Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,915 members • 23,044 posts

All posts for February 2015

Hi All

Hi everyone I have just read a comment some where on the Internet about Vitamin B 12.It said it was written by a doctor! He said it was harmful to have a very...

Hi everyone I have just read a comment some where on the Internet about Vitamin...

•9 years ago

Severe headache

Despite me being low in B12 (165 at last test) and having most of the classic B12 deficiency symptoms, my GP says I don't need treatment and my endocrinologist...

Despite me being low in B12 (165 at last test) and having most of the classic B1...

•9 years ago

Advice of B12 levels

Hi there, I have come from the Thyroid Uk site, after suffering with symptoms of exhaustion, excessive thirst, brain fog (I can forget what I'm saying as I'm...

Hi there, I have come from the Thyroid Uk site, after suffering with symptoms of...

•9 years ago

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Interesting development in the 'more frequent injections' battle

My relative with severe B12 deficiency and neurological symptoms has had a frustrating and stressful battle for months to get the more frequent B12 injections...

My relative with severe B12 deficiency and neurological symptoms has had a frust...

•9 years ago

8-weekly injections do not seem to0 last anymore

Hi all, I have been having 8-weekly injections for the last year or so having fought to get them from 12-weekly. My practice say this is the most frequent I...

Hi all, I have been having 8-weekly injections for the last year or so having fo...

•9 years ago

Pain in the

How many of you get foot cramp ? I always get them whilst i'm in bed so painful just wondering if this was pa related or not

How many of you get foot cramp ? I always get them whilst i'm in bed so painful...

•9 years ago

Toothache

Hi, Just wandering if somebody could help me? I have been diagnosed with B12 deficiency and have had all my loading doses and just had my first maintenance...

Hi, Just wandering if somebody could help me? I have been diagnosed with B12 de...

•9 years ago

Undiagnosed Health Problems

Hi, I posted this on the diabetes community and someone suggested to post up here. I'm just hoping for some advice on my health problems. I’m a 26 year old...

Hi, I posted this on the diabetes community and someone suggested to post up he...

•9 years ago

NEW PA STORY GLASGOW

Recently diagnosed with PA although have had symptoms for 10 years, thought being given a name for it was the answer I needed to get the treatment I required!...

Recently diagnosed with PA although have had symptoms for 10 years, thought bein...

•9 years ago

Depression or B12?

Hi all, a first time post for me. Was diagnosed with low B12 2 years ago, level was 160. With high MCV and MCH. About 3 weeks after my last jab I noticed my...

Hi all, a first time post for me. Was diagnosed with low B12 2 years ago, level ...

•9 years ago

Thank You

I'm new to the site but not to the PA I was diagnosed about 8 years ago was told much about it was something that came up in the tests I had for a under active...

I'm new to the site but not to the PA I was diagnosed about 8 years ago was told...

•9 years ago

b12 injections subq?

Hi All, I got some hydroxocobalamin from goldpharma, is it okay to do this subq using a 30g needle? I have experience injecting into abdomen, let me know as a...

Hi All, I got some hydroxocobalamin from goldpharma, is it okay to do this subq ...

•9 years ago

First injection coming up on Wednesday! Also, when self-injecting, do people ever use 'insulin pens'?

Hi all, I have my first B12 injection coming up this Wednesday! I will give the nhs recommended doses a go to start with but I am preparing myself for the...

Hi all, I have my first B12 injection coming up this Wednesday! I will give the...

•9 years ago

Prenecious anemia confused?

Hi I'm new to this and it's my first post. 3 years ago I had my first loading dose 6 injections within 2 weeks I wasn't given much info (was at my old Dr's...

Hi I'm new to this and it's my first post. 3 years ago I had my first loading do...

•9 years ago

Only just beginning to put two and two together

Even though Iv'e had pa for a very long time' Iv'e managed up until now!! I have my injections 12 weekly After having radiotherapy 5 years ago' my symptoms of...

Even though Iv'e had pa for a very long time' Iv'e managed up until now!! I have...

•9 years ago

GP not listening

Sorry but I think this will be a bit of a rant and it is my first posting - so apologies but if someone can point me in the right direction it would be...

Sorry but I think this will be a bit of a rant and it is my first posting - so a...

•9 years ago

Doc finally says every 2 weeks then months. Should I start self-injecting regardless?

Hi all, Just wondered what people’s opinions are on planning to self-inject regardless of the doctor’s approval to start the usual routine (once every...

Hi all, Just wondered what people’s opinions are on planning to self-inject reg...

•9 years ago

Chiropractics/Ostepathy for ME/CFS - worse than before!

Hi all, I was suckered into another hindsight scenario where I was told that my symptoms could be caused by my C1/C2 vertebrae being misaligned. After further...

Hi all, I was suckered into another hindsight scenario where I was told that my...

•9 years ago

B12 Levels

Hi all, I have recently been diagnosed with 'marginally' low B12 levels at around 147. The Doctor told me the acceptable level was 150. However, I am...

Hi all, I have recently been diagnosed with 'marginally' low B12 levels at arou...

•9 years ago

b12 and nitros oxide

I posted a couple of days ago as although I am bee treated for graves and I am feeling better some of symptoms have. Not improved they are getting worse the...

I posted a couple of days ago as although I am bee treated for graves and I am f...

•9 years ago

B12 loading dose - am I just being impatient?

I'm almost at the end of my loading dose (I've had 7 out of 8 injections over 4 weeks) and not have felt much improvement. I've had a slight improvement in...

I'm almost at the end of my loading dose (I've had 7 out of 8 injections over 4 ...

•9 years ago

Should I be getting treatment?

I'm a bit confused and hoping someone can offer advice. Apologies if this gets lengthy, but I want to give the background to where I'm at now, so thank you for...

I'm a bit confused and hoping someone can offer advice. Apologies if this gets l...

•9 years ago

B12 level

Hi I had my b12 done again last week , it came back at 337ng, which I think I low, ferritin was 86 folate 10.8. Heamacroit was low at .364. esr was raised...

Hi I had my b12 done again last week , it came back at 337ng, which I think I lo...

•9 years ago

Medication

Just thought I'd pass this on for what it's worth. A family member has seemed to be experiencing numerous symptoms which I thought were indicative of PA, the...

Just thought I'd pass this on for what it's worth. A family member has seemed t...

•9 years ago

High B12 and symptoms

Can someone tell me if its possible to still have symptoms when your levels are over 2000? Having a lot of menstrual problems, tiredness, low mood, anxiety and...

Can someone tell me if its possible to still have symptoms when your levels are ...

•9 years ago

Changes to diet

Hi, I realise that changing your diet will not fix PA, but when I was first diagnosed I went to see a nutritionist. After filling a questionaire she told me to...

Hi, I realise that changing your diet will not fix PA, but when I was first diag...

•9 years ago

Lack of awareness of PA & treatment

Hello, I was diagnosed with PA around August 2014 after suffering with symptoms for years. They gave me 6 injections every 2/3 days for 2 weeks, and said I...

Hello, I was diagnosed with PA around August 2014 after suffering with symptoms...

•9 years ago

Newly diagnosed with low B12

Hi all I have had varying symptoms for about 18mths but hadn't joined the dots but last week had confirmed low B12 and commenced on loading dose...

Hi all I have had varying symptoms for about 18mths but hadn't joined the dots ...

•9 years ago

Long time pernicious anaemia and still struggling :-(

I was diagnosed with pernicious anaemia in 2003 I have Hydroxocobalamin injections every 12 weeks but I find I start going down hill after about 8 weeks ie...

I was diagnosed with pernicious anaemia in 2003 I have Hydroxocobalamin injectio...

•9 years ago

Local support group in Stowmarket?

I live in Stowmarket, Suffolk and I'm wondering if there is a local support group? If not, are their any sufferers in the Stowmarket area who would be...

I live in Stowmarket, Suffolk and I'm wondering if there is a local support grou...

•9 years ago

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

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