Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,915 members • 23,044 posts

All posts for October 2021

Bodfield Query

Hi everyone I just made my first purchase from Bodfield. I thought I'd successfully paid with Amazon Pay but then I got an email saying to pay by bank...

Hi everyone I just made my first purchase from Bodfield. I thought I'd successf...

Hidden

•2 years ago

16 Replies

How to manage severe symptoms of B12 deficiency?

My psychiatrist prescribed me mirtazapine 30 mg half every night and resperidone 1 mg. But since I take painkillers I didn't take resperidone because it's...

My psychiatrist prescribed me mirtazapine 30 mg half every night and resperidone...

Hamayeshguy

•2 years ago

15 Replies

New to Self Injection

Hi All First time posting! Hope everyone's OK. How often do folks self-inject? I'm struggling to get a diagnosis for a B12 deficiency but all the signs are...

Hi All First time posting! Hope everyone's OK. How often do folks self-inject? ...

Hidden

•2 years ago

8 Replies

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Repeat blood test after loading dose???

My B12 level was very low <100 and after testing I was diagnosed with pernicious anaemia. A couple of weeks after the loading dose my blood was retested and...

My B12 level was very low <100 and after testing I was diagnosed with pernicious...

Patsypar

•2 years ago

6 Replies

How I Manage B12 Sickness (at least some of it)

Hello All - I have been reading this blog for a few months now and have gleaned a great deal of good information - thank you! I have especially been reading...

Hello All - I have been reading this blog for a few months now and have gleaned ...

Hidden

•2 years ago

10 Replies

Can extreme muscle weakness be symptoms of B12 deficiency or just mild tiredness is symptom of B12 deficiency?

After taking iron pills for couple of days my muscle pains improved but now I have extreme muscle weakness and when I stand on my feet I feel too much...

After taking iron pills for couple of days my muscle pains improved but now I h...

Hamayeshguy

•2 years ago

6 Replies

Is there any issue with having alternative hydroxycobalmin and then methylcobalmin injections every other month?

I am currently battling with my GP over the timings of my hydroxycobalmin injections, got him down two every two months and my symptoms indicate a need for...

I am currently battling with my GP over the timings of my hydroxycobalmin inject...

Dhrbr

•2 years ago

4 Replies

Happy b12 and pregnancy stories

Mothers of the PAS group, please would you share your happy stories of pregnancy and child rearing whilst having been managing PA? I think it would be so...

Mothers of the PAS group, please would you share your happy stories of pregnancy...

Roo32

•2 years ago

2 Replies

Low B12 Symptom anyone have this ???

Question .... Had low b12 in 300 range back in July 2021. Now on injections and got my level up to1169 which is very good. However, when i was in low range...

Question .... Had low b12 in 300 range back in July 2021. Now on injections an...

catgirl2021

•2 years ago

7 Replies

Please help, severe abdomen muscles pain

I have injected for six months with variable frequency. I was getting better since last year September after probably megaloblastic RBC and all if it's...

I have injected for six months with variable frequency. I was getting better sin...

Hamayeshguy

•2 years ago

17 Replies

Pernicious anaemia and covid

Evening from London. I had my four weeklyB12 injection last week because I have pernicious anaemia. I feel really poorly and wondered if the virus affects our...

Evening from London. I had my four weeklyB12 injection last week because I have ...

Hedgehogs15

•2 years ago

7 Replies

New treatment for nerve damage

I don't know if anyone else has seen this article, but I thought I'd share it with everyone https://newatlas.com/nerve-nanomesh/48174/

I don't know if anyone else has seen this article, but I thought I'd share it wi...

MoKayD

•2 years ago

4 Replies

Having a cold and b12 stores

Hi all just wondering if having a cold uses up more b12. I had a bad cold acouple of weeks ago and now feeling like I'm ready for my b12 jab but its not for a...

Hi all just wondering if having a cold uses up more b12. I had a bad cold acoupl...

Darcey14

•2 years ago

1 Reply

B12 injections and flushing

After a long time of trying to figure out what has been causing my skin to flush, I am now fairly sure it is the B12 injections. I tried increasing the...

After a long time of trying to figure out what has been causing my skin to flush...

Alpaca24

•2 years ago

16 Replies

Does increasing dosage lead to an increased need.?

I have increased Si from 6wks to 3wks with no relief in exhaustion and weariness.

I have increased Si from 6wks to 3wks with no relief in exhaustion and weariness...

Mrsannabbott

•2 years ago

15 Replies

Allithiamine

I’ve seen a post about allithiamine helping brain fog and neuropathy ,lost the post and can’t find it again. Does anyone know about this in relation to PA?...

I’ve seen a post about allithiamine helping brain fog and neuropathy ,lost the p...

Pink06

•2 years ago

2 Replies

Interesting summary of PA on nhs website

I read the following paragraph to a nutritionist and I think they didnt believe it. I have PA but also suspected chronic pancreatitis in spite of healthy...

I read the following paragraph to a nutritionist and I think they didnt believe...

Luac

•2 years ago

10 Replies

Pa

Hi I've finally got results of blood test which was taken last week I've not taken any of vit meds doctor prescribed until I have these results checked out as...

Hi I've finally got results of blood test which was taken last week I've not tak...

Hotpool23

•2 years ago

4 Replies

Creatinine CKD-EPI per 1.73 sq metres

Does this mean anything to anyone?. It was on my recent blood results. Result above 90 ml/min No 'in range stated Is this something to do with kidneys and...

Does this mean anything to anyone?. It was on my recent blood results. Result ...

Nackapan

•2 years ago

6 Replies

Is my doctor correct?

Hi, this morning I have had a telephone appointment with my doctor. I had the appointment because I wanted to bring my b12 injections from 3 monthly to 2...

Hi, this morning I have had a telephone appointment with my doctor. I had the ap...

Sassybob

•2 years ago

15 Replies

High strength B12

Are there any known problems with using cyanocobalamin forte please?

Shogie

•2 years ago

3 Replies

B12, pregnancy and autism risk

Hello I'm currently treated with b12 injections every two months and have been taking a bcomplex vitamin almost daily for the last year or so on top. This has...

Hello I'm currently treated with b12 injections every two months and have been t...

Roo32

•2 years ago

9 Replies

Good morning - any best practices for brain fog while recovering?

Hi all - many symptoms are improving - even pain to a degree. But the brain fog seems even worse? I wonder if this is part of the reversing out? I am...

Hi all - many symptoms are improving - even pain to a degree. But the brain fog...

SigNi

•2 years ago

22 Replies

Can instrinsic factor antibodies show twice

I previously showed antibodies for instrinsic factor, I was then prescribed b12 injections. I have a new GP and he wants to re test for antibodies before...

I previously showed antibodies for instrinsic factor, I was then prescribed b12 ...

Thorpe1984

•2 years ago

26 Replies

Increased reticulocyte count - leukemia?

Increased reticulocyte count - ...And decreased ferritin situation. I have manager my PA well for many years now, but forgot to bring my krauterblut Iron on...

Increased reticulocyte count - ...And decreased ferritin situation. I have manag...

indywindy

•2 years ago

2 Replies

So confused with different advice about suppliments.

Hi all. Iv been si hydro eod for almost a year my b12 was 170. I did not take the advice from a said fb group and only take 200mg of folic acid. I take a b...

Hi all. Iv been si hydro eod for almost a year my b12 was 170. I did not take th...

Clara5672

•2 years ago

51 Replies

Why whenever I take Iron pill I feel better?

I have lots of muscle related symptoms along with blurry vision and double vision and numbness in hands. As soon as I started injection six months ago I...

I have lots of muscle related symptoms along with blurry vision and double visio...

Hamayeshguy

•2 years ago

8 Replies

Changes with periods

Hi, to those who this might apply to. I am perimenopausal but still have periods every month. Since starting my injections they have become considerably more...

Hi, to those who this might apply to. I am perimenopausal but still have period...

newbiegirl

•2 years ago

11 Replies

Abdominal pain from shots?

I have had constant upper abdominal pain for two weeks. I had been titrating my sc injections because of side effects. I use hydroxy. When I did a 500 mcg....

I have had constant upper abdominal pain for two weeks. I had been titrating my ...

EiCa

•2 years ago

13 Replies

Help! Cant find a supplier for needles for my b12 injections

Im in the UK, & struggling to find the needles for my injections of b12. These my normal needles are Braun Sterican .80×40mm Does anyone know of a good...

Im in the UK, & struggling to find the needles for my injections of b12. These m...

Mogwa

•2 years ago

21 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All posts(75)

All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2021

Bodfield Query

How to manage severe symptoms of B12 deficiency?

New to Self Injection

Repeat blood test after loading dose???

How I Manage B12 Sickness (at least some of it)

Can extreme muscle weakness be symptoms of B12 deficiency or just mild tiredness is symptom of B12 deficiency?

Is there any issue with having alternative hydroxycobalmin and then methylcobalmin injections every other month?

Happy b12 and pregnancy stories

Low B12 Symptom anyone have this ???

Please help, severe abdomen muscles pain

Pernicious anaemia and covid

New treatment for nerve damage

Having a cold and b12 stores

B12 injections and flushing

Does increasing dosage lead to an increased need.?

Allithiamine

Interesting summary of PA on nhs website

Pa

Creatinine CKD-EPI per 1.73 sq metres

Is my doctor correct?

High strength B12

B12, pregnancy and autism risk

Good morning - any best practices for brain fog while recovering?

Can instrinsic factor antibodies show twice

Increased reticulocyte count - leukemia?

So confused with different advice about suppliments.

Why whenever I take Iron pill I feel better?

Changes with periods

Abdominal pain from shots?

Help! Cant find a supplier for needles for my b12 injections

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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