Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,917 members • 23,047 posts

All posts for August 2015

HIGH b12 blood serum results,1221.

I recently had my blood work done after nine months of eating very healthy mostly organic nothing, nothing processed my results came back with hi b12 blood...

I recently had my blood work done after nine months of eating very healthy mostl...

•9 years ago

Injecting yourself?

I've heard a lot of talk about injecting yourself with B12. Where do you buy the vile and needles from? Any advice would be welcome.

I've heard a lot of talk about injecting yourself with B12. Where do you buy th...

•9 years ago

historical blood levels

here's what I was trying to upload...

here's what I was trying to upload...

•9 years ago

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what's up now?

Hi again, I have a question. I was diagnosed with PA in february/march this year.I got my loading doses (once weekly for 6 weeks)then the doctors put me on...

Hi again, I have a question. I was diagnosed with PA in february/march this year...

•9 years ago

Be the first to reply

Urgently need advice please

Hi everyone, I posted about a week ago with - "I know I have PA, my GP says I don't!" SORRY, THIS IS A LONG POST, SO THX FOR YOUR PATIENCE First of all,...

Hi everyone, I posted about a week ago with - "I know I have PA, my GP says I d...

•9 years ago

Mrs

Is it true Ideally I should have an injection of Vitamin B12 everyday? Would the use of a vitb12 supplement bought from Holland and Barret be helpful?

Is it true Ideally I should have an injection of Vitamin B12 everyday? Would th...

•9 years ago

Advice on supplementation please

My adult daughter has been diagnosed with PA (numbness was what alerted her GP-diagnosis quickly followed thankfully though I now suspect shes had it for 10...

My adult daughter has been diagnosed with PA (numbness was what alerted her GP-d...

•9 years ago

Advice after But shot

3 days ago I had my first But shot after my loding doses. I felt absolutely amazing the next day and was buzzing, then last night my fingers and hand were...

3 days ago I had my first But shot after my loding doses. I felt absolutely amaz...

•9 years ago

Hi all! Having serious issues

Hi guys! The awesome people on thyroid uk recommended me to you. I have hashimotos disease which is casuin all sorts of problems but I think my neruological...

Hi guys! The awesome people on thyroid uk recommended me to you. I have hashimo...

•9 years ago

Acanthocytosis

I recently had a routine blood test for my inflammatory markers. I noticed on the print out sheet it said "red blood cells show Acanthocytosis" and It...

I recently had a routine blood test for my inflammatory markers. I noticed on...

•9 years ago

Authentic B12

I receive regular hydroxocobalamin I m from my GP which is red in colour, a friend brought a box of 10 cyan ampules from Germany, 5 are red and 5 are clear. Do...

I receive regular hydroxocobalamin I m from my GP which is red in colour, a frie...

•9 years ago

Antibodies and Active B12 Tests

Hi everyone, I've been searching for a diagnosis for a mystery illness for 8 years. Someone recently suggested checking for Pernicious Anemia, and whilst I...

Hi everyone, I've been searching for a diagnosis for a mystery illness for 8 ye...

•9 years ago

Beyond frustrated

I was diagnosed with PA a few months ago with my levels being below 50pg. (Range - 200 - 900) I was suffering with a lot of nuero symptoms along with the...

I was diagnosed with PA a few months ago with my levels being below 50pg. (Range...

•9 years ago

I'm at a loss

So I had my second child back in may 2014. My first had been premature with 4 blood clots of various organs...lungs spleen. Infarctions. Etc.... My second was...

So I had my second child back in may 2014. My first had been premature with 4 bl...

•9 years ago

B12 testing: I need some answers!

Hello All, I'm new here as I've just been diagnosed as having Biermer's disease, which I believe is another name for PA. I'm producing antibodies against...

Hello All, I'm new here as I've just been diagnosed as having Biermer's disease,...

•9 years ago

New source of B12

Pleased to report a new source of B12 in all its forms---Cyno, Hydroxo and Methylcobalamin , for injecting, sub-lingual and nasal spray. Comes in dried form...

Pleased to report a new source of B12 in all its forms---Cyno, Hydroxo and Methy...

•9 years ago

Breastfeeding with PA

I have PA and I'm currently breastfeeding my 10 week old baby. I am having regular B12 injections and my levels are fine. I'm concerned about the antibodies I...

I have PA and I'm currently breastfeeding my 10 week old baby. I am having regul...

•9 years ago

Heavy headedness

Pls my people, recently I started feeling hurt from d back of my head to the middle. It's as if am carrying a load on my head, my head down to my neck and...

Pls my people, recently I started feeling hurt from d back of my head to the mid...

•9 years ago

New surgery

Im due to change gp surgery today. Bit dubious as not sure new doc will continue b12 . Only changing as I have got a new job in my current surgery and I can't...

Im due to change gp surgery today. Bit dubious as not sure new doc will continue...

•9 years ago

Question re hydroxy

Just been injecting 1ml of hydroxy B12 once a week. I keep developing spots below the knees on the calves. Is this something to worry about? Thanks.

Just been injecting 1ml of hydroxy B12 once a week. I keep developing spots belo...

•9 years ago

What's your story?

So im super interested to know how you guys/girls with B12 D and PA got diagnosed, what symptoms did you have? how did you get diagnosed? etc etc :) thought it...

So im super interested to know how you guys/girls with B12 D and PA got diagnose...

•9 years ago

Dizziness B12 Deficiency

I'm 28 years old male and I'm going through a horror story. 5 months ago out of the blue I became dizzy with head pressure. All tests,etc... came back normal...

I'm 28 years old male and I'm going through a horror story. 5 months ago out of...

•9 years ago

High Active B12

Hello I recently tested for Active B12, My result has come back at 120 when the range is 20-108. I have looked into what a high active B12 might suggest and am...

Hello I recently tested for Active B12, My result has come back at 120 when the ...

•9 years ago

Low Ferritin

When I went for hospital appt last fri I was told my ferritin count was 7 . Does anyone know what it should be?

When I went for hospital appt last fri I was told my ferritin count was 7 . Doe...

•9 years ago

An unusual cause of B12 deficiency.

I am writing about this as I have never seen it mentioned as a cause of B12 deficiency, I have a friend who works in a posh hotel in Rome. She is allowed to...

I am writing about this as I have never seen it mentioned as a cause of B12 defi...

•9 years ago

Is this the correct Needle to order for Vitamin B12 Injections?

http://www.medisave.co.uk/terumo-syringe-1ml-insulin-u100-with-27g-x-05-needle-x100-p-99774.html There are so many different ones? And my head is overloaded...

http://www.medisave.co.uk/terumo-syringe-1ml-insulin-u100-with-27g-x-05-needle-x...

•9 years ago

I know I have PA. My GP says I don't!

Hi all new to this forum, was kindly given details of the PAS as I thought I had a thyroid issue and was on that forum until I posted my blood results. They...

Hi all new to this forum, was kindly given details of the PAS as I thought I had...

•9 years ago

B-12 deficiency

I am new to this site and have limited information. First, I have fibromyalgia. I started having tingling sensations, etc and was referred to neuro. I was...

I am new to this site and have limited information. First, I have fibromyalgia....

•9 years ago

Intestinal Metaplasia

Hi since my last writing I wanted to expand on my condition and hope I can get more insight. All have been so helpful here. I went for a colonoscopy and an...

Hi since my last writing I wanted to expand on my condition and hope I can get m...

•9 years ago

Brain fog, fatigue, headache, weakness - 270 ng/l.

Hello, For the past year I've been suffering from bouts of exhaustion and 'brain fog', along with a persistent headache. A few months ago, on recommendation...

Hello, For the past year I've been suffering from bouts of exhaustion and 'bra...

•9 years ago

Search posts

Pinned Posts

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

How Often do you feel you actually need your B12 injection?

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All things Pernicious Anaemia Society(75)

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