Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,951 members • 23,089 posts

All posts for March 2023

B12 deficiency

Good day all, its me again. I do not know whether its part of the recovery or what. but my bones are like popping all the time and random pains on my arms,...

Good day all, its me again. I do not know whether its part of the recovery or wh...

mbhembe

•1 year ago

1 Reply

serum ferritin

hi folks long time posting, I think I got the right group I ad a ferritin blood done because they didn’t do one😡lol. Serum ferritin 42ug/L Range 30-400 I...

hi folks long time posting, I think I got the right group I ad a ferritin blood ...

Chance15

•1 year ago

7 Replies

Life Cycle of Red Blood Cell

https://pubmed.ncbi.nlm.nih.gov/34342697/#:~:text=The%20average%20life%20cycle%20of,cells%20called%20macrophages%20are%20found. "The average life cycle of a...

https://pubmed.ncbi.nlm.nih.gov/34342697/#:~:text=The%20average%20life%20cycle%2...

WIZARD6787

•1 year ago

1 Reply

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An article on nutrition and aging.

An article on nutrition and aging: https://www.medscape.com/viewarticle/988578 Scientific Advances and Dietary Measures to Slow Down Aging Javier Cotelo, MD...

An article on nutrition and aging: https://www.medscape.com/viewarticle/988578 ...

WiscGuy

•1 year ago

4 Replies

Very high B12 Serum Level after Deficiency Treatment

Hello everyone, I was diagnosed with Vitamin B12 deficiency (diet related). Blood level was detected at <148pg/ml and was treated with 6 Hydroxocobalamin...

Hello everyone, I was diagnosed with Vitamin B12 deficiency (diet related). Bloo...

csethi

•1 year ago

56 Replies

More long Covid

Another article on long Covid. Nothing new, but still it's striking to see the similarities with B12 with neurological symptoms. Especially the problems with...

Another article on long Covid. Nothing new, but still it's striking to see the s...

WiscGuy

•1 year ago

7 Replies

Ampoule snappers

I’m sure I saw a post about ampoule snappers on here but can’t find it. Can anyone recommend some please? Thanks

I’m sure I saw a post about ampoule snappers on here but can’t find it. Can anyo...

Sea-blue

•1 year ago

15 Replies

diagnosed with PA without IFA. Anyone else have similar experience?

I was diagnosed with PA in 2015 based off my APCA positive test. But my IFA was negative. Doctor retired. New doctor did not agree with PA diagnosis and...

I was diagnosed with PA in 2015 based off my APCA positive test. But my IFA was ...

Tigerlilly81

•1 year ago

9 Replies

Where to buy B12 Ampules?

Hi, am now stuggling to buy the ampules for the B12 injections. Does anyone know where the best place to buy them in the UK? any help is very much...

Hi, am now stuggling to buy the ampules for the B12 injections. Does anyone kno...

LittleA

•1 year ago

2 Replies

Blood tests

hi there I used to receive b12 injections but then the doctors decided to stop them for some reason, anyway I’ve been feeling really tired and just crappy for...

hi there I used to receive b12 injections but then the doctors decided to stop t...

MrsP2019

•1 year ago

4 Replies

Blood Tests for Children

Hi all Finally managed to get blood tests for my children but annoyingly, my daughter was not tested for all cofactors - just B12. Son is being tested...

Hi all Finally managed to get blood tests for my children but annoyingly, my da...

Wwwdot

•1 year ago

4 Replies

Instructions on giving b12 injections

I have PA and my 15 year old daughter has recently been displaying symptoms - utter exhaustion to the point where she was falling asleep at 4.30pm and sleeping...

I have PA and my 15 year old daughter has recently been displaying symptoms - ut...

TFH1

•1 year ago

29 Replies

yorkshiregirl4

Hello there, I am new to this group but have been able to find out so much more about Pernicious Anaemia from your helpful posts. Like so many members I have...

Hello there, I am new to this group but have been able to find out so much mor...

yorkshiregirl4

•1 year ago

24 Replies

HAD AN EMAIL FROM BODFELD-APOTHEKE.DE STATING THAT DELIVERIES TO U.K. ARE NO LONGER POSSIBLE .

No reason given . I tried to think of a reason . First thought it might be because the B12 ampoules we buy from them are a prescription item in U.K. I know...

No reason given . I tried to think of a reason . First thought it might be becau...

wedgewood

•1 year ago

39 Replies

Postherpetic Neuralgia and B12

helvella

•1 year ago

6 Replies

Ampoules

Hi everyone I have just placed an order with Versandapo for the Pharma ampoules. They are in packs of 10 but very reasonably priced.

Hi everyone I have just placed an order with Versandapo for the Pharma ampoules...

Sunshine1932

•1 year ago

11 Replies

.... FURTHER TO MY LAST QUERY

Vitamin B12 Depot Hevert ampoules (10 pcs) ... are these the same as the vitamin B12 Depot only in a different packet?

Vitamin B12 Depot Hevert ampoules (10 pcs) ... are these the same as the vita...

jacjc

•1 year ago

2 Replies

Injectable B12 source

Hi all I am trying to order my B12 from Bodfield Apotheke.de but UK is not on the country drop-down list. Help! Am I doing something wrong?

Hi all I am trying to order my B12 from Bodfield Apotheke.de but UK is not on t...

jacjc

•1 year ago

7 Replies

Some Positive News

I had an appointment today with my Oral Medicine consultant. An interesting conversation: I had asked for a saliva haptocorrin test. It seems that I would...

I had an appointment today with my Oral Medicine consultant. An interesting c...

Cherylclaire

Forum Support•1 year ago

9 Replies

Changing to oral?

I had a message left on my answer phone from the GP saying he wanted to speak to me regarding a change in medication. As I only get B12 injections prescribed I...

I had a message left on my answer phone from the GP saying he wanted to speak to...

lesbud1

•1 year ago

35 Replies

Acromegaly ? anyone here affected.

Just spotted on TV programme , woman 1, who had been going to GP for years with lots of symptoms was on Tv talking about a book she had written I think??...

Just spotted on TV programme , woman 1, who had been going to GP for years with...

Polo22

•1 year ago

5 Replies

B12 not improving

so I’ve been on twice monthly b12 injections and then my doc will order a blood test to check my b12 levels. It will still hoover around 300 usually. Tbh I...

so I’ve been on twice monthly b12 injections and then my doc will order a blood ...

Purplegirl2

•1 year ago

14 Replies

Leg cramps in bed at night-

I suffer from leg cramps at night time- I'm (72) diabetic and on insulin Also, I take statin tablet in the evening Will it help to change it to morning OR...

I suffer from leg cramps at night time- I'm (72) diabetic and on insulin Also, ...

PrettySALLY

•1 year ago

7 Replies

Shortness of breath/air hunger

So I'm looking for some thoughts from the geniuses here. You all always astound me with your information! At the time of diagnosis 5 years ago I was profoundly...

So I'm looking for some thoughts from the geniuses here. You all always astound ...

Emmers5

•1 year ago

15 Replies

cofactors

in canada they don’t test folic acid but i read it’s a main co-factor to take with b12? thoughts?

in canada they don’t test folic acid but i read it’s a main co-factor to take wi...

tassu50

•1 year ago

7 Replies

Relevant blood test to ask for...

Hi Fellow PA members, Will keep this short, but would like to know the name of the relevant blood test to measure how efficient my B12 jabs are at reaching...

Hi Fellow PA members, Will keep this short, but would like to know the name of ...

JanCymru

•1 year ago

2 Replies

rapid leg and arm movement whilst sleeping

Hi Everyone, For a little while I have suffering kicking like leg movements and to a lesser extent arm movements and vocalisations whilst sleeping and...

Hi Everyone, For a little while I have suffering kicking like leg movements an...

dch252

•1 year ago

13 Replies

source for Injectable B12

I usually but my B12 Panpharma depot from Germany pharmacies but it’s out of stock everywhere. I’ve looked at buying the pascal and they won’t send to the uk....

I usually but my B12 Panpharma depot from Germany pharmacies but it’s out of sto...

Baister

•1 year ago

2 Replies

effective brand of sublingual B12?

hi all, for those of you who find a B12 sublingual tablet works at least partially in providing symptom relief, can you recommend me a brand and product...

hi all, for those of you who find a B12 sublingual tablet works at least partial...

Hedgehog235

•1 year ago

11 Replies

What If?

Critical thinking often incorporates what if questions. What if current understanding of how to treat B12 is overly influenced by what was the best treatment...

Critical thinking often incorporates what if questions. What if current unders...

WIZARD6787

•1 year ago

9 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2023

B12 deficiency

serum ferritin

Life Cycle of Red Blood Cell

An article on nutrition and aging.

Very high B12 Serum Level after Deficiency Treatment

More long Covid

Ampoule snappers

diagnosed with PA without IFA. Anyone else have similar experience?

Where to buy B12 Ampules?

Blood tests

Blood Tests for Children

Instructions on giving b12 injections

yorkshiregirl4

HAD AN EMAIL FROM BODFELD-APOTHEKE.DE STATING THAT DELIVERIES TO U.K. ARE NO LONGER POSSIBLE .

Postherpetic Neuralgia and B12

Ampoules

.... FURTHER TO MY LAST QUERY

Injectable B12 source

Some Positive News

Changing to oral?

Acromegaly ? anyone here affected.

B12 not improving

Leg cramps in bed at night-

Shortness of breath/air hunger

cofactors

Relevant blood test to ask for...

rapid leg and arm movement whilst sleeping

source for Injectable B12

effective brand of sublingual B12?

What If?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive