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Pernicious Anaemia Society

31,950 members • 23,089 posts

All posts for July 2017

Any help would be great

Hi I currently use the thyroid forum and after private blood tests have discovered I've got hashimotos I was then advised to have B12 tested has I suffer from...

Hi I currently use the thyroid forum and after private blood tests have discover...

2607trix

•7 years ago

4 Replies

What green needle to draw up?

Hi there. Using yellow needle to inject but want to draw up with green from medisafe. See 3 or 4. Can anyone tell me the code they us Cheer K

Hi there. Using yellow needle to inject but want to draw up with green from medi...

Nonameavailable

•7 years ago

5 Replies

Was my neurologist honest?

If a neurologist told you that they had a patient recently whose serum B12 was zero, implying that my 146 was not of interest, would you say they were honest?...

If a neurologist told you that they had a patient recently whose serum B12 was z...

GGourmet

•7 years ago

14 Replies

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Help

Hi I'm needing advice again . I'm exhausted and cannot concentrate at all . I feel floaty and not with it and have to keep reminding myself of what I'm doing I...

Hi I'm needing advice again . I'm exhausted and cannot concentrate at all . I fe...

Andypandy30

•7 years ago

5 Replies

Best time of day to have B12 injection

What is the best time of day to have your B12 injection or doesn't it make any difference. I have been surviving on the usual 3 monthly GP injections and now...

What is the best time of day to have your B12 injection or doesn't it make any d...

carer999

•7 years ago

4 Replies

Neuroligaical symptoms

This probably a stupid question but which symptoms are neurological? It scares me because I have some that are listed as nonreverseable.

This probably a stupid question but which symptoms are neurological? It scares ...

jlee0614

•7 years ago

17 Replies

Magnesium

Hello again. I wonder how many people on here take Magnesium. I have been type 1 on insulin for 40 years and hypothyroid for two and a half after a...

Hello again. I wonder how many people on here take Magnesium. I have been type 1...

Helsan

•7 years ago

5 Replies

PA and TN

Can PA be the cause of TN (Trigeminal Neuralgia)? Are there other people who suffer from both?

Can PA be the cause of TN (Trigeminal Neuralgia)? Are there other people who suf...

regulake21222

•7 years ago

1 Reply

Normal Ranges

These are my personal thoughts on the use of normal ranges and testing in general. I would not be in favour of changing normal ranges - normal has a particular...

These are my personal thoughts on the use of normal ranges and testing in genera...

Gambit62

Administrator•7 years ago

8 Replies

PA and HANGOVERS😱

I'm not a big drinker...I only drink wine a couple of days a week when myself and my hubby have a few days off...but I'm finding since I started the injections...

I'm not a big drinker...I only drink wine a couple of days a week when myself an...

Frances55

•7 years ago

2 Replies

Is this the right test?

I've been diagnosed with B12 (113) and folate (3.1) deficiency. I'm getting the loading injections at the moment. The doctor has given me a blood test form to...

I've been diagnosed with B12 (113) and folate (3.1) deficiency. I'm getting the ...

Orpheusss

•7 years ago

8 Replies

Body temperature gets so hot and sweaty.

Hi everyone would like to know do any of you sweat a lot .my sweats day and night are awful don't know if it's my b12 or I'm perimenopausel I'm 42 but sweats...

Hi everyone would like to know do any of you sweat a lot .my sweats day and nigh...

kyanah

•7 years ago

4 Replies

Neurological Consequences of PA

Hi All, News item on PAS website about neurological consequences of PA. I thought it might be of interest to all those on forum who struggle to get adequate...

Hi All, News item on PAS website about neurological consequences of PA. I tho...

Sleepybunny

•7 years ago

2 Replies

How long to wait for Active B12 test.

Hi Everyone, I have been posting here since March when I found out I have Iron deficiency anaemia and Vitamin D deficiency these results are improving with...

Hi Everyone, I have been posting here since March when I found out I have Iron d...

Cn13

•7 years ago

4 Replies

Help needed please

Hi I have iron deficiency and folate deficiency and pernicious anaemia, also Hashimotos. I have been given just one B12 injection and this was given at start...

Hi I have iron deficiency and folate deficiency and pernicious anaemia, also Has...

Lily-789

•7 years ago

7 Replies

What was your b12 level that led to treatment?

5 years ago my level was 350 but it was possibly falsely elevated due to taking L-methylfolate (deplin) per the pharmacy provided literature. In April my...

5 years ago my level was 350 but it was possibly falsely elevated due to taking ...

Ohhello

•7 years ago

8 Replies

Is there anyone who really feels benefits of b12 injections?

Hi, I don't usually post on any sites but after recently being told I have pa have read just about every horror story on line going. I have just had loading...

Hi, I don't usually post on any sites but after recently being told I have pa ha...

Av42

•7 years ago

38 Replies

B12 levels and absorption question

If my B12 serum levels are within range or high, due to taking high dosage B12 sublinguals, will MMA and HCY Homocysteine tests reveal an absorption problem?...

If my B12 serum levels are within range or high, due to taking high dosage B12 s...

Sasha1

•7 years ago

4 Replies

Pernicious Aneamia

Lack of IF Your body also needs a type of protein called intrinsic factor (IF) to absorb vitamin B-12. IF is a protein produced by cells in the stomach. After...

Lack of IF Your body also needs a type of protein called intrinsic factor (IF) t...

beatrix2010

•7 years ago

1 Reply

Am I crazy or do I need closer timed shots?

New here! I'm 36 and was diagnosed with Pernicious Anemia 2 years ago. (Thought I had narcolepsy! But asked for a blood test and found out I had almost no...

New here! I'm 36 and was diagnosed with Pernicious Anemia 2 years ago. (Thought...

Clover81

•7 years ago

16 Replies

Do people find numbness improves with rest? (or worsens with use of hands?)

Hi, I'm wondering whether people who suffer from paresthesia as part of their symptoms find it improves with rest, or gets worse if they do not rest? Numbness...

Hi, I'm wondering whether people who suffer from paresthesia as part of their s...

GavinUK

•7 years ago

13 Replies

Heart rate increase before injection

I have b12 injections every 3 months. I just have noticed that roughly between a month to 1 week before my injection my resting heart rate increases from an...

I have b12 injections every 3 months. I just have noticed that roughly between a...

laralara

•7 years ago

10 Replies

Opportunity to share experience of forums like this

One of our members Hidden , is involved with organising a panel at a GP conference in October this year. The title of the panel is 'What kind of rubbish are...

One of our members Hidden , is involved with organising a panel at a GP conferen...

Gambit62

Administrator•7 years ago

8 Replies

Newish 3 mths on B12 still tingling and shattered.

ANTINUCLEAR ABS (PHADIA) Anti-nuclear IgG antibody level 0.2 [0.0 - 0.69] CTDC ~ Reference range (Ratio): Negative: less than 0.7 Equivocal: 0.7 - 1.0 Low...

ANTINUCLEAR ABS (PHADIA) Anti-nuclear IgG antibody level 0.2 [0.0 - 0.69] CTDC ...

shal61

•7 years ago

19 Replies

Officially undiagnosed, awaiting insurance and in a bad way pls help..

Hi, I'm female 39 yrs old and very unwell. I can not go to a doctors at this point as I live abroad and need insurance which is currently processing. I have...

Hi, I'm female 39 yrs old and very unwell. I can not go to a doctors at this poi...

0SK780

•7 years ago

7 Replies

Do I have vitamin B12 deficiency?

Hi everybody I have been referred from thyroid uk member to post my blood results here to get an opinion on my vitamins levels. Please find below. I would...

Hi everybody I have been referred from thyroid uk member to post my blood result...

epep

•7 years ago

3 Replies

Feeling really low and clumsy,sorry for the delay

Hi all,it's been a long time for me on here.I've been in my new job for almost a year,I'm starting to feel my vitamin b12 has dropped dramatically. Although...

Hi all,it's been a long time for me on here.I've been in my new job for almost a...

Nicky-Richards

•7 years ago

7 Replies

Good news on numbers!

Hi Everyone! I just had to post to let you know all my numbers are continuing to improve. My biggest issue was hemoglobin and it's now up to a 14. My cells...

Hi Everyone! I just had to post to let you know all my numbers are continuing t...

CH52

•7 years ago

9 Replies

How long does it take for B12 injections to work

Hello all, I finished a course of 6 injections 4 weeks ago and do not feel any better. The nurse at our practice said they would take about 3 to 4 weeks to...

Hello all, I finished a course of 6 injections 4 weeks ago and do not feel any b...

MKitty

•7 years ago

35 Replies

First time poster on this forum concern over my low B12 and Folate.

Hi, I posted my blood results on the ThyroidUK forum and they advised getting advice from here. I have an underactive thyroid and taking 215mg of...

Hi, I posted my blood results on the ThyroidUK forum and they advised getting ad...

nigelm

•7 years ago

2 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2017

Any help would be great

What green needle to draw up?

Was my neurologist honest?

Help

Best time of day to have B12 injection

Neuroligaical symptoms

Magnesium

PA and TN

Normal Ranges

PA and HANGOVERS😱

Is this the right test?

Body temperature gets so hot and sweaty.

Neurological Consequences of PA

How long to wait for Active B12 test.

Help needed please

What was your b12 level that led to treatment?

Is there anyone who really feels benefits of b12 injections?

B12 levels and absorption question

Pernicious Aneamia

Am I crazy or do I need closer timed shots?

Do people find numbness improves with rest? (or worsens with use of hands?)

Heart rate increase before injection

Opportunity to share experience of forums like this

Newish 3 mths on B12 still tingling and shattered.

Officially undiagnosed, awaiting insurance and in a bad way pls help..

Do I have vitamin B12 deficiency?

Feeling really low and clumsy,sorry for the delay

Good news on numbers!

How long does it take for B12 injections to work

First time poster on this forum concern over my low B12 and Folate.

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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