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Pernicious Anaemia Society

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All posts for February 2018

B12 result ....Can anyone please tell me if it's possible to feel so bad at this level?

Hi everyone. Popped over from the Lupus website as I would like to ask the knowledgeable people on here about my B12 results. I have been experiencing many...

Hi everyone. Popped over from the Lupus website as I would like to ask the kno...

Minnskimoo

•6 years ago

17 Replies

Auto injector or something similar that is easier than syringes.

Hi all - could someone please tell me where to get an auto injector for b12 injections - i have tried looking on Amazon but all they come up with is car parts...

Hi all - could someone please tell me where to get an auto injector for b12 inje...

xeena

•6 years ago

9 Replies

Newbie come from thyroid forum

Hello I am a 33 year old female. Please advise. Ferritin 16 (15 - 150) Folate 2.0 (2.5 - 19.5) Vitamin B12 347 (190 - 900) MCV 80.3 (83 - 98) MCHC 377...

Hello I am a 33 year old female. Please advise. Ferritin 16 (15 - 150) Folate ...

Jax667

•6 years ago

1 Reply

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zorro59

Hallo, everyone, I am 58 years old man. I have neuropathy because of B12 deficiency-50 pg-ml at the beginning of 2017. Still now I have pins and needles all...

Hallo, everyone, I am 58 years old man. I have neuropathy because of B12 deficie...

Hidden

•6 years ago

6 Replies

Daily b12 dosage?

Hi, I had intrinsic factor antibodies test that was negative, but a lot of b12 deficiency symptoms - Gp treated me with loading doses for 2 weeks. I was...

Hi, I had intrinsic factor antibodies test that was negative, but a lot of b12 ...

Saya85

•6 years ago

12 Replies

Organic B12 liquid

Has anyone tried this:...

Mahh

•6 years ago

8 Replies

Summary about megablastic anaemia

Hi All, Thought some may be interested in this brief summary about megablastic anaemia from BNF/NICE....

Hi All, Thought some may be interested in this brief summary about megablastic ...

Sleepybunny

•6 years ago

4 Replies

Should I get a second opinion

I am 39 year old female with a history of being pretty healthy until I started feeling bad a couple of years ago. For years my MPV has been low and my MCH is...

I am 39 year old female with a history of being pretty healthy until I started f...

Abitoffaith

•6 years ago

1 Reply

surgery with low b12

Posted last week re low b12 (219) liw ferratin of 22 and folate of 6.2. Dr says all fine though. Today got a date in two weeks for my arthroscopy surgery on...

Posted last week re low b12 (219) liw ferratin of 22 and folate of 6.2. Dr says ...

alimariebell

•6 years ago

2 Replies

Fighting B12 deficiency

Putting all my symptoms as somebody else might benefit from it. I was diagnosed with B12 deficiency in Jan 2018. It all started with burning sensation in my...

Putting all my symptoms as somebody else might benefit from it. I was diagnosed ...

linkerror

•6 years ago

13 Replies

Intrinsic Factor Positive

Hi All, after I was diagnosed with Hashimotos last year, I thought my quality of life would improve once prescribed 100mcg T4 daily but unfortunately it has...

Hi All, after I was diagnosed with Hashimotos last year, I thought my quality of...

Tanzanite55

•6 years ago

7 Replies

Advice please, doctor wants to stop B12 injections.

Help with Interpreting results (I currently have 3 monthly injections for B12) but am concerned that this will stopped as level is 2000 ( 197 - 777) and doctor...

Help with Interpreting results (I currently have 3 monthly injections for B12) b...

Jlg61

•6 years ago

13 Replies

Yellow tongue

Random question but has anybody else had a dark yellow coating on their tongue? It's not whitey-yellow like you would see with thrush but just a thin layer...

Random question but has anybody else had a dark yellow coating on their tongue? ...

Highland49

•6 years ago

7 Replies

Will Cyanocobalamine be OK?

I ordered Cyanocobalamine sublingual 1000 mcg by mistake and they have been despatched. Will they be OK or should I send them back and order methylcobalamin?...

I ordered Cyanocobalamine sublingual 1000 mcg by mistake and they have been desp...

Tricot

•6 years ago

4 Replies

Low phosphate and low lymphocyte count

Hi, Have been SI for few months, now worse shortness of breath so just ordered private thyroid panel. In meantime, does anyone have any knowledge or experience...

Hi, Have been SI for few months, now worse shortness of breath so just ordered p...

Highland49

•6 years ago

2 Replies

Is it PA?

I wonder if someone could give me some advice - I am new to this site? I think I have PA but have not yet been diagnosed. My symptoms started 6 months ago:...

I wonder if someone could give me some advice - I am new to this site? I think ...

Frank77

•6 years ago

6 Replies

2nd time around

Hi , was wondering if there’s anyway to do the loading dose so things don’t get massively worse . I went through all this about 10 years ago and know how bad...

Hi , was wondering if there’s anyway to do the loading dose so things don’t get ...

Shellyl37

•6 years ago

1 Reply

Don't know what to do ?

A bit of health related and personal . Since my pa journey I have been troubled with anxiety . I am currently fighting more frequent injections . Have got...

A bit of health related and personal . Since my pa journey I have been troubled ...

Andypandy30

•6 years ago

33 Replies

Confusing doctors appt

Tested low for b12 - 178 (187-800) last June and been on 3 monthly jabs since. Tried yet again to get them more frequently today as the tingly hands, poor...

Tested low for b12 - 178 (187-800) last June and been on 3 monthly jabs since. T...

HCC2

•6 years ago

3 Replies

Test Results

Hi All, So I got my Total Homocysteine test results back today and my MMA Urine test results. Both Normal apparently. Can anyone confirm that they are within...

Hi All, So I got my Total Homocysteine test results back today and my MMA Urine ...

Dan10

•6 years ago

4 Replies

B12 Cafe meeting Leicestershire 24th March

Hi, Thought some of you might be interested in this meeting organised by person who runs B12 Deficiency Info website....

Hi, Thought some of you might be interested in this meeting organised by person ...

Sleepybunny

•6 years ago

2 Replies

OK to test after one B12 patch?

A friend would appreciate advice - she used 1 B12 patch (methylcobalamin 1000ug) a week ago. How soon can she test her B12 level? (We're hoping that given that...

A friend would appreciate advice - she used 1 B12 patch (methylcobalamin 1000ug)...

Katherine_dT

•6 years ago

1 Reply

Potassium levels

I'm being advertised by another site that my potassium levels are dangerously high I'm also being told to eat a high potassium diet .this is confusing me. so...

I'm being advertised by another site that my potassium levels are dangerously hi...

pet-lamb

•6 years ago

19 Replies

Upset stomach due to b12 and folate

Hi everyone, I was diagnosed Nov 17 with b12 deff levels 169, had the first course of 6 booster injections,I had bad pins and needles in feet and hands,...

Hi everyone, I was diagnosed Nov 17 with b12 deff levels 169, had the first cour...

Tricia2747

•6 years ago

8 Replies

PETITION TO BE ABLE TO BUY B12 INJECTIONS AT YOUR LOCAL PHARMACY IN UK !

Can the Admins or someone start a petition for signatures to be able to buy B12 injections (Hydroxocobalamin) at your local pharmacy. Is this possible and...

Can the Admins or someone start a petition for signatures to be able to buy B12...

Ryaan

•6 years ago

24 Replies

Vitamin D ???

My vitamin D was just around the low end but within range, but I have bone pains and I know I need it in the higher range. My GP wasn’t going to give me...

My vitamin D was just around the low end but within range, but I have bone pains...

Ryaan

•6 years ago

7 Replies

Best Supplier of Hydroxocobamalin Please?

Hi everyone. Just a quick query on suppliers of Hydroxocobamlin as I am running low. I got my last supply from Germany ...something like Versandaso ? ... But...

Hi everyone. Just a quick query on suppliers of Hydroxocobamlin as I am running ...

Catsgalour

•6 years ago

9 Replies

B12 and D deficiency levels up 2 months don't feel good

I had a very bad condition with nerve vibrations making me very afraid, no energy (completely drained), feet pain, muscle pain, joints pain, nerve pain,...

I had a very bad condition with nerve vibrations making me very afraid, no energ...

Vitaminhungary

•6 years ago

13 Replies

I’m new here

I get Hydroxocobalamin shots from the doctor and SI with methylcobalin (subcutaneously) can this do more harm than good?

I get Hydroxocobalamin shots from the doctor and SI with methylcobalin (subcutan...

Pittman

•6 years ago

6 Replies

Awareness about VitB12 deficency - a story line in The Archers maybe?

Yesterday's edition of The Archers on BBC Radio4 was shocking as a Grundy-in-law died of sepsis (I didn't catch exactly who, maybe Will's wife?). There has...

Yesterday's edition of The Archers on BBC Radio4 was shocking as a Grundy-in-law...

annmarierodnes

•6 years ago

3 Replies

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Various B12D/PA resources

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2018

B12 result ....Can anyone please tell me if it's possible to feel so bad at this level?

Auto injector or something similar that is easier than syringes.

Newbie come from thyroid forum

zorro59

Daily b12 dosage?

Organic B12 liquid

Summary about megablastic anaemia

Should I get a second opinion

surgery with low b12

Fighting B12 deficiency

Intrinsic Factor Positive

Advice please, doctor wants to stop B12 injections.

Yellow tongue

Will Cyanocobalamine be OK?

Low phosphate and low lymphocyte count

Is it PA?

2nd time around

Don't know what to do ?

Confusing doctors appt

Test Results

B12 Cafe meeting Leicestershire 24th March

OK to test after one B12 patch?

Potassium levels

Upset stomach due to b12 and folate

PETITION TO BE ABLE TO BUY B12 INJECTIONS AT YOUR LOCAL PHARMACY IN UK !

Vitamin D ???

Best Supplier of Hydroxocobamalin Please?

B12 and D deficiency levels up 2 months don't feel good

I’m new here

Awareness about VitB12 deficency - a story line in The Archers maybe?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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