Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for April 2016

What are everyone's symptoms

I am new to all this and just looking for help to understand....there my already be a post with this on so if there is I apologise. I am trying to suss out if...

I am new to all this and just looking for help to understand....there my already...

tootsiebella

•8 years ago

58 Replies

Treating the symptoms

Many of other people's experiences with GPs seem similar to mine, and I'm still in the labyrinth with no answers, but I came across several refences to nasal...

Many of other people's experiences with GPs seem similar to mine, and I'm still ...

rosebudsmith

•8 years ago

9 Replies

Hit a brick wall

Good morning everyone, dark clouds above and its cold and wet. My back is really bad today as I really suffer when it's cold and damp. My problem is that I've...

Good morning everyone, dark clouds above and its cold and wet. My back is really...

Bentleyboo

•8 years ago

10 Replies

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Another one with injections stopped

Hi, I posted recently about an entry on Martyn Hooper's blog about 5 people with confirmed PA who had had injections stopped. I noticed that there is a new...

Hi, I posted recently about an entry on Martyn Hooper's blog about 5 people with...

Sleepybunny

•8 years ago

1 Reply

Chest Pain

Hi everyone! I have been getting 3 monthly B12 injections at my GP surgery since June 2015. Not been officially diagnosed as PA (intrinsic factor test came...

Hi everyone! I have been getting 3 monthly B12 injections at my GP surgery since...

stina

•8 years ago

9 Replies

Upset

Hello lovelies 😊 Just an update, you probably don't remember me but I posted when I'd just been diagnosed with pa. Had my last loading dose on 11th April and...

Hello lovelies 😊 Just an update, you probably don't remember me but I posted wh...

sunnyhoney

•8 years ago

32 Replies

B12 result is more than 2000 2 weeks after 6 injection loading dose, is this normal please?

Hi I'm two weeks on from having a loading dose and have had folate test 6.3 (2.6-15) and therefore got a b12 result too which i was told is more than 2000...

Hi I'm two weeks on from having a loading dose and have had folate test 6.3 (2....

Jo5454

•8 years ago

8 Replies

Well that was a waste of time

Just had a GP telephone appointment as no actual appointments available for a month following the problems of my symptoms returning detailed in this post -...

Just had a GP telephone appointment as no actual appointments available for a mo...

evilellie

•8 years ago

9 Replies

Self Injecting?

(If anyone hasn't seen my previous posts, basically, I was on cyano pills and folic acid for a year and they didn't help at all. I had a blood test Nov '15 and...

(If anyone hasn't seen my previous posts, basically, I was on cyano pills and fo...

KCxo

•8 years ago

13 Replies

Hypoxia

I'm dealing with hypoxia lately. It sucks. And, unfortunately, I keep having to field questions like, "Is it because you take so much B12?" or "Is it because...

I'm dealing with hypoxia lately. It sucks. And, unfortunately, I keep having to ...

Galixie

•8 years ago

14 Replies

B12 deffiency 14 year old girl

my level is at 66 and I got injections done but I don't feel any difrence is this dangerous, I get literaly every symptom and I cant deal with this anymore ?

my level is at 66 and I got injections done but I don't feel any difrence is thi...

beifusmichelle

•8 years ago

5 Replies

Sublingual Methylcobalamin B12 tablets by Solgar

To all: I have been really amazed by all the wonderful support and information provided on these postings! I wanted to add that after a lot of back and forth...

To all: I have been really amazed by all the wonderful support and information p...

Jkay2418

•8 years ago

4 Replies

I need answers

When I first had B12 checked I was at 120 then had weekly shot for 10 weeks. 2 weeks later bad blood test again and only at 300. The doctor says now monthly...

When I first had B12 checked I was at 120 then had weekly shot for 10 weeks. 2 w...

Hidden

•8 years ago

2 Replies

Low Iron

I was diagnosed with pernitious anaemia a year ago and have had regular B12 injections. I also have RA and take MTX and other RA medication, + Vit D and...

I was diagnosed with pernitious anaemia a year ago and have had regular B12 inje...

frranny

•8 years ago

2 Replies

PA being treated but other weird syptoms occurring

I am lucky and get monthly jabs at present and I do take B12 supplements as well for the Pernicious anaemia. Took 10 years to get diagnosis (level 75 on...

I am lucky and get monthly jabs at present and I do take B12 supplements as well...

gillsie

•8 years ago

7 Replies

second post on help with bloods.

Sleepybunny. it is all very daunting will have a scan through the list later on, I find that at the age of 75yrs I do not have the time for Normal- No Action....

Sleepybunny. it is all very daunting will have a scan through the list later on,...

daveD

•8 years ago

5 Replies

Moving Home & Finding New GP Surgery in Wiltshire.

Hi everyone, I'm shortly (in about 2, months) moving from South Wales to Trowbridge in Wiltshire; I'm looking for a GP Surgery in the Hilperton Area of...

