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Pernicious Anaemia Society

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All posts for January 2025

After stopping B12 complex for 9 months prior to test. Your views please

Just wondering what your thoughts are on these levels please because I haven’t resumed B12 complex and wonder whether I need to Thanks

Just wondering what your thoughts are on these levels please because I haven’t r...

Noelnoel

•14 minutes ago

Be the first to reply

I need to cut expenses should I switch from methylcobalamin to cheaper form?

I'm using what was the easiest option at the time i sarted 1yr and 9 months ago - agelessrx for $75 per month for methylcobalimin, I need to cut my expenses....

I'm using what was the easiest option at the time i sarted 1yr and 9 months ago ...

Iheartb12

•7 hours ago

2 Replies

help after doctors chat please!

hello I wondered if anyone would be able to help in case I really am going mad. I’ve been feeling increasingly unwell for years really but dizzy...

hello I wondered if anyone would be able to help in case I really am going mad...

Kiwi47

•19 hours ago

9 Replies

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consultant Gastroenterologist

Hi all I got to see a Consultant Gastroenterologist (Surgeon) yesterday and she’s agreed to take out my Gastric band 🤩 I said I believe it’s caused me to...

Hi all I got to see a Consultant Gastroenterologist (Surgeon) yesterday and she’...

Doris11

•22 hours ago

1 Reply

Iron tablets

Hi I have difficulty taking iron tablets even very low dose like spatone. I am not vegetarian and eat meat fish and varied diet apart from high fibre such as...

Hi I have difficulty taking iron tablets even very low dose like spatone. I am n...

smg1950

•22 hours ago

9 Replies

Just wondering

Hi everyone, (My first post, hope I get it right!) I have PA and regular B12 injections, my stomach has lost the intrinsic thing of absorbing it. I found out...

Hi everyone, (My first post, hope I get it right!) I have PA and regular B12 in...

Tictak

•22 hours ago

4 Replies

Advice regarding IM injecting please

I self inject SC hydroxocobalamin most days but also ensure that I receive the two monthly IM injection at my GP surgery. On a recent appointment a new HCA...

I self inject SC hydroxocobalamin most days but also ensure that I receive the t...

yorkshiregirl4

•1 day ago

8 Replies

Leaky Gut - Autoimmune

Dear all. There’s a lot of social media and write ups on solving leaky gut, route to all auto immune disease resolution. Does anyone have a view or insight in...

Dear all. There’s a lot of social media and write ups on solving leaky gut, rou...

PAapr22

•2 days ago

3 Replies

Plateauing

About a year ago I started using the concept of plateauing in that when symptoms stopped improving I considered that plateauing and rejected that meant I could...

About a year ago I started using the concept of plateauing in that when symptoms...

WIZARD6787

•2 days ago

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Can people who SI for B12D still give blood?

I always used to donate blood. I stopped after being diagnosed with B12D. It took several years to get my MCV down but it is now in the normal range - just -...

I always used to donate blood. I stopped after being diagnosed with B12D. It too...

Mashie44

•2 days ago

7 Replies

B-complex; how long to quit before test?

Hi, I have my B12 test kit ready to go from Blue Horizon. How long should I quit the Pure encapsulations b-complex before testing? I stopped taking them last...

Hi, I have my B12 test kit ready to go from Blue Horizon. How long should I qui...

joey82

•3 days ago

4 Replies

Sibo looking for Gastro

Hi all Am trying to find nhs gastro that deals with Sibo, some one mentioned checking website to check they cover Sibo, but I don’t seem to be able find that...

Hi all Am trying to find nhs gastro that deals with Sibo, some one mentioned c...

Bacca

•3 days ago

4 Replies

B12 and folate now normal. All I’ve done is take folate and improve my diet?

I’m still awaiting biopsy results from an endoscopy in December. The report found atrophic gastritis. Subsequent B12 tests came back at 225ng/L and folate at...

I’m still awaiting biopsy results from an endoscopy in December. The report foun...

bflare

•3 days ago

2 Replies

Buying B12 phials on-line....🌟

I am far from computer literate ! Having followed a link posted by the ever helpful wedgewood I hit a wall as they wanted a German address ! I would...

I am far from computer literate ! Having followed a link posted by the ever hel...

Marz

•4 days ago

30 Replies

B12 deficiency after right hemicolectomy

Hi - I had a right hemicolectomy for neuroendocrine cancer (tumour in my terminal ileum) in April '24. The previous December (Dec '23) i went to my GP with...

Hi - I had a right hemicolectomy for neuroendocrine cancer (tumour in my termina...

SLM12

•4 days ago

10 Replies

LDN for PA

Hi all. I came across this research trust through trying to get a treatment for long covid for my son. After looking into it, it seems like they think...

Hi all. I came across this research trust through trying to get a treatment fo...

fionasloane

•4 days ago

13 Replies

Understanding my Bloods?

Hi I've joined to maybe get some advice as I don't feel well. I am seeing my doctor as I'm feeling fatigued, generally weak and my coordination seems off....

Hi I've joined to maybe get some advice as I don't feel well. I am seeing my ...

kmbrad1981

•5 days ago

33 Replies

Brown Toenails

Hello all. I've been off the site for several months now (dealing with a lot of new body function, etc.). One of the conditions I'm finding is all my toenails...

Hello all. I've been off the site for several months now (dealing with a lot of ...

MrJustatip

•6 days ago

15 Replies

An observation - any thoughts?

I started SI on 22/12 EOD. Had more neuropathy initially, probably due to reversing out. Last few days I have felt much better with massively reduced brain fog...

I started SI on 22/12 EOD. Had more neuropathy initially, probably due to revers...

Caradoc1a

•6 days ago

10 Replies

RAI and B12 malabsorption

A friend asked me if the radioiodine I took last January could have adversely affected my ability to absorb B12. It passed through the gut. I've read that it...

A friend asked me if the radioiodine I took last January could have adversely af...

Caradoc1a

•6 days ago

2 Replies

Headache

Can lack of b12 give u regular migraines

Mozza127

•6 days ago

14 Replies

Ulcerative colitis?

Back story: B12 levels were 74 in May 2024 and only 284 in August 2024 after 7 injections. Also low in iron and vitamin D. Currently 9 weeks post-jab (1 week...

Back story: B12 levels were 74 in May 2024 and only 284 in August 2024 after 7 i...

Mumof3boysLondon

•7 days ago

8 Replies

b12 injections

anyone struggling to get cyanocobalmin injection on the nhs./gp, as they’ve become unavailable?? I can’t have Hydroxocobalamin as I’m allergic?

anyone struggling to get cyanocobalmin injection on the nhs./gp, as they’ve beco...

Clugster

•7 days ago

7 Replies

My brother

Please could anyone help me with these results from my brothers test results today. The ranges look different, I can’t make out what’s going on. The Medichecks...

Please could anyone help me with these results from my brothers test results tod...

Marymary7

•8 days ago

6 Replies

B Complex

Can you please tell me the protocol for taking B Complex capsules - Many thanks Lemondrizz

Can you please tell me the protocol for taking B Complex capsules - Many thank...

Lemondrizz

•8 days ago

6 Replies

low B 12

Good morning I don’t have Pernicious Anaemia but do have a problem with my B12 so sorry if this is an inappropriate post . Briefly I have been taking steroids...

Good morning I don’t have Pernicious Anaemia but do have a problem with my B12 s...

5goFlotilla

•8 days ago

6 Replies

Nerve conduction test - what can I expect?

Hi All! I always like to be prepared, so I wonder if anyone has had a nerve conduction test and can tell me what to expect? The neurologist I saw in November...

Hi All! I always like to be prepared, so I wonder if anyone has had a nerve con...

Myoldcat

•8 days ago

25 Replies

B12 injections on-line ? UK lab sending to the US ?

https://perniciousanemia.org/b12/injections/buy/#order Whilst scrolling around I came across the above site. Probably known about by members - but not me !...

https://perniciousanemia.org/b12/injections/buy/#order Whilst scrolling around I...

Marz

•8 days ago

29 Replies

Intresting Study- BPC 157

Has anyone ever heard of this peptide/ used it? It seems it's getting a lot of attention for potential to heal tissues. I wonder if anyone has ever tried it...

Has anyone ever heard of this peptide/ used it? It seems it's getting a lot of ...

lb9999

•8 days ago

2 Replies

Newbie - Advice

Hi,I've been pointed to the PAS forum by the good members of the HU thyroid community. I'm a 42 year old male and have struggled with hashimotos hypothyroidism...

Hi,I've been pointed to the PAS forum by the good members of the HU thyroid comm...

joey82

•9 days ago

28 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

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All things Pernicious Anaemia Society(107)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2025

After stopping B12 complex for 9 months prior to test. Your views please

I need to cut expenses should I switch from methylcobalamin to cheaper form?

help after doctors chat please!

consultant Gastroenterologist

Iron tablets

Just wondering

Advice regarding IM injecting please

Leaky Gut - Autoimmune

Plateauing

Can people who SI for B12D still give blood?

B-complex; how long to quit before test?

Sibo looking for Gastro

B12 and folate now normal. All I’ve done is take folate and improve my diet?

Buying B12 phials on-line....🌟

B12 deficiency after right hemicolectomy

LDN for PA

Understanding my Bloods?

Brown Toenails

An observation - any thoughts?

RAI and B12 malabsorption

Headache

Ulcerative colitis?

b12 injections

My brother

B Complex

low B 12

Nerve conduction test - what can I expect?

B12 injections on-line ? UK lab sending to the US ?

Intresting Study- BPC 157

Newbie - Advice

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive