Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,669 members•24,064 posts

All posts for April 2018

Alpha Lipoic Acid

What daily quantity is safe to take for pins and needles in hands? 500 mg for 2 days is working.

What daily quantity is safe to take for pins and needles in hands? 500 mg for 2 ...

Herbert123

•7 years ago

6 Replies

Have I got Pernicious Anaemia ?

I was diagnosed by my GP as having Pernicious Anaemia around 5 years ago, I assume this was after one of my regular blood tests for type 2 Diabetes. Since...

I was diagnosed by my GP as having Pernicious Anaemia around 5 years ago, I assu...

KStandKen

•7 years ago

5 Replies

Is this an acceptable rise in B12?

Hi everyone, First time poster in this group. I'm a 36 y/o female with hx of fibromyalgia and Hashimotos. Last fall, I began to notice vertigo and palps as...

Hi everyone, First time poster in this group. I'm a 36 y/o female with hx of fib...

swebes

•7 years ago

8 Replies

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Where can I get reputable b12 vials and syringes?

Where can I buy b12 vials and syringes? I have pernicious anaemia and I finally have to give in and self medicate. My symptoms never go away even after my...

Where can I buy b12 vials and syringes? I have pernicious anaemia and I finally ...

Fatnan37

•7 years ago

13 Replies

Burning sensation on the face

I started taking B12 injections (hydroxocobalamin 1000mg) in October 2017. After 3-4 months I have stopped taking it every other day and take every four days....

I started taking B12 injections (hydroxocobalamin 1000mg) in October 2017. Afte...

Kosakosia

•7 years ago

15 Replies

The digestive and nutritional benefits of Dill

This may be thought a bit off topic but actually, it isn't as iron, folate, B vitamins, magnesium, potassium and glutathione are often discussed on the forum......

This may be thought a bit off topic but actually, it isn't as iron, folate, B vi...

Polaris

•7 years ago

17 Replies

Unexplained symptoms after anaesthetic

Hi, I’m 16 years old and I have hEDS (Hypermobility Ehlers Danlos Syndrome, POTS (Postural Orthostatic Tachycardia Syndrome) and lots of gastro problems...

Hi, I’m 16 years old and I have hEDS (Hypermobility Ehlers Danlos Syndrome, POT...

Barney_official_

•7 years ago

2 Replies

Can I rule out PA now?

Hi Advice appreciated please. My understanding is taking multivit with b12 in might affect the blood results but would not affect the urine MMA? Is that...

Hi Advice appreciated please. My understanding is taking multivit with b12 in m...

tiredBFmum

•7 years ago

5 Replies

Where can I purchase b12 injections?

I live in the US and have found it difficult to find a reliable place to purchase b12 injections. Especially without a prescription. I was diagnosed with PA...

I live in the US and have found it difficult to find a reliable place to purchas...

Ashley8

•7 years ago

9 Replies

Checking b12 levels while supplementing?

Hi all, I have a conundrum ... pls scroll down to my Q at the end if you don’t have time to read my backstory ☺️ I have hypothyroidism but I haven’t...

Hi all, I have a conundrum ... pls scroll down to my Q at the end if you don’t h...

Saya85

•7 years ago

16 Replies

NICE Guidelines re B12 & Haematologist referrals

Hiya, As I was pointed to many moons ago last August when I 'crashed' badly after receiving loading doses in July but then couldn't stand up and had SACD...

Hiya, As I was pointed to many moons ago last August when I 'crashed' badly afte...

Hidden

•7 years ago

14 Replies

Privacy reminder

Please note that feed from HU appears on a number of sites. If you post with information that gives personal information - which could involve your location -...

Please note that feed from HU appears on a number of sites. If you post with in...

Gambit62

Administrator•7 years ago

Be the first to reply

New to here and the app

Hello I need to know more about PA other than low b12.

lisa209

•7 years ago

3 Replies

B12 deficiency but doctor now suggests it's Parkinsons because symptoms are no better in a year.

Writing on behalf of my husband. He has been unwell for about 3 years after a difficult gall bladder operation requiring a 24 day stay in hospital. Since then...

Writing on behalf of my husband. He has been unwell for about 3 years after a di...

pamelashep

•7 years ago

36 Replies

Increased muscle pain

Iam two weeks into self injecting and notice the neuro symptoms are getting less, but the muscle pain increases. Does this mean my muscles are healing?...

Iam two weeks into self injecting and notice the neuro symptoms are getting less...

Geckowacko

•7 years ago

9 Replies

Feeling tired after consuming L-Methyl-folate

Hi Guys, I was diagnosed with b12 deficiency (vegan) 2 months ago. I've been supplementing for the past two months the methylcobalamin and have seen...

Hi Guys, I was diagnosed with b12 deficiency (vegan) 2 months ago. I've been sup...

rabbitfish

•7 years ago

5 Replies

Seems I fluctuate

After being told by my doctor that I couldn't possibly have neuro symptoms as I've only just gone low it seems I bounce about a bit. 192 in March. 337 in...

After being told by my doctor that I couldn't possibly have neuro symptoms as I'...

Hercules1969

•7 years ago

4 Replies

Is this level of B12 low enough for treatment?

Hi, I was diagnosed with a folate deficiency 2 months ago so have been taking tablets for that. When I had the blood test that diagnosed it, I had a B12 level...

Hi, I was diagnosed with a folate deficiency 2 months ago so have been taking ta...

laceymolloy97

•7 years ago

17 Replies

Does anxiety and depression get better with self Injections

Had my monthly injection yesterday and in the week I'm due I can feel much more anxious and depressed and tired as my body must need it . I still feel like...

Had my monthly injection yesterday and in the week I'm due I can feel much more ...

Andypandy30

•7 years ago

11 Replies

could it be low b12

my results are b12 386,folate 5.2,my symptoms severe ibs.severe fatique,body aches and sensitive to touch,voice keeps sounding like i have a...

my results are b12 386,folate 5.2,my symptoms severe ibs.severe fatique,body ach...

cassie17

•7 years ago

1 Reply

Feedback please

Hi guys Looking at these results.... I think the folate and the B12 is low, would welcome opinions, not my results, for a male friend: Full Blood Count...

Hi guys Looking at these results.... I think the folate and the B12 is low, wou...

MaryF

•7 years ago

3 Replies

Low folate levels with b12 defiencey

Hi everyone. I have b12 defiencey for years and could only get injection every 3 months which wasn't enough so I started to self inject every 8 weeks last...

Hi everyone. I have b12 defiencey for years and could only get injection every 3...

suzykg1

•7 years ago

3 Replies

Help

Can I get some thoughts please, I’m battling with my GP at the moment, she is refusing to give me b12 injections. In 2016 my b12 was 114, 2017 was 122, still...

Can I get some thoughts please, I’m battling with my GP at the moment, she is re...

Hidden

•7 years ago

4 Replies

PA and dementia

Hi everyone ☺ I was diagnosed 40+ yrs ago with definite PA / carcinoid syndrome. So far so good. I have a strong family history of PA, Parkinson's, dementia...

Hi everyone ☺ I was diagnosed 40+ yrs ago with definite PA / carcinoid syndrome....

Casey6017

•7 years ago

2 Replies

WILL HB DROP SLIGHTLY AFTER BLOOD TEST

Hi I posted here a couple of days ago about hb b12 and sugary, the anestetist is now not worried about my b12 buts wants hb to ideally be 110 but may still...

Hi I posted here a couple of days ago about hb b12 and sugary, the anestetist i...

Kerry-78

•7 years ago

3 Replies

B12 injections & Bad skin

Hey everyone! I was told just under 6 weeks ago that I have pernicious anemia. I was advised to start the b12 injections ASAP which I did but I noticed a...

Hey everyone! I was told just under 6 weeks ago that I have pernicious anemia. I...

Meganmc12345

•7 years ago

1 Reply

Advice on test results please

Hi, this is my first post here 😊 I recently requested my vit b12 and folate levels to be checked as i have had symptoms for many years and feel as though they...

Hi, this is my first post here 😊 I recently requested my vit b12 and folate lev...

Ali83

•7 years ago

4 Replies

High SGGT

My test result taken on 6th April sowed my SGGT was 141 Yes that's not an error. I see the range is up to 35 so am left wondering why my doctors phoned me on...

My test result taken on 6th April sowed my SGGT was 141 Yes that's not an error...

sioux2

•7 years ago

1 Reply

Article in 'The Times' on Antidepressants etc. causing Dementia

"Common antidepressants, bladder drugs and anti-Parkinson’s medication account for tens of thousands of cases of dementia and doctors need to use them more...

"Common antidepressants, bladder drugs and anti-Parkinson’s medication account f...

Polaris

•7 years ago

3 Replies

B12 shot pain

So I just attempted to give myself a b12 shot from home, and I don’t believe the needle went deep enough. The area I did it in is very red and at first it was...

So I just attempted to give myself a b12 shot from home, and I don’t believe the...

Allanamarieee

•7 years ago

5 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2018

Alpha Lipoic Acid

Have I got Pernicious Anaemia ?

Is this an acceptable rise in B12?

Where can I get reputable b12 vials and syringes?

Burning sensation on the face

The digestive and nutritional benefits of Dill

Unexplained symptoms after anaesthetic

Can I rule out PA now?

Where can I purchase b12 injections?

Checking b12 levels while supplementing?

NICE Guidelines re B12 & Haematologist referrals

Privacy reminder

New to here and the app

B12 deficiency but doctor now suggests it's Parkinsons because symptoms are no better in a year.

Increased muscle pain

Feeling tired after consuming L-Methyl-folate

Seems I fluctuate

Is this level of B12 low enough for treatment?

Does anxiety and depression get better with self Injections

could it be low b12

Feedback please

Low folate levels with b12 defiencey

Help

PA and dementia

WILL HB DROP SLIGHTLY AFTER BLOOD TEST

B12 injections & Bad skin

Advice on test results please

High SGGT

Article in 'The Times' on Antidepressants etc. causing Dementia

B12 shot pain

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