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Pernicious Anaemia Society

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All posts for December 2018

Teenagers symptoms returning 4 weeks after B12 loading injections.

My DD is 16 yrs old. She had 6 B12 loading injections over 2 weeks which completed about 4 weeks ago. Her blood test prior to this showed B12=166ng/L, folate...

My DD is 16 yrs old. She had 6 B12 loading injections over 2 weeks which complet...

Vicky2822

•5 years ago

13 Replies

Vertigo symptoms - neuro symptoms / appt

I had been diagnosed with B12D at start of 2918, with subsequent neuro symptoms, and now SInevery 2/3 wks. I have experienced difficulty walking with horrid...

I had been diagnosed with B12D at start of 2918, with subsequent neuro symptoms...

JillMaryC

•5 years ago

6 Replies

Even gastrologist dont know

I went today and explained my fear that my body not using b12 jabs meaning isnt being used and he said its high and the injection have cured the dificiancy if...

I went today and explained my fear that my body not using b12 jabs meaning isnt ...

Leigh6873

•5 years ago

14 Replies

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Update. Difficult but success with more treatment

Went to the surgery for bloods and b12 injection. The nurse wouldn't give it!! Said on my notes to try tablets and 3 monthly b12 injrctions. It has been 6...

Went to the surgery for bloods and b12 injection. The nurse wouldn't give it!! S...

Nackapan

•5 years ago

11 Replies

I can't seem to buy Rotexmedica Hydroxocobalamin online as no deliveries to UK!

Has anyone recently successfully purchased Rotexmedica Hydroxocobalamin online. I have tried Amazon de, my care.de and versandApo with no luck. Hope someone...

Has anyone recently successfully purchased Rotexmedica Hydroxocobalamin online. ...

saramt

•5 years ago

8 Replies

James Patterson and P.A. !

Hope you’ve all had a good Christmas, have just been sitting here reading 17th suspect by James Patterson and almost at the end and the book is actually...

Hope you’ve all had a good Christmas, have just been sitting here reading 17th s...

Av42

•5 years ago

1 Reply

Anyone From Canada I can talk to since measurements are different

Hey is there anyone here I can speak to that belong from Canada. Just different measurements on blood tests and the fact in Canada I’ve never had a vitamin D...

Hey is there anyone here I can speak to that belong from Canada. Just different ...

Imissmydad

•5 years ago

9 Replies

B12 Deficiency

Last one month I take medicine for B12 Deficiency but some symptoms is still continue ..when I was qure 100 % ...can I know vitamin loss reasons

Last one month I take medicine for B12 Deficiency but some symptoms is still con...

Balrajasal

•5 years ago

3 Replies

Need advice for diet to heal gastritis...

So here is my issue. I have atrophic gastritis I am trying to heal. I have looked into the diets online and between what I shouldn't eat for gastritis and...

So here is my issue. I have atrophic gastritis I am trying to heal. I have loo...

shaylynn

•5 years ago

5 Replies

This Sherlock is at a cross roads on where to go for treatment?

So I'm having a major issue. I have PA and the MTHFR gene mutation so within the year I switched my cobalamin inj. to a metylcobalamin inj. I take it once, to...

So I'm having a major issue. I have PA and the MTHFR gene mutation so within the...

PaintLadie

•5 years ago

15 Replies

Blue spots under tongue!!

Hi everyone. Happy New Year to you all. For the first time today I noticed under my tongue dark blue spotting...is it anything to be alarmed over. Also my B12...

Hi everyone. Happy New Year to you all. For the first time today I noticed under...

PamBow

•5 years ago

2 Replies

B12 SHOT. TO FRIDGE OR NOT TO FRIDGE, THAT IS THE QUESTION!!

Could someone possibly let me know the best way of storing the ampules, I currently have them in a draw at room temperature but I think I have read on here...

Could someone possibly let me know the best way of storing the ampules, I curren...

e66--

•5 years ago

21 Replies

Actions that have helped my fatigue other than B12 shots

I recently did two things that seem, thus far, to have made a huge difference in my energy level. I'd been tracking my energy level, and discovered that it has...

I recently did two things that seem, thus far, to have made a huge difference in...

cdragin

•5 years ago

4 Replies

B12 blood results help please

Blood results for b12 serum was 391 ng/L (range 181- 900 ng/L) Also my iron ferritin was 10 ug/L (range 10-291.00 ng/L) and has risen to 23 ug/L after 4...

Blood results for b12 serum was 391 ng/L (range 181- 900 ng/L) Also my iron fe...

Cheryl1986

•5 years ago

8 Replies

New here and need help with next steps

Hello all! I am new here but have been trying to figure out what is wrong with me for a couple of years. I feel like I am going round in circles. I am pretty...

Hello all! I am new here but have been trying to figure out what is wrong with ...

KittyB52

•5 years ago

13 Replies

If battling a nasty bug should injections increase?

Hi all! Ok, so I’ve been battling a nasty cold bug since Christmas Day and the last 2 days I’ve had increased heart rate and what feels like the beginnings of...

Hi all! Ok, so I’ve been battling a nasty cold bug since Christmas Day and the ...

Plucky1976

•5 years ago

7 Replies

False start

I thought I was very very slowly improving. Last 2 days managed a short walk. 5 minutes. More steady walking although weak. Nasty scary neurological symptoms...

I thought I was very very slowly improving. Last 2 days managed a short walk. 5...

Nackapan

•5 years ago

16 Replies

Absorbing vitamins

I am confused about the absorption of all other vitamins other than B12. If PA causes an absorption problem then are we also not absorbing all the other...

I am confused about the absorption of all other vitamins other than B12. If PA ...

shaylynn

•5 years ago

14 Replies

What needle size is best for injecting B12

I’m new to self injections I ordered the wrong size needle gauge and ended up having to purchase another. What’s the correct size to purchase and we’re is the...

I’m new to self injections I ordered the wrong size needle gauge and ended up ha...

Antstarr

•5 years ago

4 Replies

Low Holotranscobalamin results despite injection

Hi all, First of all thanks to this forum and association, it's a mine of information and support ! I subscriped to the PA society a couple of months ago and...

Hi all, First of all thanks to this forum and association, it's a mine of inform...

Fred3

•5 years ago

7 Replies

Going vegan with PA

Hi everyone, I was vegan when diagnosed with PA around this time 4 yrs ago. I changed to veggie under GP instructions, still felt awful and have been SI for...

Hi everyone, I was vegan when diagnosed with PA around this time 4 yrs ago. I c...

Siobhan1965

•5 years ago

16 Replies

Low B12 and neurological symptoms

I have started experiencing neurological symptoms from March 2017. My symptoms started with numbness in feet and hands, tremors and muscle twitching. But, I...

I have started experiencing neurological symptoms from March 2017. My symptoms s...

Kish2929

•5 years ago

8 Replies

I'm new here so I hope I'm doing this right. I

I am having neurological systems, severe pain with muscles, and basically all the symptoms I had when they diagnosed me. I was diagnosed at 17 took the...

I am having neurological systems, severe pain with muscles, and basically all th...

Imissmydad

•5 years ago

18 Replies

After extended the loading period...

Thank you to everyone who has helped me through the last few weeks. I decided to continue loading since most of my symptoms hadn’t improved after 3 weeks with...

Thank you to everyone who has helped me through the last few weeks. I decided to...

Suncliff

•5 years ago

3 Replies

Christmas Ruined

Hi, Apologies if this has already been posted. New blog post on Martyn Hooper's PA blog about woman whose injections have been stopped....

Hi, Apologies if this has already been posted. New blog post on Martyn Hooper's ...

Sleepybunny

•5 years ago

1 Reply

B12 loading doses feel terrible

Hi all, I recently got diagnosed with a B12 deficiency. I am having neurological symptoms of neuropathy, vision fuzziness, brain fog, fatigue, and elevated...

Hi all, I recently got diagnosed with a B12 deficiency. I am having neurologica...

humaashraf

•5 years ago

34 Replies

What type of B12 is best to use

Can someone clear this up for me please I’ve been told methlycolbamine is the best form of B12 to take especially for nerve neuropathy but my doctor has told...

Can someone clear this up for me please I’ve been told methlycolbamine is the be...

Antstarr

•5 years ago

18 Replies

How long does it take for a result of blood test for Intrinisc Factor in UK

I had blood taken on 7th December for Intrinsic Factor, no results were back ten days later when I saw my doctor on 17th, should it take so long for results ?...

I had blood taken on 7th December for Intrinsic Factor, no results were back ten...

InBardo

•5 years ago

5 Replies

GP stopped B12 injections

Hello, I wonder if anyone could help me please. My GP prescribed b12 injections every 3 months about 5 years ago because of low levels but the cause was never...

Hello, I wonder if anyone could help me please. My GP prescribed b12 injections...

Irismay

•5 years ago

17 Replies

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for December 2018

Teenagers symptoms returning 4 weeks after B12 loading injections.

Vertigo symptoms - neuro symptoms / appt

Even gastrologist dont know

Update. Difficult but success with more treatment

I can't seem to buy Rotexmedica Hydroxocobalamin online as no deliveries to UK!

James Patterson and P.A. !

Anyone From Canada I can talk to since measurements are different

B12 Deficiency

Need advice for diet to heal gastritis...

This Sherlock is at a cross roads on where to go for treatment?

Blue spots under tongue!!

B12 SHOT. TO FRIDGE OR NOT TO FRIDGE, THAT IS THE QUESTION!!

Actions that have helped my fatigue other than B12 shots

B12 blood results help please

New here and need help with next steps

If battling a nasty bug should injections increase?

False start

Absorbing vitamins

What needle size is best for injecting B12

Low Holotranscobalamin results despite injection

Going vegan with PA

Low B12 and neurological symptoms

I'm new here so I hope I'm doing this right. I

After extended the loading period...

Recent post re childhood PA

Christmas Ruined

B12 loading doses feel terrible

What type of B12 is best to use

How long does it take for a result of blood test for Intrinisc Factor in UK

GP stopped B12 injections

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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