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Pernicious Anaemia Society

31,917 members • 23,046 posts

All posts for August 2017

Hi what can my symptoms mean please?

FERRITIN 69 ug/L (30 - 400) FOLATE 2.6 ug/L (2.5 - 19.5) VITAMIN B12 238 pg/L (190 - 900) Taking 1x folic acid once a day and iron once a day thank you...

FERRITIN 69 ug/L (30 - 400) FOLATE 2.6 ug/L (2.5 - 19.5) VITAMIN B12 238 pg/L ...

Ellie2425

•7 years ago

2 Replies

Symptoms different from the usual

I'm one of the new B12 people -- after a virus in january I was bedridden for 4 months with what I thought was glandular fever/post-viral syndrome/CFS....

I'm one of the new B12 people -- after a virus in january I was bedridden for 4 ...

Pingo

•7 years ago

1 Reply

NOT Pernicious Anaemia?

HI all I went back to the GP today. I wrote a letter to the practice manager after the last experience, she booked the appointment and said she would come in...

HI all I went back to the GP today. I wrote a letter to the practice manager af...

Dee215

•7 years ago

50 Replies

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Signposted here from Thyroid UK

Hi I posted on Thyroid UK as regards lab results in connection with hypothyroidism (see photo shot) and I was advised to seek guidance as regards PA given my...

Hi I posted on Thyroid UK as regards lab results in connection with hypothyroidi...

Risetothechallenge

•7 years ago

Be the first to reply

Something to inspire you all!

I find this song very inspirational when i feel my back is against the wall. I have been known to sing it full volume at home or in my car on many occasions...

I find this song very inspirational when i feel my back is against the wall. I ...

Dewbuc

•7 years ago

6 Replies

Is B12 deficiency implicated in any respiratory problems?

I cannot find any relevant information but wondered if B12 has been implicated in any respiratory problems? My sister is I think B12 deficient, although it's...

I cannot find any relevant information but wondered if B12 has been implicated i...

Dewbuc

•7 years ago

26 Replies

Any difference... Arm or Thigh

Hi guys... ( and gals)... I'm self injection and wondered if there's any beneficial difference between injecting the Arm or Thigh... Just wondering ☺...

Hi guys... ( and gals)... I'm self injection and wondered if there's any benefic...

Frances55

•7 years ago

8 Replies

Progress made in full investigation and diagnosis, I hope.

Finally managed to get a consultation with my regular GP, rather than a locum. She has agreed to increase my B12 injections to every 10 weeks instead of 12....

Finally managed to get a consultation with my regular GP, rather than a locum. ...

scadman

•7 years ago

6 Replies

Active b12 test

Hi, Has anyone had the finger prick active b12 test? I wasn't sure if the best one to get was the one at St Thomas's as this isn't a finger prick one and also...

Hi, Has anyone had the finger prick active b12 test? I wasn't sure if the best o...

Cathyjw

•7 years ago

1 Reply

Iron Panel Results - need advice on best course of action..

Hi All, I've had an Iron panel done, private lab no doctor so I need some help deciphering. Quick background - I have macro cells and neuro symptoms of B12 D,...

Hi All, I've had an Iron panel done, private lab no doctor so I need some help d...

0SK780

•7 years ago

1 Reply

Waiting for results from a test

Hi Everyone, I'm quite new to this forum and some of you have been emailing me and there has been no response on my part. I am sorry about that. I had...

Hi Everyone, I'm quite new to this forum and some of you have been emailing me a...

terrybraden

•7 years ago

5 Replies

Finally got back the iga part of the blood test

Only just got back the result of the IGA test that was taken with the rest of my blood test on 18th August don’t know why it took so long, this is what it says...

Only just got back the result of the IGA test that was taken with the rest of my...

mand82

•7 years ago

3 Replies

Some evidence of increasing B12 awareness?

A friend went for a regular check up following a heart attack a few years ago. During the course of the follow up with the nurse he was asked about tingling...

A friend went for a regular check up following a heart attack a few years ago. ...

Gambit62

Administrator•7 years ago

7 Replies

I'm new here - Test Results help please

Hi All, I have Hashi's hypothyroidism, and I've just got results as part of a wider test for that. My results were as follows: Vitamin B12 - 199 (140-724)...

Hi All, I have Hashi's hypothyroidism, and I've just got results as part of a wi...

Jrouseuk

•7 years ago

1 Reply

Acne b12

I had loading shots of b12 3 a week for 2 weeks, on my 5th shot I came out in micro pimples on my hairline, face, shoulders, back and chest. It has taken over...

I had loading shots of b12 3 a week for 2 weeks, on my 5th shot I came out in mi...

Mariaella

•7 years ago

10 Replies

Vitamin B12 or folate deficiency anaemia & pernicious anaemia

Hi everyone i am new to this wonderful group i have been ill for quite some time possibly 5 + years. I went the doctors for an ovarian cancer blood test as i...

Hi everyone i am new to this wonderful group i have been ill for quite some time...

MissD1503

•7 years ago

28 Replies

Excessive b12 blood results

Not sure if this is something anyone has experienced but looking for any advice. I went to the doctors in 2014 on the advice of my boss who thought I had the...

Not sure if this is something anyone has experienced but looking for any advice....

Dmcn85

•7 years ago

16 Replies

question - weird symptoms

I have been receiving B12 injections since May, but only the last 3 weeks every other day. I have recently started feeling a "tightness" to my eyes and face,...

I have been receiving B12 injections since May, but only the last 3 weeks every ...

Lorilee60

•7 years ago

6 Replies

Latest Bloods "Normal". Suggestions?

Apologies, but I had no response when I appended this comment to my existing thread, so I thought I'd start a new one. Well, as usual, despite fatigue,...

Apologies, but I had no response when I appended this comment to my existing thr...

drlabman

•7 years ago

22 Replies

Help with SIBO-D Diagnosis

Dear all, I am expecting a positive diagnosis of SIBO-D this Thursday evening. I currently have B12 (hydroxycobalamin) injections every 2 months due to neuro...

Dear all, I am expecting a positive diagnosis of SIBO-D this Thursday evening. I...

GGourmet

•7 years ago

2 Replies

What type/dose of Vitamin B12 do I need?

I have been scrapping at the bottom of the range 196 [175-190] for years and so I self-prescribed 1000mcg cyanocobalamin as my GP wouldn't help and just...

I have been scrapping at the bottom of the range 196 [175-190] for years and so ...

amasufindme

•7 years ago

7 Replies

Senior moments!

A poem inspired by Sleepybunny's post about daft B12 behaviour: It is now official! I'm getting quite old, But my mind is still sharp, If I might be so bold....

A poem inspired by Sleepybunny's post about daft B12 behaviour: It is now offic...

topazrat

•7 years ago

1 Reply

Weak positive IFA

Hi all, I've just called my doctors for the results of my intrinsic factor antibodies test and been told it's weak positive. Apparently it's been sent back to...

Hi all, I've just called my doctors for the results of my intrinsic factor antib...

Cathyjw

•7 years ago

6 Replies

Severe mood issues

Hi everyone I've read people can have mood issues quite severely too with pernicious anemia. Over the past year or so I've developed severe mood swings,...

Hi everyone I've read people can have mood issues quite severely too with pernic...

Ashley8

•7 years ago

15 Replies

B12 spray

Hi all , I know many of you on here have to self inject due to poor gp help , but I was wondering how effective you have found spray ? As I have mentioned...

Hi all , I know many of you on here have to self inject due to poor gp help , bu...

Av42

•7 years ago

16 Replies

Unexpected high B12

I was diagnosed with pernicious anemia 16 years ago and take B12 shots every 3 months (in the last few years every 12 weeks). Last shot was on 12 June. On 6...

I was diagnosed with pernicious anemia 16 years ago and take B12 shots every 3 m...

PAsince2001

•7 years ago

5 Replies

4 year old homocysteine results

Hiya, The story begins with me having had a rough 3 years trying to get a B12 deficiency diagnosed. My mum gets injections, my nana had a deficiency and both...

Hiya, The story begins with me having had a rough 3 years trying to get a B12 de...

Vjmac

•7 years ago

4 Replies

Tumor markers and PA

Hello everybody! I wonder if someone of you can help me...I was recently diagnosed with PA/AMAG (2 months ago and endoscopy showed metaplasia) and my...

Hello everybody! I wonder if someone of you can help me...I was recently diagnos...

cquadros

•7 years ago

2 Replies

Advice please for a newbie!

Help! I've just had my third loading injection and I'm worse than I've ever been. My original result 141ng/l and I've started having occasional gap in my...

Help! I've just had my third loading injection and I'm worse than I've ever bee...

Davejtuk

•7 years ago

5 Replies

PAS Comments on New NICE Guidelines

PAS have been involved in commenting on various NICE guidelines. https://pernicious-anaemia-society.org/pernicious-anaemia/new-nice-guidelines/ Martyn...

PAS have been involved in commenting on various NICE guidelines. https://pernici...

Sleepybunny

•7 years ago

3 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All posts(75)

All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2017

Hi what can my symptoms mean please?

Symptoms different from the usual

NOT Pernicious Anaemia?

Signposted here from Thyroid UK

Something to inspire you all!

Is B12 deficiency implicated in any respiratory problems?

Any difference... Arm or Thigh

Progress made in full investigation and diagnosis, I hope.

Active b12 test

Iron Panel Results - need advice on best course of action..

Waiting for results from a test

Finally got back the iga part of the blood test

Some evidence of increasing B12 awareness?

I'm new here - Test Results help please

Acne b12

Vitamin B12 or folate deficiency anaemia & pernicious anaemia

Excessive b12 blood results

question - weird symptoms

Latest Bloods "Normal". Suggestions?

Help with SIBO-D Diagnosis

What type/dose of Vitamin B12 do I need?

Senior moments!

Weak positive IFA

Severe mood issues

B12 spray

Unexpected high B12

4 year old homocysteine results

Tumor markers and PA

Advice please for a newbie!

PAS Comments on New NICE Guidelines

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive