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Pernicious Anaemia Society

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All posts for October 2023

Nervous energy?

I've now had my 6 loading doses of B12 and also started using a sub-lingual B12 spray. I have not felt any better as yet but I have felt a kind of nervous...

I've now had my 6 loading doses of B12 and also started using a sub-lingual B12 ...

Permexpi

•6 months ago

16 Replies

While I am at it...shortness of breath

I get shortness of breath that is pretty severe. I do have COPD. Yesterday it was crippling and lasted all day. It gets much worse when I lie down. Is this...

I get shortness of breath that is pretty severe. I do have COPD. Yesterday it ...

EiCa

•6 months ago

14 Replies

Ah...I am breathing easier

This is for everyone (though it is old news for most) but I haven't ordered Pan Pharma hydroxy for a year...in fact I believe I got the end of the lot and when...

This is for everyone (though it is old news for most) but I haven't ordered Pan ...

EiCa

•6 months ago

1 Reply

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Moving from 0.5 ml daily to 1ml EOD?

Hi everyone . I've posted previously about me using Dr Myhill's 30ml hydroxo; now that trial has gone ok I'm going to order the 1ml vials from apohealth....

Hi everyone . I've posted previously about me using Dr Myhill's 30ml hydroxo; no...

Sunnysidoop

•6 months ago

7 Replies

Spray methylcobalamin

Do try a sublingual spray, if you haven't already. I was a bit sceptical, but having bought some 'Better You B12 Boost' today, in Holland and Barrett (UK) it...

Do try a sublingual spray, if you haven't already. I was a bit sceptical, but ha...

Oneash

•6 months ago

14 Replies

7 day trial

I was injecting 1 mg of Methyelcobalamin and 1 mg of Hydroxocobalamin 5 times a day +- and taking 6 mg SL Adenosylcobalamin. I ran out of Hydroxocobalamin...

I was injecting 1 mg of Methyelcobalamin and 1 mg of Hydroxocobalamin 5 times a...

WIZARD6787

•6 months ago

6 Replies

B12 injectables in Australia

Hi, I’m moving back to Australia next month after 15 years living in Europe. My question, can anyone in Australia advise me on where to get Hydroxocobalamin...

Hi, I’m moving back to Australia next month after 15 years living in Europe. My...

Baklava22

•6 months ago

19 Replies

evergreen life

to clarify ‘ Evergreen Life’ My friend who is a retired NHS told me about it a couple of years ago when I wanted proof I had Pernicious anaemia. You put in...

to clarify ‘ Evergreen Life’ My friend who is a retired NHS told me about it ...

Hedgehogs15

•6 months ago

5 Replies

Bladder pain

Started b12 injections (sc) approx 6 weeks ago and have been experiencing bladder irritation and pain. Is this related to b12 injections? Otherwise feeling...

Started b12 injections (sc) approx 6 weeks ago and have been experiencing bladd...

Shelley1234567

•6 months ago

3 Replies

A new way to screw up.

I find that having more appropriate supplementation for whatever issues my body has to be a major adjustment, much about my old ways of doing things are no...

I find that having more appropriate supplementation for whatever issues my body ...

WIZARD6787

•6 months ago

1 Reply

SIRVA

anyone have any experience with SIRVA? I am confident I am struggling with this in my left arm. It is not from B12 but from a flu shot. Pain for weeks...

anyone have any experience with SIRVA? I am confident I am struggling with this...

Ctadds1

•6 months ago

9 Replies

medical records

afternoon everyone. I hope you are all as well as expected. I thought this might be helpful to you. I retired nurse friend of mine informed me you can get...

afternoon everyone. I hope you are all as well as expected. I thought this mig...

Hedgehogs15

•6 months ago

66 Replies

MTHFR Gene testing uk

Hi, where are the best companies to get MTHFR gene testing in the UK? Thanks

Scotlad76

•6 months ago

3 Replies

Need some help re B12 metabolism

Hi started my B12 loading dose yesterday (yay!) and have 6 in total lined up. I've read a few threads round here which mention vitD, potassium, folate etc...

Hi started my B12 loading dose yesterday (yay!) and have 6 in total lined up. ...

Onefish

•6 months ago

21 Replies

Furious/ Upset

I had a G.p appointment on 12th October who reinstated my b12 prescription. Caused much stress as have had many rounds of this. Always a lottery which Gp you...

I had a G.p appointment on 12th October who reinstated my b12 prescription. Caus...

Nackapan

•6 months ago

95 Replies

When Might I See Progress with B12 Injections?

I don't have a diagnosis of PA or even deficiency because I have been supplementing B12 for years, one way or another. I have hypothyroidism too and Atrial...

I don't have a diagnosis of PA or even deficiency because I have been supplement...

FancyPants54

•6 months ago

26 Replies

What vitamin supplements to take alongside B12 injections?

Hi all - I'm currently on monthly injections for PA but still feel tired every morning even after a good nights sleep; low energy days; trouble focusing etc -...

Hi all - I'm currently on monthly injections for PA but still feel tired every m...

TheSunshineSanctuary

•6 months ago

18 Replies

Time for you all to take another bow.

I have been working with someone for three years who is suffering and may be suffering from B12 deficiency. I do not give advice and certainly not medical...

I have been working with someone for three years who is suffering and may be suf...

WIZARD6787

•6 months ago

2 Replies

Pushing vs being Pushed

In the last 6 weeks I have been developing a method and increasing my understanding of how pushing thru exercise affects me with my current level of having...

In the last 6 weeks I have been developing a method and increasing my understand...

WIZARD6787

•6 months ago

23 Replies

Injecting in the middle of the night.

Currently injecting SC methyl 1 mg/ml Cynao 1mg/ml one ml each with adeno 6mg SL 4 to 5 times a day. I now start counting at midnight. If I wake up in the...

Currently injecting SC methyl 1 mg/ml Cynao 1mg/ml one ml each with adeno 6mg S...

WIZARD6787

•6 months ago

2 Replies

‘Antibodies sometimes present and others not therefore no treatment’

I wanted to ask a question regarding tests for antibodies, including outside the standard PA ones, for example thyroid, hughes, vasculitis, lupus……...

I wanted to ask a question regarding tests for antibodies, including outside the...

RoseFlowerDew

•6 months ago

4 Replies

Bridging the Gap.

Please know there are a great doctors out there. I was very fortunate to meet several. They listened as did I:- ‘I bet you know more than me !’...

Please know there are a great doctors out there. I was very fortunate to meet se...

Narwhal10

•6 months ago

2 Replies

Sourcing Hydroxocobalamin, help please

Edit: Solved this issue. Thanks. Supplies now on order :) I've been self-injecting for a few years now, as GP refuses to diagnose B12 deficiency, in...

Edit: Solved this issue. Thanks. Supplies now on order :) I've been self-...

JMN2017

•6 months ago

2 Replies

Where can I order B12 Hydroxocobalamin ampules from 🤔

Hey all - where do y’all order your B12 ampules from - I always ordered from Versandapo in Germany but when I checked out it said the shipping address is not...

Hey all - where do y’all order your B12 ampules from - I always ordered from Ver...

Mandymoos8

•6 months ago

8 Replies

Advice please x

I have had low b12, ferritin and d3 before and it is low again now.Serum vit b12 187 range ( 197-771) Serum folate 2.3 range ( >3 ) Serum ferritin 27 range (...

I have had low b12, ferritin and d3 before and it is low again now.Serum vit b12...

49goingon99

•6 months ago

3 Replies

Local support groups?

Just wondered if there are any regular local support groups in the UK for PA & B12D that anyone knows of (whether PAS or other or entirely independent)?It...

Just wondered if there are any regular local support groups in the UK for PA & B...

eclilley

•6 months ago

2 Replies

Access to medical records changed

Apparently most GP practices are making records available from this month. However, I already had access to my detailed coded record but now all past entries...

Apparently most GP practices are making records available from this month. Howev...

Tanglewooddream

•6 months ago

6 Replies

Best Foods For Autoimmune Disease

https://m.youtube.com/watch?v=p97VbFFT8pU

Technoid

•6 months ago

8 Replies

Any correlation between antipsychotic discontinuation and b12 absorption or deficiency?

Hi, has anyone ever had experience of b12 deficiency symptoms after antipsychotic withdrawal/discontinuation, & more specifically Aripiprazole (Abilify)? I am...

Hi, has anyone ever had experience of b12 deficiency symptoms after antipsychoti...

Ian232

•6 months ago

10 Replies

Feeling awful a week after jab.

Hi, I was diagnosed with b12 deficiency 2 years ago . I have 10 weekly injections. Usually I am ok after my jab and only need to SI occasionally inbetween.I...

Hi, I was diagnosed with b12 deficiency 2 years ago . I have 10 weekly injection...

Mrsmr

•6 months ago

20 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2023

Nervous energy?

While I am at it...shortness of breath

Ah...I am breathing easier

Moving from 0.5 ml daily to 1ml EOD?

Spray methylcobalamin

7 day trial

B12 injectables in Australia

evergreen life

Bladder pain

A new way to screw up.

SIRVA

medical records

MTHFR Gene testing uk

Need some help re B12 metabolism

Furious/ Upset

When Might I See Progress with B12 Injections?

What vitamin supplements to take alongside B12 injections?

Time for you all to take another bow.

Pushing vs being Pushed

Injecting in the middle of the night.

‘Antibodies sometimes present and others not therefore no treatment’

Bridging the Gap.

Sourcing Hydroxocobalamin, help please

Where can I order B12 Hydroxocobalamin ampules from 🤔

Advice please x

Local support groups?

Access to medical records changed

Best Foods For Autoimmune Disease

Any correlation between antipsychotic discontinuation and b12 absorption or deficiency?

Feeling awful a week after jab.

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive