Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,672 members•24,069 posts

All posts for May 2024

B12 levels advice

I have been trying to raise my B12 levels for a number of years (since i was diagnosed hypothyroid and advised B12 levels needed to be higher). I have been...

I have been trying to raise my B12 levels for a number of years (since i was dia...

Threes

•6 months ago

15 Replies

Supplies

Hello. I found the helpful post with b12 supplies and have ordered panpharma b12. I hope I've got it right! I used the code so should be ok I'm just very...

Hello. I found the helpful post with b12 supplies and have ordered panpharma b12...

RedOne1

•6 months ago

20 Replies

Next steps advice, B12D

After completing all relevant blood tests (everything fine apart from low iron and 165 ng/L) I have completed my 6 loading doses 2 weeks ago and generally do...

After completing all relevant blood tests (everything fine apart from low iron a...

Sailing63

•6 months ago

2 Replies

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What is folic acid used for?

For other reasons, nothing to do with Pernicious Anaemia, I was checking the Patient Information Leaflet for a UK folic acid product. And I noticed this bit:...

For other reasons, nothing to do with Pernicious Anaemia, I was checking the Pat...

helvella

•6 months ago

17 Replies

Need help

Hi i was disgosed with PA at 17years old iv been havin injections every 3 months since and im 26 now .. was wondering do they have to give me regular check ups...

Hi i was disgosed with PA at 17years old iv been havin injections every 3 months...

Courts12

•6 months ago

4 Replies

Still tired

5/30/2024 Iron: Normal range: 50 - 212 mcg/dL 101 TIBC: Normal range: 228 - 428 mcg/dL 314 % Percent Saturation: Normal range: 20 - 50 % 32...

5/30/2024 Iron: Normal range: 50 - 212 mcg/dL 101 TIBC: Normal range: 22...

djrpdx

•6 months ago

1 Reply

Dr agrees to test B12 but not blood test...

Hi All, on going (20 years) of discussion with GP about exhaustion. He agreed to injections for a while but that stopped during Covid. I've injected myself...

Hi All, on going (20 years) of discussion with GP about exhaustion. He agreed t...

auldreekie

•6 months ago

11 Replies

Can anyone recommend an MD who understands PA?

I know most of my friends here are not in the US, but I'm hoping for a referral to a doctor (any specialty) in the US (particularly in the New York/Long...

I know most of my friends here are not in the US, but I'm hoping for a referral...

Greeneyecolor

•6 months ago

18 Replies

temperature/anxiety and excess urination.

so I’ve just had a second lot of loading doses. All was going well however I got sick towards the end of these last week. Before I got sick all my B12 symptoms...

so I’ve just had a second lot of loading doses. All was going well however I got...

Gobbozoid

•6 months ago

8 Replies

understanding test results

recently been told my b12 levels are on the low side and have had 4 out of my 5 loading doses. Just checked the rest of my blood test results and some of my...

recently been told my b12 levels are on the low side and have had 4 out of my 5 ...

Greydonkey

•6 months ago

6 Replies

”Placebo effect”

my doctor just told me it’s placebo effect having tiredness, pins and needles, dizziness etc before having my injection at the 12 week point. I’ve never gotten...

my doctor just told me it’s placebo effect having tiredness, pins and needles, d...

Ellamae2

•6 months ago

21 Replies

please help with figuring out what is wrong

I posted recently that my Mom’s Hemoglobin is dropping, same as RBC and Hemocrit, while MCV and MCH are high. She was diagnosed with Macrocytic Anemia but...

I posted recently that my Mom’s Hemoglobin is dropping, same as RBC and Hemocrit...

Simonapo

•6 months ago

22 Replies

Current Trial

Current Trial 1.5 mg hydroxocobalamin/B12 SC injection at 3mg/ml concentration, 1.5mg injection methylcobalamin/B12 at 3mg/ml concentration, 1.5mg injection...

Current Trial 1.5 mg hydroxocobalamin/B12 SC injection at 3mg/ml concentration, ...

WIZARD6787

•6 months ago

2 Replies

B12 and anxiety

Just posted but forgot to add this.. Since loading doses still having headaches, the pins and needles have stopped but I feel weird I think it's anxiety my...

Just posted but forgot to add this.. Since loading doses still having headaches,...

gemmacampbell

•6 months ago

17 Replies

Guidance Given For Metformin Users

https://www.gov.uk/drug-safety-update/metformin-and-reduced-vitamin-b12-levels-new-advice-for-monitoring-patients-at-risk

https://www.gov.uk/drug-safety-update/metformin-and-reduced-vitamin-b12-levels-n...

B12again

•6 months ago

2 Replies

1 1/2yrs of treatment and I’m getting worse again.

Need advice. I’m concerned. I was diagnosed with PA (lack IF via blood test) a year and a half ago. I have been on daily Hydroxo injections since. I...

Need advice. I’m concerned. I was diagnosed with PA (lack IF via blood test) ...

lb9999

•6 months ago

9 Replies

C-Reactive Protein Test

Good day everyone. Has anyone has their levels checked? Does high levels correlate with PA and Autoimmune Gastritis? Thank you

Good day everyone. Has anyone has their levels checked? Does high levels correl...

Canadian77

•6 months ago

3 Replies

extreme fatigue

After two years of treatments for Pernicious Anaemia I still struggle with fatigue. I've been working out and riding a bike as much as energy levels allow me....

After two years of treatments for Pernicious Anaemia I still struggle with fatig...

djrpdx

•6 months ago

21 Replies

B12 Deficiency, recently diagnosed, seeking advice.

Hi, I was initially diagnosed with carpal tunnel syndrome about 18 months ago, due to numbness, pins and needles and burning sensations in my left arm / hand...

Hi, I was initially diagnosed with carpal tunnel syndrome about 18 months ago, ...

Dfthbhjj

•6 months ago

21 Replies

Methylation to feel good

Hi Folks, Thank you for all the advice and words of encouragement. I’ve been reading a lot of papers on methylation and the effects on the body, below is an...

Hi Folks, Thank you for all the advice and words of encouragement. I’ve been re...

Karenedawson

•6 months ago

10 Replies

Is serum folate levels the level of b12?

I received this as a blood result 3 weeks after receiving my b12 injection but I am confused. Does this tell me the level of b12 in my blood or folate? There...

I received this as a blood result 3 weeks after receiving my b12 injection but I...

Lynne81

•6 months ago

5 Replies

US Compounding Pharmacies Making Hydroxocobalamin That Take Insurance?

Hello, The latest update regarding the lack of availability of Actavis/Teva 30ml hydroxocobalamin vials in the US is forcing me to look for a long term...

Hello, The latest update regarding the lack of availability of Actavis/Teva 30m...

mcg-woo

•6 months ago

19 Replies

Methylcobalamin injection Supplies

I need to purchase methylcobalamin ampoules, does anyone have a good source for good quality stuff. I get adenosylcobalalimin from Arnika but not sure if...

I need to purchase methylcobalamin ampoules, does anyone have a good source for ...

jamaica105

•6 months ago

3 Replies

Neurology Doc advice

saw neurology consultant few days ago re the MRI scan I had after a stroke last year. And when I mentioned how my memory banks were badly affected and also...

saw neurology consultant few days ago re the MRI scan I had after a stroke last ...

Beadbuddy

•6 months ago

14 Replies

Symprove for digestive issues?

I have read that some people have had help with Symprove. What symptoms would you say it helps with most. I have some IBS like pains, some bloating and...

I have read that some people have had help with Symprove. What symptoms would yo...

Chickens44

•6 months ago

15 Replies

scared myself silly

hi, I’m in the midst of investigating why my B12 deficiency has occurred- whether it’s h.pylori, AIG, PA etc And I’ve managed to scare myself silly about AIG...

hi, I’m in the midst of investigating why my B12 deficiency has occurred- whethe...

PlatypusProfit8077

•6 months ago

31 Replies

still low energy & weak arm/leg

Hi, I’ve 24 loading doses of 1000mcg B12 through the GP, although many of my symptoms have gone (falling over, rapid heartbeat, breathlessness, double vision,...

Hi, I’ve 24 loading doses of 1000mcg B12 through the GP, although many of my sy...

Karenedawson

•6 months ago

14 Replies

How overcome a high B12 test from when I must supplement to function?

Both intrinsic factor and parietal antibody tests were positive ("abnormal") with B12 >2000. Methylmalonic Acid is normal at .28. I have Hashimoto's and other...

Both intrinsic factor and parietal antibody tests were positive ("abnormal") wit...

Pamelayne

•6 months ago

55 Replies

Wrong time to reduce SSRIs?

I was on 150mg of sertraline, I cut it down to 125mg earlier this year. A few days ago I cut the dose down to 100mg. I am having a few withdrawal symptoms,...

I was on 150mg of sertraline, I cut it down to 125mg earlier this year. A few da...

Chickens44

•6 months ago

8 Replies

Autoimmune Chronic Gastiritis

Hi Folks, Found this article on Autoimmune Chronic Gastiritis if anyone interested… https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10934127/

Hi Folks, Found this article on Autoimmune Chronic Gastiritis if anyone intere...

Karenedawson

•6 months ago

15 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2024

B12 levels advice

Supplies

Next steps advice, B12D

What is folic acid used for?

Need help

Still tired

Dr agrees to test B12 but not blood test...

Can anyone recommend an MD who understands PA?

temperature/anxiety and excess urination.

understanding test results

”Placebo effect”

please help with figuring out what is wrong

Current Trial

B12 and anxiety

Guidance Given For Metformin Users

1 1/2yrs of treatment and I’m getting worse again.

C-Reactive Protein Test

extreme fatigue

B12 Deficiency, recently diagnosed, seeking advice.

Methylation to feel good

Is serum folate levels the level of b12?

US Compounding Pharmacies Making Hydroxocobalamin That Take Insurance?

Methylcobalamin injection Supplies

Neurology Doc advice

Symprove for digestive issues?

scared myself silly

still low energy & weak arm/leg

How overcome a high B12 test from when I must supplement to function?

Wrong time to reduce SSRIs?

Autoimmune Chronic Gastiritis

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