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Pernicious Anaemia Society

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All posts for January 2018

A D-lightful poem to (hopefully) brighten your day.

I went to the Doc, Just the other day, Cos, I was feeling ill, In many a way! . Aching and tired, Tingly and numb, Dragging around, Feeling quite glum! . Ah,...

I went to the Doc, Just the other day, Cos, I was feeling ill, In many a way! . ...

topazrat

•6 years ago

5 Replies

More blood tests

So after b12 dropping over three months from 869 following loading injections to 400 and being told no further action today I woke up with bruising again but...

So after b12 dropping over three months from 869 following loading injections to...

mesadies

•6 years ago

13 Replies

Annoyed

I apologize in advance if I've posted this twice I've just found out that my doctors have known since last May that my b12 has been borderline low deficient at...

I apologize in advance if I've posted this twice I've just found out that my doc...

pet-lamb

•6 years ago

4 Replies

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Private blood tests by post from Nutristasis

Just wanted to let people know that the lab at St Thomas hospital are not able to send out postal packs for blood tests until approx mid March. I went on...

Just wanted to let people know that the lab at St Thomas hospital are not able t...

Nettyanne

•6 years ago

5 Replies

Many newspapers this morning report researchers are urging government to add folic acid to flour products !

https://news.sky.com/story/folic-acid-in-flour-should-be-mandatory-to-protect-babies-study-finds-11230112 ....................

https://news.sky.com/story/folic-acid-in-flour-should-be-mandatory-to-protect-b...

Polaris

•6 years ago

9 Replies

B12 injections making me very emotionally unstable

Hi, does anyone else get very emotional and have racing thoughts after their b22 jab? It’s like my mind is on over load and I sob at the smallest of hinges if...

Hi, does anyone else get very emotional and have racing thoughts after their b22...

Dani82

•6 years ago

6 Replies

Pernicious anaemia and hives?

Anyone else suffer from hives? I get three monthly b12 injections for more than 12 years now and have suddenly come out in hives. They appear daily and...

Anyone else suffer from hives? I get three monthly b12 injections for more than ...

Flaa79

•6 years ago

7 Replies

Blood Results, are they suggestive of anything?

Hi all. I was diagnosed with b12 deficiency a couple of years ago (18 female at time, now 20) and after having them for about a year, my levels seemed normal...

Hi all. I was diagnosed with b12 deficiency a couple of years ago (18 female at ...

deanspuddingxx

•6 years ago

1 Reply

Balance of b12, folate and iron??

Hi all! Starting week 4 every other day b12 injections with weekends off. My results today.....B12 >1100 (normal >133) I was originally at 114 which was...

Hi all! Starting week 4 every other day b12 injections with weekends off. My r...

Plucky1976

•6 years ago

8 Replies

very confused now!

I am so confused, and cranky and sorry this is "longish". I saw an endo yesterday due to having two plus years of unstable thyroid levels and for newly...

I am so confused, and cranky and sorry this is "longish". I saw an endo yesterd...

Ellen-C

•6 years ago

6 Replies

This may be of interest to those whose symptoms include tinnitis

https://www.actiononhearingloss.org.uk/live-well/our-community/our-blog/comitid-study-update-improving-the-future-of-tinnitus-research/?utm_campaign=289387_Janu

https://www.actiononhearingloss.org.uk/live-well/our-community/our-blog/comitid-...

Gambit62

Administrator•6 years ago

8 Replies

Vitamin D supplements having an unexpected but positive result

I posted last week about going to see the Doc because I had had my vitamin D levels tested privately and they had come back under 10. The Doc put me on loading...

I posted last week about going to see the Doc because I had had my vitamin D lev...

topazrat

•6 years ago

4 Replies

Feel worse

Just been diagnosed had loading injections still feeling very tired and stomach really sore also heart burn, how long does it take for b12 to absorb and start...

Just been diagnosed had loading injections still feeling very tired and stomach ...

loopyLoopster1968

•6 years ago

8 Replies

Excessive Deep Bruising

I have 12 weekly B12 top up injections, and have had these for just over a year. When I was first diagnosed, I was at the point where one of my arms had...

I have 12 weekly B12 top up injections, and have had these for just over a year....

KarenKay

•6 years ago

5 Replies

B12 Injection absorption

Hi everyone! Hopefully this is appropriate. But in the midst of me getting Methylcobalamin B12 shots I noticed my urine would be slightly red afterwards (of...

Hi everyone! Hopefully this is appropriate. But in the midst of me getting Methy...

LizHealth1

•6 years ago

1 Reply

B12 Deficiency and Dry Eyes

I'm new here but have been a member of the pernicious anemia society for a number of years. I am currently suffering with severe dry eyes and wanted to know...

I'm new here but have been a member of the pernicious anemia society for a numbe...

saj8q

•6 years ago

16 Replies

So my bloods have come back and I have tested positive for Anti-neutrophil cytoplasmic antibody

I don't know what it is and my GP says although its positive it significance isn't important?

I don't know what it is and my GP says although its positive it significance isn...

lc24

•6 years ago

15 Replies

Have I got it all wrong!

I've been experiencing the typical symptoms of B12/folate deficiencies for over 18 months now, the fatigue, fast heartbeat, dizziness, vertigo, fainting,...

I've been experiencing the typical symptoms of B12/folate deficiencies for over ...

Dizzinessloaded

•6 years ago

16 Replies

Low folic acid and b12 whilst pregnant (just found out) help

Hi All Please can someone help/advise. I have just found out I am pregnant Guessing Around 4 weeks and also found out my folic acid is low 3.2 and b12 is low...

Hi All Please can someone help/advise. I have just found out I am pregnant Guess...

Amyc1991

•6 years ago

10 Replies

GP with a gap in her knowledge.

Hi I'm new here. My B12 serum was 499 when tested in October and my GP said this was normal. I have almost every symptom on the PAS checklist and have numbness...

Hi I'm new here. My B12 serum was 499 when tested in October and my GP said this...

Nettyanne

•6 years ago

26 Replies

Small blood cells?

In February 2017 went to doctors as I had been having diarrhoea every day for 6 weeks, thought other symptoms tiredness, pins and needles etc. were due to...

In February 2017 went to doctors as I had been having diarrhoea every day for 6 ...

dippyduck

•6 years ago

9 Replies

ups and downs?

hi all! A few weeks ago I took a liquid vitamin with B12 and folate. for the first time in over ten years i had energy, my hair started growing back, my nails...

hi all! A few weeks ago I took a liquid vitamin with B12 and folate. for the fi...

moni4moni

•6 years ago

1 Reply

B12 supplements or B12 shots?

Hi all, Which is best for me to have B12 sublingual tablets or to have B12 shots? I am felling very low right now, I have started the loading dose of B12 shots...

Hi all, Which is best for me to have B12 sublingual tablets or to have B12 shots...

Ioana_17

•6 years ago

18 Replies

Update from Locum app and urgent advice on R-lipoid Acid

Hello, I wrote a few months ago was feeling very unwell with my neuro symptoms, Had an app with new locum. Turned out she was lovely. Listened to me, didn't...

Hello, I wrote a few months ago was feeling very unwell with my neuro symptoms, ...

potter5

•6 years ago

16 Replies

Could someone just confirm

Although my doctor says my blood results are fine I've decided to take sublingual folic acid 400 ug per dose a day to see if this improves things. Could...

Although my doctor says my blood results are fine I've decided to take sublingu...

sarahjaneR

•6 years ago

10 Replies

Iron stores while taking b12.

Curious to know how many take iron with b12. I had major symptoms before any anemia showed up. However, my ferritin level was low end normal. My folate...

Curious to know how many take iron with b12. I had major symptoms before any an...

Plucky1976

•6 years ago

3 Replies

Are these symptoms b12 deficiency please

Hi im new here too.. advice needed please as im hoping this is b12 deficiency symptoms & not something even worse.sorry its a bit long..in 2015 i suddenly had...

Hi im new here too.. advice needed please as im hoping this is b12 deficiency sy...

cuddlywuddly

•6 years ago

6 Replies

Anyone with atrophic autoimmune disease try hcl tablets

Hi all, I have no stomach acid as I have PA antibodies. Anyone with the same condition try hcl tablets? Anything else help with digestion? Thanks Karen

Hi all, I have no stomach acid as I have PA antibodies. Anyone with the same con...

CarrieD2018

•6 years ago

7 Replies

How long does it usually take for neurologists to write to gp's after consultation to commence treatment?

Hi guys, so I had my neurologist appointment last Thursday and he came to the conclusion that I should be receiving treatment, I know a week isn't that long...

Hi guys, so I had my neurologist appointment last Thursday and he came to the co...

lc24

•6 years ago

5 Replies

Yippee

If you have read my previous post, then I will continue here. My B12 on December 13th was 178 and now after a month of sublingual dosing it is up to 452 ! Most...

If you have read my previous post, then I will continue here. My B12 on December...

jointpain

•6 years ago

1 Reply

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2018

A D-lightful poem to (hopefully) brighten your day.

More blood tests

Annoyed

Private blood tests by post from Nutristasis

Many newspapers this morning report researchers are urging government to add folic acid to flour products !

B12 injections making me very emotionally unstable

Pernicious anaemia and hives?

Blood Results, are they suggestive of anything?

Balance of b12, folate and iron??

very confused now!

This may be of interest to those whose symptoms include tinnitis

Vitamin D supplements having an unexpected but positive result

Feel worse

Excessive Deep Bruising

B12 Injection absorption

B12 Deficiency and Dry Eyes

So my bloods have come back and I have tested positive for Anti-neutrophil cytoplasmic antibody

Have I got it all wrong!

Low folic acid and b12 whilst pregnant (just found out) help

GP with a gap in her knowledge.

Small blood cells?

ups and downs?

B12 supplements or B12 shots?

Update from Locum app and urgent advice on R-lipoid Acid

Could someone just confirm

Iron stores while taking b12.

Are these symptoms b12 deficiency please

Anyone with atrophic autoimmune disease try hcl tablets

How long does it usually take for neurologists to write to gp's after consultation to commence treatment?

Yippee

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How Often do you feel you actually need your B12 injection?

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