Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,932 members • 23,070 posts

All posts for March 2018

PA & STROKE

Could anyone tell me if there is a link between PA and Stroke... I was diagnosed last July and doing really well at the moment.. But I ended up at E&A on...

Could anyone tell me if there is a link between PA and Stroke... I was diagnosed...

•6 years ago

B12 Blood Results

Hi, I have posted my blood results and it would appear that my B12 is within range but low in range, the Thyroid Group have suggested I ask for advice on this...

Hi, I have posted my blood results and it would appear that my B12 is within ran...

•6 years ago

How often can you inject

Injections twice a week

Injections twice a week

•6 years ago

Want to take advantage of all our features? Just log in!

or

Alternative Treatment

I was just wondering how many people have had experiences with treatment other than injections. My doctor’s referred me to a rheumatologist but if the wait is...

I was just wondering how many people have had experiences with treatment other t...

•6 years ago

Hello

hi I got my result today for my VITAMIN B12 (COBALAMIN) it was 524 is it conceder as hi or low ?

hi I got my result today for my VITAMIN B12 (COBALAMIN) it was 524 is it concede...

•6 years ago

Hand tremor and b12

My daughter 21 developed a hand tremor in both hands about a year ago almost overnight. One hand is much more pronounced than the other. She has seen a...

My daughter 21 developed a hand tremor in both hands about a year ago almost ove...

•6 years ago

Hydroxo sublingual overwhelming!

Hi there, Has anyone become really wired from hydroxocobalamin sublingual or injections? I have received injections in the past with not much responce but...

Hi there, Has anyone become really wired from hydroxocobalamin sublingual or inj...

•6 years ago

G

Gastroparesis, did begins hc l help, and is there dude for sibo, and will I always have to pace my life. Thanks

Gastroparesis, did begins hc l help, and is there dude for sibo, and will I alwa...

•6 years ago

Anyone here take hydroxy b12 lozenges?

So iv been taking a methyl b12 complex that includes methyl folate and some b12 methyl spray but iv noticed I'm getting such bad headaches. Found out as I have...

So iv been taking a methyl b12 complex that includes methyl folate and some b12 ...

•6 years ago

New here!

I have problems withs with pernicious anemia, and am asking if begins hc l is solution? Thanks should be problems with constipation, and gastroparesis

I have problems withs with pernicious anemia, and am asking if begins hc l is so...

•6 years ago

Injections Cyanocobalamin vs. Methylcobalamin

Hello I’m looking for some info. I currently get my Vitamin B12 Injections Cyanocobalamin every 10 weeks. But feel no significant difference. I have read...

Hello I’m looking for some info. I currently get my Vitamin B12 Injections Cyan...

•6 years ago

Where Can I buy vitamin B12 injections from?

I have been diagnosed with b12 defiency but one every three months just isn’t enough and I feel too tired by the end of the 2nd month! Where can you buy them...

I have been diagnosed with b12 defiency but one every three months just isn’t en...

•6 years ago

Notes - GREAT info here. Please feel free to share, helping each other. ox ..

Trying to save you time. "PA can affect your ability to absorb other vitamins and minerals - folate and iron are the common ones." Makes sense, I started...

Trying to save you time. "PA can affect your ability to absorb other vitamins a...

•6 years ago

B12 not worked this time.

Hello, I have been receiving b12 injections from my GP for the last year and my last one was at the begining of this month. I was feeling a lot more fatigued...

Hello, I have been receiving b12 injections from my GP for the last year and my ...

•6 years ago

Rheumatologist appointment

I finally got another doctor’s appointment! I asked if it would be possible to get more regular injections, but the GP said if my 3 monthly ones weren’t having...

I finally got another doctor’s appointment! I asked if it would be possible to g...

•6 years ago

Hair loss is getting worse 😔

Could anyone reasure me that my hair will stop falling out... I've now lost half the volume of the thickness... Is there anything I can do.. I was diagnosed...

Could anyone reasure me that my hair will stop falling out... I've now lost half...

•6 years ago

I'm from the PA forum...need a bit of advise...

Hi ... i was diagnosed with PA last july and self injecting every few days..things are going well...but even although I had my thyroid tested, I think I might...

Hi ... i was diagnosed with PA last july and self injecting every few days..thin...

•6 years ago

B12 deficiency /PA and Folate levels and Folic Acid

I hope a quick Question I Have PA, and 10 weekly injections (and autoimmune thyroiditis, Hashimotos diagnosed Dec 17) folate levels found to have been low...

I hope a quick Question I Have PA, and 10 weekly injections (and autoimmune thyr...

•6 years ago

MTHFR - Why do people take Hydroxy?

I thought that the mthfr gene stopped your body being able to change Hydroxocobalamin into a more usable form in the body? but it seems everyone still prefers...

I thought that the mthfr gene stopped your body being able to change Hydroxocoba...

•6 years ago

Full blood count results

I wasn't sure where to post this, but as I think this community tends to have a good grasp on blood test results, I thought I would give this a go. I've just...

I wasn't sure where to post this, but as I think this community tends to have a ...

strawberrysorbet

•6 years ago

Drinking 'enough' WATER may help? A reminder

Edit: just creating dialogue. Ty. :) Would be cool to hear stories. Think it should help with nerves, and recovery. Not sure, but it couldnt hurt, I think....

Edit: just creating dialogue. Ty. :) Would be cool to hear stories. Think it ...

•6 years ago

Pernicious Anemia or B12 deficiency?? How do you tell what you have?

Sorry if this is redundant. Been taking 20 000 mcg since Nov. Feeling better. How do I know if its PA or just very low levels of b12 ( i couldnt absorb) ty.

Sorry if this is redundant. Been taking 20 000 mcg since Nov. Feeling better. ...

•6 years ago

new to numbness to lower legs and balance problems

this problem started some 2 yrs ago and I have had consultations with orthopaedic consultants (yes more than one) podiatry consultant and my doctor but none...

this problem started some 2 yrs ago and I have had consultations with orthopaedi...

•6 years ago

Expertise in Hampshire

I have a friend who has pernicious anaemia, proven by symptoms and blood test results. She has had the condition since birth, and has been bedbound for the...

I have a friend who has pernicious anaemia, proven by symptoms and blood test re...

•6 years ago

Result of 'active B12 test'

Hello All. I hope that someone out there can help me with interpreting the result of my 'active B12' test which I received today. I am a bit worried as it is...

Hello All. I hope that someone out there can help me with interpreting the resul...

•6 years ago

If you have pa, will oral b12 tablets raise serum or active levels at all?

I know injections are always the go too for pernicious anemia but I was curious to know if oral tablets would raise in blood serum or the active b12 test at...

I know injections are always the go too for pernicious anemia but I was curious ...

•6 years ago

Tingling/buzzing/vibrating/tremors

I have constant tingling in my feet and legs for almost a year now. Doctors are ignoring my symptoms. I get the tingling sensations in my back and hands and...

I have constant tingling in my feet and legs for almost a year now. Doctors are ...

•6 years ago

Intrinsic factor results waiting time NHS

Does anybody know how long the Intrinsic factor test results take to come back via the NHS? It will be a week tomorrow since I had the test but Gp has advised...

Does anybody know how long the Intrinsic factor test results take to come back v...

•6 years ago

Are test results from Blue Horizon or Medichecks valid for medico-legal reports?

Does anyone know if test results from private companies like Blue Horizon Medical or Medichecks are valid for medico-legal reports or if they are admissible...

Does anyone know if test results from private companies like Blue Horizon Medica...

•6 years ago

Hip and leg pain

I’ve been diagnosed with pa for around 6 years now! I’ve finally had it agreed by my GP I can have my injection every 2 months as my 3rd month I was a zombie!...

I’ve been diagnosed with pa for around 6 years now! I’ve finally had it agreed b...

•6 years ago

1
2
...
8
Next page

Search posts

Pinned Posts

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

All things Pernicious Anaemia Society(75)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Archive

2024

Jan Feb Mar Apr

May

Jun

Jul

Aug

Sep

Oct

Nov

Dec

2023

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2022

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2021

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2020

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2019

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2018

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2017

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2016

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2015

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2014

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2013

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2012

Jan

Feb

Mar

Apr May Jun Jul Aug Sep Oct Nov Dec

2011

Mar

Apr

May

Jun

Jul

Aug

Sep

Oct

Nov

Dec

2010

Jan

Feb

Mar

Apr

May

Jun

Jul

Aug Sep Oct Nov Dec