Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for August 2016

My brother and I went to see the doctor and he has been given b12 shots...yea!! Please God let it help his M.S?

I took my brother who has multiple sclerosis and needed a wheelchair to get there to see his doctor in the hope of proving he has pernicious anaemia instead of...

I took my brother who has multiple sclerosis and needed a wheelchair to get ther...

Marymary7

•8 years ago

32 Replies

Vitamin b12 deficiency

Hi there people . First sorry for my bad english. This is my story: I were vegan for like 1 year and 6 month and vegetarian for 1 year. One day i became having...

Hi there people . First sorry for my bad english. This is my story: I were vegan...

Mariofiguer01

•8 years ago

9 Replies

Petition for Hydroxocobalamin

http://www.b12d.org/hyroxocobalamininjections This is the link for a petition to make Hydroxocobalamin available over the counter - please consider signing it...

http://www.b12d.org/hyroxocobalamininjections This is the link for a petition to...

Lizzy86

•8 years ago

5 Replies

Want to take advantage of all our features? Just log in!

I'm new and have a question about folic acid

Hello, I am 21 years old and I have been recently diagnosed with PA. I have had all my loading injections. My level of B12 went up to over 1000. My results...

Hello, I am 21 years old and I have been recently diagnosed with PA. I have had ...

bethhb

•8 years ago

7 Replies

Circulation and high BP

Not sure if this is correct place to ask. I am taking 2 products.... Circulease (for poor circulation) and Pycnogenol for help with BP. I used to ta e turn...

Not sure if this is correct place to ask. I am taking 2 products.... Circulease ...

foxglove

•8 years ago

4 Replies

Hash Anyone Had a Rash Like This?

Hi all, Three weeks ago I learned I was B12 deficient (numbers in the mid 200s) and started injections. I live in the U.S., so am getting 100 mcg every two...

Hi all, Three weeks ago I learned I was B12 deficient (numbers in the mid 200s) ...

srmika

•8 years ago

13 Replies

Can B12 cause all this?

Hi all Been on this page and hypothyroid ones so apologies to go on about my issues. I've moved surgeries and had my first Drs apt this morning. Showed him my...

Hi all Been on this page and hypothyroid ones so apologies to go on about my iss...

steviep43

•8 years ago

7 Replies

Update...

So after posting earlier about all the symptoms I had been having and problems with getting an answer as to why my B12 keeps dropping I've been back to the...

So after posting earlier about all the symptoms I had been having and problems w...

LSiddall

•8 years ago

5 Replies

There's some left in the ampoule - is it ok?

I know, I know, another daft question but here goes. I have just done my third injection on my own (rather chuffed) and I've only just realised that once the...

I know, I know, another daft question but here goes. I have just done my third i...

Schenks

•8 years ago

42 Replies

Why do I have high B12 when I'm not supplementing?

Hi guys, I'm new here. Was advised by my thyroid group to ask this question here. B12 1107. (197-771) Was wondering why my B12 is high when I'm not...

Hi guys, I'm new here. Was advised by my thyroid group to ask this question here...

Naz67

•8 years ago

6 Replies

Being tested for coeliac but B12 low, and ferratin and now have headaches. Just started Metformin. Is there a link?

Hi new on here. I have several autoimmune disorders. I added B12 to regular full blood test, on Azathioprine and it came back 246. Rheumy said it was ok but I...

Hi new on here. I have several autoimmune disorders. I added B12 to regular full...

Footygirl

•8 years ago

26 Replies

B12 injections ...a sure shot way to recovery?

I have read numerous articles on the efficiency of sublinguals in treatment of b12 deficiency and also seen patient testimonials lauding the efficacy of b12...

I have read numerous articles on the efficiency of sublinguals in treatment of b...

Dlonelyguy

•8 years ago

13 Replies

Clean the top of multi dose B12

I have the multi dose methyl b12.I try to keep the top as clean as possible but not sure what to clean it with. Can any one advise please. Thanks

I have the multi dose methyl b12.I try to keep the top as clean as possible but ...

Chocolate41

•8 years ago

8 Replies

New member seeking PA advice

Hi everyone. I have not been diagnosed with PA yet but I after almost 4 months of illness, I was told that I have a Vit B12 deficiency and have been given...

Hi everyone. I have not been diagnosed with PA yet but I after almost 4 months o...

drob107

•8 years ago

13 Replies

What else can I do???

I really feel at the end of my tether I'm on injections every other day (just had 9th) due to severe neurological issues, take a 5000mg solgar sublingual...

I really feel at the end of my tether I'm on injections every other day (just h...

Carolyn1964

•8 years ago

3 Replies

Kilmarnock Thyroid and B12d Support Group: next meeting Thursday 1 September 2016

We are a small, friendly and informal group to support those with hypothyroidism, hyperthyroidism or Vitamin B12 deficiency that meets every first Thursday of...

We are a small, friendly and informal group to support those with hypothyroidism...

SailingBy

•8 years ago

1 Reply

UK - changing from hyroxocobalamin to methylcobalamin

I am 72, newly diagnosed and start my course of B12 injections on Wednesday. However, In the UK (Scotland) it is standard practice to use hydroxocobalamin and...

I am 72, newly diagnosed and start my course of B12 injections on Wednesday. How...

judithcondie

•8 years ago

1 Reply

Pins & needles

Hi, I have posted before in last couple of weeks. Basically I had no real symptoms of b12 deficiency until I had routine blood test as I was on ppis. My b12...

Hi, I have posted before in last couple of weeks. Basically I had no real sympto...

KathyN

•8 years ago

9 Replies

For those of you who use methylcobalamin from B12D.org

latest newsletter from B12D includes the news that they have found a UK source for methyl. Although they will supply free of charge if you can't afford to pay...

latest newsletter from B12D includes the news that they have found a UK source f...

Gambit62

Administrator•8 years ago

30 Replies

Newly diagnosed

Hi all I was told I was b12 deficient in April (113). I have since found out I have hypothyroidism. My TSH level is 21.77 I'm just so tired all the time, I've...

Hi all I was told I was b12 deficient in April (113). I have since found out I h...

MzChapperz

•8 years ago

3 Replies

I've had a strong word with myself!!

Hi guys ..... So for the last 4-5 months I've been trying to get my Gp to increase my b12 shots (currently 12 weekly) and I SI 6weekly and take at least one...

Hi guys ..... So for the last 4-5 months I've been trying to get my Gp to incre...

Pixielula

•8 years ago

2 Replies

Calcium supplements - a health warning.

New Scientist included a story this week of studies that have shown that supplementation with Calcium may not be a good idea if you're not clinically...

New Scientist included a story this week of studies that have shown that supplem...

fbirder

•8 years ago

2 Replies

Haemorrhage at the back of left eye.

Hi everyone, I went to opticians yesterday and instead of half an hour test, my test lasted over an hour. They did tests that I've never had before. Well as I...

Hi everyone, I went to opticians yesterday and instead of half an hour test, my ...

Bentleyboo

•8 years ago

7 Replies

How long is a while?

Hi there, I've had many helpful replies to my previous questions.... Which I'm extremely grateful for 😊.... Taking into account we are all different, but with...

Hi there, I've had many helpful replies to my previous questions.... Which I'm e...

ShirleyMurray

•8 years ago

14 Replies

Low Folate/Memory problems

Hi, My hubby seen Dr recently due to sudden and quite severe memory problems and unusual bruising/bleeding under skin.She ordered FBC bloods. He got a phone...

Hi, My hubby seen Dr recently due to sudden and quite severe memory problems and...

Kay1986

•8 years ago

13 Replies

New on here ...would appreciate help with my results please

Hi, l would appreciate help with blood results Hi I've not posted on here before but read your posts most days and find them both informative and...

Hi, l would appreciate help with blood results Hi I've not posted on here before...

wong2

•8 years ago

15 Replies

Symptoms returning

Hi I got diagnosed at the end of may. Loading doses worked for few weeks but then symptoms returned with a vengeance. Decided to go SI route about 3 weeks...

Hi I got diagnosed at the end of may. Loading doses worked for few weeks but th...

Ladystardust

•8 years ago

19 Replies

How much should I exercise

I have very weak legs and hardly any reflexes in my knees so lifting my feet is a real struggle. I am trying to build up my knees but it's such a struggle as I...

I have very weak legs and hardly any reflexes in my knees so lifting my feet is ...

Carolyn1964

•8 years ago

9 Replies

Oral spray B12

Can b12 spray be used indefinitely? Husband (age 78) type 2 diabetic (on metformin) he also has been diagnosed with Alzheimer's His b12 in range but at the...

Can b12 spray be used indefinitely? Husband (age 78) type 2 diabetic (on metfor...

foxglove

•8 years ago

19 Replies

B12 Patches

Do they work and which ones are recommended.

christmas63

•8 years ago

3 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2016

My brother and I went to see the doctor and he has been given b12 shots...yea!! Please God let it help his M.S?

Vitamin b12 deficiency

Petition for Hydroxocobalamin

I'm new and have a question about folic acid

Circulation and high BP

Hash Anyone Had a Rash Like This?

Can B12 cause all this?

Update...

There's some left in the ampoule - is it ok?

Why do I have high B12 when I'm not supplementing?

Being tested for coeliac but B12 low, and ferratin and now have headaches. Just started Metformin. Is there a link?

B12 injections ...a sure shot way to recovery?

Clean the top of multi dose B12

New member seeking PA advice

What else can I do???

Kilmarnock Thyroid and B12d Support Group: next meeting Thursday 1 September 2016

UK - changing from hyroxocobalamin to methylcobalamin

Pins & needles

For those of you who use methylcobalamin from B12D.org

Newly diagnosed

I've had a strong word with myself!!

Calcium supplements - a health warning.

Haemorrhage at the back of left eye.

How long is a while?

Low Folate/Memory problems

New on here ...would appreciate help with my results please

Symptoms returning

How much should I exercise

Oral spray B12

B12 Patches

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive