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Pernicious Anaemia Society

31,908 members • 23,036 posts

All posts for March 2013

Hypothyroid with severe vertigo (possible B12 deficiency?)

Hi everyone, I’ve jumped over from thyroid community to ask about a good B12 product to take. My b12 blood test was 547 ng/L (191-663). I am possibly...

Hi everyone, I’ve jumped over from thyroid community to ask about a good B12 pr...

BexyLS

•11 years ago

13 Replies

what to do ???

i was recently recommended to have a loading up dose as my b12 level was low and i was told i have p a but after the first injection i had every side effect...

i was recently recommended to have a loading up dose as my b12 level was low and...

frankie483

•11 years ago

1 Reply

Relationship between long standing PA symptoms and hydrocephalus

I was repeatedly misdiagnosed and then finally diagnosed with PA at the end of November 2012 after 2 rather difficult years with symptoms. B12 level at 109....

I was repeatedly misdiagnosed and then finally diagnosed with PA at the end of N...

helihottie

•11 years ago

1 Reply

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I wanted to post a bit about myself since I did not when I asked my earlier question : ) So here goes .......

When I was diagnosed 3 years ago my B12 level was 85 I was getting IM shots daily for 5 days, then weekly for 5 months and then once every 3 weeks which is...

When I was diagnosed 3 years ago my B12 level was 85 I was getting IM shots dail...

mommer

•11 years ago

5 Replies

I have PA and I don't know how much B12 I should be taking? Last blood test, my level was 300. It has been lower in the past. Thank you.

aprilfool1989

•11 years ago

2 Replies

I was diagnosed with B12 deficiency in November. My level was 88.

I had the boosting injections over the 2 weeks and am due my next injection now, 3 months later. I feel really poorly again now. Should I have had a blood test...

I had the boosting injections over the 2 weeks and am due my next injection now,...

peteteds

•11 years ago

4 Replies

PA yes or no? So confused!!

Hello. My B 12 was 85 when diagnosed deficient 3 yrs ago. 2yrs ago antiparietal cell antibody tests positive. IF tests negative. Some Drs say yes to PA some...

Hello. My B 12 was 85 when diagnosed deficient 3 yrs ago. 2yrs ago antiparietal ...

mommer

•11 years ago

3 Replies

How can I get my doctor to give me B12 injections more frequently?

About five weeks ago after much cajoling I got my Doctor to agree to giving me B12 Injections. He was very reculant as my levels where borderline but all my...

About five weeks ago after much cajoling I got my Doctor to agree to giving me B...

Tangles

•11 years ago

6 Replies

Borderline results?

Hi, I have recently had a pinprick bloodtest for b12 and iron, and was only just within the range. I was diagnosed with post viral fatigue syndrome/ME 14 years...

Hi, I have recently had a pinprick bloodtest for b12 and iron, and was only just...

Jo5454

•11 years ago

3 Replies

Where can I find up to date medical articles/info/research about which treatments are best and their frequency?

I am newly diagnosed (although had a loading dose of B12 injections at about 23 but then was told I didn't require any more) I'm 31 now and having injections...

I am newly diagnosed (although had a loading dose of B12 injections at about 23 ...

lisa3vans

•11 years ago

2 Replies

B12 Injections

I have Pa which was discovered in October 2012, I had my loading doses but since then have not had any injections, some people say they need them every 3 mths,...

I have Pa which was discovered in October 2012, I had my loading doses but since...

mummytina

•11 years ago

1 Reply

Can a very high B12 blood test result also mean you are deficient somehow?

It does sound contradictory I know. But my husband has so many symptoms that indicate he's B12 deficient - peripheral neuropathy, orthostatic tremor, wide...

It does sound contradictory I know. But my husband has so many symptoms that in...

queenie123

•11 years ago

68 Replies

How long can you go without B12 injection?

I am supposed to have my B12 injection every 3 months. I was supposed to get my last injection in January but not had chance to get to the doctors. I have an...

I am supposed to have my B12 injection every 3 months. I was supposed to get my ...

suzi33

•11 years ago

4 Replies

my doctor refuses to believe that the blood tests can be a false negetive. how do you suggest my convencing of this.thank you

tracyxyz

•11 years ago

1 Reply

Intrinsic Factor

I don't know if I've asked this before but can anyone tell me in lay mens terms was is an intrinsic factor, what does it do, do we need it, what happens if you...

I don't know if I've asked this before but can anyone tell me in lay mens terms ...

mummytina

•11 years ago

2 Replies

On B12 inj 8 weekly but worried I might have MS

Have short bowel syndrome and have had the terminal ileum which manufactures B12 removed. Also hypothyroid and osteoporosis . At the moment I am in a cast for...

Have short bowel syndrome and have had the terminal ileum which manufactures B12...

cezzie5

•11 years ago

2 Replies

How high should I aim to get my blood levels?

I was diagnosed with PA 3 weeks ago and have had my 6 B12 loading injections. My blood results with reference ranges at diagnosis were: B12: 99 ng/l...

I was diagnosed with PA 3 weeks ago and have had my 6 B12 loading injections. ...

Muffintop

•11 years ago

1 Reply

High B12 & Sublingual question... OK?

Hi.... I posted here a few months ago when I thought my symptoms MIGHT be caused by a b12 deficiency but I was wrong ~ after many tests, examinations, scans...

Hi.... I posted here a few months ago when I thought my symptoms MIGHT be cau...

CazzyP

•11 years ago

5 Replies

15 yr old daughter is B12 deficient - what should I be asking our GP to do?

Hi everyone, my daughter had a series of blood tests recently as she was getting unexplained pains in her thighs. Her B12 came back as 169 so they did a...

Hi everyone, my daughter had a series of blood tests recently as she was getting...

olisue

•11 years ago

3 Replies

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2013

Hypothyroid with severe vertigo (possible B12 deficiency?)

what to do ???

Relationship between long standing PA symptoms and hydrocephalus

I wanted to post a bit about myself since I did not when I asked my earlier question : ) So here goes .......

I have PA and I don't know how much B12 I should be taking? Last blood test, my level was 300. It has been lower in the past. Thank you.

I was diagnosed with B12 deficiency in November. My level was 88.

PA yes or no? So confused!!

How can I get my doctor to give me B12 injections more frequently?

Borderline results?

Where can I find up to date medical articles/info/research about which treatments are best and their frequency?

B12 Injections

Can a very high B12 blood test result also mean you are deficient somehow?

How long can you go without B12 injection?

my doctor refuses to believe that the blood tests can be a false negetive. how do you suggest my convencing of this.thank you

Intrinsic Factor

On B12 inj 8 weekly but worried I might have MS

How high should I aim to get my blood levels?

High B12 & Sublingual question... OK?

15 yr old daughter is B12 deficient - what should I be asking our GP to do?

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Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

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