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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for May 2019

B12 injection dosage

I'm a 60 year old man living in the US. Despite always exercising & eating a very good junk-free diet, I have basically felt like **** every day of my life...

I'm a 60 year old man living in the US. Despite always exercising & eating a ver...

SouthSounder

•5 years ago

36 Replies

Is there a UK website to track my DHL order from Bodfeld's in Germany?

Hello Everyone, I'm waiting for my first order of B12 from Bodfeld's in Germany, they sent me an email saying; "This parcel number only applies to the...

Hello Everyone, I'm waiting for my first order of B12 from Bodfeld's in Germany...

_Rose

•5 years ago

2 Replies

Finally got bloods done

Took so long just to speak to doctor to get tests okayed. It was 2014 I was diagnosed with PA (never treated) and iron deficiency anemia (always given iron...

Took so long just to speak to doctor to get tests okayed. It was 2014 I was diag...

Calamity4

•5 years ago

15 Replies

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Does anyone have a problem with no/low stomach acid and does anyone have anymore information about this?

I have been reading about achlorhydroa ( no stomach acid) and/or hydrochlorhydria (low stomach acid) as either a causal factor of b12 deficiency or strongly...

I have been reading about achlorhydroa ( no stomach acid) and/or hydrochlorhydri...

Scothyroidy

•5 years ago

12 Replies

Awaiting my 1st order of B12, should I take Folate (and other vitamins) and why?

Hello All at HealthUnlocked, As I await my 1st order of B12 (finally), I think someone here recommended taking Folate with B12, I have a few questions if...

Hello All at HealthUnlocked, As I await my 1st order of B12 (finally), I think s...

_Rose

•5 years ago

4 Replies

To anyone not feeling better after B12 shots

To anyone not feeling better after B12 shots, don't be fobbed off by your GP (I seem to see a lot of that on here) I've recently had blood tests after a year...

To anyone not feeling better after B12 shots, don't be fobbed off by your GP (I ...

SilverShamrock

•5 years ago

2 Replies

High figures

Hi I have had pa for 10 years now. When I was first diagnosed I had the loaded injections to start and then went on everything for weeks. My old doctor was...

Hi I have had pa for 10 years now. When I was first diagnosed I had the loaded i...

ADELESAXBY

•5 years ago

3 Replies

B12 injections

Has anyone else ever experienced a really weird throbbing in their bottom teeth (maybe in the roots) straight after a b12 injection? I get it every time and...

Has anyone else ever experienced a really weird throbbing in their bottom teeth ...

LizzieRb12

•5 years ago

3 Replies

Pernicious anaemia or not ?

Hi a little confused I have been on b12 injections for years and on loading doses a few times. Due to low b12 I was told i had pernicious anaemia years ago...

Hi a little confused I have been on b12 injections for years and on loading dos...

Sandra_Holmes_R

•5 years ago

6 Replies

Low Sex Drive

Has anybody else experienced low sex drive with b12 deficiency? My sex drive has been low for years and I believe this can be associated with b12 deficiency....

Has anybody else experienced low sex drive with b12 deficiency? My sex drive has...

lownskater52

•5 years ago

7 Replies

Bunch of Test Results Came Back. Help Needed.

Hey everybody, Been posting on this forum for a month now since learning I was very deficient on B12 (159) and have been supplementing ever since. I've...

Hey everybody, Been posting on this forum for a month now since learning I was ...

lownskater52

•5 years ago

Be the first to reply

About to be tested-a question...

Hi all, I am currently waiting for an appointment to check my b12 levels due to a number of symptoms I have. I had recently started taking b12...

Hi all, I am currently waiting for an appointment to check my b12 levels due to...

gemp54

•5 years ago

4 Replies

Symptoms worsen when tired

Does anybody find their symptoms are worse with lack of sleep? If I have a particularly bad night's sleep my balance is off (more than usual) and my arms/legs...

Does anybody find their symptoms are worse with lack of sleep? If I have a parti...

Awil

•5 years ago

6 Replies

Full blood count also

This is second page to blood tests

joleen19832

•5 years ago

Be the first to reply

Help with bloods

Can anyone help with these latest bloods results. Gastro has concluded it’s not PA although I’m still unconvinced 🥴 they have organised a tummy mri but some...

Can anyone help with these latest bloods results. Gastro has concluded it’s not...

joleen19832

•5 years ago

4 Replies

Need info please

I’m going to a doctors appointment with my daughter and need the latest guidelines from the pa society also something on the diagnosing of children as my...

I’m going to a doctors appointment with my daughter and need the latest guidelin...

Andypandy30

•5 years ago

5 Replies

PA or anxiety?

Please help. Does anyone else get vertigo/dizzy sensations whilst out and have to hold onto clothes rails in shops or similar?? I can't handle it anymore and...

Please help. Does anyone else get vertigo/dizzy sensations whilst out and have t...

sanstarr

•5 years ago

23 Replies

B12 and folate deficient but negative intrinsic factor.

Please help me. Last September bloods showed I was B12 and folate deficient and was given loading doses then every 12 weeks. I was self injecting for 6 months...

Please help me. Last September bloods showed I was B12 and folate deficient and ...

Badboybob

•5 years ago

6 Replies

Need Diagnosis urgently

Who can i go to for a diagnosis. GP says serum b12 of 400 proves not deficiency. All the symptoms tie up with PA or b12 amaemia. Should i go to a...

Who can i go to for a diagnosis. GP says serum b12 of 400 proves not deficiency....

Damseltree

•5 years ago

12 Replies

Where can I get Hydroxocobalamin?

My doctor is still going to test me before he will give me my B12. I have PA and have been on injections every 12 weeks. My levels are high. So my doctor is...

My doctor is still going to test me before he will give me my B12. I have PA and...

Mannequin18

•5 years ago

30 Replies

Hypothyroid AND Pernicious Anaemia. How to unpick the two?

Hi folks. Seems to me that symptoms for these two conditions are very similar. I am convinced I have PA. Won’t bore you, no diagnosis yet though, despite being...

Hi folks. Seems to me that symptoms for these two conditions are very similar. I...

Benji76

•5 years ago

3 Replies

Pruney fingers

Hi All, Is this the symptom of b12 deficiency. I get pruney after just touching water since I am diagnosed with PA. Or is it something else.

Hi All, Is this the symptom of b12 deficiency. I get pruney after just touchin...

Thulasi1

•5 years ago

4 Replies

Sorry long post

Saw doctor in March as very tired, wobbly, brain fog, really bad memory, blurry vision, rash on leg. He thought Lyme diseases and ordered lots of tests. Lyme...

Saw doctor in March as very tired, wobbly, brain fog, really bad memory, blurry ...

Lurcher-lady

•5 years ago

8 Replies

B12 and needles in post

Am I allowed to send ampoules and needles together in the post?

SunnyWorld

•5 years ago

2 Replies

Anybody advise, recommend, website/ supplier to order syringes, needles etc for self med. b12?

Given a pack of 10 B12 ampoules, and seen all the advice re two needle sizes ( for withdrawing b12, then injecting), suggested 2 ml syringe, even if 1 ml b12,...

Given a pack of 10 B12 ampoules, and seen all the advice re two needle sizes ( f...

Judithdalston

•5 years ago

5 Replies

B12 injections how long before you feel improvement

Hello, I'm taking b12 methyl injections for last 2 weeks but don't feel any better pins and needles and numbness have got worse at night. Should l persevere...

Hello, I'm taking b12 methyl injections for last 2 weeks but don't feel any bett...

1970s

•5 years ago

3 Replies

Getting worse after starting treatment

I have read a passing comment in some articles on pernicious anaemia that some patients get worse, only for a while, when treatment is started. It seems to be...

I have read a passing comment in some articles on pernicious anaemia that some p...

Cetus

•5 years ago

8 Replies

numbness of face

anyone with b12 folate/iron deficiency get numbness and tingling in there face my cheek isn’t completely numb (one side) it’s hard to explain...I can still...

anyone with b12 folate/iron deficiency get numbness and tingling in there face m...

rr1993

•5 years ago

16 Replies

Breathing difficulties HELP

Hi I need some advice please, I have never been tested for pernicious anaemia but was told by the GP I had a vitamin b12 deficiency. My symptom started as...

Hi I need some advice please, I have never been tested for pernicious anaemia b...

Antstarr

•5 years ago

6 Replies

Does need for B12 fluctuate?

Do you all notice that there are times you need more b12 than usual? My 6-year-old son is recovering from a deficiency and things have been going well until...

Do you all notice that there are times you need more b12 than usual? My 6-year-o...

amandaabrams

•5 years ago

4 Replies

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Various B12D/PA resources

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2019

B12 injection dosage

Is there a UK website to track my DHL order from Bodfeld's in Germany?

Finally got bloods done

Does anyone have a problem with no/low stomach acid and does anyone have anymore information about this?

Awaiting my 1st order of B12, should I take Folate (and other vitamins) and why?

To anyone not feeling better after B12 shots

High figures

B12 injections

Pernicious anaemia or not ?

Low Sex Drive

Bunch of Test Results Came Back. Help Needed.

About to be tested-a question...

Symptoms worsen when tired

Full blood count also

Help with bloods

Need info please

PA or anxiety?

B12 and folate deficient but negative intrinsic factor.

Need Diagnosis urgently

Where can I get Hydroxocobalamin?

Hypothyroid AND Pernicious Anaemia. How to unpick the two?

Pruney fingers

Sorry long post

B12 and needles in post

Anybody advise, recommend, website/ supplier to order syringes, needles etc for self med. b12?

B12 injections how long before you feel improvement

Getting worse after starting treatment

numbness of face

Breathing difficulties HELP

Does need for B12 fluctuate?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive