Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,951 members • 23,089 posts

All posts for December 2023

3 Months of EOD B12 Injections

Hi I have been doing EOD sub cut injections of Hydroxycobalamin for 13 weeks now. The peripheral neuropathy in my feet has not improved. If anything it...

Hi I have been doing EOD sub cut injections of Hydroxycobalamin for 13 weeks no...

FancyPants54

•4 months ago

44 Replies

HNY!... and a warning for those who lead busy lives (aka all of us)

Firstly, I'm conscious I haven't posted in a while. 2023 has been a tumultuous and stressful year for me personally which involved a very close family member...

Firstly, I'm conscious I haven't posted in a while. 2023 has been a tumultuous a...

ottiliefloyd

•4 months ago

40 Replies

Sydney doctor for PA

Hi Does anyone know of a haematologist or any doctor in Sydney who treats Pernicious Anaemia? Thanks

Hi Does anyone know of a haematologist or any doctor in Sydney who treats Perni...

Grandbella

•4 months ago

4 Replies

Want to take advantage of all our features? Just log in!

Christmas

Thank you all for your support! Now a week later I am beginning to feel like myself again. I also had my husbond home for Christmas, he is wheelchair bond...

Thank you all for your support! Now a week later I am beginning to feel like mys...

Annaunge

•4 months ago

10 Replies

Childhood Trauma and Abuse

Hello everyone. I was just wondering. I've read an article (can't remember from where it was) but it was talking about an association between people who have...

Hello everyone. I was just wondering. I've read an article (can't remember from ...

MrJustatip

•4 months ago

57 Replies

Methylmalonic (MMA) and methymalonate tests, are they one and the same thing

Would value your knowledge because my husband has had both. The Medichecks methylmalonic was positive, <32, his was 34.7 and the NHS methymalonate (the one in...

Would value your knowledge because my husband has had both. The Medichecks methy...

Noelnoel

•4 months ago

5 Replies

Loading doses

I will try and keep this as short as possible. 21 years ago GP diagnosed PA and up until 3 years ago I had B12 injections every 12 weeks. 3 years ago the CCG...

I will try and keep this as short as possible. 21 years ago GP diagnosed PA and ...

Lilian15

•4 months ago

18 Replies

Hele36

How do you obtain B12 injections in Australia? There seems to be a serious scarcity. Does anyone know an outlet .?

How do you obtain B12 injections in Australia? There seems to be a serious scarc...

36Hele

•4 months ago

2 Replies

B12 and menopause?

Hiya! I’ve been advised to take vitamin b complex for menopause symptoms but is there any point if I have pernicious anaemia? Might be a silly question but...

Hiya! I’ve been advised to take vitamin b complex for menopause symptoms but is ...

Clare2502

•4 months ago

10 Replies

How to inject Hevert ampoules

I ordered the Hevert B12.A few responses were from people who had used these ampoules. These ampoules contain a lot more liquid than Panpharma ones. Can you...

I ordered the Hevert B12.A few responses were from people who had used these amp...

3rdNettydoon

•4 months ago

10 Replies

Neurological Signals

Now that I self treat in a way that I no longer experience symptoms associated with B12 deficiency and the resulting known damage I am finding it helpful to...

Now that I self treat in a way that I no longer experience symptoms associated w...

WIZARD6787

•4 months ago

10 Replies

Hypothesis VIIIl

That B12 is a progressive condition with an unknowable age of onset and intermittent to varying degrees. That all symptoms can be caused by B12 deficiency in...

That B12 is a progressive condition with an unknowable age of onset and intermit...

WIZARD6787

•4 months ago

5 Replies

B6 and tingling in toes

My brother has been experiencing tingling in his toes. A retired doctor who my brother sees socially told him to have B12 tested, and also B6. I briefly...

My brother has been experiencing tingling in his toes. A retired doctor who my b...

WiscGuy

•4 months ago

7 Replies

New smaller needle issue

Following recommendations on here. I used 31G 6 mm Needle for subcutaneous, I've previously been using 1inch needles for I M injections. I have just used the...

Following recommendations on here. I used 31G 6 mm Needle for subcutaneous, I've...

pinkpaddleboarder

•4 months ago

10 Replies

Pain in Neck and Shoulders

I experience this every time I self-treat more successfully with regards to injections. It resolves and I consider it a result of being able to release...

I experience this every time I self-treat more successfully with regards to inje...

WIZARD6787

•4 months ago

1 Reply

Confounded by two different results for MMA test. One negative, one positive

About six weeks ago husband took a Medichecks MMA test. It was over range (positive) In a way I was relieved by this because it meant that now we knew what we...

About six weeks ago husband took a Medichecks MMA test. It was over range (posit...

Noelnoel

•4 months ago

32 Replies

Advice please - B12 auditory/optical neuropathy

Does anyone have any experience of sight and hearing loss with B12. My daughter (27) suffered with low B12 and was nearly reduced to being wheelchair. There is...

Does anyone have any experience of sight and hearing loss with B12. My daughter ...

Corney23uk

•4 months ago

8 Replies

Lyme disease

Reply to Steve n. Yes have Lyme . Diagnosed with ME so sadly no treatment. Very interested to hear about new treatment.

Reply to Steve n. Yes have Lyme . Diagnosed with ME so sadly no treatment. Very...

Shelley1234567

•4 months ago

3 Replies

Negative PA Test - way forward

I had a low Vitamin B12 (125 mg/L) and low folate. One of my symptoms was severe pins and needles - particularly my legs, feet and genital areas. I had 4...

I had a low Vitamin B12 (125 mg/L) and low folate. One of my symptoms was sever...

Madman070578

•4 months ago

47 Replies

newly diagnosed

I am a 70 year old male. I have just been diagnosed with PAS. My symptoms are fatigue, pins and depression. I have been told to take one 1mgMecobalamin per...

I am a 70 year old male. I have just been diagnosed with PAS. My symptoms are fa...

36Hele

•4 months ago

5 Replies

Folic acid and b12

Hi all, I’m new here. I have low B12 (390 -180-900), but have been tested for pernicious anaemia and the test came back clear. I have low folic acid (3.4...

Hi all, I’m new here. I have low B12 (390 -180-900), but have been tested for pe...

Angie10116

•4 months ago

26 Replies

Breakthrough?

Only 15 days in to the successful regiment of 2 mg every 5 hours including setting an alarm and injecting at night. So three times in the last 15 days I...

Only 15 days in to the successful regiment of 2 mg every 5 hours including setti...

WIZARD6787

•4 months ago

Be the first to reply

Pros and cons of cyanocobalamin?

Mostly due to a thick head and probably price, I am currently using cyanocobalamin, 1.000ug/ml 1 ml ampules. I SI 1 ml every other day, I've only been doing...

Mostly due to a thick head and probably price, I am currently using cyanocobalam...

Oneash

•4 months ago

17 Replies

Pins and Needles

I made an error in not being aware that I was reading pins and needles and equating that with the agony and debilitating pain I used to experience. Not the...

I made an error in not being aware that I was reading pins and needles and equat...

WIZARD6787

•4 months ago

Be the first to reply

In what order please

Hi...I am about to restart SI b12 but my vits are all low too. What is the best order to start things. Thank you 😊

Hi...I am about to restart SI b12 but my vits are all low too. What is the best ...

49goingon99

•4 months ago

3 Replies

Happy New Year. 🥳🥂🍾

Wishing you all a Happier Healthier 2024

Jillymo

•4 months ago

17 Replies

Blood test interpretation - b9, serum urate and Erythrocyte sedimentation rate

Hi, newbie here. Hoping someone can help me with something... It took me I think 7 blood tests and a year of crying for help for many health issues that have...

Hi, newbie here. Hoping someone can help me with something... It took me I think...

IceSpike

•4 months ago

9 Replies

Injecting three forms of B12 at the same time?

Has anyone tried injecting three forms of B12 at the same time? I am designing a new trial and am considering staying with my amount of 2mg mg 5 hours apart...

Has anyone tried injecting three forms of B12 at the same time? I am designing...

WIZARD6787

•4 months ago

6 Replies

B-12 compounded in the USA

I've been hearing for some years that the FDA was looking at compounded B-12 and might make it unavailable. I have my B-12 compounded with no preservatives...

I've been hearing for some years that the FDA was looking at compounded B-12 and...

prillyb12

•4 months ago

14 Replies

Latest 14 day trial.

Not a trial of volume rather a trial of constant frequency. A trial to explore a hypothesis. Not seeing if I can stumble on something ‘that works’. I...

Not a trial of volume rather a trial of constant frequency. A trial to explore a...

WIZARD6787

•4 months ago

Be the first to reply

Search posts

Pinned Posts

See all

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

See all polls

How Often do you feel you actually need your B12 injection?

Vote

Topics

All posts(75)

All things Pernicious Anaemia Society(75)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for December 2023

3 Months of EOD B12 Injections

HNY!... and a warning for those who lead busy lives (aka all of us)

Sydney doctor for PA

Christmas

Childhood Trauma and Abuse

Methylmalonic (MMA) and methymalonate tests, are they one and the same thing

Loading doses

Hele36

B12 and menopause?

How to inject Hevert ampoules

Neurological Signals

Hypothesis VIIIl

B6 and tingling in toes

New smaller needle issue

Pain in Neck and Shoulders

Confounded by two different results for MMA test. One negative, one positive

Advice please - B12 auditory/optical neuropathy

Lyme disease

Negative PA Test - way forward

newly diagnosed

Folic acid and b12

Breakthrough?

Pros and cons of cyanocobalamin?

Pins and Needles

In what order please

Happy New Year. 🥳🥂🍾

Blood test interpretation - b9, serum urate and Erythrocyte sedimentation rate

Injecting three forms of B12 at the same time?

B-12 compounded in the USA

Latest 14 day trial.

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive