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Pernicious Anaemia Society

31,927 members • 23,064 posts

All posts for January 2015

mouth i have dryness and no taste in my mouth what can it be

i havwea dryness and no taste in my mouth what could it be

lottie23

•9 years ago

3 Replies

Vitamin d and ferritin low, thanks for your help...

Thank you for suggesting I check Vitamin d and for your helpful info, my result has came back on the low side at 28.8, so looks as if I can supplement and...

Thank you for suggesting I check Vitamin d and for your helpful info, my result ...

Jo5454

•9 years ago

2 Replies

Anyone?

Do anyone get a real bad racing heart and feel jittery, almost like your body is vibrating please?

Do anyone get a real bad racing heart and feel jittery, almost like your body is...

nichola79

•9 years ago

3 Replies

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Pernicious anaemia or anxiety

Hi all hope someone will be able to help me . My daughter is 15 years old over the last year she become very tired with Constance pins and needle in her feet...

Hi all hope someone will be able to help me . My daughter is 15 years old over t...

Mel64

•9 years ago

17 Replies

Bioplasma Salts - Anyone with experience?

Hello :) I've been reading so much in trying to ascertain which supplements I really need and came across homeopathic salts and was wondering if anyone here...

Hello :) I've been reading so much in trying to ascertain which supplements I r...

Emjaytee

•9 years ago

27 Replies

Seeking help with iron blood test results

Hi everyone. I’m a newbie here, diagnosed a few days ago with B12 deficiency and hypothyroidism. I’ve learned so much since – and have a lot more to learn –...

Hi everyone. I’m a newbie here, diagnosed a few days ago with B12 deficiency an...

Thalia56

•9 years ago

8 Replies

Neuropathy b12 or diabetes 2 ?

Can anyone help. I have really painful neuropathy of the feet. Cannot walk some days. It's like walking on gravel, with shooting pains. Have been told due to...

Can anyone help. I have really painful neuropathy of the feet. Cannot walk some ...

annebalto

•9 years ago

10 Replies

No atrophy but anti-intrinsic antobody?

I am 46 years old diagnosed 6 years ago with autoimmune pernicious anemia by virtue of symptoms, low serum B12 (was 85) plus anti-intrinsic factor antibody...

I am 46 years old diagnosed 6 years ago with autoimmune pernicious anemia by vir...

lfenix

•9 years ago

1 Reply

where do you get your b12?

So I finally seen a private doctor, it was a great result :) I am starting on injections on friday and will be getting taught how to self inject, my...

So I finally seen a private doctor, it was a great result :) I am starting on in...

nichola79

•9 years ago

26 Replies

B12 DEFICIENCY . ORG

please everyone with questions regarding their B12 problems needs to look at the website B12d.org and ask their questions to the experts. Dr Chandy has studied...

please everyone with questions regarding their B12 problems needs to look at the...

lesbud1

•9 years ago

3 Replies

How long to take supplements for

Just a quick query. I am taking Mega-Mag ionic magnesium and Solgar B12 supplements, but just wondered do you take them indefinitely or just for a few weeks...

Just a quick query. I am taking Mega-Mag ionic magnesium and Solgar B12 supple...

Twitchen

•9 years ago

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Elevated B12 serum but might be PA

Just had another serum B12 test, and it came back elevated: 917 (191 - 663). I think that I'm unable to utilize B12, and it's just doing nothing. I've just...

Just had another serum B12 test, and it came back elevated: 917 (191 - 663). I t...

BrecklandRanger

•9 years ago

6 Replies

Diagnosed 4 years ago and now struggling with bodily pain

Hi, I was diagnosed four years ago with PA but my ferritin and folate were only tested last summer for the first time, as I began to feel extremely tearful,...

Hi, I was diagnosed four years ago with PA but my ferritin and folate were only ...

karent75

•9 years ago

16 Replies

Intrinsic factor

I have just come across a vitamin B complex supplement that includes intrinsic factor(porcine) Has anyone heard of this? And would it really help in the...

I have just come across a vitamin B complex supplement that includes intrinsic f...

wedgewood

•9 years ago

3 Replies

I need help

Got my reults on monday,my b12,vit d and folic acid are very low,B12 being 145,dr put me on tablets and wont put me on jabs unless intrinsic factor comes back...

Got my reults on monday,my b12,vit d and folic acid are very low,B12 being 145,d...

joeltite1

•9 years ago

10 Replies

I Want Great Care - Have Your Say about B12 Injections!!!!

I want great care have got a new section - it's about Medicines. They have a review area for hydroxocobalamin. I've filled a review in but I don't think it's...

I want great care have got a new section - it's about Medicines. They have a re...

Poppet11

•9 years ago

1 Reply

B12 deficiency

I was told in December 12th I am vitamin b12 deficiency and peri menopause.. I had 5 injections for 5 weeks.. next one is April 8th.. my question is can i take...

I was told in December 12th I am vitamin b12 deficiency and peri menopause.. I h...

Hidden

•9 years ago

14 Replies

Falling B12

In August 2012 my B12 level was 1075. In October 2014 it was 409. I have many symptoms including pins and needles in hands and feet, tinnitus and disturbed...

In August 2012 my B12 level was 1075. In October 2014 it was 409. I have many sy...

linda65

•9 years ago

5 Replies

3 weekly injections but still have symptoms

Hi All. I hope you all had a good festive break and a good start to 2015. I suppose I am fortunate in that my gp is sympathetic to my problems and has, at...

Hi All. I hope you all had a good festive break and a good start to 2015. I s...

hjcohen

•9 years ago

6 Replies

Would this be a better way of campaigning for better treatment of B12 deficiency?

It was really interesting to hear Baroness D'Souza on 'Woman's Hour' this morning, who said the House of Lords might be a better place to raise some issues, as...

It was really interesting to hear Baroness D'Souza on 'Woman's Hour' this mornin...

Polaris

•9 years ago

2 Replies

UK testing for MTHFR mutations

Hi, Just wondered if any of you could recommend where I could get private testing for MTHFR mutations in the uk. I found one website that could test for...

Hi, Just wondered if any of you could recommend where I could get private testi...

Sleepybunny

•9 years ago

6 Replies

Is this saline safe to inject?

Hi, I've purchased methylcobalamin from oxfordbiosciences. I also ordered saline from goldfarma, the saline arrived today and the packaging says 'for flushing...

Hi, I've purchased methylcobalamin from oxfordbiosciences. I also ordered saline...

dragonfly5465

•9 years ago

9 Replies

We Need Your Help to Improve Detection & Treatment of PA/B12 deficiency - before end of this month.

Please see how just taking the time to post or email our draft letter to your MP could raise the profile of the problems we face.... We have been extremely...

Please see how just taking the time to post or email our draft letter to your MP...

PASadmin

•9 years ago

1 Reply

Letter to local MP

My local MP is Madeliene Moon. I'm going to send her an invitation for the 3rd February but was just wondering if anyone has already sent her one? She is...

My local MP is Madeliene Moon. I'm going to send her an invitation for the 3rd F...

Bluepuffin

•9 years ago

Be the first to reply

PA and Anesthesia

Hello All, I hope everyone is having a bright start to the new year! I just have a quick question. I'm having a small procedure this week. I know there are...

Hello All, I hope everyone is having a bright start to the new year! I just hav...

NJMommy

•9 years ago

3 Replies

Already feeling symptoms are back

Hi, I finished my loading dose on the 19th dec and already feel as if I need another dose as symptoms are creeping back - tiredness, bad painful spots, dry /...

Hi, I finished my loading dose on the 19th dec and already feel as if I need ano...

Herne62

•9 years ago

6 Replies

B12 and magnesium supplements

After a break of quite a few months (due to waiting to see neurologist and not wanting to skew any blood tests), I have gone back on the above supplements and...

After a break of quite a few months (due to waiting to see neurologist and not w...

Twitchen

•9 years ago

18 Replies

I Would Like People to Look at My Latest Blog Post

I'm asking you to look at this blog post. I'm asking you to spread it around. I don't know whether this consitutes any kind of spamming thing, but I need to...

I'm asking you to look at this blog post. I'm asking you to spread it around. I ...

Poppet11

•9 years ago

8 Replies

If you are going to be ill, be a dog!

I just had a call from the vet. Seamus had a series of B12 loading doses last November/December, and then a blood test yesterday (note, results in a day!!!)....

I just had a call from the vet. Seamus had a series of B12 loading doses last No...

Ruthi

•9 years ago

12 Replies

B12 Deficiency/PA in children/young adults

Hi, Do any of you know if PA or other forms of B12 deficiency present differently in children/young adults to older adults? Can joint pains be a sign of...

Hi, Do any of you know if PA or other forms of B12 deficiency present different...

Sleepybunny

•9 years ago

6 Replies

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Various B12D/PA resources

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2015

mouth i have dryness and no taste in my mouth what can it be

Vitamin d and ferritin low, thanks for your help...

Anyone?

Pernicious anaemia or anxiety

Bioplasma Salts - Anyone with experience?

Seeking help with iron blood test results

Neuropathy b12 or diabetes 2 ?

No atrophy but anti-intrinsic antobody?

where do you get your b12?

B12 DEFICIENCY . ORG

How long to take supplements for

Elevated B12 serum but might be PA

Diagnosed 4 years ago and now struggling with bodily pain

Intrinsic factor

I need help

I Want Great Care - Have Your Say about B12 Injections!!!!

B12 deficiency

Falling B12

3 weekly injections but still have symptoms

Would this be a better way of campaigning for better treatment of B12 deficiency?

UK testing for MTHFR mutations

Is this saline safe to inject?

We Need Your Help to Improve Detection & Treatment of PA/B12 deficiency - before end of this month.

Letter to local MP

PA and Anesthesia

Already feeling symptoms are back

B12 and magnesium supplements

I Would Like People to Look at My Latest Blog Post

If you are going to be ill, be a dog!

B12 Deficiency/PA in children/young adults

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive