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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for March 2022

PA and pain

Hi everyone. Sorry haven’t been in in awhile. My PA isn’t getting any better. My numbers are still for vitamin B-12. I’m in do much pain. My feet hurt my...

Hi everyone. Sorry haven’t been in in awhile. My PA isn’t getting any better. M...

Mono21

•2 years ago

8 Replies

IM injections

For those that self injecting IM in the thigh, do you grab/ pinch the muscle or do you leave it “flat” when you inject?

For those that self injecting IM in the thigh, do you grab/ pinch the muscle or ...

lambuth_eagle

•2 years ago

11 Replies

IFA & PCA blood tests

Hi, I’ve been booked for bloods for intrinsic factor and parietal cells antibodies, the GP said they are antibodies so no need to stop B12 before hand. I’m...

Hi, I’ve been booked for bloods for intrinsic factor and parietal cells antibodi...

ATS1304

•2 years ago

12 Replies

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B12 Deficiency and Arthritis

My mother has suffered with arthritis in her knees for a number of years. In December 2021 she started getting pain in her feet (says it's like walking on...

My mother has suffered with arthritis in her knees for a number of years. In De...

Baz44

•2 years ago

6 Replies

Changing result for intrinsic factor antibody blood test

Why does Intrinsic factor test result change? Does anybody know what makes the abs come and go? I had negative then + result then negative again the day after...

Why does Intrinsic factor test result change? Does anybody know what makes the a...

Aumshantii

•2 years ago

24 Replies

Ferritin Drop

Hi, I am new here so not entirely sure anyone can help. In 3 months my ferritin dropped from high over range 179 to within range 118 so a total of 61 points....

Hi, I am new here so not entirely sure anyone can help. In 3 months my ferritin...

BetterDayzAhead

•2 years ago

14 Replies

Markedly increased MMA

Hello, I posted a few days ago regarding waiting for my MMA results. I received it this morning. It's 1.09 umol/L range 0.10-0.42 'Markedly increased MMA...

Hello, I posted a few days ago regarding waiting for my MMA results. I received ...

LWL24

•2 years ago

41 Replies

Help needed with app

Can anyone help please ! Having to go private for my partner, informed surgery and they have sent email confirming this, but it wont download saying I need a...

Can anyone help please ! Having to go private for my partner, informed surgery a...

Hidden

•2 years ago

37 Replies

Is Methylcobalamin necessary?

I believe I have PA with severe neurological symptoms. I have heard Methylcobalamin is the best for neurological symptoms? I hate it. It makes me anxious and...

I believe I have PA with severe neurological symptoms. I have heard Methylcobala...

38yroldmale

•2 years ago

15 Replies

They Sold It Anyway for 40 Years !

Drugmakers Knew Zantac Caused Cancer But Sold It Anyway for 40 Years😱...

Polaris

•2 years ago

18 Replies

Active VitaminB12 test ( £38.99) Active B12 test plus folate and Intrinsic Factor Antibodies £69.99

Just noticed above tests available through www.onlinedoctor.superdrug.com.

wedgewood

•2 years ago

4 Replies

Tia with pa

Hi friends I was curious if anyone else has had experience of white spots on mri scan showing hyperintensisities with diagnosed PA. They think it’s TIA’s but...

Hi friends I was curious if anyone else has had experience of white spots on mr...

Bloominflower

•2 years ago

11 Replies

News letter

It seems The Pernicious Anaemua Society are doing a survey. Great I was keen to help. Only if you've got a diagnosis it seems I read on. I rang the helpline...

It seems The Pernicious Anaemua Society are doing a survey. Great I was keen to...

Nackapan

•2 years ago

7 Replies

Help with blood results for my 10 year old daughter please.

My daughter 10 has had ongoing stomach pain for 16 months now. It started as an intermittent pain happening every 6-8 weeks but fast forward to now it’s daily...

My daughter 10 has had ongoing stomach pain for 16 months now. It started as an ...

Worriedmum3

•2 years ago

45 Replies

Increased headaches after b12 injections?

My spouse started b12 injections week ago, and taken every day to address PA. They also suffer from chronic, persistent head pain (several years, now). It’s...

My spouse started b12 injections week ago, and taken every day to address PA. Th...

CanaryHound

•2 years ago

4 Replies

PAS Newsletter Available & A Question

PAS has issued a new newsletter: https://pernicious-anaemia-society.us8.list-manage.com/track/click?u=69ba73620e4221e32b449418b&id=389c9703aa&e=354e5b791b I...

PAS has issued a new newsletter: https://pernicious-anaemia-society.us8.list-ma...

RoseFlowerDew

•2 years ago

3 Replies

How MTHFR mutation can affect cyanocobalamin injection?

Does MTHFR mutation affects enzymes related to cyanocobalamin processing after injection. What ethnicity have more MTHFR mutation? Is there any other mutation...

Does MTHFR mutation affects enzymes related to cyanocobalamin processing after i...

Hamayeshguy

•2 years ago

6 Replies

Vitamin D

I have just read a book called Vitamin K2 and the Calcium Paradox by Kate Rheaume Bleau. If you are taking Vitamin D or Calcium this book certainly contained...

I have just read a book called Vitamin K2 and the Calcium Paradox by Kate Rheaum...

Whatnow1

•2 years ago

7 Replies

B12 injections Vs tablets

I’ve been prescribed 3mths tablet for low B12 (which I also had 3 years ago). At what level or reading should you be offered injections rather than tablets...

I’ve been prescribed 3mths tablet for low B12 (which I also had 3 years ago). At...

Mead15

•2 years ago

4 Replies

Timeline 4 injection results

Just a quick question. How long does it typically take for you to feel the benefit of an injection? 24 hours? 48 hours? Also do you ever experience an...

Just a quick question. How long does it typically take for you to feel the benef...

Ctadds1

•2 years ago

7 Replies

SACD

Well what can I say ! My partner who was diagnosed with B12 deficiency 4/5 years ago told to take multi vitamins .. change to b12 tablets. December 2021...

Well what can I say ! My partner who was diagnosed with B12 deficiency 4/5 years...

Hidden

•2 years ago

12 Replies

How to know I'm not with MTHFR mutation person?

In case if being MTHFR mutation person is that possible still inject cyanocobalamin and symptoms get improved or we need inject cyanocobalamin? Obviously folic...

In case if being MTHFR mutation person is that possible still inject cyanocobala...

Hamayeshguy

•2 years ago

4 Replies

Can anyone help? MMA

Hi, I'm wondering if anyone can help? A lot of background first....sorry! I had private blood tests with Thriva in Feb, results were: Total B12 305 pmol/L...

Hi, I'm wondering if anyone can help? A lot of background first....sorry! I had ...

LWL24

•2 years ago

4 Replies

Lipsominal B12

Does anyone have experience of taking lipsominal methylcobalamin. According to the hype,it is more bio available to cells. I think it is in a spray. It is...

Does anyone have experience of taking lipsominal methylcobalamin. According to t...

Gatcombe10

•2 years ago

1 Reply

Efficiency of b12 injections

I’ve been receiving b12 shot loading doses and have noticed continuing improvements but I’ve noticed by urine has turned a pinkish or tea colored hue. From...

I’ve been receiving b12 shot loading doses and have noticed continuing improveme...

Otterknow

•2 years ago

3 Replies

Supplements

Reviewing what I take. I mainly go by blood results. Vit d dropped to 52 . I asked the Gp about thus as in the past have had prescribed loading doses. I was...

Reviewing what I take. I mainly go by blood results. Vit d dropped to 52 . I as...

Nackapan

•2 years ago

17 Replies

Please help After SI I feel itching at the site of injection?

After injection Subcutaneous in my stomach two finger under belly button I feel itching at the site if injection almost twenty hours later? Is that infection?...

After injection Subcutaneous in my stomach two finger under belly button I feel ...

Hamayeshguy

•2 years ago

7 Replies

Need Help

I’m 41 year old male with a Parkinson’s dx. Dx 3.5 years ago. I think I have PD and/or PA. Positive DatScan (PD test) but was on a massive dose of Celexa that...

I’m 41 year old male with a Parkinson’s dx. Dx 3.5 years ago. I think I have PD ...

38yroldmale

•2 years ago

7 Replies

severe b12 deficiency?

Hi all, In sept 2020 after suffering with deteriorating blurred eyesight for several months i took a trip to my local opticians. Expecting to be prescribed...

Hi all, In sept 2020 after suffering with deteriorating blurred eyesight for se...

klopptinho

•2 years ago

11 Replies

waiting on my supplies

so have ordered needles syringes alco swabs, and star player B12 ampoules. Just waiting on them arriving. How often should I inject, ordered 2 packs of 10...

so have ordered needles syringes alco swabs, and star player B12 ampoules. Just...

Polo22

•2 years ago

3 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2022

PA and pain

IM injections

IFA & PCA blood tests

B12 Deficiency and Arthritis

Changing result for intrinsic factor antibody blood test

Ferritin Drop

Markedly increased MMA

Help needed with app

Is Methylcobalamin necessary?

They Sold It Anyway for 40 Years !

Active VitaminB12 test ( £38.99) Active B12 test plus folate and Intrinsic Factor Antibodies £69.99

Tia with pa

News letter

Help with blood results for my 10 year old daughter please.

Increased headaches after b12 injections?

PAS Newsletter Available & A Question

How MTHFR mutation can affect cyanocobalamin injection?

Vitamin D

B12 injections Vs tablets

Timeline 4 injection results

SACD

How to know I'm not with MTHFR mutation person?

Can anyone help? MMA

Lipsominal B12

Efficiency of b12 injections

Supplements

Please help After SI I feel itching at the site of injection?

Need Help

severe b12 deficiency?

waiting on my supplies

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive