Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,950 members • 23,089 posts

All posts for September 2016

Serum ferritin and iron

Hello, please could anyone advise on boosting ferritin and iron but please NO eggs or liver...allergic to eggs and cannot eat liver at all. Which supplements...

Hello, please could anyone advise on boosting ferritin and iron but please NO eg...

•8 years ago

The Connection Between B12 Deficiency and Hypothyroidism (Post 4)

Given that different people have different diets and absorb vitamin and minerals at different rates it is perhaps not surprising that different people...

Given that different people have different diets and absorb vitamin and minerals...

•8 years ago

The Connection Between B12 Deficiency and Hypothyroidism (Post 3)

When the inactive T4 thyroxine reaches the liver, it must be converted to the active form T3. To achieve this the mineral Selenium is needed. Selenium is not...

When the inactive T4 thyroxine reaches the liver, it must be converted to the ac...

•8 years ago

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gastroenterology..

Hi all .. I've had another call from the DR today to say the Haemotologists recommend I be referred to gastroenterology .. Has anyone else had this? Or know...

Hi all .. I've had another call from the DR today to say the Haemotologists reco...

•8 years ago

The Connection Between B12 Deficiency and Hypothyroidism (Post 2)

Because the pituitary produces TSH does not necessarily mean that it gets into the thyroid gland to signal that more thyroxine is needed. The "door" to the...

Because the pituitary produces TSH does not necessarily mean that it gets into t...

•8 years ago

The Connection Between B12 Deficiency and Hypothyroidism (Post 1)

One thing that is consistent in this forum is that there is no consistency. I know that is a paradox and I will explain. This will take some time and I may...

One thing that is consistent in this forum is that there is no consistency. I k...

•8 years ago

How do I get to see an expert?

I am so frustrated by NHS doctors that I may never go back. I have just been told that if I had pernicious amaemia the intrinsic factor anti body test would...

I am so frustrated by NHS doctors that I may never go back. I have just been to...

•8 years ago

Solgar 5,000 back on Amazon UK at £12.58

I know there was quite a bit of concern about the recent price jump of Solgar methylcobalamin 5,000s to about £18. I'm posting this to let anyone affected...

I know there was quite a bit of concern about the recent price jump of Solgar me...

•8 years ago

Effects of anesesthia?

Hi all, just wondering if anyone can enlighten me on the effects of anesthesia on B12. I recall reading somewhere that it can completely wipe it out from your...

Hi all, just wondering if anyone can enlighten me on the effects of anesthesia o...

•8 years ago

PA from Autoimmune Gastritis - do the stomach issues improve?

Hello, and I'm sorry in advance if I'm posting in the wrong place, since this is more stomach related. I was diagnosed earlier this week with PA and early...

Hello, and I'm sorry in advance if I'm posting in the wrong place, since this is...

•8 years ago

Supporting someone with PA

Hey all, I'm new to the PA community. So I've recently made a friend who has PA and coeliac disease. What is the best way to support someone who is suffering...

Hey all, I'm new to the PA community. So I've recently made a friend who has PA ...

•8 years ago

B-Amazing.co - have they stopped trading?

I've got one order from B-amazing.co for Hydroxocobalamin x 1mg and am trying to place another order but can't find them online. Any advice most welcome.

I've got one order from B-amazing.co for Hydroxocobalamin x 1mg and am trying to...

•8 years ago

How often should I inject?

OK, I've taken the plunge and ordered injectable hydroxocobalamin from Germany. I'm not madly keen on the idea of putting a needle into my skin, but I'm...

OK, I've taken the plunge and ordered injectable hydroxocobalamin from Germany. ...

•8 years ago

Any new ways of obtaining b12 injections?

I have been injecting myself for quite some time now with the information and help from this site. I am using b12d.org but they are very slow to respond...

I have been injecting myself for quite some time now with the information and he...

•8 years ago

Anyone have symptoms appear to worsen when using B12 suppliments?

Hey all, As above, have any of you had your symptoms appear to worsen after taking B12 suppliments/treatments? After I thought my doc had done all the tests he...

Hey all, As above, have any of you had your symptoms appear to worsen after taki...

•8 years ago

No clinical evidence for 3 Monthly maintenance

Thought people might be interested in this blog by Tracey Witty...

Thought people might be interested in this blog by Tracey Witty...

Administrator•8 years ago

Update

Well my IFA test came back as negative but my Methylmalonic acid serum came back high at 33 (range ?-27) the gp has advised that she needs an opinion from a...

Well my IFA test came back as negative but my Methylmalonic acid serum came back...

•8 years ago

Help with interpreting test results please

Hi, I've been wondering for a while if my symptoms (many and varied) might be thyroid related so have just got results from a private blood test but need help...

Hi, I've been wondering for a while if my symptoms (many and varied) might be th...

•8 years ago

Need some help please

Hi all - been writing on here for several months now about my husband. He was diagnosed as B12 deficient after feeling very unwell, was called in for...

Hi all - been writing on here for several months now about my husband. He was d...

•8 years ago

Any advice on powered raw liver tablets?

After frustration with not enough injections, I began wondrring about finding ways to "inject" raw or lighly cooked liver onto my diet (can't stand the taste)....

After frustration with not enough injections, I began wondrring about finding wa...

•8 years ago

Best folate supliment

What is a good way to get supplementary folate with malabsobition issues tables not much good. Any advice.

What is a good way to get supplementary folate with malabsobition issues tables...

•8 years ago

Results for daughter, advice needed

My daughter is 21, exhausted, cold, thin, clearly sick, exercises, healthy lifestyle, no drink or drugs. I have Hashis, so I Blue Horizoned her. A few years...

My daughter is 21, exhausted, cold, thin, clearly sick, exercises, healthy lifes...

•8 years ago

Anyone know if there is a link to increased cold sores?

Hi all, I have been deficient for some time in vit D, Folic acid and B12. I had my loading doses and was also put on a mini pill to help regulate hormone...

Hi all, I have been deficient for some time in vit D, Folic acid and B12. I had ...

•8 years ago

Advice on diagnosis please

Hi, I'm having monthly b12 jabs with Hydroxocobalamin but as yet don't have a PA diagnosis. I'm diagnosed with ME/CFS and saw a huge improvement in energy...

Hi, I'm having monthly b12 jabs with Hydroxocobalamin but as yet don't have a PA...

•8 years ago

Folate

Self injecting the B12 due to crap Dr.My folate level was never mentioned, is it a good idea to take folate supplement and if so which one do people recommend...

Self injecting the B12 due to crap Dr.My folate level was never mentioned, is it...

•8 years ago

Some hopeful news

Have had a lot happen since I last posted here, but am feeling quite hopeful at the moment. I had a couple of appointments last week one good one bad. The bad...

Have had a lot happen since I last posted here, but am feeling quite hopeful at ...

•8 years ago

First b12 injection questions and one other question re-bloods

Hi there - after being told my b12 was 108 - second test confirmed again at 118 (altho docs said this second result was just into normal...!) they started me...

Hi there - after being told my b12 was 108 - second test confirmed again at 118 ...

•8 years ago

Twitchy, vibrating hand

I've heard of many suffering from strange sensations whilst B12 deficient. I'm 4 1/2 months into injecting daily and just today my left hand has started to...

I've heard of many suffering from strange sensations whilst B12 deficient. I'm 4...

•8 years ago

New to the site but very pleased I found it! Ref B12.

Hi everyone. I am hoping that this is a genuine forum! I read through the symptoms of B12 deficiency, on your website, and nearly all the symptoms exactly...

Hi everyone. I am hoping that this is a genuine forum! I read through the sympto...

•8 years ago

Private PA test needed

Long story short - NHS won't test me for PA cos my b12 level has only dipped previously at 200 and needs to be below 180 despite having a consistently high...

Long story short - NHS won't test me for PA cos my b12 level has only dipped pre...

•8 years ago

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