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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for February 2017

I can't get the treatment I clearly urgently need

I was diagnosed with low b12 in December 2016 following many weeks of barely been able to move,severe needle like pain in arms , feet and stomach and...

I was diagnosed with low b12 in December 2016 following many weeks of barely bee...

Active57

•7 years ago

6 Replies

Folic accid deficiency

Is it safe to take folic acid with 3 monthly b12 injections. I have awful pain in my buttocks and legs and though folic acid might help. Can anyone advise if I...

Is it safe to take folic acid with 3 monthly b12 injections. I have awful pain i...

babs67

•7 years ago

3 Replies

Advice for NHS Hospitals - Irreducible Lump/Cyst/Hernia

Hello This is not B12 related (I have PA and Hypothyroidism) have recently been diagnosed with an Irreducible Lump/Cyst/Hernia above my belly button. The...

Hello This is not B12 related (I have PA and Hypothyroidism) have recently been ...

SB75

•7 years ago

3 Replies

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One for the Functionals :

Had a strange little conversation with nurse yesterday: me: How many patients have you got with functional B12 deficiency? nurse, bit cagey: Two or three (me...

Had a strange little conversation with nurse yesterday: me: How many patients h...

Cherylclaire

Forum Support•7 years ago

26 Replies

The Times today

Dr Mark Porter has written a column on b12 deficiency. I have emailed him to ask if he could take it further and look into how difficult it is to get the b12...

Dr Mark Porter has written a column on b12 deficiency. I have emailed him to as...

jillc39

•7 years ago

21 Replies

65 year old with systemic mastocytosis & high b12

65 year old with systemic mastocytosis Hi I am 65, I was diagnosed with systemic mastcytosis in 1998, this month was first time my B12 was high, I did start...

65 year old with systemic mastocytosis Hi I am 65, I was diagnosed with systemic...

Hidden

•7 years ago

7 Replies

folic acid requirements help

Hi, I am still injecting twice/3times a week since Christmas. I am taking 1000mcg folic acid daily. I don't think this is enough but don't want to take too...

Hi, I am still injecting twice/3times a week since Christmas. I am taking 1000mc...

Justified

•7 years ago

16 Replies

Addisons anyone?

Hello All, I haven't posted for a while as I've been so unwell. Some of you may recall that I was having really bad gastric symptoms which I put down to my PA....

Hello All, I haven't posted for a while as I've been so unwell. Some of you may ...

expatkerry

•7 years ago

5 Replies

B12 higher than before and folic acid lower?

Hi everyone, as I said before my B12 went from 189 ng/L in July to 283 ng/L in January, without taking any supplements. Due to my psychological and...

Hi everyone, as I said before my B12 went from 189 ng/L in July to 283 ng/L in J...

Laura221

•7 years ago

8 Replies

Methyl cobalamin trial

I have used methyl cobalamin for three weeks now: one injection of methyl on a Sunday followed by daily injections of hydroxo cobalamin. I was hoping the...

I have used methyl cobalamin for three weeks now: one injection of methyl on a ...

Ashmeadskernel

•7 years ago

7 Replies

After the appointment with the neurologist!!!!

Hello everybody, Just back from the appointment with the neurologist, who confirmed that everything is in my mind! and he can't argue that I am not...

Hello everybody, Just back from the appointment with the neurologist, who confir...

VickyB12

•7 years ago

31 Replies

Buying b12 to inject online

Hi everyone Can anyone recommend a reliable supplier to buy this online? So many out there and worried might not get authentic stuff? Thank you Sharon

Hi everyone Can anyone recommend a reliable supplier to buy this online? So many...

Sharon75

•7 years ago

11 Replies

more joy

I had an appointment with my own gp 10.30am this morning but I was feeling so bad I could not go, my daughter went and I gave her my results from BH back to...

I had an appointment with my own gp 10.30am this morning but I was feeling so ba...

Lucieb01

•7 years ago

2 Replies

Reducing B12 injections to 2 per week

My 20 year old daughter who is a uni student has been having B12 injections alternate day since the end of October. We had to battle to get these despite B12...

My 20 year old daughter who is a uni student has been having B12 injections alte...

Me2801

•7 years ago

9 Replies

pleas please give me advice

I have begged my horrible gp to make another referral to a neurologist I have heard is most interested in b12 deficiency and peripheral neuropathy. Appointment...

I have begged my horrible gp to make another referral to a neurologist I have he...

jillc39

•7 years ago

3 Replies

Does injectable b12 go off?

Hey guys, I have been self injecting for a while now with no problems, I inject every two weeks. Last Thursday I injected in the morning as usual, no problems...

Hey guys, I have been self injecting for a while now with no problems, I inject ...

Pixielula

•7 years ago

5 Replies

High Active B12 Result

Hi Everyone! I was referred here by the Thyroid group for an odd Active B12 result. Long story short, the lab didn't say anything about stopping my...

Hi Everyone! I was referred here by the Thyroid group for an odd Active B12 res...

Flowergirl29

•7 years ago

4 Replies

Update on decision to self inject

Firstly, thanks to all replies to my last post about 7 days ago regards Gastro appointment. I have started injecting every other day, and can feel a definite...

Firstly, thanks to all replies to my last post about 7 days ago regards Gastro a...

Barry1955

•7 years ago

8 Replies

B 12 up, but still not better.

My b 12 level went from 168 to 475 after injections My question is why do i till like I am on fire at night. Now I am not sleeping. Doctor prescribed...

My b 12 level went from 168 to 475 after injections My question is why do i til...

Sweetmama27

•7 years ago

3 Replies

B12 deficiency symptoms and low stomach acid?

I've been supplementing with B12 spray and Jarrow 5000 mcg sub lingual tablets for around 10 months now (along with Thorne B complex). This has cleared up the...

I've been supplementing with B12 spray and Jarrow 5000 mcg sub lingual tablets f...

seamail57

•7 years ago

13 Replies

Liver enzymes back up and ferritin dropping. Help

So I'm going to try to keep this short. My first question is has anyone else had elevated liver enzymes? I'm skinny, don't ever drink alcohol or take pills...

So I'm going to try to keep this short. My first question is has anyone else had...

Ladyawkward

•7 years ago

3 Replies

B12 & B9. Loading dose not taken effect yet.

To start, I have been having strange symptoms since I was 16 (now 21). Things such as 'funny turns', gallbladder issues, fatigue, recurrent protein in the...

To start, I have been having strange symptoms since I was 16 (now 21). Things su...

Emsx

•7 years ago

11 Replies

Vitamin/mineral/complete blood count results advice please

Hi I am new I am a 27 year old female and I have been asked to come here from Thyroid UK. I have these symptoms - fatigue, muscle cramps, dry skin,...

Hi I am new I am a 27 year old female and I have been asked to come here from T...

Luckystar

•7 years ago

3 Replies

First post

Hi everyone, so its my DD that has this disease. undiagnosed for at least 2 years, changed medical facility and got diagnosis within 3 visits, so symptoms...

Hi everyone, so its my DD that has this disease. undiagnosed for at least 2 year...

Kapitigirl

•7 years ago

36 Replies

What should I ask my doctor to test for if I suspect I have B12 deficiency/Pernicious Anaemia

Hi everyone, This is my first post and I would really appreciate your advice. I'm seeing my doctor on Tuesday and was wondering how best to approach...

Hi everyone, This is my first post and I would really appreciate your advice. ...

jazzy89

•7 years ago

4 Replies

Assault on Batteries :)

I see the Financial Times today reports a scarcity of the key material for the making of electric car batteries after a group of "hedge funds amassed a...

I see the Financial Times today reports a scarcity of the key material for the m...

clivealive

Forum Support•7 years ago

11 Replies

Advice on level of fatigue please. I am insulin dependent diabetic, iron deficient and have pernicious anaemia and 12 weekly B12 injections.

hi, I am 54. Just going through menopause. Am taking ferrous fumarate 210mg tabs twice a day, together with a multivitamin tab after breakfast each day. My...

hi, I am 54. Just going through menopause. Am taking ferrous fumarate 210mg tabs...

Bali1962

•7 years ago

4 Replies

Private test confusion

Hi, If someone doesn't mind helping I'd really appreciate it. I'm looking into private tests and trying to find the cheapest way of getting everything I need....

Hi, If someone doesn't mind helping I'd really appreciate it. I'm looking into p...

Salphy

•7 years ago

9 Replies

Saw Neurologist Yesterday

Well, I had my first appointment with the neurologist yesterday..... I had a MRI done of my head 5 weeks ago, and I had picked up the results from my doctor...

Well, I had my first appointment with the neurologist yesterday..... I had a MRI...

AngelaJG

•7 years ago

13 Replies

Confused and unwell

I was diagnosed by my late GP back in 1996 with PA, my practice nurse in November to,d me that my levels on my last blood test in 2015 were I. The range and...

I was diagnosed by my late GP back in 1996 with PA, my practice nurse in Novembe...

Petal13

•7 years ago

8 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2017

I can't get the treatment I clearly urgently need

Folic accid deficiency

Advice for NHS Hospitals - Irreducible Lump/Cyst/Hernia

One for the Functionals :

The Times today

65 year old with systemic mastocytosis & high b12

folic acid requirements help

Addisons anyone?

B12 higher than before and folic acid lower?

Methyl cobalamin trial

After the appointment with the neurologist!!!!

Buying b12 to inject online

more joy

Reducing B12 injections to 2 per week

pleas please give me advice

Does injectable b12 go off?

High Active B12 Result

Update on decision to self inject

B 12 up, but still not better.

B12 deficiency symptoms and low stomach acid?

Liver enzymes back up and ferritin dropping. Help

B12 & B9. Loading dose not taken effect yet.

Vitamin/mineral/complete blood count results advice please

First post

What should I ask my doctor to test for if I suspect I have B12 deficiency/Pernicious Anaemia

Assault on Batteries :)

Advice on level of fatigue please. I am insulin dependent diabetic, iron deficient and have pernicious anaemia and 12 weekly B12 injections.

Private test confusion

Saw Neurologist Yesterday

Confused and unwell

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive