Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,933 members • 23,074 posts

All posts for August 2022

Measuring B12 levels after PA diagnosis

Hello, I was wondering if someone could please explain why it’s not helpful to measure B12 levels after having regular B12 injections for pernicious anaemia?...

Hello, I was wondering if someone could please explain why it’s not helpful to m...

JadeRR

•2 years ago

19 Replies

chronic neurological adverse reactions

website called Research Square Vit B12 and deficiency as Cofactors of Covid 19 - induced Chronic neurological adverse reactions. For those who like to...

website called Research Square Vit B12 and deficiency as Cofactors of Covid 1...

Hidden

•2 years ago

11 Replies

David Cassidy, alcoholism or pernicious anemia?

just watched David Cassidy's last interview with Dr Phil. It was extremely sad. I feel very strongly that David Cassidy who died of dementia had pernicious...

just watched David Cassidy's last interview with Dr Phil. It was extremely sad....

EllaNore

•2 years ago

6 Replies

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incontinence re B12.

One of the first things I noticed when I started injecting B12 was that I could make it to the toilet at night without leaking on the way. However I neglected...

One of the first things I noticed when I started injecting B12 was that I could ...

Hectorsmum2

•2 years ago

13 Replies

the art of Listening

Well, We all know at times we have all been dismissed by Doctors because they have little knowledge of B12 Deficiency, and how it affects multitude...

Well, We all know at times we have all been dismissed by Doctors because they h...

Hidden

•2 years ago

19 Replies

Anti iFAB tests

Good morning all, I’m wondering about the anti IFAB test. I am aware that only 50% of people with PA test positive for these, but not sure why. Does anyone...

Good morning all, I’m wondering about the anti IFAB test. I am aware that only ...

Sparklyjenson

•2 years ago

41 Replies

Patience in the Mean time how to Cope

My b12 journey’s been a struggle and despite alternating between weekly injections and monthly (cyano) my levels haven’t improved all that much over the past 3...

My b12 journey’s been a struggle and despite alternating between weekly injectio...

Purplegirl2

•2 years ago

7 Replies

TONIGHT: True cost of "hidden" disabilities

Although I live in the US, I watch mostly British TV. I find it to be much more thoughtful and interesting than most American television, and it's easy to...

Although I live in the US, I watch mostly British TV. I find it to be much more ...

SouthSounder

•2 years ago

2 Replies

John F. Kennedy - Autoimmune Diseases

Just finished a Kindle book about John F. Kennedy - really interesting. I’m amazed how stoic he managed to be as, apart from his known back pain, it seems to...

Just finished a Kindle book about John F. Kennedy - really interesting. I’m ama...

Polaris

•2 years ago

6 Replies

Positive IFAB results just in.

Well, I got my intrinsic factor test back just now. It is positive! why am I happy about this? I guess I feel now that there is absolutely no question and...

Well, I got my intrinsic factor test back just now. It is positive! why am I ha...

EllaNore

•2 years ago

20 Replies

Boiling hot

Does PA cause overheating (I have been on HRT but doctor just stopped it no questions asked just stopped it!) but I am so hot all over my body is running with...

Does PA cause overheating (I have been on HRT but doctor just stopped it no ques...

pramela

•2 years ago

15 Replies

Question about exercise

Hi guys, I've been taking monthly injections of B12 for PA for quite a few months now and would say that energy levels and health have much improved. Lately...

Hi guys, I've been taking monthly injections of B12 for PA for quite a few mo...

JSD100

•2 years ago

9 Replies

importing b12

Where can I get 1ml Hydroxocobalamin ampoules from please? Will I have to pay duty ? Cheers

Where can I get 1ml Hydroxocobalamin ampoules from please? Will I have to pay du...

pom01326

•2 years ago

5 Replies

Buying b12 injections

Are they delivering to uk?

cheriton22

•2 years ago

1 Reply

Anyone Used Pascoe B12 Depot (Hydroxy)

Hi Guys and thank you all for all your help in my previous posts.... Has any one used Pascoe B12 Depot and did they notice any difference to Panpharma...

Hi Guys and thank you all for all your help in my previous posts.... Has any on...

WorkingProgress

•2 years ago

12 Replies

Defensive Medicine

What is Defensive Medicine ......... Defensive Medicine is defined as a doctors diviation from standard Practice to reduce or prevent Complaints or...

What is Defensive Medicine ......... Defensive Medicine is defined as a docto...

Hidden

•2 years ago

57 Replies

B12D and Autism - which tests would you suggest?

Hello everyone, In those awesome links that jade_s posted of Sally Pacholok, her movies mention autism. My friend has two children on the spectrum, they don't...

Hello everyone, In those awesome links that jade_s posted of Sally Pacholok, her...

EllaNore

•2 years ago

34 Replies

Ordering b12

Has anyone recently & successfully ordered B12 Hydroxocobalamin 1ml ampules from Germany in the UK? my last order was 6 months ago but now appears to not...

Has anyone recently & successfully ordered B12 Hydroxocobalamin 1ml ampules fr...

LJH50

•2 years ago

5 Replies

A Good Result

Dear All, I know we have all suffered and some of us still do, with really severe symptoms and circumstances. I am thinking especially of you, Sallyannl. I...

Dear All, I know we have all suffered and some of us still do, with really sev...

Narwhal10

•2 years ago

47 Replies

Achey elbows after b12 injection

Random question guys !!! I’ve thought I had and been diagnosed with tennis elbow in both arms .. it was really painful but I’ve learnt to live with it so has...

Random question guys !!! I’ve thought I had and been diagnosed with tennis elbow...

Lowblow

•2 years ago

3 Replies

insomnia and other symptoms returning with increased B12 injections

Many thanks for all your posts in insomnia. Like so many of you here I’ve been plagued by insomnia for decades. Initially on B12 self injections (2 x...

Many thanks for all your posts in insomnia. Like so many of you here I’ve been...

Hidden

•2 years ago

6 Replies

Fewer Injections, more injections or stay the course? Please advise.

I have been injecting 1 ml of methylcobalamin and cyanocobalamin, eod, alternatively for about a month. Sometimes, the numbness in my hands feels like it’s...

I have been injecting 1 ml of methylcobalamin and cyanocobalamin, eod, alternat...

RisingOne

•2 years ago

11 Replies

Advice please- you have true PA or Malabsorption B12 deficiency would taking a multivitamin and increasing meat nudge up b12 levels?

hi again everyone, really need this clarification please, if you have pernicious anemia or malabsorption b12 and folate defiency , would a multivitamin and...

hi again everyone, really need this clarification please, if you have pernicious...

Steph0077

•2 years ago

26 Replies

shop.apotal.de

Has anyone ordered Panpharma Depot B12 (Hydroxy) from shop.apotal recently ? ...... if so could you please tell me the sell by date of your last order....

Has anyone ordered Panpharma Depot B12 (Hydroxy) from shop.apotal recently ? ......

WorkingProgress

•2 years ago

9 Replies

breathlessness and bp

hi, looking for advice please. Had PA and AIG for 5 years, I inject myself and last 3 weeks have been having episodes of breathlessness/palpitations, have...

hi, looking for advice please. Had PA and AIG for 5 years, I inject myself and ...

Jb01

•2 years ago

11 Replies

widespread muscle pain

I posted a week ago about lower back pain. It seems that it has turned into some serious wide spread muscle pain. Not my limbs so much but my whole body just...

I posted a week ago about lower back pain. It seems that it has turned into some...

Ctadds1

•2 years ago

6 Replies

Some clarification please, are B12 folate And iron deficiency Competeting anemia's?

hi everyone, I just wanted to ask a question as I think I understand this but am not 100% sure, If you have B12 deficiency, folate deficiency, and iron...

hi everyone, I just wanted to ask a question as I think I understand this but ...

Steph0077

•2 years ago

23 Replies

advice please

Hi, I have tested positive for parietal cell antibodies and I also have three autoimmune conditions. For two years I’ve been experiencing tingling in my hands...

Hi, I have tested positive for parietal cell antibodies and I also have three au...

Auto2

•2 years ago

5 Replies

Help with search function please

How do I search the b12 forum section please? I’ve looked at the how to do this section but still struggling. I trying to avoid asking questions that I know...

How do I search the b12 forum section please? I’ve looked at the how to do this...

Cattywampus

•2 years ago

7 Replies

inflammation of the spinal cord

I am lost at what to do. Went to emergency private specialist this morning,he has questioned the B12 we have purchased from Germany that helps!!!! .... Had...

I am lost at what to do. Went to emergency private specialist this morning,he ...

Hidden

•2 years ago

53 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All posts(75)

All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2022

Measuring B12 levels after PA diagnosis

﻿chronic neurological adverse reactions

David Cassidy, alcoholism or pernicious anemia?

incontinence re B12.

﻿the art of Listening

Anti iFAB tests

Patience in the Mean time how to Cope

TONIGHT: True cost of "hidden" disabilities

John F. Kennedy - Autoimmune Diseases

﻿Positive IFAB results just in.

Boiling hot

﻿Question about exercise

importing b12

Buying b12 injections

Anyone Used Pascoe B12 Depot (Hydroxy)

﻿Defensive Medicine

B12D and Autism - which tests would you suggest?

﻿Ordering b12

A Good Result

Achey elbows after b12 injection

insomnia and other symptoms returning with increased B12 injections

Fewer Injections, more injections or stay the course? Please advise.

Advice please- you have true PA or Malabsorption B12 deficiency would taking a multivitamin and increasing meat nudge up b12 levels?

shop.apotal.de

breathlessness and bp

widespread muscle pain

Some clarification please, are B12 folate And iron deficiency Competeting anemia's?

advice please

Help with search function please

﻿inflammation of the spinal cord

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive

chronic neurological adverse reactions

the art of Listening

Positive IFAB results just in.

Question about exercise

Defensive Medicine

Ordering b12

inflammation of the spinal cord