Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,946 members • 23,084 posts

All posts for February 2020

Legionairrs disease, Phnewmonia and Sepsis

Hello, last August I was taken into hostpital, for ten days, with Legionairres disease, Phnewmonia and Sepsis. Following this I'm now feeling fatigued and have...

Hello, last August I was taken into hostpital, for ten days, with Legionairres d...

TAB100

•4 years ago

2 Replies

PPIS making me not absorb b12

Hi I have to take a proton pump inhibitor for Barrett’s esophagus. It’s an acid blocker which blocks acid in the intestine. I tried taking other meds to no...

Hi I have to take a proton pump inhibitor for Barrett’s esophagus. It’s an acid ...

Nanny23

•4 years ago

3 Replies

Should I adjust my supplements ?

I currently take ... -50 mg iron ( pure Albion) -A b complex with 400 mcg Methyltetrahydrofolate -5000 IU D-3 - I inject cyano b12 1x a week My most recent...

I currently take ... -50 mg iron ( pure Albion) -A b complex with 400 mcg Methy...

CW12

•4 years ago

9 Replies

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Does b12 irritate your bladder?

I have pernicious anemia and interstitial cystitis. Recently I have been having a flare of frequent urinating and pressure. Has any not had a similar issue. Do...

I have pernicious anemia and interstitial cystitis. Recently I have been having ...

CW12

•4 years ago

6 Replies

New B12 Oral Treatment for PA

UPDATE: Had my appointment with the nurse for my B12 shot yesterday. She said I see you enquired about taking B12 orally and I was like, eh, no, one of your...

UPDATE: Had my appointment with the nurse for my B12 shot yesterday. She said I ...

Bumbles0404

•4 years ago

73 Replies

Inherited PA? Should B12 and Folate deficiency be treated together?

Hi I'm suffering with B12 and folate deficiency and have recently had my first loading shots. My grandmother had pernicious anaemia and had monthly...

Hi I'm suffering with B12 and folate deficiency and have recently had my first ...

clapic

•4 years ago

4 Replies

Am I going crazy?!

Can anyone tell me if a feeling of being stuck in a dream could be a symptom of Vit b12 deficiency? Apparently from over two months now, I've been feeling this...

Can anyone tell me if a feeling of being stuck in a dream could be a symptom of ...

Shipra33

•4 years ago

16 Replies

B12 levels seem high

Hi, I was hoping to get some advice. So I told my doctor I was self injecting due to lengthy waiting times in the clinic and not having the time to wait 3...

Hi, I was hoping to get some advice. So I told my doctor I was self injecting du...

Meisor

•4 years ago

12 Replies

Sourcing nurse to give b12 injection

Hi can anyone advise how I can source a nurse to teach me how to give the b12 injections,on a private basis,I’ve got all the necessary stuff just too scared to...

Hi can anyone advise how I can source a nurse to teach me how to give the b12 in...

Hidden

•4 years ago

6 Replies

wondering why gp ordered b12, liver function and folic acid test?

just curious as i thought she was only ordering b12 for the time being! i’ve presented with altered sensation all over my body and hypothyroidism (which is...

just curious as i thought she was only ordering b12 for the time being! i’ve pre...

meowzart

•4 years ago

2 Replies

Iron Levels

How long does it take for iron level to rise after taking iron supplements?

stovall1992

•4 years ago

7 Replies

Parietal cell antibodies / myocardial antibodies

Hello. I was infected with h. pylori and was prescribed antibiotics and antacids as a treatment. The combination of the infection and treatment destroyed my...

Hello. I was infected with h. pylori and was prescribed antibiotics and antacids...

Maggiez

•4 years ago

16 Replies

Stopping every other day injections too early

Hi there First of all, thank you so much for all your wisdom and advice - I honestly think I would’ve lost my mind without your input. I looking for some...

Hi there First of all, thank you so much for all your wisdom and advice - I hon...

SAM2608

•4 years ago

9 Replies

B12 Urgent help Needed!!

I got my first Vitamin b12 injection today and it seems that I'm feeling really Very tired, infact worse than I usually feel after having it. Is this normal?...

I got my first Vitamin b12 injection today and it seems that I'm feeling really ...

Shipra33

•4 years ago

16 Replies

Just returned from GP's

Hi all, thank goodness for this forum after a visit to the GP. So, after reading all the current literature I sent, she agreed that I could continue my B12...

Hi all, thank goodness for this forum after a visit to the GP. So, after readi...

Newcastlelover

•4 years ago

2 Replies

Functional B12

Can you develop this ? I started with a level of 106pg/mL then have had injections. I'm 16m into treatment. I've been coping with 2 weekly Injections . Did...

Can you develop this ? I started with a level of 106pg/mL then have had injectio...

Nackapan

•4 years ago

4 Replies

Radioactive bile and b12

Can anyone answer this question, I had a radioactive bile tablet and scan a few weeks ago. One day after I felt very tired but did my usual stuff with an early...

