Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

33,312 members•24,544 posts

All posts for February 2013

Newbie with B12 deficiency and potassium problems

I was diagnosed with B12 deficiency (blood level 197) 4 months ago. Lots of symptoms--dizziness, falling, confusion, difficulty swallowing, ears ringing. I...

I was diagnosed with B12 deficiency (blood level 197) 4 months ago. Lots of symp...

sharjo

•12 years ago

58 Replies

On a standard b12 blood test my levels are normal can I still be b12 deficient?

I have been struggling with small nerve fibre damage for 12 months along with extreme fatigue and other symptoms off the societies web check list. I've seen...

I have been struggling with small nerve fibre damage for 12 months along with ex...

Greenies

•12 years ago

14 Replies

can nerve end damage repair its'self, or does it need special treatment

hynds

•12 years ago

3 Replies

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Time release B12

Does anyone have a view on whether time release B12 is better or worse than the nearest equivalent non-time release form? Or indistinguishable! I am very...

Does anyone have a view on whether time release B12 is better or worse than the ...

helvella

•12 years ago

3 Replies

I have been diagnosed with Macrcytosis and alot of the symptoms are familiar to me... with whom do I discuss this? Help!

kellymmdavis

•12 years ago

5 Replies

intrinsic factor and and peretial cell tests negative symptoms still persist is this possible

hynds

•12 years ago

2 Replies

I have pernicious anemia and have a B12 injection once every 12 weeks.

I have read that I should be supplementing with folic acid and I have also heard that with PA one should not be takking folic acid. Which is correct please?

I have read that I should be supplementing with folic acid and I have also hear...

Lilian15

•12 years ago

6 Replies

SIDE EFFECTS OF VITAMIN B12 INJECTIONS

In the month since I joined this website, I noticed many reports of side effects by those receiving injections. I purchased a vial of 1,000 mcgs of B12 with...

In the month since I joined this website, I noticed many reports of side effects...

Hidden

•12 years ago

12 Replies

Will these injections be for life?

I am 21 and my level today was 105. My doctor diagnosed me today with pernicious anaemia I am starting treatment on Tuesday injections every other day for 2...

I am 21 and my level today was 105. My doctor diagnosed me today with pernicious...

Jodie91

•12 years ago

6 Replies

what to do.....

just been diagnosed with a very low b12 and was told i needed loading up, but after the first injection i had a bad reaction on that day achy joints bad tummy...

just been diagnosed with a very low b12 and was told i needed loading up, but af...

frankie483

•12 years ago

3 Replies

E Petitiion

Hi there. I came across this petition related to Vitamin b12 deficiency/pernicious anaemia. Unfortunately it only seems to have 247 signatures. From...

Hi there. I came across this petition related to Vitamin b12 deficiency/pernici...

Irene

•12 years ago

7 Replies

How serious is this? extra dose of haemoglobin n iron n b12 n vitamin D... 26weeks...how common is it???

amby

•12 years ago

1 Reply

Can anyone tell me how serious a B12 blood result of 75 is?

doityourself

•12 years ago

8 Replies

Am I being too premature in hoping for relief from extreme tiredness.

In November 2012 I was diagnosed with PA. Since then I have had adequate shots of B12 supplemented with FerrousvFumarate. Recent blood tests show good levels...

In November 2012 I was diagnosed with PA. Since then I have had adequate shots o...

Eviepeevie

•12 years ago

4 Replies

Does anyone know anything about thiamine?

One of my long standing problems is that I am cold intolerant. It's not constant, there are some days when it is worse than others. I start to get very cold,...

One of my long standing problems is that I am cold intolerant. It's not constan...

poing

•12 years ago

9 Replies

Does this sound like B12 defeciency?

I had a gastric bypass three years ago, lost over 10 stone and have taken multi vitamins and minerals ever since. I have never had any follow up from either...

I had a gastric bypass three years ago, lost over 10 stone and have taken multi ...

twintastic

•12 years ago

6 Replies

Lower Right Side Abdomen Pain

Hi - I was diagnosed with PA 3 months ago when my B12 level dropped to 1. Obviously requiring an emergency blood transfusion and high dose B12 injections....

Hi - I was diagnosed with PA 3 months ago when my B12 level dropped to 1. O...

Joe1972

•12 years ago

3 Replies

Is there a date yet for the Active B12 test that can be done without GP referral?

I noticed on the site (Dec 12) that it was said the test would be available soon without the GP referral. I'm just wondering if they have given a date yet. If...

I noticed on the site (Dec 12) that it was said the test would be available soon...

Hidden

•12 years ago

Be the first to reply

Endo Appointment

Well I went for my Endo appointment this week and it was a waste of time, I had high hopes of finding a solution to my THyroid problem (well my tsh problem)...

Well I went for my Endo appointment this week and it was a waste of time, I had ...

mummytina

•12 years ago

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Is anyone else suffering with numbness, Pins&Needles and electric shock type pain?

I've had problems for a while now, The Gp has been pretty useless and I'm yet to get any result from EMG test. I feel as though I'm getting nowhere when I...

I've had problems for a while now, The Gp has been pretty useless and I'm yet t...

becca85

•12 years ago

6 Replies

Government at it AGAIN - Supplements Interference

Apologies if this has already been posted on here, I have not checked in every day. This below is what I have been sent. If you have Facebook pages, this...

Apologies if this has already been posted on here, I have not checked in every d...

JLTsirius

•12 years ago

2 Replies

New here and looking for advice - do I have a problem?

Hi all I'm new to this board. I have hypothyroidism and have been suffering from peripheral neuropathy for a couple of years. My B12 was checked a while ago...

Hi all I'm new to this board. I have hypothyroidism and have been suffering fro...

ejh1

•12 years ago

3 Replies

SHARING HEALTH NEWS V - Great ways to improve brain function; avoid cancer + a BIG show only available today!

Cheers everyone: I shared earlier my daily use of magnesium sulfate, 250mcgs 3Xday, for muscular pain and cramps. It has many more benefits. Enjoy this...

Cheers everyone: I shared earlier my daily use of magnesium sulfate, 250mcgs ...

Hidden

•12 years ago

Be the first to reply

SHARING HEALTHY NEWS IV - HAS ANYONE TRIED THESE ANTI-INFLAMMATORY FOODS?

HALF WAY THROUGH THIS ARTICLE IS REFERENCE TO HEALTHY SATURATED FATS, WHICH I EAT IN GREAT QUANTITIES BEING ON PROTEIN DIET. I OFFSET THAT HIGH LEVEL BY INTAKE...

HALF WAY THROUGH THIS ARTICLE IS REFERENCE TO HEALTHY SATURATED FATS, WHICH I EA...

Hidden

•12 years ago

2 Replies

SHARING GOOD NEWS III - HOW CAN DIET CHANGES IMPROVE B12/FOLATE LEVELS BY LOWERING HOMOCYSTEINE

Hi folks: Sharing material below because of homocysteine connection with PA. In earlier material I submitted about tests suggested for PA, homocysteine...

Hi folks: Sharing material below because of homocysteine connection with PA. ...

Hidden

•12 years ago

Be the first to reply

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(114)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2013

Newbie with B12 deficiency and potassium problems

On a standard b12 blood test my levels are normal can I still be b12 deficient?

can nerve end damage repair its'self, or does it need special treatment

Time release B12

I have been diagnosed with Macrcytosis and alot of the symptoms are familiar to me... with whom do I discuss this? Help!

intrinsic factor and and peretial cell tests negative symptoms still persist is this possible

I have pernicious anemia and have a B12 injection once every 12 weeks.

SIDE EFFECTS OF VITAMIN B12 INJECTIONS

Will these injections be for life?

what to do.....

E Petitiion

How serious is this? extra dose of haemoglobin n iron n b12 n vitamin D... 26weeks...how common is it???

Can anyone tell me how serious a B12 blood result of 75 is?

Am I being too premature in hoping for relief from extreme tiredness.

Does anyone know anything about thiamine?

Does this sound like B12 defeciency?

Lower Right Side Abdomen Pain

Is there a date yet for the Active B12 test that can be done without GP referral?

Endo Appointment

Is anyone else suffering with numbness, Pins&Needles and electric shock type pain?

Government at it AGAIN - Supplements Interference

New here and looking for advice - do I have a problem?

SHARING HEALTH NEWS V - Great ways to improve brain function; avoid cancer + a BIG show only available today!

SHARING HEALTHY NEWS IV - HAS ANYONE TRIED THESE ANTI-INFLAMMATORY FOODS?

SHARING GOOD NEWS III - HOW CAN DIET CHANGES IMPROVE B12/FOLATE LEVELS BY LOWERING HOMOCYSTEINE

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive