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Pernicious Anaemia Society

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All posts for October 2018

High blood pressure and b12 shots

I have a thyroid disease with multi problems... I was thinking maybe the b12 shots were making my blood pressure high. But then I remembered that it gets high...

I have a thyroid disease with multi problems... I was thinking maybe the b12 sho...

3322

•5 years ago

2 Replies

Bali and b12 injections

Has anyone been to Bali and taken Uk prescription b12 hydroxocobalamin with them ? Going for a long trip can’t seem to find anywhere (hospital or clinic that...

Has anyone been to Bali and taken Uk prescription b12 hydroxocobalamin with them...

Hidden

•5 years ago

2 Replies

B12 & other vitamins

This is my first posting and I would appreciate your thoughts. After being unwell for 8 months and thinking it was my Thyroid as I have Thyroid nodules I went...

This is my first posting and I would appreciate your thoughts. After being unwel...

Sue394

•5 years ago

7 Replies

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blood results

Hi. I posted on here for myself a month or so ago and am just awaiting my private blood results to come back. However, these are some of the NHS ones. It says...

Hi. I posted on here for myself a month or so ago and am just awaiting my priva...

Wornoutbody

•5 years ago

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IBS and PA?

Good morning I've always had irritable bowel syndrome, and have heard that IBS and PA may have a connection. I have found that since getting my B12 shots, the...

Good morning I've always had irritable bowel syndrome, and have heard that IBS a...

MoGoldy

•5 years ago

4 Replies

Veganism

Hi All Interesting article in The Times today about the health benefits of a vegan diet and, for the first time in my memory, a caveat has been added by the...

Hi All Interesting article in The Times today about the health benefits of a veg...

Alfabeta

•5 years ago

25 Replies

B12 help!

I live in Ireland and have pernicious anaemia. GP and public health nurse won't allow me to self administer or to teach a family member to do it but it's...

I live in Ireland and have pernicious anaemia. GP and public health nurse won't ...

Tibasaur

•5 years ago

31 Replies

B12 loading dose Questions

Hello, I'm due to start a course of loading B12 injections on Thursday and have a few questions. I'm pretty sure the nurse doing the injections won't have the...

Hello, I'm due to start a course of loading B12 injections on Thursday and have ...

BlackInk

•5 years ago

8 Replies

B12 deficiency

My vit b12 level is on the borderline I.e. I have 151ng/dl. I have taken 6 injections and I'm taking 1 b12 tab daily...It's been 1 month now...I still feel...

My vit b12 level is on the borderline I.e. I have 151ng/dl. I have taken 6 injec...

Som003

•5 years ago

4 Replies

Private B12 Injections

Can anyone recommend where I can get private B12 injections. Im struggling with 6 weekly jabs and fed up battling with GP

Can anyone recommend where I can get private B12 injections. Im struggling with ...

Mrsmelons

•5 years ago

9 Replies

What iron supplement for low ferritin but normal iron?

My ferritin is scraping the range and is just in range but I feel like a supplement is necessary, I'm just not sure of what dose and what type of iron to use.

My ferritin is scraping the range and is just in range but I feel like a supplem...

75458854

•5 years ago

16 Replies

Process to produce new NICE guidelines on PA

Hi All, Martyn Hooper has been busy with new blog posts and PAS news items. This blog post outlines process to create new NICE guidelines on PA....

Hi All, Martyn Hooper has been busy with new blog posts and PAS news items. This...

Sleepybunny

•5 years ago

1 Reply

Bad day!

So... just had another appointment with a different gp from our practice and my daughter is in tears. Her latest ultrasound on her lymph nodes is apparently...

So... just had another appointment with a different gp from our practice and my...

Catlover3

•5 years ago

5 Replies

Petition to make B12 ampoules Available over the counter?

There are no current petitions that I can find on this (and I’m sure it would have been done before) but is anyone interested in starting one? If so please let...

There are no current petitions that I can find on this (and I’m sure it would ha...

RiskiestEnd

•5 years ago

25 Replies

Pernicious Anaemia or not?

I'm new to this forum and PA and wondered if any one could some ideas. My mother who is 86 has been suffering from fatigue and unsteadiness for some months....

I'm new to this forum and PA and wondered if any one could some ideas. My mother...

Sagittarius

•5 years ago

4 Replies

GP only looking at blood test

Like Irene my GP will only give me an injection if my B12 falls below the range given by his lab which says levels should be between 192 and 650 and each time...

Like Irene my GP will only give me an injection if my B12 falls below the range ...

Angie47

•5 years ago

2 Replies

B12 from Germany

Hi Everyone, Has anyone recently ordered B12. On mycare.de they are now saying they cannot supply to the UK 😭

Hi Everyone, Has anyone recently ordered B12. On mycare.de they are now saying ...

RiskiestEnd

•5 years ago

44 Replies

BNF treatment guidance for PA has changed

Hi All, Have you seen the latest PAS news item which mentions change in BNF treatment guidance on PA?...

