Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,950 members • 23,089 posts

All posts for November 2021

FERTILITY…. After years of being deficient, could it ever be restored?

Fertility anyone? Had anyone had their fertility affected by a b12 deficiency, been trying for years, gone through all the MOT testing and your both fine and...

Fertility anyone? Had anyone had their fertility affected by a b12 deficiency, b...

Lollipops35

•2 years ago

19 Replies

Injectable Vit B12 available again from Versandapo

For the info of other members who may be interested, my package of 100 (10x10) Panpharma (orig Rotex) injectable Hydroxocobalamin (Vit B12) arrived in six...

For the info of other members who may be interested, my package of 100 (10x10) P...

Achesandpains75

•2 years ago

2 Replies

Searching for B12

Hi All, Newbie here, joined the forum to try new source B12 ampules. I’m a gastric bypass patient, 13 years post surgery and have never had B12 therapy despite...

Hi All, Newbie here, joined the forum to try new source B12 ampules. I’m a gastr...

MissParkin

•2 years ago

13 Replies

Want to take advantage of all our features? Just log in!

Call to Panpharma

I refer to this post: https://healthunlocked.com/pasoc/posts/147210252/i-hope-this-shocking-news-is-not-a-hoax?responses=147211044 The information from the...

I refer to this post: https://healthunlocked.com/pasoc/posts/147210252/i-hope-th...

Lunario

•2 years ago

17 Replies

Is it possible to save ampoule in syringe in the fridge for next injection session?

Since Hevert is 2 ml then is it possible to keep vial in syringe in the fridge for next day?

Since Hevert is 2 ml then is it possible to keep vial in syringe in the fridge f...

Hamayeshguy

•2 years ago

7 Replies

B12 transdermal patches

I was at a business networking meeting earlier this week and I was talking to a guy who owns a company making transdermal vitamin patches, based in...

I was at a business networking meeting earlier this week and I was talking to a ...

Tubbylardo

•2 years ago

28 Replies

Ulcerative colitis and pernicious anaemia

Hi Everyone, I was first diagnosed with PA ten years ago and the PAS literally saved my life ( see profile for further information).I have now been diagnosed...

Hi Everyone, I was first diagnosed with PA ten years ago and the PAS literally ...

Florikeet

•2 years ago

7 Replies

B12 Dosage and Tablets whilst injecting for vegans?

Our parents live in Europe and are B12 deficient (130pgml 77 years / 210pgml 70 years old vegans). GP told them that the levels are fine (slightly low), that...

Our parents live in Europe and are B12 deficient (130pgml 77 years / 210pgml 70 ...

130PGML

•2 years ago

5 Replies

Increase volume of b12 injected

Is it safe to inject say 2ml in 1 go, so I dont have to increase the frequency of injections

Is it safe to inject say 2ml in 1 go, so I dont have to increase the frequency o...

Tch77

•2 years ago

21 Replies

Is that normal to feel too much cold in pa and B12 deficiency?

These days after weather getting cold I feel too much cold and also catch cold. When I go outside I feel too much cold in my fingers and toes. Recently I tried...

These days after weather getting cold I feel too much cold and also catch cold. ...

Hamayeshguy

•2 years ago

6 Replies

Help/advice on private doctors for b12/PA

Does anyone have any recommendations for good private b12 or PA specialists in the London area or South East of the UK? For context I am 33 years old and...

Does anyone have any recommendations for good private b12 or PA specialists in t...

franrose

•2 years ago

31 Replies

I hope this shocking news is just a hoax!

Rotexmedica/Panpharma B12 Depot is no longer available?! Today, I called the shopapotheke.de hotline because they delivered cyanocobalamin instead of...

Rotexmedica/Panpharma B12 Depot is no longer available?! Today, I called the sho...

Lunario

•2 years ago

55 Replies

What tests to choose

I was diagnosed with b12 deficiency I self inject monthly but recently collapsed with symptoms of severe anaemia. Waiting for fbc via gp but want to add active...

I was diagnosed with b12 deficiency I self inject monthly but recently collapsed...

Mag999

•2 years ago

5 Replies

How do you know if you have PA

Hi I know this sounds obvious but I don't ever remember being tested specifically for PA. I've always struggled with B12 levels since childhood and had to...

Hi I know this sounds obvious but I don't ever remember being tested specifical...

Sparklingsunshine

•2 years ago

11 Replies

Folate deficiency

Hi everyone, I’m new to this page. I have had very low folate for the second time and I am currently taking supplements still. I am a young, healthy teacher...

Hi everyone, I’m new to this page. I have had very low folate for the second tim...

Rosiehorn

•2 years ago

3 Replies

Repeating intrinsic factor antibody blood test

Hello Does anybody have any references to show a consultant that wants to repeat an ifab blood test? I have gastric parietal cells and am ifab positive with...

Hello Does anybody have any references to show a consultant that wants to repeat...

Aumshantii

•2 years ago

9 Replies

Symptoms when not injecting

Hi for those who have ever suffered any psychological or neuropsychiatric symptoms, do u feel they come back if u stop injecting for some time? If so, how soon...

Hi for those who have ever suffered any psychological or neuropsychiatric sympto...

Ehysibi

•2 years ago

6 Replies

Self injecting query

Hi Thanks for the responses, I've seen lots of stuff on here about self injecting, is that an NHS thing? Do you get the B12 and needles and are supported by...

Hi Thanks for the responses, I've seen lots of stuff on here about self injectin...

Sparklingsunshine

•2 years ago

12 Replies

Symptoms worse again after improvement?

I've been self-injecting alternate days for almost 6 weeks now, using hydroxocobalamin prescribed by the GP. I was showing slow improvement, e.g. my speech was...

I've been self-injecting alternate days for almost 6 weeks now, using hydroxocob...

Maisiethedog

•2 years ago

15 Replies

First IM injection by myself, thanks to this community!!

Did my first IM injection today, big thanks to Wedgewood for all the advice on where to get the kit from!! Was easy and painless to do :)

Did my first IM injection today, big thanks to Wedgewood for all the advice on w...

Vitali-ep

•2 years ago

22 Replies

B complex

Hi all just wondering if anyone takes a b complex vitamin? Was thinking of dripping my b12 100ug and starting to take a complex instead which obviously...

Hi all just wondering if anyone takes a b complex vitamin? Was thinking of dripp...

Darcey14

•2 years ago

3 Replies

B12 brand

Hi after some research I think hydroxy is the best form of b12 and others can cause some problems. I can only find one brand of hydroxy in German pharmacies...

Hi after some research I think hydroxy is the best form of b12 and others can ca...

Ehysibi

•2 years ago

36 Replies

Tax

Is there any website where I don’t have to pay tax for b12 ? Thanks

Ehysibi

•2 years ago

20 Replies

Hydroxocobalamin - side effects

I’ve been diagnosed with PA for a year and have been self injecting at differing frequencies since May (probably had 50 injections since May 1st). However, I...

I’ve been diagnosed with PA for a year and have been self injecting at differing...

User2020-1

•2 years ago

19 Replies

Aspiration & Rotating Self Injection Sites

I'm interested to know if those of you who self inject aspirate before injecting. I was told it it necessary to pull back to check for blood before injecting,...

I'm interested to know if those of you who self inject aspirate before injecting...

Soulquest

•2 years ago

11 Replies

Changing cost of injections from Germany?

I recently bought 100 ampoules which come to 62p per injection (excluding delivery). In 2018 I was paying about 45p per injection although it...

I recently bought 100 ampoules which come to 62p per injection (excluding delive...

Cetus

•2 years ago

7 Replies

Test result help

I've had intrinsic factor levels checked and the results were 1.0 U/MI what dies this mean....my b12 was 814 and haematocrit lower than usual, I've been...

I've had intrinsic factor levels checked and the results were 1.0 U/MI what dies...

Jaye75

•2 years ago

8 Replies

Have PA but don't show any symptoms

Hi. I was diagnosed with PA about 2 years ago. I had a blood test for something unrelated to PA, but that was Dr's diagnosis. So, been taking the B12...

Hi. I was diagnosed with PA about 2 years ago. I had a blood test for something ...

Dmsbrown

•2 years ago

8 Replies

Link between PA and Liver function

Hey everyone, does anyone know of there is a link between PA and liver. I’ve been recently diagnosis with PA following B12 level at 128 pg/ml and positive...

Hey everyone, does anyone know of there is a link between PA and liver. I’ve bee...

Ronty86

•2 years ago

2 Replies

Very confused...

I’m new here and very confused as to why my levels are within the normal range but I feel so rubbish 😢

I’m new here and very confused as to why my levels are within the normal range b...

Zee2

•2 years ago

38 Replies

Search posts

Pinned Posts

See all

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

See all polls

How Often do you feel you actually need your B12 injection?

Vote

Topics

All posts(75)

All things Pernicious Anaemia Society(75)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2021

FERTILITY…. After years of being deficient, could it ever be restored?

Injectable Vit B12 available again from Versandapo

Searching for B12

Call to Panpharma

Is it possible to save ampoule in syringe in the fridge for next injection session?

B12 transdermal patches

Ulcerative colitis and pernicious anaemia

B12 Dosage and Tablets whilst injecting for vegans?

Increase volume of b12 injected

Is that normal to feel too much cold in pa and B12 deficiency?

Help/advice on private doctors for b12/PA

I hope this shocking news is just a hoax!

What tests to choose

How do you know if you have PA

Folate deficiency

Repeating intrinsic factor antibody blood test

Symptoms when not injecting

Self injecting query

Symptoms worse again after improvement?

First IM injection by myself, thanks to this community!!

B complex

B12 brand

Tax

Hydroxocobalamin - side effects

Aspiration & Rotating Self Injection Sites

Changing cost of injections from Germany?

Test result help

Have PA but don't show any symptoms

Link between PA and Liver function

Very confused...

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive