Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,197 members • 23,368 posts

All posts for June 2018

Advice on self-injecting

Hi Further to my recent post regarding GP refusing regular B12 injections, I have decided to self-inject going forward. Is anyone able to provide me with...

Hi Further to my recent post regarding GP refusing regular B12 injections, I ha...

pas250218

•6 years ago

3 Replies

PAS Update B12 Research

Update on recent PAS article about molecular differences between those who need more B12 injections than standard....

Update on recent PAS article about molecular differences between those who need ...

Sleepybunny

•6 years ago

8 Replies

B12 Deficiant causing symptoms?

Hi -Id be very grateful for any comments on the following from you lovely people. I was diagnosed and treated sucessfully for breast cancer three years ago. In...

Hi -Id be very grateful for any comments on the following from you lovely people...

waveylines

•6 years ago

6 Replies

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B12 specialist?

Hi, I'm newly diagnosed with B12 def. In addition to fatigue, memory fog, muscle stuff, tinnitus, and I now now laid up with severe dizziness and low BP 82/53....

Hi, I'm newly diagnosed with B12 def. In addition to fatigue, memory fog, muscle...

JillMaryC

•6 years ago

5 Replies

Blood results help needed vid d b12 thyroid testosterone MMA pa

Hi I’ve had a lot of blood work done some private as the doctor just thinks I’m depressed I feel it’s something else Symptoms I’ve had are irritable anxious...

Hi I’ve had a lot of blood work done some private as the doctor just thinks I’m...

Mancity1234

•6 years ago

1 Reply

Storage of B12

Hi....This might sound like a daft question, but because it has been really hot recently, am I still safe to inject B12. I have been storing it in a cupboard,...

Hi....This might sound like a daft question, but because it has been really hot ...

Hayley31

•6 years ago

3 Replies

Need help please

Can any one read these bloods and give me option am I low apart from folates I’m convinced I have anemia due to symptoms been told only folates take folic acid...

Can any one read these bloods and give me option am I low apart from folates I’m...

Hidden

•6 years ago

6 Replies

GPs refusing to give B12 injections

Hi I’ve previously written regarding being diagnosed with PA eight years ago, and for the next six years having injections every 12 weeks. Then following a...

Hi I’ve previously written regarding being diagnosed with PA eight years ago, a...

pas250218

•6 years ago

8 Replies

Lack of empathy

My GP refused to give me a doctors note so I lost my job.

JeannetteFitzroy

•6 years ago

4 Replies

Bloods advice needed

Have very bad fatigue symptoms weakness memory loss brain fog depression not wanting to leave house I already have under active thyroid 150mg day and I know my...

Have very bad fatigue symptoms weakness memory loss brain fog depression not wan...

Hidden

•6 years ago

1 Reply

New here - some advice if you can

Hi I came across this wonderful forum a couple of months back when I was researching B12 deficiency, as my doctor had included it in my blood test request...

Hi I came across this wonderful forum a couple of months back when I was researc...

Scully12

•6 years ago

6 Replies

Thyroid level

Iv just had my last b12 jab and remembered to ask the nurse !! My thyroid she said is high at 10. Is that high??? Thought I’d ask you guys as you are my...

Iv just had my last b12 jab and remembered to ask the nurse !! My thyroid she sa...

Kaw142

•6 years ago

6 Replies

Where can I buy b12 injections in the Uk? I’m struggling to understand the German websites :(

I am currently receiving 12 weekly injections, but after 7/8 weeks I just crash and all the symptoms start to return.

I am currently receiving 12 weekly injections, but after 7/8 weeks I just crash ...

Foreverhopeful1

•6 years ago

9 Replies

3 weeks after loading injections

3 weeks after loading injections I’m back at work doing 18,000 steps a day feeling great and losing weight Just want to let some people no there is hope

3 weeks after loading injections I’m back at work doing 18,000 steps a day feeli...

Charlwobble

•6 years ago

2 Replies

Still fatigued after 7 years!

I was diagnosed in 2011 with PA. I still have some symptoms but was told I shouldn’t, specially because my levels are fine. It’s frustrating to be tired all...

I was diagnosed in 2011 with PA. I still have some symptoms but was told I shoul...

ButlerNM

•6 years ago

5 Replies

Do I ask for more?

Hello Everyone! I was just diagnosed with B12 deficiency (227 was my score). I have been taking a Bioactive liquid Methylcobalamin-Adenosylcobalamin supplement...

Hello Everyone! I was just diagnosed with B12 deficiency (227 was my score). I h...

Pepless

•6 years ago

5 Replies

Pins and needles with light headed ness

Hi, I am due to have my quarterly B12 Jab tomorrow but have been feeling unusually tired and emotionally sensitive, things getting on top of me for the past 2...

Hi, I am due to have my quarterly B12 Jab tomorrow but have been feeling unusual...

philward

•6 years ago

7 Replies

Feeling worse after B12 shots

Hello! I’ve started a series of weekly 1mg methyl B12 shots, and none of my symptoms have improved. I just had my 2nd shot this morning. I find I still have...

Hello! I’ve started a series of weekly 1mg methyl B12 shots, and none of my sym...

ilyfunnybunny

•6 years ago

11 Replies

Unsure what to do next

Hi gang! It's now almost a year since I was diagnosed with low B12 last July. Then I crashed and ended up with SACD symptoms, could hardly stand up, and...

Hi gang! It's now almost a year since I was diagnosed with low B12 last July. Th...

Hidden

•6 years ago

17 Replies

New, first post and need help.

Hi, New here, but have followed for a while. My B12 has always been high. Asked Dr how it's possible to have almost every S/S of B12 def, but B12 is too...

Hi, New here, but have followed for a while. My B12 has always been high. Aske...

Hidden

•6 years ago

5 Replies

Allergies and B12 deficiency

I’m not sure whether others have experienced this or this is just a freak coincidence. Before I developed B12 deficiency I got tennis elbow and had no...

I’m not sure whether others have experienced this or this is just a freak coinci...

GGourmet

•6 years ago

11 Replies

Selenium

Hi, I have PA and have B12 injections every 12 weeks. I have had it since my 20's. I also take folic acid tablets. Can I take Selenium tablets as well? I also...

Hi, I have PA and have B12 injections every 12 weeks. I have had it since my 20'...

Kathyhall1962

•6 years ago

2 Replies

B12 serum monitoring

Hi My Gp has retired and the new GP has requested I have a blood test prior to renewing by B12 prescription. I am diagnosed with PA just from them ruling out...

Hi My Gp has retired and the new GP has requested I have a blood test prior to r...

Julie74

•6 years ago

9 Replies

Why are blood tests unreliable once injections have started?

Since I started b12 injections at the end of last year, blood tests show really high levels - nearly 1000. So, when I go to my doctor and try to explain why I...

Since I started b12 injections at the end of last year, blood tests show really ...

Benji76

•6 years ago

9 Replies

Self injecting B12 do we have to inject more if under stress!

The reason i write this post is I have just started self injecting and the charity doctor who is helping me out said to inject once a day for 2 weeks then once...

The reason i write this post is I have just started self injecting and the chari...

Katherine1234

•6 years ago

34 Replies

How low is this b12 level?

I had a private blood test after long suspecting that I was rather anaemic or deficient in b12, due to constant fatigue. The results came back 156 Pmol/l which...

I had a private blood test after long suspecting that I was rather anaemic or de...

Dwg18

•6 years ago

5 Replies

Neurology

Saw Neurologist yesterday. Had blood taken for testing...I pointed out that as I had been self injecting homocysteine levels should show up as normal. So he...

Saw Neurologist yesterday. Had blood taken for testing...I pointed out that as I...

Panpal

•6 years ago

2 Replies

Very bloated could it be .....

Achlorhydria/Hypochlorhydria? Admin edit - please respond on this post...

Hidden

•6 years ago

1 Reply

Is taking folate and b12 making my joints hurt and click?

Taking these to try to boost my immune and help store my iron levels. I am not storing iron,oread dilate helps but it's better with b12. I am eating well,...

Taking these to try to boost my immune and help store my iron levels. I am not s...

Yolzyyy

•6 years ago

3 Replies

B12 Levels. Please Help

Just wondering if anyone can help please as can’t get any info from my doctor and don’t see the immunologist until 6th August. For the last two weeks I have...

Just wondering if anyone can help please as can’t get any info from my doctor an...

RiskiestEnd

•6 years ago

13 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2018

Advice on self-injecting

PAS Update B12 Research

B12 Deficiant causing symptoms?

B12 specialist?

Blood results help needed vid d b12 thyroid testosterone MMA pa

Storage of B12

Need help please

GPs refusing to give B12 injections

Lack of empathy

Bloods advice needed

New here - some advice if you can

Thyroid level

Where can I buy b12 injections in the Uk? I’m struggling to understand the German websites :(

3 weeks after loading injections

Still fatigued after 7 years!

Do I ask for more?

Pins and needles with light headed ness

Feeling worse after B12 shots

Unsure what to do next

New, first post and need help.

Allergies and B12 deficiency

Selenium

B12 serum monitoring

Why are blood tests unreliable once injections have started?

Self injecting B12 do we have to inject more if under stress!

How low is this b12 level?

Neurology

Very bloated could it be .....

Is taking folate and b12 making my joints hurt and click?

B12 Levels. Please Help

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