Hi All, Have you seen the latest PAS news item which mentions change in BNF trea...

Sleepybunny

•5 years ago

7 Replies

Are there any connections with kidneys and B12 deficiency / pernicious anemia?

I ask as I have just tested for B12 and came back with 224 (<145- Deficient, 145-250-Insufficient, >550- ideal). I have also noticed that sometimes if I have...

I ask as I have just tested for B12 and came back with 224 (<145- Deficient, 14...

Gilbo72

•5 years ago

1 Reply

First SI - fainted!

Decided to SI b12 I’ve got 2ml glass vials of cyanocobalamin from a pharmacy in Spain and the 1ml insulin syringes with the very fine needles, so need to do 2...

Decided to SI b12 I’ve got 2ml glass vials of cyanocobalamin from a pharmacy in ...

Laundretta

•5 years ago

4 Replies

Blood test fine but feel like I have anaemia

I've suffered from anaemia for many years but since the menopause 2 years ago my blood count and feratin levels have been ok for a few months I've been having...

I've suffered from anaemia for many years but since the menopause 2 years ago my...

Ladybugg444

•5 years ago

9 Replies

B12 or mental health

Its bin two yrs since i started with servere anxiety and diagnosed with agrophobia and panic attacks that continue sine 2016 .Basically iv had my bowel removed...

Its bin two yrs since i started with servere anxiety and diagnosed with agrophob...

Leigh6873

•5 years ago

4 Replies

Doctor has advised I stop self injecting

I have been diagnosed with PA, and found that the only thing that helped my energy levels has been self injecting every few days. When I told the doctor, he...

I have been diagnosed with PA, and found that the only thing that helped my ener...

Shazzarooni

•5 years ago

19 Replies

Going backwards!

I've been injecting B12 every 2 days for 2 weeks (and taking folic acid) and was gradually improving and feeling more myself. I felt a little unwell on...

I've been injecting B12 every 2 days for 2 weeks (and taking folic acid) and was...

0406

•6 years ago

15 Replies

Horizon

Did anyone watch the BBC Horizon programme last night? He never mentioned b12 deficiency once but simply denigrated the taking of vitamins and minerals - thus...

Did anyone watch the BBC Horizon programme last night? He never mentioned b12 de...

Alfabeta

•6 years ago

10 Replies

Congenital Deficiency of Intrinsic Factor and Pernicious Anemia

Hello!, New on this site. Is Pernicious Anemia and Congenital Deficiency of Intrinsic Factor the same illness? Thank you in advance for any information...

Hello!, New on this site. Is Pernicious Anemia and Congenital Deficiency of Intr...

dgnvb21144

•6 years ago

7 Replies

Supplements

I’m having Cyanocobalamin B12 loading injections at the moment is it ok to take the Methyl sublingual B12 by mouth between injections? Also can anyone...

I’m having Cyanocobalamin B12 loading injections at the moment is it ok to take ...

pipshaw

•6 years ago

1 Reply

Help

Hi there my name is Dun c l am 53 and have had pernicious anemia for around 15 years now. I have b12 injections every 12 weeks but they don't make me feel any...

Hi there my name is Dun c l am 53 and have had pernicious anemia for around 15 y...

Dunc01226

•6 years ago

10 Replies

Recent PA diagnosis, serum levels high from oral cyanocobalamin, symptoms persist

Hi folks, 47-year-old female writing from the US; so glad I found this forum. After 10+ years of trying to get help with what I now realize were B12...

Hi folks, 47-year-old female writing from the US; so glad I found this forum. ...

Greena51

•6 years ago

7 Replies

Sleeping disorder

I can't sleep more than 2 hours out of 24 hours in a day. It's new for me. I had a digest level but in last few days I have noticed that my digestion power...

I can't sleep more than 2 hours out of 24 hours in a day. It's new for me. I had...

Murshidul

•6 years ago

12 Replies

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2018

High blood pressure and b12 shots

Bali and b12 injections

B12 & other vitamins

blood results

IBS and PA?

Veganism

B12 help!

B12 loading dose Questions

B12 deficiency

Private B12 Injections

What iron supplement for low ferritin but normal iron?

Process to produce new NICE guidelines on PA

Bad day!

Petition to make B12 ampoules Available over the counter?

Pernicious Anaemia or not?

GP only looking at blood test

B12 from Germany

BNF treatment guidance for PA has changed

Are there any connections with kidneys and B12 deficiency / pernicious anemia?

First SI - fainted!

Blood test fine but feel like I have anaemia

B12 or mental health

Doctor has advised I stop self injecting

Going backwards!

Horizon

Congenital Deficiency of Intrinsic Factor and Pernicious Anemia

Supplements

Help

Recent PA diagnosis, serum levels high from oral cyanocobalamin, symptoms persist

Sleeping disorder

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive