Aching burning legs with pa ?

[Charlie27612]

I'm nearly 2 years into eod b12 (recently spaced to every 3 days after iron infusion in july) I had started to feel a bit better after the initial iron flu from the infusion, but one thing that has not improved in all this time is, any activity involving a lot of walking has me so tired and leaves me with awful burning achy legs 🙄 I have tried taking magnesium daily, epsom salt baths, and magnesium spray nothing eases it completely,

Should I go back to eod b12 ? (I still had this on eod) I feel so fed up with trying to work out everything on my own,

I'm due for a bloodtest again in november which is reviewed by a private dr I see.

I do have hashimotos but my gp tests this ok last time according to him

I take vit d3 4,000iu/k2 100ug daily, also folic acid on day of injection

I feel so fed up that after 2 years of gradual improvement this symptom stubbornly refuses to go.Is it something I just have to live with ?

[Marlboro123]

I too have the burning pain. If I walk more than about 15 minutes or walk up hill, standing still in a queue or in the shower or anything that involves using my legs. It's bilateral mirror image on both legs from just above the knees going down both fronts and back to the ankles, it's debilitating and can also affect my feet but not always. Mine started when I deteriorated in 2022 which was 3 years after my first neurological symptoms and 5 months before I had my first b12 injection. I now inject daily but sadly this has had no effect on the burning leg pain, I used a mobility scooter when I went on holiday and it was fantastic, no pain for an entire week, and also because I was avoiding using my legs, night time pain in the legs also went which can be stinging bilateral pain. I think in my case it is permanent but I live in hope. Sorry cannot offer anything more positive but I know how you feel.

[Charlie27612 in reply to Marlboro123]

Its rough isnt it, when family and friends dont understand and wonder why "your not better yet" why you cant do the things you used to doA lot of my other neurological issues have gone, but I've had shingles and so many allergies since being diagnosed, almost all antibiotics it seems I cant take anymore, I sometimes wonder what else is going on with me, but I cant face anymore with my gp after the way I was treated trying to get diagnosed, I was made to feel like it was all in my head, even though pa runs in my family.

I think I will take magnesium again and use magnesium spray on my legs too, it helps a bit.

Thankyou for your reply

[inquiringmind12B]

I had horrible aching in my lower legs every time I walked and a naturopath suggested I try compression boots - pain disappeared in 3 sessions. Might help?

[Baklava22]

I have exactly the same! It’s so painful. I’m at the airport now and after standing to check-in the pain is unbearable. I’ve just gone and injected one in each leg and hope that helps for the 25 hour flight from Sydney to Barcelona. I don’t feel ready mentally to ask for a wheelchair. So tired of pain.