Hi everyone, I'm shortly (in about 2, months) moving from South Wales to Trowbri...

Nytsom

•8 years ago

6 Replies

Life line snatched away...

So, thanks to a sympathetic GP (after a long struggle) I was getting B12 injections every 3 weeks and my life was getting back to a more normal state. Sadly,...

So, thanks to a sympathetic GP (after a long struggle) I was getting B12 injecti...

GTBN

•8 years ago

79 Replies

Methyl- and Adenosyl- cobalamin

There was a thread on here recently about the problem with taking methylcobalamin alone. The Wiki article on methylcobalamin said that one should take...

There was a thread on here recently about the problem with taking methylcobalami...

fbirder

•8 years ago

7 Replies

Syringes and Needles

Hi I have managed to purchased some b12 at last.Please could you tell me where to purchase the needles and syringes.I know I need 1ml syringes and 25G...

Hi I have managed to purchased some b12 at last.Please could you tell me where...

Chocolate41

•8 years ago

9 Replies

swelling mouth and lips

hi did anyone experience swollen lips and mouth with sore tongue and mouth ulcers? i have had it for about 9 weeks now and although the doctor gave me some...

hi did anyone experience swollen lips and mouth with sore tongue and mouth ulcer...

Robson957

•8 years ago

14 Replies

Anyone tried CBD Oil?

I'd read this stuff was good for nerve repair and pain relief, so decided to give it a go, after a lot of research I ordered the White Oil from CBD Brothers -...

I'd read this stuff was good for nerve repair and pain relief, so decided to giv...

MALP

•8 years ago

5 Replies

Can PA effect the absorption of other vitamins?

Hi everyone, I've had Pernicious Anemia for approx ten years now, just turned 30 and experienced the same problems most of you had with getting a diagnosis....

Hi everyone, I've had Pernicious Anemia for approx ten years now, just turned 3...

miriamobrien

•8 years ago

14 Replies

help with bloods Please.

my first post hope some one can help with my blood test results. like many on these forums i get more good advice from fellow suffers. mine are thyroid, PA,...

my first post hope some one can help with my blood test results. like many on th...

daveD

•8 years ago

9 Replies

contacting your mp..

I asked my local mp to sign the petition but have not received a reply at all! anyone else been in touch with their mp?

I asked my local mp to sign the petition but have not received a reply at all! ...

jillc39

•8 years ago

1 Reply

Links with thyroid, T2diabetes, PCOS, crumbling bones, severe headaches

My mum died when she was 61, she'd had a hysterectomy in her 30s then in her 40s she developed intracranial hypertension and had to have a shunt put in to...

My mum died when she was 61, she'd had a hysterectomy in her 30s then in her 40s...

Andanj

•8 years ago

5 Replies

Private doctor any better?

does anyone here have any experience of going private with their PA? I'm wondering if you get listened to?

does anyone here have any experience of going private with their PA? I'm wonderi...

Andanj

•8 years ago

5 Replies

What to do?

Hey guys.... Can one of you well informed people answer this for me. I was chatting to my sister in law about my b12 injection, I was talking about spinning...

Hey guys.... Can one of you well informed people answer this for me. I was chatt...

Pixielula

•8 years ago

9 Replies

Storage of B12

Hi, I've just obtained some B12 solution from b12d.org, bottle says refrigerate, info sheet that came with it says no need to chill - what's best? I am also...

Hi, I've just obtained some B12 solution from b12d.org, bottle says refrigerate,...

MALP

•8 years ago

11 Replies

serum folate 4.4ug/L, serum vit B12 67ng/L

My daughter's (age 22) 1st blood test results came back with the above readings. (reason for blood test, tiredness, tingling of limbs, mouth ulcers, bumping...

My daughter's (age 22) 1st blood test results came back with the above readings....

shaz29

•8 years ago

10 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2016

What are everyone's symptoms

Treating the symptoms

Hit a brick wall

Another one with injections stopped

Chest Pain

Upset

B12 result is more than 2000 2 weeks after 6 injection loading dose, is this normal please?

Well that was a waste of time

Self Injecting?

Hypoxia

B12 deffiency 14 year old girl

Sublingual Methylcobalamin B12 tablets by Solgar

I need answers

Low Iron

PA being treated but other weird syptoms occurring

second post on help with bloods.

Moving Home & Finding New GP Surgery in Wiltshire.

Life line snatched away...

Methyl- and Adenosyl- cobalamin

Syringes and Needles

swelling mouth and lips

Anyone tried CBD Oil?

Can PA effect the absorption of other vitamins?

help with bloods Please.

contacting your mp..

Links with thyroid, T2diabetes, PCOS, crumbling bones, severe headaches

Private doctor any better?

What to do?

Storage of B12

serum folate 4.4ug/L, serum vit B12 67ng/L

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