Can anyone answer this question, I had a radioactive bile tablet and scan a few ...

Pixielula

•4 years ago

36 Replies

Thank you!

Just wanted to say thank you for the invaluable advice. My GP Practice used to allow me to self inject and get my Vit B12 on prescription. This policy was...

Just wanted to say thank you for the invaluable advice. My GP Practice used to a...

PollyMoly

•4 years ago

5 Replies

I thought my B12 stopped working, but it was thyroid problem

I have been worrying my injections are not working , but got my thyroid tested and TSH was 0.04 indicating I might been hyper or hyper swing, ft4 was normal in...

I have been worrying my injections are not working , but got my thyroid tested a...

Justiina

•4 years ago

6 Replies

Over supplementing with Vit D

I was talking to a friend today re Vit D overdose. They thought it was pretty unlikely that oral overdose was possible unless given in massive amounts. We both...

I was talking to a friend today re Vit D overdose. They thought it was pretty un...

Lurcher-lady

•4 years ago

16 Replies

B12 & FOLATE LEVELS & INJECTION QUESTIONS

Hi All I would be very grateful if anyone could help answer a few questions I have. I suffer from B12 Deficiency and currently have 3 monthly injections. I...

Hi All I would be very grateful if anyone could help answer a few questions I ha...

Daisy54

•4 years ago

4 Replies

Another Gp

Saw a different Gp on purpose. Only one available anyhow reason 3 x strange 'turns last one last night. He said I should only be having 3 monthly b12...

Saw a different Gp on purpose. Only one available anyhow reason 3 x strange 'tur...

Nackapan

•4 years ago

9 Replies

PA and pain meds

Hi all. I haven't been here in a while. I have PA and have been successfully self injecting the last few years. I have to say that I felt on top of the world....

Hi all. I haven't been here in a while. I have PA and have been successfully sel...

Wowo23

•4 years ago

9 Replies

Tremors

How to stop tremors?? I have been injecting EOD.. it comes more with exertion ... has anyone overcame tremors issue

How to stop tremors?? I have been injecting EOD.. it comes more with exertion .....

Gunj_redjem

•4 years ago

4 Replies

B12 loading doses

Hi I’ve been reading many posts regarding the Dutch loading protocol which I find very interesting. Do people think that this works better than the UK 3 per...

Hi I’ve been reading many posts regarding the Dutch loading protocol which I fin...

mistygrey

•4 years ago

3 Replies

Gastro panel test

I had this blood test done today, hoping it would give me some view why I am not absorbing vitamins....

I had this blood test done today, hoping it would give me some view why I am not...

Justiina

•4 years ago

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Help with a possible diagnosis

Hello all, I’ve been dealing with extreme fatigue for years- going through tests, switching doctors, etc... My new doctor told me a few months ago that my...

Hello all, I’ve been dealing with extreme fatigue for years- going through tests...

Nitrojen52

•4 years ago

2 Replies

SNAC and B12 (and other absorption enhancers)

Eligen B12 claims improved absorption due to SNAC. The testing was done on a small number of "normal" subjects - and the paper is from 2011. Any opinions on...

Eligen B12 claims improved absorption due to SNAC. The testing was done on a sma...

helvella

•4 years ago

21 Replies

Wrist still sore

Been on injections now for 9 months ...and take b12 tablets ...so why have my fingers starated with pins and needles and my hand hard to shut tight and wrist...

Been on injections now for 9 months ...and take b12 tablets ...so why have my f...

Mozza127

•4 years ago

5 Replies

Folic acid mask b12 deficiency?

When it is said that folic acid can mask the presence of b12 deficiency, can anyone tell me how is it this would occur? Would false b12 levels return in blood...

When it is said that folic acid can mask the presence of b12 deficiency, can any...

Roo32

•4 years ago

10 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All posts(75)

All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2020

Legionairrs disease, Phnewmonia and Sepsis

PPIS making me not absorb b12

Should I adjust my supplements ?

Does b12 irritate your bladder?

New B12 Oral Treatment for PA

Inherited PA? Should B12 and Folate deficiency be treated together?

Am I going crazy?!

B12 levels seem high

Sourcing nurse to give b12 injection

wondering why gp ordered b12, liver function and folic acid test?

Iron Levels

Parietal cell antibodies / myocardial antibodies

Stopping every other day injections too early

B12 Urgent help Needed!!

Just returned from GP's

Functional B12

Radioactive bile and b12

Thank you!

I thought my B12 stopped working, but it was thyroid problem

Over supplementing with Vit D

B12 & FOLATE LEVELS & INJECTION QUESTIONS

Another Gp

PA and pain meds

Tremors

B12 loading doses

Gastro panel test

Help with a possible diagnosis

SNAC and B12 (and other absorption enhancers)

Wrist still sore

Folic acid mask b12 deficiency?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive