Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,950 members • 23,089 posts

All posts for April 2020

Ocular migraines

So my B12 just barely made it into the range by 1 number at my last check. I had some recent issues in the past 2 weeks that I stopped taking the lozenges. I...

So my B12 just barely made it into the range by 1 number at my last check. I had...

Kimme1029

•4 years ago

8 Replies

B12 deficiency due to Ileostomy

I have an ileostomy due to major bowel surgery two years ago. Because of this I don’t absorb B12 and get an injection every three months! I don’t feel this...

I have an ileostomy due to major bowel surgery two years ago. Because of this I...

Marrob

•4 years ago

14 Replies

B12 Deficiency Info post about B12 treatment in Gloucestershire

Worth reading if you live in Gloucestershire ( and elsewhere in UK)...

Sleepybunny

•4 years ago

5 Replies

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thank you

i just had a phone call from my doctors he phoned to apologise for giving me too low a dose of b12 and said he upped it and if it does not work i can have my...

i just had a phone call from my doctors he phoned to apologise for giving me too...

ayrshirelass13

•4 years ago

4 Replies

Stopping b12 injections

Hi Recently I posted that I believed that I receivedb12 injections because my doctor thought my b12 deficiency was PA related. I have since been having...

Hi Recently I posted that I believed that I receivedb12 injections because my do...

Alfabeta

•4 years ago

31 Replies

Salty taste

Has anyone experienced a persistent salty taste? I’ve had it for three weeks now, it’s horrible.

Has anyone experienced a persistent salty taste? I’ve had it for three weeks now...

Belpop33

•4 years ago

3 Replies

Did i ever have Pernicious Anaemia?!

Hello Everyone, bit of advice please! In Jan I had various blood tests and I was told by the haematologist that I probably had Pernicious Anaemia as I tested...

Hello Everyone, bit of advice please! In Jan I had various blood tests and I was...

Lols1970

•4 years ago

14 Replies

Can anyone recommend a good book about Gastritis?

Hi, I'm looking for a book about all forms of gastritis, causes,treatments, dietary changes, blood tests and other investigations. Another name for PA is auto...

Hi, I'm looking for a book about all forms of gastritis, causes,treatments, diet...

Sleepybunny

•4 years ago

1 Reply

Letter to local press

Hi everyone, but especially briarhillcat & all in Aberdeen / Grampian / Highland region. Just to say that following the letter from my GP cancelling all B12...

Hi everyone, but especially briarhillcat & all in Aberdeen / Grampian / Highlan...

Ghound

•4 years ago

25 Replies

B12 Deficiency Info blog urging people to go back to GPs if previous BSH guidance affected treatment

Another new blog post from B12 Deficiency Info website...

Sleepybunny

•4 years ago

4 Replies

How long do b12 injections last?

I ask because my doctor says it is stored in body for up to 6 months but I see some people have every other day. I have every 12 weeks and it's not often...

I ask because my doctor says it is stored in body for up to 6 months but I see s...

Linmareth

•4 years ago

5 Replies

Paramedic views on B12 deficiency

I recently had to call out a paramedic. I had been tired and a bit breathless and generally unwell for several days and then developed other more concerning...

I recently had to call out a paramedic. I had been tired and a bit breathless an...

carer999

•4 years ago

8 Replies

My poor orange

I’ve been sat here for the last hour trying to conquer this fear of injecting. I got everything ready I was shaking so much just handling the needles.I bought...

I’ve been sat here for the last hour trying to conquer this fear of injecting. I...

Hidden

•4 years ago

28 Replies

Folate level

Can a folate level of 9.5 mask a b12 deficiency?

Belalf

•4 years ago

13 Replies

At the end of my tether with trying to get more frequent injections

Hi all, first time reader and poster here. It was discovered I was B12 deficient some years ago, but was originally misdiagnosed for PA as they just did the...

Hi all, first time reader and poster here. It was discovered I was B12 deficient...

thisisnotmyname

•4 years ago

10 Replies

B12 injections

Hi, I take B12 injections for B12 deficiency symptoms which did go away after being given the shot. I am negative for intrinsic factor antibodies. I also take...

Hi, I take B12 injections for B12 deficiency symptoms which did go away after be...

Lotuspink

•4 years ago

2 Replies

Pre loaded injections

Could anyone tell me , where can I get preloaded B 12 injections so I can do them myself. Do I ask the doctor

Could anyone tell me , where can I get preloaded B 12 injections so I can do the...

pretty1woman

•4 years ago

3 Replies

First Time B12 self-injecting today... any advice?

Hi I usually get quarterly B12 from my local surgery in the UK (for Pernicious Anaemia )but for obvious reasons this isn't happening at the moment! So I've...

Hi I usually get quarterly B12 from my local surgery in the UK (for Pernicious A...

lohrdmureth

•4 years ago

10 Replies

help please need some information

had a phone call from doc not my own doc informing me that no injections will be give i have autoimmune pernicious anemia plus few other heath problems .told...

had a phone call from doc not my own doc informing me that no injections will be...

ayrshirelass13

•4 years ago

8 Replies

B12 deficiency and headaches

I have been self injecting now for a good 6 to 8 months and previous to that having one injection every 3 months from my GP for 18 months. Before finding out I...

I have been self injecting now for a good 6 to 8 months and previous to that hav...

Sunshine1932

•4 years ago

8 Replies

Low folate?

Hello, I have been having issues with burning and tingling hands and feet on and off for a year. Also some peripheral neuropathy. My son is nearly 2 and I’m...

Hello, I have been having issues with burning and tingling hands and feet on an...

haggisplant

•4 years ago

10 Replies

Very strange couple of days

Hi all, been on here a few years but think this is my first post. Was due my B12 jab 1st May, I have been calling my doctors on a weekly basis to check they...

Hi all, been on here a few years but think this is my first post. Was due my B...

lfc4eva

•4 years ago

4 Replies

B12

Can you self inject for b12 without the permission of a GP? NO gp listens i have had to do my own research and pay for private testing including b12 active and...

Can you self inject for b12 without the permission of a GP? NO gp listens i have...

Belalf

•4 years ago

7 Replies

Hypothyroidism ,long term use of PPI medication and development of pernicious anaemia.

Does anyone here know what are the specific symptoms of pernicious anaemia are? I have hypothyroidism which appears to be Hashimotos and I believe that I have...

Does anyone here know what are the specific symptoms of pernicious anaemia are? ...

sobs1962

•4 years ago

2 Replies

TABLETS

Vitamin B12 Tablets are they as effective as the injection. Do they have side effects. I am new here

Vitamin B12 Tablets are they as effective as the injection. Do they have side ef...

pretty1woman

•4 years ago

4 Replies

Deficiency improved drastically

Hi, I've been charting my b12 journey here since September and I think I have had a breakthrough. With neurological and gastro symptons I was referred to a...

Hi, I've been charting my b12 journey here since September and I think I have ha...

Luac

•4 years ago

6 Replies

TABLETS

Tablets. Has anyone else been offered a tablet substitute for the injection. I an new here.

Tablets. Has anyone else been offered a tablet substitute for the injection. I...

pretty1woman

•4 years ago

2 Replies

Have all B12 injections in England been stopped?

I'm new here. Sole carer for spouse with cancer and other health issues.

Hidden

•4 years ago

6 Replies

Recurring symtoms

Well this is day four between my loading injections I had one on Friday today is Tuesday and I feel dreadful. I’ve been up since 5am with nausea again the...

Well this is day four between my loading injections I had one on Friday today is...

Hidden

•4 years ago

3 Replies

Where can I get B12 injections

I was hoping to get some B12 injections from Versandapo.in Germany, but they are not shipping outside of Germany at the moment. Does anyone know where else I...

I was hoping to get some B12 injections from Versandapo.in Germany, but they are...

Moobli

•4 years ago

7 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All posts(75)

All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2020

Ocular migraines

B12 deficiency due to Ileostomy

B12 Deficiency Info post about B12 treatment in Gloucestershire

thank you

Stopping b12 injections

Salty taste

Did i ever have Pernicious Anaemia?!

Can anyone recommend a good book about Gastritis?

Letter to local press

B12 Deficiency Info blog urging people to go back to GPs if previous BSH guidance affected treatment

How long do b12 injections last?

Paramedic views on B12 deficiency

My poor orange

Folate level

At the end of my tether with trying to get more frequent injections

B12 injections

Pre loaded injections

First Time B12 self-injecting today... any advice?

help please need some information

B12 deficiency and headaches

Low folate?

Very strange couple of days

B12

Hypothyroidism ,long term use of PPI medication and development of pernicious anaemia.

TABLETS

Deficiency improved drastically

TABLETS

Have all B12 injections in England been stopped?

Recurring symtoms

Where can I get B12 injections

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive