pharmaceutical companies' involvement in the ...

brenanddave

•8 months ago

4 Replies

Alternative therapy recommendations

https://youtu.be/JlgqllPKQUA?si=b3WUwsYVmLWhMXt1Found this today and I feel it's helped. All about getting your lymphatic system moving and it's very simple to...

https://youtu.be/JlgqllPKQUA?si=b3WUwsYVmLWhMXt1Found this today and I feel it's...

Oneash

•8 months ago

13 Replies

Average dietary B12 intake

I often wondered about the average dietary B12 intake for those not taking supplements (or injections). Although perhaps of only academic interest to most...

I often wondered about the average dietary B12 intake for those not taking suppl...

Technoid

•8 months ago

21 Replies

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PA symptoms?

Hi, I’m over from the Thyroid UK group. DH has autoimmune thyroiditis, NCGS and psoriasis. And a whole host of symptoms having been misdiagnosed for ages....

Hi, I’m over from the Thyroid UK group. DH has autoimmune thyroiditis, NCGS a...

Zmalp

•8 months ago

4 Replies

Feeling judged

Hi all, hope you're having a pleasant day and doing well! I recently completed a very large cross-country move, and the last couple months I have felt...

Hi all, hope you're having a pleasant day and doing well! I recently complet...

Cobalt1312

•8 months ago

42 Replies

World Patient Safety Day

Personally I'm not a huge fan of the World Health Organization (WHO) but they do have some things right. This is one of them... World Patient Safety Day,...

Personally I'm not a huge fan of the World Health Organization (WHO) but they do...

Rexz

•8 months ago

3 Replies

Breathlessness

Good morning first of all I would like to say I have found a solution for my itching after B12 injections and hope it might help someone else. I now apply ice...

Good morning first of all I would like to say I have found a solution for my itc...

smg1950

•8 months ago

11 Replies

No matter where you are on your journey.

We are a community. So, even if you are barely able to get out of bed then you are very much thought of. Some of us are doing ‘stuff’ to ease the way.

We are a community. So, even if you are barely able to get out of bed then you a...

Narwhal10

•8 months ago

10 Replies

New Shaped Needle Sheaths!

Hi Guys Just opened a new box of needles and instead of the smooth, hard to grip needle sheaths that challenge me to grip them and get them off the needle,...

Hi Guys Just opened a new box of needles and instead of the smooth, hard to gri...

Wwwdot

•8 months ago

6 Replies

Humorous

So I woke up last night and had burning and itching on my lower legs which I have experienced intermittently since I was 9 years old. It was more constant...

So I woke up last night and had burning and itching on my lower legs which I hav...

WIZARD6787

•8 months ago

14 Replies

Paper: Receiving a Diagnosis of Pernicious Anemia: Exploring Experiences of Relationships With Health Professionals

I assume this has been posted before but I saw this for the first time today Seage, et al, Receiving a Diagnosis of Pernicious Anemia: Exploring...

I assume this has been posted before but I saw this for the first time today S...

jade_s

•8 months ago

9 Replies

Late covid

My health centre is the same one that my parents used and took me and my siblings to. I am 76 years old. The building and street locations have changed and of...

My health centre is the same one that my parents used and took me and my siblin...

3rdNettydoon

•8 months ago

9 Replies

Symptoms getting worse

Hi all Thanks for all the helpful advice on my previous post... My symptoms feel like they are getting worse - the metallic taste in my mouth is worse then...

Hi all Thanks for all the helpful advice on my previous post... My symptoms fee...

Missprettyshoes

•8 months ago

13 Replies

15 year old granddaughter

Hi everyone ☺️ Hope you are all as well as can be I have posted a copy of my 15 year old granddaughters blood results She has been having various symptoms...

Hi everyone ☺️ Hope you are all as well as can be I have posted a copy of my 15...

Lincsangel1

•8 months ago

13 Replies

What regular blood tests do I need?

Many thanks for the fantastic support and information from fellow members on this fabulous site. I am now proud to be SI and starting to feel much better...

Many thanks for the fantastic support and information from fellow members on thi...

yorkshiregirl4

•8 months ago

5 Replies

wow! My new doctor has PA himself!!

Well! A very positive outcome from today's appointment with a new doctor, I was very stressed and upset before the appointment due to all the frustration...

Well! A very positive outcome from today's appointment with a new doctor, I was ...

brenanddave

•8 months ago

46 Replies

MCV and supplement question

Hi all, I'm hypothyroid and frequently have MCV and MCH outside of range. In general I feel better supplementing with methyl Bs and have added folate. I want...

Hi all, I'm hypothyroid and frequently have MCV and MCH outside of range. In ge...

EchoWS

•8 months ago

6 Replies

post Covid setback

Does anyone have experience with b12d recovery setbacks after Covid? I am 2 months into weekly injections, and had really started so see improvements. Then...

Does anyone have experience with b12d recovery setbacks after Covid? I am 2 mont...

MuppDog

•8 months ago

11 Replies

Depression and successful treatment

I'd like to share something that others may be able to relate to. After suffering for many years with different ailments in addition to, or probably related...

I'd like to share something that others may be able to relate to. After sufferi...

scnuke

•8 months ago

6 Replies

Arrrgggg, so angry.

It took years for my adult son to get a correct diagnosis and it was PA , injections for life he was told. Such a relief, he was lucky to get back to...

It took years for my adult son to get a correct diagnosis and it was PA , inject...

ellj

•8 months ago

17 Replies

Brighton Marathon 2024

We have secured three places for Brighton Marathon Sunday 7th April 2024 in the name of The Pernicious Anaemia Society. We are looking for runners who want...

We have secured three places for Brighton Marathon Sunday 7th April 2024 in the ...

PAScomms

•8 months ago

1 Reply

I figured out how to tolerate antibiotics (trimethoprim in this case) without huge neuropathic pain flare!! (for real this time!)

I've been posting about this on and off all year trying to get some answers. Anyway, I'll keep it short. I've been unable to tolerate Trimethoprim or...

I've been posting about this on and off all year trying to get some answers. An...

Whoa182

•8 months ago

12 Replies

Supplement schedule query - which should be taken apart from others?

Hello! I've been SI since late 2017, but have changed my co-factor (and other) supplement regime over time - including recently re-introducing folinic acid,...

Hello! I've been SI since late 2017, but have changed my co-factor (and other) ...

ktwing

•8 months ago

17 Replies

Liposomal Iron

I have atrophic gastritis and my stomach can not tolerate normal iron supplements.I came across Liposomal on the web and wondered if anyone has had any success...

I have atrophic gastritis and my stomach can not tolerate normal iron supplement...

davina70

•8 months ago

8 Replies

Reversal symptoms when starting SI

Firstly I just wanted to say a huge thank you to all of the loving support, encouragement and advice on my post last week, I appreciate every one of you so...

Firstly I just wanted to say a huge thank you to all of the loving support, enco...

Aymelss

•8 months ago

4 Replies

DELIRIUM

Dear All, Just so you know, in medicine, we use the acronym PINCH ME for this symptom. P - Pain We can experience...

Dear All, Just so you know, in medicine, we use the acronym PINCH ME for this ...

Narwhal10

•8 months ago

17 Replies

B12 and remyelization

This article was interesting to me due to frequent mention of the importance of B12 to nerve remyelization:...

This article was interesting to me due to frequent mention of the importance of ...

WiscGuy

•8 months ago

2 Replies

Sublingual suplimentation.

The science regarding the efficacy of SL is not definitive one way or the other at best. I decided to to a trial of only SL in part due to delays in...

The science regarding the efficacy of SL is not definitive one way or the other ...

WIZARD6787

•8 months ago

6 Replies

Has anyone used B12 Oil from Australia?

Hello Has anyone here used B12 oil from Australia and if so, did you find it as good as injections? That is the claim. It's a transdermal oil. I have been...

Hello Has anyone here used B12 oil from Australia and if so, did you find it as...

FancyPants54

•8 months ago

46 Replies

Added...audio to A Life Jolted.

Hi all. At the request of Mixteca I've added audio to this week's instalment 05 - Cancer, a verdict, a sentence without a trial at rexwiig.substack.com As we...

Hi all. At the request of Mixteca I've added audio to this week's instalment 05...

Rexz

•8 months ago

6 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All posts(75)

All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2023

Meds and PA

Alternative therapy recommendations

Average dietary B12 intake

PA symptoms?

Feeling judged

World Patient Safety Day

Breathlessness

No matter where you are on your journey.

New Shaped Needle Sheaths!

Humorous

Paper: Receiving a Diagnosis of Pernicious Anemia: Exploring Experiences of Relationships With Health Professionals

Late covid

Symptoms getting worse

15 year old granddaughter

What regular blood tests do I need?

wow! My new doctor has PA himself!!

MCV and supplement question

post Covid setback

Depression and successful treatment

Arrrgggg, so angry.

Brighton Marathon 2024

I figured out how to tolerate antibiotics (trimethoprim in this case) without huge neuropathic pain flare!! (for real this time!)

Supplement schedule query - which should be taken apart from others?

Liposomal Iron

Reversal symptoms when starting SI

DELIRIUM

B12 and remyelization

Sublingual suplimentation.

Has anyone used B12 Oil from Australia?

Added...audio to A Life Jolted.

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive