Pernicious Anaemia Society | HealthUnlocked

I am downgrading my doctor from unicorn status. I’ve had the most frustrating appointment to date where she has (un)helpfully told me that she doesn’t know...

What level would you expect your active B12 level to be after five months of SI EOD? I’ve just done a Medichecks test and it has come back as 150 (range 37.5 -...

Hi everyone I wrote a post but I don't know what happened to it. I'm writing for a friend and for me. I've recently been diagnosed with thick blood and I have...

just had results of a liver function test through Medichecks. Most are okay, but the GGT result was high. Any thoughts. I was diagnosed with fatty liver...

It’s been nearly three years since I began my journey of self injecting daily with methyl B12. Within this time period I began taking Lyrica to ease my...

Unfortunately had a very bad evening yesterday, and morning today. Don't know what to do. Had to go to a Gastroscopy/Endoscopy at a hospital in London...

As most all of us know anxiety and depression are a close companion for many of those with AIG/PA. Myself included. I reached out a couple of years ago to...

just a quick question Where is the best place to take a full sharps bin please In the uk

Hi there I've recently had my last loading dose of b12 around 3 weeks ago due to been deficient, no idea why, doctors have not said just thar I need them...

Good day all. I have finally found the emotional strength to submit a complaint request to the Parliamentary and Health Service Ombudsman about the service I...

Hello...Most of the time I only stalk on this forum, but I need help please. I was diagnosed in 2016 with PA, after having 6 loading doses I have been on 8 or...

hello, new here I’ll try to be brief. Husband dx PA about 6 years ago. Had injections weekly until B12 was in normal range than monthly injections. About...

This is a long story that I've posted about before so I won't bore you all with it again . To cut it short I was found to be b12 deficient when I lived in...

I have read a little on the apple cider vinegar that it may help with the low stomach acid with PA. has anyone tried this?

So had all my blood tests back from GP and all normal! So confused as to what is causing my current lability. I am still suffering fatigue, shaky, sweating,...

Far out, it’s the first truly hot day of our Aussie summer (37°C) and I am struggling so much. why are hot days so bad? Any tips aside from hide in the...

So I'm 2.5 months in to self-injecting now, and I know that's still early days. I'm injecting every day now, and taking 800mcg of folinic acid (my folate...

An update... You're all no doubt aware if my many previous posts about my experience with horrible agitation and anxiety during 'reversing out'. I've been...

Hi everyone Has anyone any idea why my Serum B12 is normal and my active is low (39) Any help much appreciated

Hello Everyone, As usual I am a bit out of my depth, or clutching at straws possibly. But wondered on your thoughts about doing this test, and would...

What can cause a pounding heart. It’s not necessarily fast, I can just feel it thumping away all through my body. And also sometimes hot sweats. I wonder if it...

Hello everyong, I'm in the 5th month of treatment inj everyday with cofactor's but my stomach is still very weak. I have better days like yesterday but the...

For over a decade - and certainly longer - I was unknowingly suffering from a severe B12 deficiency with symptoms written off as due to perimenopause and then...

Hi everyone! I hope your weekend is going great. I just wanted to share that after nearly 2 years of treatment and many adjustments to find what is optimal for...

good morning everyone, ok so after trying this apple cider vinegar and the betaine last week my mind and body have changed so much for the better so I was not...

What equipment.........needle size etc do I need for sub cutaneous jabs please??

I have had a text from my surgery saying there is no evidence to say that B12 injections are any better than tablets . Then asked if I wanted to trial the...

Have been having some extreme symptoms in the last couple of days. Not only extreme mood swings (from almost suicidal at 6pm today, to 100% 'normal' and...

Since I started b12 supplements and injections all of my symptoms have been getting worse and even new symptoms appearing. does getting worse mean that i...

If my ferratin level is normal,why has my iron plummeted over the past few months?