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Pernicious Anaemia Society

31,951 members • 23,089 posts

All posts for June 2023

osteoarthritis and PA

So I was diagnosed with PA about 8 years ago with some atrophic gastritis. I’ve been SI once a week or so for years. I’ve now been told I have osteoarthritis...

So I was diagnosed with PA about 8 years ago with some atrophic gastritis. I’ve...

lifegems

•10 months ago

7 Replies

Blood results

HiI'm just looking some advice on recent NHS b12 and folate results: B12 284 (197-779) Folate. 4.6 (3-26) Of course GP receptionist said all 'normal " on...

HiI'm just looking some advice on recent NHS b12 and folate results: B12 284 ...

Hollybushroad

•10 months ago

45 Replies

Twitching in calves after using b12 spray or injections, anyone else?

Hi everyone, I'm in the middle of working out my deficiencies, my GP won't treat me so I'm learning alot from this site.I was vegan my whole life, 37 now. I've...

Hi everyone, I'm in the middle of working out my deficiencies, my GP won't treat...

Angelcat123

•10 months ago

2 Replies

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NHS Patient Rights

After more than a year of waiting for a follow up neurology appointment I was left shocked and nearly in tears because of being forced to prove my need for B12...

After more than a year of waiting for a follow up neurology appointment I was le...

RoseFlowerDew

•10 months ago

24 Replies

VersandApo b12 in stock

I had an email, b12 was on offer. I ordered straight away from my phone as didn’t want to wait until I could use my computer to translate from German in case...

I had an email, b12 was on offer. I ordered straight away from my phone as didn’...

Showgem

•10 months ago

3 Replies

Ups and downs update

I finally received a phone call from my GP who was incredibly nice and friendly. But…… she wasn’t prepared to act on the advice I quoted from both NHS and...

I finally received a phone call from my GP who was incredibly nice and friendl...

Kerrieblue

•10 months ago

26 Replies

Warm wave sensations

So I'm wondering if anyone else has experienced a warm wave like sensation running throughout their body after loading doses?

So I'm wondering if anyone else has experienced a warm wave like sensation runni...

PaintLadie

•10 months ago

4 Replies

Blood Results

Hello, I am wondering if anyone can Help me to try and understand what is going on with my blood test results. I have always had low ferritin in single figures...

Hello, I am wondering if anyone can Help me to try and understand what is going ...

B52s

•10 months ago

6 Replies

preservatives in B12

I have been reacting to subcutaneous SI and looking at what is in Panpharma B12 there is acetic acid sodium chloride sodium acetate. This is hydro. I have...

I have been reacting to subcutaneous SI and looking at what is in Panpharma B12 ...

smg1950

•10 months ago

19 Replies

B12 injections stopped " Do not meet criteria"

2018 Diagnosed with low B12 ( Due to P.P.i. 2 X 20Mg daily). Receiving 10 weekly B12 IM injections 2023 January practice call me to advise I will no longer...

2018 Diagnosed with low B12 ( Due to P.P.i. 2 X 20Mg daily). Receiving 10 weekly...

b12timbo

•10 months ago

15 Replies

My iron and Vit/Mineral results for interpretation please.

Hello everyone, I posted recently about my daughter's results and will get back with an update soon. But here are mine! Hypothyroid for about 18 years, on...

Hello everyone, I posted recently about my daughter's results and will get ba...

Sneedle

•10 months ago

10 Replies

B12 injections were stopped a few years ago, feeling awful

I had b12 deficiency (152) in 2017 with negative IF factor. I was given loading doses and told I'd need injections every 3 months for life. I had 2 lots of the...

I had b12 deficiency (152) in 2017 with negative IF factor. I was given loading ...

Hullaballop

•10 months ago

11 Replies

Venting about healthcare

Hi good people, this post is me venting my rage and frustration with the healthcare system at large. I was typing a question to one of my doctors through...

Hi good people, this post is me venting my rage and frustration with the healthc...

Cobalt1312

•10 months ago

24 Replies

Feet nerve pain pain relief suggestions.

Any suggestions on how to help relieve pain in the feet from diabetes nerve pain. Thanks

Any suggestions on how to help relieve pain in the feet from diabetes nerve pain...

84withb12d

•10 months ago

8 Replies

how gh b12

I just had a blood test done and my b12 is high. I have pernicious anaemia and have injections every 3 months. my gp has told me to stop the injections for 6...

I just had a blood test done and my b12 is high. I have pernicious anaemia and h...

Londone16

•10 months ago

17 Replies

Lanzoprazole and low B12

Hi guys I am worried and I don’t know if I am worried about nothing. In a nutshell, in 2018 hubby starts heart meds and has done so ever since. One of...

Hi guys I am worried and I don’t know if I am worried about nothing. In a nut...

Wwwdot

•10 months ago

41 Replies

Astaxanthin

Apologies for the offtopic but I thought this was an interesting anti-oxidant supplement although only preliminary research has been carried out on it as yet....

Apologies for the offtopic but I thought this was an interesting anti-oxidant su...

Technoid

•10 months ago

2 Replies

supplements b12 jab

Hi All, Is there any daily additional supplement that could be taken with 3 monthly b12 jab ?

Hi All, Is there any daily additional supplement that could be taken with 3 ...

Spick

•10 months ago

11 Replies

Confused and frustrated

Hi, I'm new to the forum and desperate for advice so please bear with me if you can! I have been feeling unwell for a couple of years with symptoms getting...

Hi, I'm new to the forum and desperate for advice so please bear with me if you ...

Hidden

•10 months ago

24 Replies

UK person wanting injectable methylcobalamin

Hello everyone, I'm based in the UK and have Pernicious Anaemia. I was able to buy methylcobalamin 1mg for self-injection online from Arnika Apotheke in...

Hello everyone, I'm based in the UK and have Pernicious Anaemia. I was able to ...

Seasidesunshine1979

•10 months ago

15 Replies

My experience with Eustachian tube fluid build up and solution.

I post here as some on this forum helped me discover a solution. It is my understanding that the problem was caused by the difficulty swallowing caused by B12...

I post here as some on this forum helped me discover a solution. It is my unders...

WIZARD6787

•10 months ago

10 Replies

Help with p/a and ferritin ?

hi, I have been diagnosed with pernicious anaemia. I am 1 injection off finishing my loading phase . I am also deficient in vitamin d3 and vitamin b9. move...

hi, I have been diagnosed with pernicious anaemia. I am 1 injection off finishi...

Sea_cells

•10 months ago

4 Replies

B12 patches

It’s okay, I know they’re not popular as a treatment but please bear with me… I have specific issues underneath my heel and arch that, I firmly believe, are...

It’s okay, I know they’re not popular as a treatment but please bear with me… ...

rogergee

•10 months ago

35 Replies

Reversing out compared to using up B12.

The concept of topping off came to me from reading here. It was contrary to my understanding of loading then maintenance. My current understanding is my body...

The concept of topping off came to me from reading here. It was contrary to my u...

WIZARD6787

•10 months ago

3 Replies

last loading dose

Hi, I’ve had all my loading doses now , I won’t have another injection now until September. I’ve got pins and needles all over which had gone after I started...

Hi, I’ve had all my loading doses now , I won’t have another injection now until...

Flowerspink

•10 months ago

4 Replies

Low B12 (plus recently medicated for underactive thyroid)

Hello all I’ve had some private bloods done to aid thyroid investigation with my GP (a whole other thread!). I really had to push the GP to listen to me so...

Hello all I’ve had some private bloods done to aid thyroid investigation with ...

Tired_MiddleAged

•10 months ago

5 Replies

High Folate, Low Normal B12

Regarding folate masking a B12 defciency…my folate was 24 ng/mL and my B12 was 252 pg/mL when I asked to be tested for deficiency in January. I was having...

Regarding folate masking a B12 defciency…my folate was 24 ng/mL and my B12 was 2...

JHEW0836

•10 months ago

8 Replies

IM injection needle came out

I have given myself over 20 IM injections for B12 with little pain. However, something weird happened today. There was a lot of pain when I put the needle in...

I have given myself over 20 IM injections for B12 with little pain. However, som...

Mereri

•10 months ago

21 Replies

Temperature and shipping

I know I have posted this a couple of times, but I notice many of you continue to order B12 during the warm months of summer. I know many of you are in the UK...

I know I have posted this a couple of times, but I notice many of you continue ...

EiCa

•10 months ago

36 Replies

NICE link

https://cks.nice.org.uk/topics/anaemia-b12-folate-deficiency/

Wheat

•10 months ago

2 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

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All posts(75)

All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2023

osteoarthritis and PA

Blood results

Twitching in calves after using b12 spray or injections, anyone else?

NHS Patient Rights

VersandApo b12 in stock

Ups and downs update

Warm wave sensations

Blood Results

preservatives in B12

B12 injections stopped " Do not meet criteria"

My iron and Vit/Mineral results for interpretation please.

B12 injections were stopped a few years ago, feeling awful

Venting about healthcare

Feet nerve pain pain relief suggestions.

how gh b12

Lanzoprazole and low B12

Astaxanthin

supplements b12 jab

Confused and frustrated

UK person wanting injectable methylcobalamin

My experience with Eustachian tube fluid build up and solution.

Help with p/a and ferritin ?

B12 patches

Reversing out compared to using up B12.

last loading dose

Low B12 (plus recently medicated for underactive thyroid)

High Folate, Low Normal B12

IM injection needle came out

Temperature and shipping

NICE link

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive