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Pernicious Anaemia Society

31,929 members • 23,067 posts

All posts for September 2018

B12 Injections - please help

Hi, I’m really looking for some advice. I didn’t have any of the signs of B12 deficiency. I had a blood test for something else and then was advised I am...

Hi, I’m really looking for some advice. I didn’t have any of the signs of B12 de...

Nicole223

•6 years ago

7 Replies

Constant headaches/brain fog/dizziness.

Hi all, Before I get into my current state, I'd like to give you a bit of a backstory. Sorry for the length, but hopefully it'll give you an idea of how...

Hi all, Before I get into my current state, I'd like to give you a bit of a back...

Betterdayz

•6 years ago

12 Replies

Unnecessary angiogram

Has anyone else been prescribed an angiogram by their GP because of the breathlessness upon physical exertion

Has anyone else been prescribed an angiogram by their GP because of the breathl...

breathlessgirl

•6 years ago

8 Replies

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Folic acid

If I’m going to start self injections how much folic acid would i need to take I’m thinking of Si once monthly thanks in advance

If I’m going to start self injections how much folic acid would i need to take I...

loopyLoopster1968

•6 years ago

2 Replies

High B12/Folate, Twitching, Tingling, Tinnitus

Hi all, Recently had bloods done as I have symptoms that suggest B12 deficiency (the frequent, random, all-over muscle twitching is particularly...

Hi all, Recently had bloods done as I have symptoms that suggest B12 deficienc...

ilyfunnybunny

•6 years ago

1 Reply

B12 level 217

Hello, my b12 level is 217, in February is was 351, that was when i had just had my last injection, all my injectins were stopped because level was 351, my...

Hello, my b12 level is 217, in February is was 351, that was when i had just had...

Padeficiant12

•6 years ago

24 Replies

IFAB negative - should I pursue diagnosis?

Hi I'm new here and was wondering if anyone had any advice on how to proceed with my GP? I'm 55 years old and for the last year or so I have been suffering...

Hi I'm new here and was wondering if anyone had any advice on how to proceed wit...

Zumba123

•6 years ago

6 Replies

B12 results finally!!

Hi - B12 advice please! Hi, hope you’re all well. Don’t want to ramble so I’ll try get this short. Started to feel really unwell at the end of July a...

Hi - B12 advice please! Hi, hope you’re all well. Don’t want to ramble so I’ll...

Shannonf247

•6 years ago

2 Replies

Help! Fatigue is taling over my life

Hi guys Off and on for the last few years I've been suffering with what they now believe could be chronic fatigue / M.E. I have seen 3 doctors and its honestly...

Hi guys Off and on for the last few years I've been suffering with what they now...

Bobbie09

•6 years ago

18 Replies

So frustrated and anxious

Hi all, I felt I needed to write just to get this offf my chest. I feel so scared and anxious about what is going on. As I posted before my Dr wanted to treat...

Hi all, I felt I needed to write just to get this offf my chest. I feel so scare...

Noreek

•6 years ago

4 Replies

When do you feel better?

My 16 yr old daughter has been pale, lethargic, (falling asleep only a few hours after waking) and feeling sick on and off for a while now, perhaps even a...

My 16 yr old daughter has been pale, lethargic, (falling asleep only a few hours...

ShuMoo

•6 years ago

17 Replies

Advise on MMA,INSTINCT FAGTOR blood test while I am on b12 1000 mcg sulibgual

Hello Members, I need a advise on blood tests. Finally my Gp agreed to do the following tests but I am on b12 methylcobalmin 1000 mcg subligual & 400 folic, is...

Hello Members, I need a advise on blood tests. Finally my Gp agreed to do the fo...

Cooljay

•6 years ago

2 Replies

Confused about folic acid

Hi sorry to keep asking questions. Just trying to figure things out re my deficiencies . I am taking folic acid 400 mcg one daily but as I’v been getting more...

Hi sorry to keep asking questions. Just trying to figure things out re my defici...

Andypandy30

•6 years ago

23 Replies

Do I have some sort of anemia?

I have been struggling with tiredness and fatigue episodes for more years than I care to remember! I was diagnosed with Hashimotos Thyroditis so took...

I have been struggling with tiredness and fatigue episodes for more years than I...

Vonni7

•6 years ago

14 Replies

Help please

Hi everyone.... waited in all morning for doctors prearranged phone call but told 5 mins ago that the doctor has rung in sick.... the call was apparently to...

Hi everyone.... waited in all morning for doctors prearranged phone call but tol...

PamBow

•6 years ago

1 Reply

B12 in Greece

Does anyone know if you can get B12 ampoules over the counter from Greece

Pixielula

•6 years ago

3 Replies

B12 Folate

Hi All I read some time ago that registered alcoholics (alcohol dependent in the pc world) had b12 injections as alcohol destroys b12 in the liver. The other...

Hi All I read some time ago that registered alcoholics (alcohol dependent in the...

Alfabeta

•6 years ago

5 Replies

Clarity on RBC Folate Levels

Good day all. I am writing to seek some clarity on recent results of folate testing. In Canada we have the option of testing for Serum Folate and RBC Folate....

Good day all. I am writing to seek some clarity on recent results of folate tes...

elvistoronto1

•6 years ago

2 Replies

Iron/Ferritin levels

Hi, I was diagnosed with PA earlier on this year. I received my loading doses in May and I'm having a top up injection of B12 every 3 months. Unfortunately,...

Hi, I was diagnosed with PA earlier on this year. I received my loading doses i...

stacie146

•6 years ago

3 Replies

What’s going on?!?

Hope someone can shed some light (new to the group)... 46yr old, stomach stapled 12 yrs ago and have extremely heavy periods, though think I’m going through...

Hope someone can shed some light (new to the group)... 46yr old, stomach stapled...

Tracilynholland

•6 years ago

1 Reply

Brilliant Find: Food and Nutrients Counter. Counts...Well...Everything 😀

Hi All Found this brilliant little food and nutrients counter, so though I'd share it. It will calculate the precise content of...well...almost anything. Macro...

Hi All Found this brilliant little food and nutrients counter, so though I'd sha...

Foggyme

Administrator•6 years ago

8 Replies

Quick potassium question

Sorry to lazy to search as this has probably been answered before. What is the best form of potassium supplements to take and what dose dose people find best...

Sorry to lazy to search as this has probably been answered before. What is the ...

Dadvatar

•6 years ago

5 Replies

Hi

Hi, I am a 20 year old nursing student. I am really looking for a bit of support in my diagnosis of PA. I've been receiving B12 injections for about a year...

Hi, I am a 20 year old nursing student. I am really looking for a bit of support...

Gigi98

•6 years ago

13 Replies

Enlarged Red Cells

Hi I am new here, I was diagnosed with low B12 (110) in 2016, I had no idea what it what it meant, The GP advised it was life changing and I needed to start...

Hi I am new here, I was diagnosed with low B12 (110) in 2016, I had no idea what...

NannaTV

•6 years ago

11 Replies

Pernicious anemia

I was diagnosed in april2015 been on injections since then after loading finished I'm on 1injection every 3mths .this last while I have had like pins needles...

I was diagnosed in april2015 been on injections since then after loading finishe...

Amy65

•6 years ago

3 Replies

B12 injection.

Hi everyone. I posted yesterday about confusing results. Well long story short. I went to my GP and he said I need B12 as well as the iron infusion.....

Hi everyone. I posted yesterday about confusing results. Well long story short. ...

Gardeningbuff

•6 years ago

18 Replies

Getting my child diagnosed and treated without doctor

What tests do I need to do for my teenager to rule out pa and can I go ahead and treat her myself as per guidelines . This is my second post today I’m so fed...

What tests do I need to do for my teenager to rule out pa and can I go ahead and...

Andypandy30

•6 years ago

7 Replies

I need a plan

I am all over the place with my treatment and need some hope from you all . I have been battling pa symptoms since jan 17 I also have hashimotos . My loading...

I am all over the place with my treatment and need some hope from you all . I ha...

Andypandy30

•6 years ago

27 Replies

Help with understanding test results?

Hi everyone. In the last 18 months I have had many strange (and as yet undiagnosed) symptoms. Too many to list on here and not bore you all to death but my...

Hi everyone. In the last 18 months I have had many strange (and as yet undiagno...

pj16

•6 years ago

8 Replies

low b12,folate,d3 and weight loss,

Hi Everyone, I am new to this site and i have been suffering from low energy,weight loss,indigetion,stomach burning, weak all the time.I have done my bloods...

Hi Everyone, I am new to this site and i have been suffering from low energy,wei...

Cooljay

•6 years ago

4 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2018

B12 Injections - please help

Constant headaches/brain fog/dizziness.

Unnecessary angiogram

Folic acid

High B12/Folate, Twitching, Tingling, Tinnitus

B12 level 217

IFAB negative - should I pursue diagnosis?

B12 results finally!!

Help! Fatigue is taling over my life

So frustrated and anxious

When do you feel better?

Advise on MMA,INSTINCT FAGTOR blood test while I am on b12 1000 mcg sulibgual

Confused about folic acid

Do I have some sort of anemia?

Help please

B12 in Greece

B12 Folate

Clarity on RBC Folate Levels

Iron/Ferritin levels

What’s going on?!?

Brilliant Find: Food and Nutrients Counter. Counts...Well...Everything 😀

Quick potassium question

Hi

Enlarged Red Cells

Pernicious anemia

B12 injection.

Getting my child diagnosed and treated without doctor

I need a plan

Help with understanding test results?

low b12,folate,d3 and weight loss,

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive