Pernicious Anaemia Society | HealthUnlocked

ohmygoodness…. I know this should be the standard level of care but I’m still in shock. I just had my latest GP appointment who has been looking after me...

https://onlinelibrary.wiley.com/doi/10.1002/jmd2.12087 I'm in the US. I've been trying to find a better option for my Hydroxocobalamin prescription. I've...

I had hydroxocobalamin prescribed by a private Dr a couple of years ago alongside an iron infusion. I have positive parietal cell antibodies and stomach...

I have been put on Ferrous Sulphate but I can’t use it. My blood test for ferritin is 44 ug/L & it is only that high because I ate red meat I did do in...

Hi everyone. After being diagnosed with gastritis (cause unknown) in December I took the advice of the gastroenterologist and started Omeprazole treatment....

Hello beautiful PA fam, I wanted to know if any of you guys with PA also have gastritis from it and therefore have to get upper endoscopy and colonoscopy...

Hi, Can anyone relate to how I am feeling? I was diagnosed back in Feb this year after my Intrinsic Factor blood test came back positive and I was diagnosed...

Both intrinsic factor and parietal antibody tests were positive ("abnormal") with B12 >2000. Methylmalonic Acid is normal at .28. I have Hashimoto's and other...

Although I'm prescribed B12 ampoules via my gp, I can only use certain brands without agonising stinging and burning. My local pharmacy hasn't been able to...

hello All, so I received my blood test results today for intrinsic factor and it is 18 high over the limit of 1.1. in February I was at 1.1. does anyone have...

Ok so I am hopefully going to be starting injecting every other day soon (possibly end of this week), but can’t just yet and I don’t know how to cope. I ain’t...

So I finally saw Dr Klein, He says 100% I have pernicious anaemia and it’s quite bad. I have to inject ever other day for a year. Apparently my folate and...

hello all, I am my 4th week of daily 9 days now EOD of meth b12 injections and doing all my cofactors , trying them all. The potassium has helped with...

Hi Guys I had a mineral check via a hair test and a DNA Methylation report via a mouth swab (corrected 16 June as I had them the wrong way round) as suggested...

Hello everyone, My B12 is historically low normal and one of my GP’s thinks it could be due to a fast metabolism. However, my mind wont let it rest and some...

Hello, I am a newbie... I have been SI every other day for 6 weeks. I had increased anxiety and a panic attack after my last couple of injections so have...

I was diagnosed with PA early 2023 after years of feeling hopeless and helpless, ( raised MCV , low 'normal' serum B12, positive Parietal Cell antibodies, no...

Ok, so I’ve been SI for just under a month, moving from twice weekly to about EOD following symptoms response. I was initially taking 3mg folic acid each...

Hello all, I’m new here and not sure if I need to pursue some concerns I have with my health so wondered if anyone could possible give me some......

Hi, I just wanted to share a bit of a positive experience. I had about a year long history of feeling jittery, bit light headed, palpitations, classic anxiety...

I thought that I had a Summer cold, but thought I'd better do a Covid test, as I was due to take the Grandkids swimming tomorrow. Sure enough, two red lines! I...

I have been injecting my son with B12 for a couple of months about twice a week. He tried self injecting but has a needle phobia and was passing out. He is...

Hi all Recently found to have autoimmune gastritis with stomach polyps. I also have Hashimotos (autoimmune thyroid addressed & on meds) and ckd stage 3 I was...

Hello! I was diagnosed with low B12 following a blood test in December last year, on injections but only had 3 of the 6 loading doses then was moved on to one...

I've had 2 B12 injections so far, with another tomorrow morning. While I was waiting for the treatment to start I ordered some mouth spray for B12 - 1 dose is...

So I’ve previously had blood in urine, and urination issues non stop since that time. Approximately 3-4 years ago. I was peeing loads and had sensitive...

hi, I’m in the midst of investigating why my B12 deficiency has occurred- whether it’s h.pylori, AIG, PA etc And I’ve managed to scare myself silly about AIG...

Hi everyone, has anyone sound information regarding the use of melatonin with autoimmune disease. I am reading conflicting advice about using it with certain...

Today the g.p. has told me that the mri I had shows arthritis in my upper back and neck. He says its likely to be osteoarthritis rather than rheumatoid...

Good morning everyone I have eventually purchased B12 and all the required stuff to SI.......Been having jabs every 8 weeks since 2016..........Going to start...