Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for July 2022

unable to order from mycare.de

I have just had a very frustrating experience trying to order from mycare.de I registered and placed an order but when I tried to pay got a message we cannot...

I have just had a very frustrating experience trying to order from mycare.de I ...

Monbretia

•2 years ago

6 Replies

Can I buy Hydroxocobalamin Ampoules Over the counter in Germany?

Do they sell Hydroxocobalamin ampoules OTC in Germany? Thanks.

knackersyard

•2 years ago

16 Replies

PA & US Social Security Disability

Has anyone every attempted to receive Social Security Disability benefits in the United States for their Pernicious Anemia? TIA David

Has anyone every attempted to receive Social Security Disability benefits in the...

SouthSounder

•2 years ago

3 Replies

Want to take advantage of all our features? Just log in!

A couple research items that might be of interest to some people

I was searching on "Google Scholar", a search engine for research databases, and came across a couple things I thought might be of interest to some of the...

I was searching on "Google Scholar", a search engine for research databases, and...

WiscGuy

•2 years ago

17 Replies

atrophic gastritis pernicious anaemia

Dear group I had the results of endoscopy. Nothing at fault but confirmed atrophic gastritis pernicious anaemia-which I think is good news considering what it...

Dear group I had the results of endoscopy. Nothing at fault but confirmed atrop...

PAapr22

•2 years ago

33 Replies

B12 deficiency post cholecystectomy

I’m curious if there is any link to cholecystectomies and B12 deficiency. I had my gallbladder out and then 8 years later, b12 deficient. Have any of you had...

I’m curious if there is any link to cholecystectomies and B12 deficiency. I had...

B12life

•2 years ago

7 Replies

The sharps box disposal mystery solved, at last! Here, at least.

No idea why it’s taken so long for the council to be clear and informative about this, but better verrry late than the never it was last time I looked on their...

No idea why it’s taken so long for the council to be clear and informative about...

rogergee

•2 years ago

11 Replies

Worth a Spit ? Why saliva could hold the answer

Trying to work out how B12 makes the journey: - Salivary glands produce Haptocorrin (HC), which binds to the B12 in food (the extrinsic factor) - HC/...

Trying to work out how B12 makes the journey: - Salivary glands produce Hapto...

Cherylclaire

Forum Support•2 years ago

35 Replies

High B6

Does anybody else have peripheral neuropathy that doesn't seem to be improving with B12 injections? My neuroimmunologist ordered blood tests and some of...

Does anybody else have peripheral neuropathy that doesn't seem to be improving w...

Hidden

•2 years ago

24 Replies

DNR??

I was upset after a talk with the nurse who asked me what I wanted if something happened? I am 58yrs old. If I had a terminal illness and in pain I can...

I was upset after a talk with the nurse who asked me what I wanted if something ...

Sunny999

•2 years ago

65 Replies

long time Pernicious anaemia sufferer!

I was diagnosed with Pernicious anaemia In 2015 so I probably have had it for years before. After initial intensive daily treatment I have had a monthly...

I was diagnosed with Pernicious anaemia In 2015 so I probably have had it fo...

Ossoryhill

•2 years ago

9 Replies

low iron and foliate

My daughter has very low foliate and folic iron levels but they say her B12 and all other tests are OK But I do wonder if her iron levels are so low would it...

My daughter has very low foliate and folic iron levels but they say her B12 and...

Hidden

•2 years ago

9 Replies

Curious, pondering questions about alcohol, PA and B12

I was wondering if anyone might be honest enough to say whether they had a B12 deficiency from alcohol use? It's anonymous here and so no one will know if we...

I was wondering if anyone might be honest enough to say whether they had a B12 d...

Pickle500

•2 years ago

22 Replies

folic acid

Hi all could you tell me please how long you need to stop folic acid before a B12 test?

Hi all could you tell me please how long you need to stop folic acid before a B...

lesbud1

•2 years ago

5 Replies

How long does intramuscular B12 affect b12 test result?

Is there a length of time that it is not advised to test after having a b12 injection? My dad's last b12 injection was around 18 June. He has been taking some...

Is there a length of time that it is not advised to test after having a b12 inje...

Needleandthread44

•2 years ago

7 Replies

Sharps Disposal?

I was originally self-injecting with B12 from my UK GP who provided a yellow sharps box and they arranged for a regular home collection with a disposal...

I was originally self-injecting with B12 from my UK GP who provided a yellow sha...

Tofudave

•2 years ago

12 Replies

Blood pressure?

This might be a daft question. I have been injecting EOD for a few yrs. For the last 4 to 5w weeks having blood pressure difficulties.Postural hypertension....

This might be a daft question. I have been injecting EOD for a few yrs. For t...

jaybirdxNHM

•2 years ago

11 Replies

Internal tremors

Hello everyone! This is day five of my loading doses to try and get my symptoms to subside. I think things are settling down a little bit, but one of the...

Hello everyone! This is day five of my loading doses to try and get my symptoms...

Skingal74

•2 years ago

4 Replies

B12 deficiency and nerve pain

Hi! Hope you are all doing well. I am a 35 year old mum of two. Started getting burning sensations and stabbing nerve pain in my fingers, legs and feet a few...

Hi! Hope you are all doing well. I am a 35 year old mum of two. Started getting ...

Madirah

•2 years ago

8 Replies

Help with more information on the way B12 reaches cell level please

I fell my brain is 'waking up' On a 'sort out ' of random notes in numerous notepads in the quest of getting well I came across this: whilst B 12is not...

I fell my brain is 'waking up' On a 'sort out ' of random notes in numerous n...

Nackapan

•2 years ago

40 Replies

Pernicious Anemia Information

Good evening all. I have not been on in awhile but have been going through a rough patch.I have both pernicious anemia and I suffer from being hypothyroid....

Good evening all. I have not been on in awhile but have been going through a r...

MightyMay

•2 years ago

9 Replies

Buying B12 injections

I have been having b12 for over 10 years, every 6 weeks. Suffered with terrible mouth ulcers, was 6 stone, v tired, aching joints, mobility issues etc etc...

I have been having b12 for over 10 years, every 6 weeks. Suffered with terrible ...

Ozzy123

•2 years ago

10 Replies

MCV & MCH

I have posted a chart of my MCV & MCH as I have recently got copies of blood tests. As you can see most of the mch have been flagged. Looking at getting MMA...

I have posted a chart of my MCV & MCH as I have recently got copies of blood tes...

diamondgirl9022

•2 years ago

29 Replies

pregnant

hi can any one advise me how often I should inject now I’m pregnant I normally inject every two weeks depending how I’m feeling but doctor says to just stick...

hi can any one advise me how often I should inject now I’m pregnant I normally i...

sonnyjoe1

•2 years ago

8 Replies

Is it MS or PA??!!

Hi everyone I am reaching out in desperation. I live in Vwgas and I have been sick since 2015. Symptoms started with painful, swollen feet and hands,...

Hi everyone I am reaching out in desperation. I live in Vwgas and I have been ...

Skingal74

•2 years ago

29 Replies

ordering b12

Hi All, where is everyone ordering their b12 from these days please?

Julie07

•2 years ago

10 Replies

B1/Thiamine dosing

Influenced by a thread here, I started taking 200 mg b1/thiamine a day. Was doing fine, but tried to double that and felt funky. It's so hard to know if it is...

Influenced by a thread here, I started taking 200 mg b1/thiamine a day. Was doin...

B12life

•2 years ago

32 Replies

so sad

this morning when I wrote about my problem with the nurse wanting to reduce my B12 from 4 weekly to 3 month I never expected such a response, Thank you all so...

this morning when I wrote about my problem with the nurse wanting to reduce my B...

Hedgehogs15

•2 years ago

6 Replies

B12 arrived

Hi, I finally recieved my order 1 st consignment by DHL didn't arrive del today by UPS took 5 days they are 2ml Hervert Hydrox can I use the...

Hi, I finally recieved my order 1 st consignment by DHL didn't arrive del...

Hidden

•2 years ago

5 Replies

haven’t a clue nurse

good morning everyone. I hope you have all recovered from the recent hot weather. I want to just have a moan please. Having been diagnosed with PA over...

good morning everyone. I hope you have all recovered from the recent hot weather...

Hedgehogs15

•2 years ago

38 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2022

﻿unable to order from mycare.de

Can I buy Hydroxocobalamin Ampoules Over the counter in Germany?

PA & US Social Security Disability

﻿A couple research items that might be of interest to some people

atrophic gastritis pernicious anaemia

B12 deficiency post cholecystectomy

The sharps box disposal mystery solved, at last! Here, at least.

Worth a Spit ? Why saliva could hold the answer

High B6

DNR??

﻿long time Pernicious anaemia sufferer!

﻿low iron and foliate

Curious, pondering questions about alcohol, PA and B12

folic acid

How long does intramuscular B12 affect b12 test result?

Sharps Disposal?

﻿Blood pressure?

Internal tremors

B12 deficiency and nerve pain

﻿Help with more information on the way B12 reaches cell level please

﻿Pernicious Anemia Information

Buying B12 injections

MCV & MCH

pregnant

Is it MS or PA??!!

ordering b12

B1/Thiamine dosing

so sad

﻿B12 arrived

haven’t a clue nurse

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive

unable to order from mycare.de

A couple research items that might be of interest to some people

long time Pernicious anaemia sufferer!

low iron and foliate

Blood pressure?

Help with more information on the way B12 reaches cell level please

Pernicious Anemia Information

B12 arrived