Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,951 members • 23,089 posts

All posts for May 2023

B12 conundrum

Hi all, read today on another platform that your symptoms when your b12 is low are the same as when your b12 is too high! To me this makes no sense at all,...

Hi all, read today on another platform that your symptoms when your b12 is low a...

Teloch

•11 months ago

15 Replies

Sourcing B12 to SI

It’s been a while since I SI. GP stopped my injections since lockdown saying I should just take tablets after 15 years of injections. I’m not feeling well atm...

It’s been a while since I SI. GP stopped my injections since lockdown saying I s...

Msjalien11

•11 months ago

1 Reply

How much folic acid

Hi all, I’m still battling to understand how much folic acid i should supplement. My last folic acid blood test showed a level of 32. I know the optimum level...

Hi all, I’m still battling to understand how much folic acid i should supplement...

DiNL

•11 months ago

9 Replies

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Is there a gene test for B12 issues please? And has anyone done this?

Every best wish ,G

Gillybean1

•11 months ago

4 Replies

Why do I have a high pulse?

I hope someone can help me. I was diagnosed with pernicious anaemia after asking to be tested. It turned out my Vitamin B12 level was 117 pmol/l. I was...

I hope someone can help me. I was diagnosed with pernicious anaemia after aski...

Bluemuffin

•11 months ago

29 Replies

anxiously waiting for gp appointment

I’ve managed to get an appointment and am just sitting in waiting room About to ask gp for b12 injections. I’m so scared of not being heard again. The...

I’ve managed to get an appointment and am just sitting in waiting room About to...

Underactiveclare

•11 months ago

33 Replies

Medical App

Is anyyone using this app aware that each individual G.p csn set what csn be seen by a patient.?As I had tk change surgery as mine closed this seems to be the...

Is anyyone using this app aware that each individual G.p csn set what csn be see...

Nackapan

•11 months ago

17 Replies

Injecting:

I am throwing this out there as I found it helpful and have not read it anywhere. When I inject either SC or IM I can prick my skin a bit and find a place...

I am throwing this out there as I found it helpful and have not read it anywhere...

WIZARD6787

•11 months ago

3 Replies

Supplements and airport security.

I recently took two flights one in the UK and one from UK to USA. I was going to put my supplements in my checked bag and then thought most of my traveling is...

I recently took two flights one in the UK and one from UK to USA. I was going to...

WIZARD6787

•11 months ago

3 Replies

Confused by GP's answer

I was initially diagnosed with Pernicious Anaemia in 2017,received 5 of 6 loading injections - went for 6th injection, asked how I felt, I said alive and was...

I was initially diagnosed with Pernicious Anaemia in 2017,received 5 of 6 loadin...

Doddlebug

•11 months ago

4 Replies

PA in a child?

Does anybody have any experience of PA in children? My almost 6 year old daughter has been suffering with mouth ulcers for the past 6 months and I’m just...

Does anybody have any experience of PA in children? My almost 6 year old daught...

Murfie276

•11 months ago

3 Replies

Macrocytic anemia returned

Hi all, I’m interested to hear about your experiences with different forms of B12 injections to see if you’ve find some forms ineffective compared to others....

Hi all, I’m interested to hear about your experiences with different forms of B1...

etreas

•11 months ago

3 Replies

20 yrs B12 def

OMG! My doctors have given me all my past medical records that were in paper form as they are now computerized only. I have been reading them and discovered...

OMG! My doctors have given me all my past medical records that were in paper for...

brenanddave

•11 months ago

9 Replies

Oral Vitamin B12 spray

Hi, My elderly mum was started on Vitamin B12 and my levels were on the low side of normal range but I was found to have pareital Cell Antibodies so my GP...

Hi, My elderly mum was started on Vitamin B12 and my levels were on the low side...

Mysteriillness

•11 months ago

2 Replies

B12 deficiency genetic? Is it PA?

Over the years I have never had a B12 test over 250, was finally sent to hematologist when it got to 155. I have been folate deficient and ferritin deficient...

Over the years I have never had a B12 test over 250, was finally sent to hematol...

vagabondbeauty

•11 months ago

19 Replies

changing from cyno to hydro

hi everyone! I shifted from cyno to hydro few days ago and the symptoms that had turned very mild got a bit more severe, like my fatigue and neck & back...

hi everyone! I shifted from cyno to hydro few days ago and the symptoms that had...

Kat_88

•11 months ago

2 Replies

Surgery and B12

Hi! I joined the group on behalf of my dad who has a b12 deficiency. He is 63 years old. We live in the US but we have been to the Netherlands to speak with a...

Hi! I joined the group on behalf of my dad who has a b12 deficiency. He is 63 ye...

mdurbin35

•11 months ago

36 Replies

Oh heck I think I am turning into a smurf !

My Dr has diagnosed me with Raynauds. The slightest change in temperature and my toes turn blue. 😱 I have had pain and numbness in my feet but now getting...

My Dr has diagnosed me with Raynauds. The slightest change in temperature and ...

Jillymo

•11 months ago

13 Replies

Medisave Problem

Hi, I have used Medisave many time to buy syringes and needles and they have always been first class till now. They changed their website and the first time I...

Hi, I have used Medisave many time to buy syringes and needles and they have alw...

Bellabab

•11 months ago

5 Replies

B12 forms, doses for oral supplementation . . . & frequency for real benefits?

Hi All ! 😊 I'm interested in info abt supplementing with B12 forms, that may actually bring about noticeable, & sustained improvement of a whole range of...

Hi All ! 😊 I'm interested in info abt supplementing with B12 forms, that may a...

Sid_Arthur

•11 months ago

35 Replies

my anaemia blood results

hello there , first of all I want to say that I suffer from hypothyroidism which is autoimmune and it was very important to test me for my iron so I took...

hello there , first of all I want to say that I suffer from hypothyroidism whi...

Ari3

•11 months ago

9 Replies

fobbed off by Drs

ok, so wrote letter to practice manager quoting and linking the NICE protocol for B12…get a call from a dr saying “Your B12 is in range and take supplements...

ok, so wrote letter to practice manager quoting and linking the NICE protocol fo...

Bumblebee02

•11 months ago

26 Replies

burning fingertips

Hello everyone, I hope all is well. I wanted to share an unexplained symptom I have with you. Sometimes when touching a metal my fingertips burn. It could be...

Hello everyone, I hope all is well. I wanted to share an unexplained symptom I ...

Reembow

•11 months ago

1 Reply

chronic fatigue, and post exertional malaise

I was diagnosed and start a treatment for B12 deficiency neuropathy, six years ago. I’m one of those people who started to get better and then took a turn for...

I was diagnosed and start a treatment for B12 deficiency neuropathy, six years ...

aksundell

•11 months ago

30 Replies

Incontinence

I used to find that a B12 injection once a week would stop me being incontinent of urine at night. I missed a couple of weeks injections and it seemed that the...

I used to find that a B12 injection once a week would stop me being incontinent ...

Hectorsmum2

•11 months ago

20 Replies

Hashimotos and b12

I’ve just found out today that I have Hashimotos. A few people have mentioned the importance of b12. I had approximately 6 shots of it a couple of years ago...

I’ve just found out today that I have Hashimotos. A few people have mentioned th...

Underactiveclare

•11 months ago

5 Replies

Really struggling

I am six months into treatment of quite a severe deficiency...

TheDukeOfDogs

•11 months ago

5 Replies

b12 levels

hi I’ve recently been feeling fatigued more tired than usual at work and a general feeling of being unwell. I had routine bloods done and my b12 level came...

hi I’ve recently been feeling fatigued more tired than usual at work and a gener...

Sharkyboy

•11 months ago

15 Replies

New pernicious anaemia diagnosis

Hi, I am a 20 year old female who has recently been diagnosed with pernicious anaemia (around the start of April). I was experiencing extreme tingling in my...

Hi, I am a 20 year old female who has recently been diagnosed with pernicious an...

Ellamae2

•11 months ago

44 Replies

Tinnatus

I see many people discussing the blood disorder aspect of Pernicious Anaemia but as yet have not seen many people who talk about the other problems it can...

I see many people discussing the blood disorder aspect of Pernicious Anaemia but...

Akidma

•11 months ago

14 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2023

B12 conundrum

Sourcing B12 to SI

How much folic acid

Is there a gene test for B12 issues please? And has anyone done this?

Why do I have a high pulse?

anxiously waiting for gp appointment

Medical App

Injecting:

Supplements and airport security.

Confused by GP's answer

PA in a child?

Macrocytic anemia returned

20 yrs B12 def

Oral Vitamin B12 spray

B12 deficiency genetic? Is it PA?

changing from cyno to hydro

Surgery and B12

Oh heck I think I am turning into a smurf !

Medisave Problem

B12 forms, doses for oral supplementation . . . & frequency for real benefits?

my anaemia blood results

fobbed off by Drs

burning fingertips

chronic fatigue, and post exertional malaise

Incontinence

Hashimotos and b12

Really struggling

b12 levels

New pernicious anaemia diagnosis

Tinnatus

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive