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Pernicious Anaemia Society

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All posts for November 2020

Question about b12 deficiency and ibs

I read online that ibs can cause vitamin B12 deficiency. If so, is taking b12 pills enough or do you still need injections?

I read online that ibs can cause vitamin B12 deficiency. If so, is taking b12 pi...

Zeffy90

•3 years ago

10 Replies

B12 INJECTIOSS

Where can I buy vitamin B and needles to self medicate as I'm an exhausted carer and my doctor stopped my medication 9 months ago? Any information would be...

Where can I buy vitamin B and needles to self medicate as I'm an exhausted car...

Burbank

•3 years ago

6 Replies

VERTIGO

Never suffered from this before ,had dizziness but yesterday from mid afternoon ,had horrendous what I think was vertigo .Had to hold on to furniture to get to...

Never suffered from this before ,had dizziness but yesterday from mid afternoon ...

may61

•3 years ago

2 Replies

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Neuropathy symptoms variable?

Hi, When my monthly B12 injections were cut to every 3 months I developed a range of symptoms including peripheral neuropathy. I am still trying to get this...

Hi, When my monthly B12 injections were cut to every 3 months I developed a rang...

Brocher

•3 years ago

21 Replies

Vitamin B12 information

Hi My sister has all the signs and symptoms of low B12. I don’t live near her so please would someone on this link send me the information she will need to...

Hi My sister has all the signs and symptoms of low B12. I don’t live near her so...

Chocolate41

•3 years ago

5 Replies

New and first post might not be related.. please excuse me.

i had severe weight loss, and lot of symptoms in 2018, i went to specialist and got infections tests and all came back good.. but my CD8 cells are very less in...

i had severe weight loss, and lot of symptoms in 2018, i went to specialist and ...

b12pas

•3 years ago

1 Reply

Going private in UK for B12 / folate deficiancy

Does anyone have any experience of seeing a private consultant in the UK for B12 and folate deficiency? I was diagnosed in February 2020 and have had...

Does anyone have any experience of seeing a private consultant in the UK for B12...

Cinders70

•3 years ago

30 Replies

My story. Need some advide

Hi everyone, I'm new on this forum (although I registered in July). I want to share my story since I'm looking for some help and advice. Don't mind my poor...

Hi everyone, I'm new on this forum (although I registered in July). I want to sh...

Zeffy90

•3 years ago

1 Reply

Can I have B12 jabs before 12 week deadline?

Hello, I'm new to this group and am looking for some advice please. I have 12 weekly shots of B12 for my PA and b12 deficiency. For the last year I have asked...

Hello, I'm new to this group and am looking for some advice please. I have 12 we...

Brownie49

•3 years ago

17 Replies

B12? SIBO? Anemia? Short Bowel?

I don’t even know where to start. My 3.5 year old has neuropathy, muscle wasting, he is so incredibly pale and fatigued. We’ve been treating SIBO and symptoms...

I don’t even know where to start. My 3.5 year old has neuropathy, muscle wasting...

Soltissj23

•3 years ago

2 Replies

Intermittent recovery

Hi, I am writing to ask about members experience of recovery after injection treatment. I was diagnosed in the summer with B12 deficiency and had the 6...

Hi, I am writing to ask about members experience of recovery after injection tr...

Gatcombe10

•3 years ago

4 Replies

Petition update

Hi, Apologies if this has been posted already. B12 Deficiency Info blog post from 17th Nov. Tracy Witty of B12 Deficiency Info is asking for people to help...

Hi, Apologies if this has been posted already. B12 Deficiency Info blog post fro...

Sleepybunny

•3 years ago

17 Replies

Recommended iron supplements

Hi All. I have B12 deficiency (never tested for PA) and self-inject as well as monthly prescription from GP. Like many my ferritin levels are low. I have been...

Hi All. I have B12 deficiency (never tested for PA) and self-inject as well as ...

LizWilsonpa

•3 years ago

7 Replies

Vitamin B12 Source for US members

i systematically went through some recs from another member here. the usual problem was they didn't ship to me in California USA. what i found was:...

i systematically went through some recs from another member here. the usual pro...

Hidden

•3 years ago

8 Replies

Stomach acid

Hello all.. I’m hoping I can get some clarity from you guys .. I’m really confused about stomach acid and atrophic gastritis and pernicious anaemia.. I have...

Hello all.. I’m hoping I can get some clarity from you guys .. I’m really confus...

lifegems

•3 years ago

10 Replies

B12 and folate relationship.

I understand that B12 and folate are both B vitamins and essential for the production of healthy blood cells but not sure of their relationship to/interaction...

I understand that B12 and folate are both B vitamins and essential for the produ...

Scipio99

•3 years ago

9 Replies

Fatty tissue necrosis and oil granuloma after subcutaneous injections of vitamin B12

Some while back there was discussion about research into using some sort of oil base for B12 injections so as to effectively form a depot. Seems that there is...

Some while back there was discussion about research into using some sort of oil ...

helvella

•3 years ago

5 Replies

B12 levels

Could anyone give me some advice. 2 months ago I received 6 loading doses of b12. My b12 was 130 prior to this. My b12 is now 450 and gp says this is...

Could anyone give me some advice. 2 months ago I received 6 loading doses of b1...

Oscarb65

•3 years ago

7 Replies

Magnesium?

Have anyone tried nature bounty magnesium supplement and does it really help with mood and heart etc

Have anyone tried nature bounty magnesium supplement and does it really help wit...

Sochill53_

•3 years ago

10 Replies

Beyond b12 Injections - What else can we do?

Hello, I've been reading a lot to better understand pernicious anemia and figure out what else might be done to improve my long term outcomes. Basically, I...

Hello, I've been reading a lot to better understand pernicious anemia and figur...

anon4035

•3 years ago

7 Replies

Tired after B12 injection

Is anyone else tired the day after a B12 injection. I can be tired, no engery or get up and go, unable to think clearly and a little off balance.

Is anyone else tired the day after a B12 injection. I can be tired, no engery or...

carer999

•3 years ago

8 Replies

B12 injections and liver enzymes

Hi, just wanting to check that can B12 injections cause liver damage? Since starting injections 5 months ago my liver enzyme count in the labs has tripled....

Hi, just wanting to check that can B12 injections cause liver damage? Since star...

Hidden

•3 years ago

6 Replies

What is the reason that people who have had severe long term B12 deficiency need to take injections so regularly for the rest of their life?

I take Hydroxocobalamin injections every four days to avoid B12 deficiency symptoms. This works well for me, but is there any research as to why those of us...

I take Hydroxocobalamin injections every four days to avoid B12 deficiency sympt...

VellBlue

•3 years ago

12 Replies

Advice welcomed pls.

I’ve had all the classic signs of low b12 for about 18 months had 6 different drs involved and none really paid close enough attention to my symptoms which I...

I’ve had all the classic signs of low b12 for about 18 months had 6 different dr...

Samsungtracy

•3 years ago

5 Replies

An interesting day today

I decided to go online and look at my new gps website to try and pluck up the courage to make an appointment after I’d recently had my ct scan and the...

I decided to go online and look at my new gps website to try and pluck up the co...

Hidden

•3 years ago

6 Replies

GP will only agree to 3 monthly injections unless I have a blood test showing low b12 levels.

This is a copy of his email in answer to my request for more frequent injections. ( I am aware you have been on the b12 injections for a long time now and we...

This is a copy of his email in answer to my request for more frequent injections...

Showgem

•3 years ago

33 Replies

Is tinnitus a side effect of the injections? I only started having it after starting injections

Hi has anyone experienced tinnitus after their loading doses? I’ve never had it before and I know it’s a symptom of b12 deficiency however mine only started...

Hi has anyone experienced tinnitus after their loading doses? I’ve never had it ...

Ginacece

•3 years ago

4 Replies

Any advice appreciated as losing faith in my Dr!

I’m new to this so just looking for some advice as I’m losing faith in my Dr! I got some blood tests done and my Dr said I have PA as my B12 was so low. I got...

I’m new to this so just looking for some advice as I’m losing faith in my Dr! I ...

Bamboo71

•3 years ago

12 Replies

Where to buy B12 in USA?

I struck out looking a few months back. don't think my doctor will prescribe. anyone have decent luck and reasonable delivery times? other forms besides cyano?...

I struck out looking a few months back. don't think my doctor will prescribe. an...

Hidden

•3 years ago

15 Replies

Interesting B12 Video.

Let me know what you guys think. https://youtu.be/R0d6Dpx2li4

lownskater52

•3 years ago

8 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2020

Question about b12 deficiency and ibs

B12 INJECTIOSS

VERTIGO

Neuropathy symptoms variable?

Vitamin B12 information

New and first post might not be related.. please excuse me.

Going private in UK for B12 / folate deficiancy

My story. Need some advide

Can I have B12 jabs before 12 week deadline?

B12? SIBO? Anemia? Short Bowel?

Intermittent recovery

Petition update

Recommended iron supplements

Vitamin B12 Source for US members

Stomach acid

B12 and folate relationship.

Fatty tissue necrosis and oil granuloma after subcutaneous injections of vitamin B12

B12 levels

Magnesium?

Beyond b12 Injections - What else can we do?

Tired after B12 injection

B12 injections and liver enzymes

What is the reason that people who have had severe long term B12 deficiency need to take injections so regularly for the rest of their life?

Advice welcomed pls.

An interesting day today

GP will only agree to 3 monthly injections unless I have a blood test showing low b12 levels.

Is tinnitus a side effect of the injections? I only started having it after starting injections

Any advice appreciated as losing faith in my Dr!

Where to buy B12 in USA?

Interesting B12 Video.

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive