Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for December 2015

How serious is b12 deficiency?

Couple of weeks ago I went to my gp after getting pins and needles and numbness symptoms down my left side and suggested to her this could possibly be thyroid...

Couple of weeks ago I went to my gp after getting pins and needles and numbness ...

•8 years ago

Could my grandson be b12 deficient

many thanks to this site for supporting me through my recent diagnosis and treatment. Your support has encouraged me to find out as much as I can from the...

many thanks to this site for supporting me through my recent diagnosis and treat...

•8 years ago

Methylcobalamin vs Hydroxocobalamin

Ive had a bit of a light bulb moment. My latest theory is that my body is not being able to use the hydroxocobalamin injections that I've been receiving from...

Ive had a bit of a light bulb moment. My latest theory is that my body is not b...

•8 years ago

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Me/cfs, lupus or P.A?

Hi, i wonder if anyone can help. ive had severe me/cfs for two years but recently received a high ana reading which suggested an autoimmune condition. My Dr...

Hi, i wonder if anyone can help. ive had severe me/cfs for two years but recentl...

•8 years ago

T-Shirts??

Hi All, I've put together a design for T-Shirts. I've offered them to the B12 Deficiency Support Group, but they weren't interested. I was thinking of selling...

Hi All, I've put together a design for T-Shirts. I've offered them to the B12 D...

•8 years ago

Results help please

Hi Can anyone help reading these results please i have put on thyroid uk site too re my Hashi now started Levo on 26th Nov.. these results were from 4th Nov...

Hi Can anyone help reading these results please i have put on thyroid uk site to...

•8 years ago

Shall I start taking 1000mcg lozenges, or should I give it a bit longer?

I posted before Christmas but I would like some further advice: a blood test showed I was very slightly low in B12; I'm not vegetarian, I eat a fairly normal...

I posted before Christmas but I would like some further advice: a blood test sho...

•8 years ago

GP Refusing Sufficient B12 Treatment? I Would Make a Small Claim in County Court!

Hi. Had to come on here as my blood is boiling (again) after the GF read out to me a few of the complaints on here regarding GPs failing to see that those...

Hi. Had to come on here as my blood is boiling (again) after the GF read out to...

•8 years ago

Endocrinologist

Saw GP today. I think I must've been his last patient as there were a lot of rolling of eyes and huffs. He doesn't have the best bedside manner at the best...

Saw GP today. I think I must've been his last patient as there were a lot of ro...

•8 years ago

A little help pls :)

Hi everyone, just wondering if someone could tell me if im on track. Diagnosised with low levels of b12 (130) had monthy injection for 6 monthly, changed to 3...

Hi everyone, just wondering if someone could tell me if im on track. Diagnosised...

•8 years ago

husbands blood results suggestive of PA?

My husband suffers from psoriasis, has had Hodgekins lymphoma in past with stem cell transplant and chemo, has underactive thyroid, sarcoidosis of the lungs,...

My husband suffers from psoriasis, has had Hodgekins lymphoma in past with stem ...

•8 years ago

Could This Be a Symptom of B12 Deficiency?

I've been self-injecting for a number of weeks now and also take transdermal B12. My symptoms all abated so I started cutting back on the injections to every...

I've been self-injecting for a number of weeks now and also take transdermal B12...

•8 years ago

Downton Abbey - Christmas Finale

Character says he has anaemia. Pernicious anaemia. And is resigned to his fate. Engendered some tweets (found by Google - am not a twitterer) out of...

Character says he has anaemia. Pernicious anaemia. And is resigned to his fate. ...

•8 years ago

Extreme case of doctors not listening

I came across this article today and just thought, 'Wow, the instances of doctors not listening to their patients is endemic.' I would be fascinated to learn...

I came across this article today and just thought, 'Wow, the instances of doctor...

•8 years ago

Test Results

I would be grateful for your thoughts. These are the results of a blood Dr asked for following my request for an early jab. I had been taking Jarrows...

I would be grateful for your thoughts. These are the results of a blood Dr aske...

•8 years ago

Elevated b12

Hi, I've recently been told i have 1380 of b12 and to come off my multi vitamins. I'm very paranoid since googling! And wondered your opinions? My dr wrote by...

Hi, I've recently been told i have 1380 of b12 and to come off my multi vitamins...

•8 years ago

B12 advice

I posted this in Thyroid Uk ( I'm newly diagnosed as having hypothyroidism). and was advised to post it here due to my B12 result. I was told by some...

I posted this in Thyroid Uk ( I'm newly diagnosed as having hypothyroidism). a...

•8 years ago

Groin vibration

I feel a slight vibration in the groin area, lasts about 2-3 seconds.

I feel a slight vibration in the groin area, lasts about 2-3 seconds.

•8 years ago

B12 injections best way to administer ?

Hi guys , I have to take b12 up to now I have been using 1 blue needle to draw and inject . However heard about glass shards so looking into ordering some...

Hi guys , I have to take b12 up to now I have been using 1 blue needle to draw a...

•8 years ago

B12 injections one or two needles?

Hi all Just be told I have very low b 12 and given a prescription for b12 it comes in glass ampules and I have to self administer . I was given some blue...

Hi all Just be told I have very low b 12 and given a prescription for b12 it co...

•8 years ago

Folic acid in flour

I read today that some researchers are considering calling for UK flour to be fortified with folic acid. I think this is to try to prevent neural tube...

I read today that some researchers are considering calling for UK flour to be fo...

•8 years ago

Problems with having loading doses over Christmas

Yesterday I had a letter from my GP saying I could have B12 injections and to ring up to arrange the loading doses, the nurse has said I can have one on...

Yesterday I had a letter from my GP saying I could have B12 injections and to ri...

•8 years ago

Been advised to also post on this forum re:B12

I have posted on here a couple of times to try and find out as much information as I can about a recent diagnosis of hypothyroidism. Since posting on here, I...

I have posted on here a couple of times to try and find out as much information ...

•8 years ago

Extreme anxiety

Does anyone have very bad anxiety after injections? The worse ladt maybe a day after injection but high level anxiety remains for the next 2 weeks. Thanks

Does anyone have very bad anxiety after injections? The worse ladt maybe a day a...

•8 years ago

Can anyone help?

Has anyone had low Albumin blood tests results when B12 deficient? I had some blood tests done as I've got a lot of symptoms of B12 deficiency, my B12 was low...

Has anyone had low Albumin blood tests results when B12 deficient? I had some b...

•8 years ago

Feeling too faint to function properly, seeing GP again tomorrow

I posted earlier in the week, that I've been diagnosed with low b12, and have been prescribed b12 tablets. But I've gone down hill so much in the past few...

I posted earlier in the week, that I've been diagnosed with low b12, and have be...

•8 years ago

Warning about treatment with supplements, sublinguals, patches, sprays

Apologies if this has already been posted - I thought it was interesting. Blog post from the Dutch B12 Deficiency Research group:...

Apologies if this has already been posted - I thought it was interesting. Blog...

•8 years ago

Cytamen

Well update is I have now been started on Cytamen injections one every month! Had first one yesterday so am crossing my fingers that I don't feel as awful as I...

Well update is I have now been started on Cytamen injections one every month! Ha...

•8 years ago

How long before vitamin b12 tablets start to work?

Last week I was posting in the Thyroid section of this site – my GP reduced my thryroxine, I started to feel unwell, so I had a blood test. The test results...

Last week I was posting in the Thyroid section of this site – my GP reduced my ...

•8 years ago

struggling to get treatment - B12 deficient?

Hi, I was hoping for a bit of advice as I believe I am defincient in B12 but my blood levels are deemed normal. My latest results are as follows: serum B12...

Hi, I was hoping for a bit of advice as I believe I am defincient in B12 but my ...

•8 years ago

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Pinned Posts

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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How Often do you feel you actually need your B12 injection?

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All things Pernicious Anaemia Society(76)

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