Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,915 members • 23,044 posts

All posts for March 2015

low blood sugar

I have Pernicious Anaemia and have been struggling with symptoms returning earlier and earlier. I am now at 8 week intervals. I asked to see a haematologist....

I have Pernicious Anaemia and have been struggling with symptoms returning earli...

•9 years ago

B12 and cancer treatments

Can anyone advise me as to whether treatments given for cancer and cause B12 deficiency? I had breastfeeding cancer about 6 years ago and had chemotherapy and...

Can anyone advise me as to whether treatments given for cancer and cause B12 def...

•9 years ago

Weird feeling

I get a weird feeling in the back of my head. Some days are worse then other's' today's not to bad, Its' there but not as bad as yesterday It's hard to explain...

I get a weird feeling in the back of my head. Some days are worse then other's' ...

•9 years ago

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B12 injections

Does anyone know where I can get B12 injections to do myself? I think there may be somewhere in the UK but a very reliable and safe source abroad also. And...

Does anyone know where I can get B12 injections to do myself? I think there may...

•9 years ago

New to PA and have lots of questions

Just been diagnosed about a month ago. Doctor has given me one injection and booked me in for May and then wants to retest bloods in July. My symptoms seem...

Just been diagnosed about a month ago. Doctor has given me one injection and boo...

•9 years ago

Acne, low stomach acid and B12

For the longest of times I've had issues with my skin, from the age of at least 16 I broke out with very bad cystic acne then it continued like that for many...

For the longest of times I've had issues with my skin, from the age of at least ...

•9 years ago

Goldpharma??

I see most people here use Goldpharma to buy their hydroxocobalamin b12. I ordered the 10x1ml vials because of all the good recommendations from people one guy...

I see most people here use Goldpharma to buy their hydroxocobalamin b12. I order...

•9 years ago

Just trying something...

To see if this direct link to pdf will work cmim.org/pdf2014/funcion.php?f...201409VitaminB12deficiency.pdf

To see if this direct link to pdf will work cmim.org/pdf2014/funcion.php?f...20...

•9 years ago

weak arm

does anyone else find either of their arms goes very weak and feels like you've been laying on it till it goes dead? i lose feeling in my right arm, wrist and...

does anyone else find either of their arms goes very weak and feels like you've ...

•9 years ago

B12 Deficiency and PA have exactly the same symptoms and effects

According to one of the labs who do one of the tests for B12 deficiency privately - there is absolutely no difference between PA and B12 deficiency apart from...

According to one of the labs who do one of the tests for B12 deficiency privatel...

•9 years ago

Is there a link between PA and rheumatoid arthritis?

Hello all. I was diagnosed with pernicious anemia last July and am grateful that I have a sympathetic gp who is presently prescribing me 3 weekly injections...

Hello all. I was diagnosed with pernicious anemia last July and am grateful tha...

•9 years ago

Hair loss

I'm lucky and have a very good GP. I have 8 weekly injections and thrice daily tablet supplements. However, I was very ill in January with the 'flu and was...

I'm lucky and have a very good GP. I have 8 weekly injections and thrice daily ...

•9 years ago

Newbie

Hi There My friends on Thyroid Uk Healthunlocked have pointed me in this direction as my B12 is low. Vitamin B12, 244...

Hi There My friends on Thyroid Uk Healthunlocked have pointed me in this direct...

•9 years ago

Cellfood

Anyone used this? I bought a bottle from Amazon when rummaging around supplements - I've gone from never taking any to a selection! thought looked...

Anyone used this? I bought a bottle from Amazon when rummaging around supplemen...

•9 years ago

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Payment!

My Drs surgery used to print test results for me, recently they refused and stated they needed a Dr's permission and then they would email. This week I have...

My Drs surgery used to print test results for me, recently they refused and stat...

•9 years ago

Blood test

Hi all Hoping you can help with thyroid results Tsh 0.12 mu/l (0.35 - 5.5) low T4 21.2 pmol/l (10.0 - 19.8) high Not feeling too good also have PA ANDgoing...

Hi all Hoping you can help with thyroid results Tsh 0.12 mu/l (0.35 - 5.5) low ...

•9 years ago

my blood test results

•9 years ago

Feel the cold?

Would you know if PA sufferers feel the cold more than normal? Especially hands?

Would you know if PA sufferers feel the cold more than normal? Especially hands?...

•9 years ago

Gluten free journey

For those who have not read my previous posts here's a synopsis of my story and where I'm at. Back in sept last year I started to get pins and needles in my...

For those who have not read my previous posts here's a synopsis of my story and ...

•9 years ago

Immunology test results

I would really appreciate it if someone can interpret these results for me.I was told by the nurse that they were "just fine"today. My B12 was 174, 6 weeks...

I would really appreciate it if someone can interpret these results for me.I was...

•9 years ago

Intrinsic Factor Antibody Test - What a Mess!

Okay, so we already know that the IFA test is only 50% reliable. That means it will only pick up 50% of people who have the antibodies. Anybody else can go...

Okay, so we already know that the IFA test is only 50% reliable. That means it w...

•9 years ago

Stomach Acid, B12 and Thyroid

Polaris posted an interesting link the other day which is getting missed. The article concerned was discussing stomach acid, b vitamins and thyroid. It was...

Polaris posted an interesting link the other day which is getting missed. The a...

•9 years ago

B12 Deficient Type 2 Diabetic Don't feel benefit from injections nearly 2 years on

Hi, I wonder if anyone can give me some basic info/advice? I was diagnosed with B12 deficiency in June 2013 when I had a serum B12 test . I had mentioned to...

Hi, I wonder if anyone can give me some basic info/advice? I was diagnosed with ...

•9 years ago

B12 blood test

I am about to have a further blood test to assess my B12 levels. Last time I had it tested I had just had quite a large lunch, but I have recently read that...

I am about to have a further blood test to assess my B12 levels. Last time I had...

•9 years ago

Vitamin B12 analogs in soy not absorbed and increase the body’s requirement for B12.

I came across this on the Weston Price website. Apologies if posted before. http://www.westonaprice.org/soy-alert/ : * Vitamin B12 analogs in soy are not...

I came across this on the Weston Price website. Apologies if posted before. ht...

•9 years ago

My anxiety is awful at the moment, could this be because of b12?

I'm due a maintenance injection in 2 weeks and I feel like I really need it because I've just been exhausted recently and feel a bit run down. I've also been...

I'm due a maintenance injection in 2 weeks and I feel like I really need it beca...

•9 years ago

sublingual lozenges/tablets

How is it that the sublingual lozenges/tablets work for some and not others, I was reading some study which made me stop my b12 injections as of last year due...

How is it that the sublingual lozenges/tablets work for some and not others, I w...

•9 years ago

Lost a tooth

My story is on the old PAS web site. I've basically been doing fine for the past 5 or 6 years. I handled the transition from UK (Hydroxo-B12) injections...

My story is on the old PAS web site. I've basically been doing fine for the pas...

•9 years ago

Upset!

I posted recently that I returned to my Dr to say that my first B12 maintenance injection was due in April but I was still coughing and had some other symptoms...

I posted recently that I returned to my Dr to say that my first B12 maintenance ...

•9 years ago

Advice please?

Hi I'm new here but would like a sanity check or advice if possible. I was diagnosed with B12 deficiency 5 years ago (the same week I was diagnosed with...

Hi I'm new here but would like a sanity check or advice if possible. I was diag...

•9 years ago

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Pinned Posts

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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How Often do you feel you actually need your B12 injection?

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