Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,061 members • 23,211 posts

All posts for May 2024

Peripheral neuropathy and neurology's response

Hi. I've posted a couple of times recently so I'll start with a precise and then my ask! I was diagnosed with Vitamin B12 deficiency in 2015 - I wasn't tested...

Hi. I've posted a couple of times recently so I'll start with a precise and then...

LizWilsonpa

•25 minutes ago

Be the first to reply

More b12 injections

I'm currently on loading dose 5 out of 6. The doctor said to have 6 loading doses followed by one every 12 weeks. I'm feeling worse from the loading doses what...

I'm currently on loading dose 5 out of 6. The doctor said to have 6 loading dose...

gemmacampbell

•2 hours ago

Be the first to reply

Functional Gerd/Heartburn

Good day everyone, has anyone ever researched this topic ? I was diagnosed with AIG few months back, started EOD injections and recently developed what feels...

Good day everyone, has anyone ever researched this topic ? I was diagnosed with...

Canadian77

•6 hours ago

Be the first to reply

Want to take advantage of all our features? Just log in!

Should I go back to every other day injections?

It has been quite a while since I have posted. I have been doing monthly inspections for well over a year but have started having vertigo, heart palpitations...

It has been quite a while since I have posted. I have been doing monthly inspec...

Nanc72

•9 hours ago

1 Reply

Feeling Green without Greens

Hi Guys An unexpected learning curve - slid down and now back to recovery path. I won’t bore you with the background as it’s in my bio but basically I...

Hi Guys An unexpected learning curve - slid down and now back to recovery path...

Wwwdot

•14 hours ago

1 Reply

What are some signs that you need more injections as opposed to it being reversing out?

I recently switched from cyano to methyl and I have been doing EOD, the main neurological symptoms I have left are muscle weakness and shortness of...

I recently switched from cyano to methyl and I have been doing EOD, the main neu...

QianYunxi

•19 hours ago

3 Replies

B12 loading doses feeling worse

I've been getting headaches daily for the last 4 weeks now. Had bloods done and my b12 is at 77 so I'm on my second week of loading doses and I feel awful...

I've been getting headaches daily for the last 4 weeks now. Had bloods done and ...

gemmacampbell

•1 day ago

8 Replies

UTI Treatment

Can someone please tell me what antibiotic might be best fo a water infection. I'm so worried about a bad reaction since that's what I got with taking...

Can someone please tell me what antibiotic might be best fo a water infection. I...

3rdNettydoon

•1 day ago

20 Replies

warning re gastroscopy and gastrografin for ME/CFS sufferers . Plus neuropathy ?

I saw a very nice colorectal surgeon who arranged a CT colonography - as I thought this would be physically less demanding than a full colonoscopy. Two days...

I saw a very nice colorectal surgeon who arranged a CT colonography - as I thou...

Applethorpe

•1 day ago

1 Reply

Should I load up after a lull

Hello. I've been injecting methylcobalamin monthly for about 6 years successfully after being diagnosed with PA. Over the last few months I started getting...

Hello. I've been injecting methylcobalamin monthly for about 6 years successfull...

AirAl

•2 days ago

7 Replies

These photos (I hope) show my Ferretin and Folate blood results.

I recently had a blood test. Please could someone advise me as to whether they are ok? Thank you.

I recently had a blood test. Please could someone advise me as to whether they a...

Everdean

•2 days ago

6 Replies

High Blood Pressure In Between injections

Hi , I’m newly diagnosed with PA, Still having neurological symptoms of para thesis in my arm/ hand - I’ve now had 22 injections of B12 since the end of Feb...

Hi , I’m newly diagnosed with PA, Still having neurological symptoms of para t...

Karenedawson

•3 days ago

17 Replies

labs results that contraindicate one another

Hi all, I’ve been having pretty constant parasthesias on both sides of my body usually worse from shoulders down to fingers, initial B12 level was 190 (was...

Hi all, I’ve been having pretty constant parasthesias on both sides of my body...

Katep66875

•3 days ago

4 Replies

Panpharma B12 Depot

Apohealth.de currently have these in stock. Have successfully placed an order this evening (18th May)

Apohealth.de currently have these in stock. Have successfully placed an order th...

headgirl

•3 days ago

5 Replies

Malabsorption of drugs?

I am still awaiting a diagnosis of PA, but do suspect I do have it. My stomach pH level was recently 8.1, so very low stomach acid, which is why I am not...

I am still awaiting a diagnosis of PA, but do suspect I do have it. My stomach p...

Chickens44

•3 days ago

7 Replies

Active b12 versus serum b12

My Medichecks active b12 is 63.1 (range is 37.5-188) but my serum b12 tested at my gp surgery shows top of range. Should I supplement? I also have...

My Medichecks active b12 is 63.1 (range is 37.5-188) but my serum b12 tested at ...

Eton

•4 days ago

27 Replies

Hypocellular bone marrow. Can anyone tell me more?

I was diagnosed with B12 deficiency ("low serum B12") over 15 years ago when debilitating exhaustion was putting my job at risk. Doctors assumed diet related...

I was diagnosed with B12 deficiency ("low serum B12") over 15 years ago when deb...

newlandvale

•4 days ago

25 Replies

Macrocytic Anemia?

Hi, I am posting here for my Mom. She had blood work every year with perfect results until last year in September when the Hemoglobin/RBC/Hemocrit started...

Hi, I am posting here for my Mom. She had blood work every year with perfect res...

Simonapo

•4 days ago

11 Replies

Supplementing Ferritin/ Folate advice.Hello friends. I have been supplementing B12 for some time. But since

advice.Hello friends. I have been supplementing B12 for some time. But since getting a recent blood test done. I noticed that my Ferritin and Folate were a bit...

advice.Hello friends. I have been supplementing B12 for some time. But since get...

Everdean

•5 days ago

13 Replies

Numbness after methyl injections

Hello everyone, I recently switched from cyanocobalamin to methylcobalamin. The first few injections I felt euphoric and normal again, had wake up symptoms...

Hello everyone, I recently switched from cyanocobalamin to methylcobalamin. Th...

QianYunxi

•5 days ago

3 Replies

Asking For Blood Test?

I haven’t had a blood test for over a year so I want to email my doctor to request one. What should I ask for (maybe include iron) ie the correct description...

I haven’t had a blood test for over a year so I want to email my doctor to reque...

B12again

•6 days ago

8 Replies

Panpharma DEPOT Ampoules

Has anyone had any luck getting hold of Panpharma DEPOT ampoules from any Germany pharmacies? Asking for a friend... Thanks

Has anyone had any luck getting hold of Panpharma DEPOT ampoules from any German...

Pickle500

•6 days ago

19 Replies

B12 serum stains?

They come out of fabric right…right🫠 Tend to SI on my bed, and this week’s linen is a summery off white (in literal linen) that now has red blotches all...

They come out of fabric right…right🫠 Tend to SI on my bed, and this week’s li...

a-wonderful-seed

•6 days ago

2 Replies

B12 and fatty Liver

Good day friends. I always though B12 helps with the liver issues. Can anyone comment on this study? Says high levels can cause fatty liver...

Good day friends. I always though B12 helps with the liver issues. Can anyone...

Canadian77

•6 days ago

24 Replies

New Unproven and Untested Concept.

I noticed that in online videos many are touting higher amounts of different water soluble vitamins that those amounts recommended by the medical field and...

I noticed that in online videos many are touting higher amounts of different wa...

WIZARD6787

•6 days ago

1 Reply

Low B12 and ferritin questions

Over the past year I have had frequent respiratory infections and when not ill, I am always exhausted. I often need to stay in bed on my days off recovering....

Over the past year I have had frequent respiratory infections and when not ill, ...

bakedbean5007

•6 days ago

14 Replies

tiredness

I had my 12 weekly shot last month and I am feeling tired again already i can drink a lot of coffee and i can still feel tired i am thinking of taking multi...

I had my 12 weekly shot last month and I am feeling tired again already i can ...

pinkypurple58

•6 days ago

7 Replies

This normal

HI everyone, I si with panpharma when I can get it, but the last year have been using hevert, eod or twice weekly. Thought I would restock even though not low,...

HI everyone, I si with panpharma when I can get it, but the last year have been ...

Myanna23

•6 days ago

11 Replies

sublingual b12

I appreciate that self injection is the most sensible route but haven’t made that decision for myself. Where do you buy the sublingual b12 as I can only see...

I appreciate that self injection is the most sensible route but haven’t made tha...

Palum

•7 days ago

5 Replies

Using up my B1 Thiamine.

I never got the hang of knowing when I used up my B12 as some experience. Likely as I was also B1 deficient. The only way to determine if you are B1 deficient...

I never got the hang of knowing when I used up my B12 as some experience. Likely...

WIZARD6787

•7 days ago

3 Replies

Search posts

Pinned Posts

See all

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

See all polls

How Often do you feel you actually need your B12 injection?

Vote

Topics

All posts(76)

All things Pernicious Anaemia Society(76)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2024

Peripheral neuropathy and neurology's response

More b12 injections

Functional Gerd/Heartburn

Should I go back to every other day injections?

Feeling Green without Greens

What are some signs that you need more injections as opposed to it being reversing out?

B12 loading doses feeling worse

UTI Treatment

warning re gastroscopy and gastrografin for ME/CFS sufferers . Plus neuropathy ?

Should I load up after a lull

These photos (I hope) show my Ferretin and Folate blood results.

High Blood Pressure In Between injections

labs results that contraindicate one another

Panpharma B12 Depot

Malabsorption of drugs?

Active b12 versus serum b12

Hypocellular bone marrow. Can anyone tell me more?

Macrocytic Anemia?

Supplementing Ferritin/ Folate advice.Hello friends. I have been supplementing B12 for some time. But since

Numbness after methyl injections

Asking For Blood Test?

Panpharma DEPOT Ampoules

B12 serum stains?

B12 and fatty Liver

New Unproven and Untested Concept.

Low B12 and ferritin questions

tiredness

This normal

sublingual b12

Using up my B1 Thiamine.

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive