Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,931 members • 23,068 posts

All posts for June 2016

Still loading....

Hi everyone,just thought I'd put this out there and see what opinions I get? So I've done 16 loading injections now since early may,first 6 limited but some...

Hi everyone,just thought I'd put this out there and see what opinions I get? So ...

•8 years ago

Rant about the FDA

I just need to get this off my chest. I have been trying to stay within the rules ever since I found out I needed injections eight years ago, but I find it...

I just need to get this off my chest. I have been trying to stay within the rule...

•8 years ago

Needles

Hi , please can you point me in the right direction as to which needles I need. I'm hoping to use cyirnge with needle attached

Hi , please can you point me in the right direction as to which needles I need. ...

•8 years ago

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Help with test results

Please could please be able to help me with these result? Thanks

Please could please be able to help me with these result? Thanks

•8 years ago

Update leg problems

Hi everyone just to update you on my struggle to get my deficiency recognized. I went to see my GP last night ready for a fight (virtual boxing gloves on) and...

Hi everyone just to update you on my struggle to get my deficiency recognized. I...

•8 years ago

MMA test?

the haematologist I saw asked for an MMA test - gp wouldn't do it, so he arranged it for me. Anybody know what it is for, and what it might show?

the haematologist I saw asked for an MMA test - gp wouldn't do it, so he arrange...

•8 years ago

Are prenatal vitamins okay to take if not pregnant?

http://m.iherb.com/Rainbow-Light-Just-Once-Prenatal-One-Food-Based-Multivitamin-90-Tablets/1795 I was wanting these and didn't find anything bad in them. I...

http://m.iherb.com/Rainbow-Light-Just-Once-Prenatal-One-Food-Based-Multivitamin-...

•8 years ago

Do I or don't i

My results came back for my vit b12 blood test. My GP informs me it is in the normal range of 230, so will not prescribe injections. On this information...

My results came back for my vit b12 blood test. My GP informs me it is in the n...

•8 years ago

confused with blood test

Hi All. Hope i don't go on to much. For a number of years i have had a lot of the symptoms that are connected with a vit b12 deficiency .After reading all the...

Hi All. Hope i don't go on to much. For a number of years i have had a lot of th...

•8 years ago

B12 deficient newbie pondering PA testing

Hello all, I am newly diagnosed with b12 deficiency (112 pmol/l). Haven't had any other tests yet but am wondering about tests for PA now. As well as being...

Hello all, I am newly diagnosed with b12 deficiency (112 pmol/l). Haven't had an...

longdistanceclaraDXB

•8 years ago

PA and dodgy feet balance etc.

I have had PA for about 12 year's when I was 35, I was only diagnosed when my organs started shutting down turned yellow and was the "interesting case in the...

I have had PA for about 12 year's when I was 35, I was only diagnosed when my or...

•8 years ago

More t4 since on b12?

Just wondering if anyone with hypothyroid and b12 def has needed more thyroxine since taking b12.

Just wondering if anyone with hypothyroid and b12 def has needed more thyroxine ...

•8 years ago

Wee wee

I used to get bright yellow wwe when I had the b12 injection but it's not as bright now... I am going to see if the GPs injection is what causes it in...

I used to get bright yellow wwe when I had the b12 injection but it's not as bri...

•8 years ago

Is my case severe or should I not be so worried?

Hello, I'm am 21yrs and a week ago I was diagnosed with pernicious anaemia. My b12 results came back at 87. I've been having lots of problems with my back, but...

Hello, I'm am 21yrs and a week ago I was diagnosed with pernicious anaemia. My b...

•8 years ago

Here we go again. Help for my Daughter.

Having been told I have Pernicious Anaemia a few months ago by my dermatologist and GP, Ive been taking b12 supplements + folic and recently vitamin D as...

Having been told I have Pernicious Anaemia a few months ago by my dermatologist...

•8 years ago

Is there a specialist in Cornwall !!

Does anyone know if there is a specialist in Cornwall for pernicious anemia please!!

Does anyone know if there is a specialist in Cornwall for pernicious anemia plea...

•8 years ago

I.B.S

After receiving B12 injections my severe symptoms of IBS disappeared.Is this due to the B12? Has anyone had a similar experience?.My IBS was of over 4yrs...

After receiving B12 injections my severe symptoms of IBS disappeared.Is this due...

•8 years ago

Forgetting how to do things

I've been supplementing with b12 spray but I'm forgetting how to do the most easiest task such as changing gear when driving, I started to make a cup of tea...

I've been supplementing with b12 spray but I'm forgetting how to do the most eas...

•8 years ago

Feeling crap after B12 injection - anyone else?

So I have had three-monthly injections for my PA for about a year, and every time I have one I feel really crap for about 24 hours afterwards - tired, fluey,...

So I have had three-monthly injections for my PA for about a year, and every tim...

•8 years ago

Negative intrinsic factor, what does this mean?

I just received the results of my test it came bk negative, does this mean I don't have pernicious anemia im kinda confused!!! Does anyone have any more...

I just received the results of my test it came bk negative, does this mean I don...

•8 years ago

GP Appointment

What questions should I ask

What questions should I ask

•8 years ago

Clear new website

the new version of the PA website is to be welcomed. It looks good and is full of information - but I do wish that on the site for professionals and treatment...

the new version of the PA website is to be welcomed. It looks good and is full ...

•8 years ago

SERUM B12 LEVELS NOT RELEVANT AFTER INJECTIONS IMPLEMENTED - I READ THIS BUT CAN'T FIND THE RELEVANT RESEARCH CAN ANYONE HELP PLEASE?

My GP keeps insisting I amnot B12 deficient now because serum level in high ( I inject myself). I read an paper here stating that serum levels whilst...

My GP keeps insisting I amnot B12 deficient now because serum level in high ( I ...

•8 years ago

FROSTY ENDOCRINOLOGIST APPOINTMENT UPDATE

Following on from my post at the end of last week after my awful appointment last Thursday & subsequent complaint, the Endocrinology department rang me back...

Following on from my post at the end of last week after my awful appointment las...

•8 years ago

Waiting to panic

I should feel more panicked than I currently do. I finished off the last dose in my current vial yesterday. I contacted my naturopath last week about ordering...

I should feel more panicked than I currently do. I finished off the last dose in...

•8 years ago

Just an update to my situation, still very busy,I'm starting to feel better now after my third injection. I know it's a long road ahead.

I have been very busy,applying for jobs and composing my appeal letter.I have two interviews this week and sent my appeal off but I'm not really worried now as...

I have been very busy,applying for jobs and composing my appeal letter.I have tw...

•8 years ago

Feed your Microbes Well

This interesting radio 4 programme was posted on Thyroid UK. Various scientists describe their research on microbes in the gut and how important the complex...

This interesting radio 4 programme was posted on Thyroid UK. Various scientists...

•8 years ago

Potential Problems with Injectable Methylcobalamin. Advice Needed Please

Hello All. I've just received a supply of Methylcobalamin from B12d.org (the first one). Used it for the first time last night and experienced quite extreme...

Hello All. I've just received a supply of Methylcobalamin from B12d.org (the fir...

Administrator•8 years ago

New PAS Support Group in Anglesey

Hi All, Thought PA sufferers in North Wales might be interested in this group....

Hi All, Thought PA sufferers in North Wales might be interested in this group.....

•8 years ago

Leg problems

Can anyone tell me if they have leg problems with their PA? Mine are painful one day then not so bad the next. It feels like my knees are not connected...

Can anyone tell me if they have leg problems with their PA? Mine are painful one...

•8 years ago

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