Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for August 2014

Report Returning Symptoms to Pharma Co's

Okay, there is a lot of talk about patients needing more frequent b12 injections. There is also a lot of talk that there is not enough evidence to prove the...

Okay, there is a lot of talk about patients needing more frequent b12 injections...

•10 years ago

B12 Injections

For over 5 years I have been having B12 injections every 12 weeks. But last week I was Told I could not have my injection until I have had some blood tests,...

For over 5 years I have been having B12 injections every 12 weeks. But last week...

•10 years ago

Stomach problems

Do other sufferers get gastritis? I get symptoms of this approx one month before I am due to have my three monthly injection. This month has been particularly...

Do other sufferers get gastritis? I get symptoms of this approx one month before...

•10 years ago

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Think I May Need More Injections?

Hello Again, I posted on here about four weeks ago after recently being diagnosed with PA following years of symptoms. I had my loading shots over two weeks...

Hello Again, I posted on here about four weeks ago after recently being diagnos...

•10 years ago

Could b12 deficiency be my problem?

Hi. Thank you for the add. I'd like to share my story with you to see whether you think I am barking up the wrong tree with b12 deficiency. I am 34 mum of 3....

Hi. Thank you for the add. I'd like to share my story with you to see whether y...

•10 years ago

Active B12 Testing Canada

Hello everyone, I am looking for a location in Canada to have my active B12 tested. Any help would be appreciated.

Hello everyone, I am looking for a location in Canada to have my active B12 test...

•10 years ago

Endo recommendation urgent

I can't seem to find opn here, but someone mentioned a very good endo in Kent, whom deals with both thyroid and B12. Not sure if it was Maidstone or Surrey to...

I can't seem to find opn here, but someone mentioned a very good endo in Kent, w...

•10 years ago

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Dr's appointment

Well I had the private appointment last night. Talked about all my symptoms except my leg problems! I said that I thought it was due to my PA and that I needed...

Well I had the private appointment last night. Talked about all my symptoms exce...

•10 years ago

Need some help.

Hi, I have been out of sorts physically for about 5 years now and i'm trying to get things looked into, but i think i am going to have a fight on my hands....

Hi, I have been out of sorts physically for about 5 years now and i'm trying to...

•10 years ago

me again from Friday...

you asked me to try and find out my levels, I am still very breathless and confused ..foggy.. I have my injections every 6 weeks, nurse said folate should be...

you asked me to try and find out my levels, I am still very breathless and confu...

•10 years ago

Christine

Where am I able to purchase Vitamin B12 injections in the UK.OR is it safe to purchase from a reputable pharmacy in Hong Kong.

Where am I able to purchase Vitamin B12 injections in the UK.OR is it safe to pu...

•10 years ago

B12

Hi had blood test done b12 came back 100,folate and ferritin ok IF was negative,I have had gut problems for years ibs,diverticoltus,and other symptoms, had...

Hi had blood test done b12 came back 100,folate and ferritin ok IF was negative,...

•10 years ago

New research articles

New simpler/cheaper test for MMA: J Nutr. 2014 Aug 20. pii: jn.114.194829. [Epub ahead of print] Methylmalonic Acid Quantified in Dried Blood Spots Provides...

New simpler/cheaper test for MMA: J Nutr. 2014 Aug 20. pii: jn.114.194829. [Epu...

•10 years ago

High MCV level

Hello, I don't think my GP has actually said I have PA but agreed to give me a "trial" on the B12 injections. I tested positive for Gastric Paretial Cells and...

Hello, I don't think my GP has actually said I have PA but agreed to give me a "...

•10 years ago

Active B12 results, suggestions on B12 sublingual and multi-vits dosage

Hey everyone, Well I have now completed my investigation into my B12. So my results: Serum B12: 182 ng/l (180-1000) and a few weeks later 202 ng/l,...

Hey everyone, Well I have now completed my investigation into my B12. So my re...

•10 years ago

B12 Case goes to Court

I'm writing this to assist other sufferers of b12 deficiency. I am taking a case to court of a b12 deficiency resulting in neurological damage which remained...

I'm writing this to assist other sufferers of b12 deficiency. I am taking a case...

•10 years ago

Hello glad I have found this site...

It all started 2 years ago, I became very breathless it seemed overnight, I noticed small things like climbing the stairs, couldn't seem to catch my breath, I...

It all started 2 years ago, I became very breathless it seemed overnight, I noti...

•10 years ago

B12 & Acne

Hello, so I have been taking b12 vitamins for only 3 days and have stopped due to breakouts around my entire face. I wanted to know if these breakouts will...

Hello, so I have been taking b12 vitamins for only 3 days and have stopped due t...

•10 years ago

Cyanosis (blue fingers) and incontinence with B12 deficiency?

I am becoming more and more convinced that I have a functional B12 deficiency and will be arranging an active B12 test in short order. However, I am also...

I am becoming more and more convinced that I have a functional B12 deficiency an...

•10 years ago

Intramuscular injections

HI there, is there any problem if you do by accident inject into your bloodstream when self injecting? All the recommendations say to draw back first to check...

HI there, is there any problem if you do by accident inject into your bloodstrea...

•10 years ago

Teeth Blue from B12 Defiency?

Hello, Has anyone found their teeth to be discolored due to B12 Def? Prior to my diagnosis some of my teeth turned a gray-blue color and seemed weakened. I...

Hello, Has anyone found their teeth to be discolored due to B12 Def? Prior to ...

•10 years ago

Where is the best place to get b12 from?

I am in great need of b12 injections but because I complained to the pratice manager about not being able to get my b12 injections I have been removed as a...

I am in great need of b12 injections but because I complained to the pratice man...

•10 years ago

PA and stomach cancer?

are there any connections bewteen PA and stomach cancer? Regards Steve

are there any connections bewteen PA and stomach cancer? Regards Steve

•10 years ago

Dry eyes or corneal ulcers?

Hi there, I'm new here but not yet have the diagnosis of PA but my levels since getting them tested over 8 years have always been under 250, currently I'm 189,...

Hi there, I'm new here but not yet have the diagnosis of PA but my levels since ...

•10 years ago

What do I do??!!

Be warned this is a long post/question !! I am having a load of medical issues over the past 4-5 years and recently I have been diagnosed with PA. This all...

Be warned this is a long post/question !! I am having a load of medical issues...

•10 years ago

Letter to nowhere

In June, after learning that the commissioner of the FDA has the authority to exempt a medication from prescription-dispensing requirements, I wrote a letter...

In June, after learning that the commissioner of the FDA has the authority to ex...

•10 years ago

Often symptomatic despite regular treatment - where to go from here?

I was diagnosed with PA in 2010 and following administration of the loading doses was commenced on initially 12, then 10 and now 8 weekly injections. As the 8...

I was diagnosed with PA in 2010 and following administration of the loading dose...

•10 years ago

B12/ ferritin/ migraine/ pins and needles

Approx 5 years ago I started to be treated 3 monthly with B12 injections after I'd had fatigue and a number of digestive problems low B12 for a while and been...

Approx 5 years ago I started to be treated 3 monthly with B12 injections after I...

•10 years ago

Supplements or not?

Hi I have been having a fortnight of B12 injections and last one due tomorrow. My nurse (very helpful compared to GP) has told me to come back in 12 weeks for...

Hi I have been having a fortnight of B12 injections and last one due tomorrow. ...

•10 years ago

Had a number of B12 tests, should I take B12/supplements now, or get active b12 test?

Hi everyone. Over the last few months I’ve put a few posts on here about my concerns about having low B12. My test results are as follows: Serum B12: 182 ng/l...

Hi everyone. Over the last few months I’ve put a few posts on here about my conc...

•10 years ago

Search posts

Pinned Posts

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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How Often do you feel you actually need your B12 injection?

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All things Pernicious Anaemia Society(75)

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