Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,896 members • 23,029 posts

All posts for October 2014

New Worries After Many OK Years -- What to Do?

Hi. I have been lucky in the US to get every injections of cyanocobalamine, 1000 mcg, after my PA dignosis and a bit of struggle with the doctors. This has...

Hi. I have been lucky in the US to get every injections of cyanocobalamine, 100...

lindajanes

•9 years ago

6 Replies

Just had my 3rd injection and I feel awful...?

This is sort of a continuation of my last post from a few days ago. I've had a borderline b12 for a year now, it was usually around 145-160 (ref 150-1000), I...

This is sort of a continuation of my last post from a few days ago. I've had a b...

Ctb567

•9 years ago

14 Replies

Looking for advice / help

Hi All, This is my first post to the forum so I hope I cover everything. I'm 26 and in May 2013, after a very rough 12 months I was diagnosed with B12...

Hi All, This is my first post to the forum so I hope I cover everything. I'm 2...

Jonesy88

•9 years ago

2 Replies

Want to take advantage of all our features? Just log in!

A bad night

Am having an awful night with my stomach I could just cry. Bloating, bubbling and diarrhoea. Got an app in the doctors tomorrow Morning

Am having an awful night with my stomach I could just cry. Bloating, bubbling a...

Happy-go-lucky

•9 years ago

20 Replies

Excellent article.

Excellent article by some of our friends. http://www.allaboutyou.com/health/issues/vitamin-b12-deficiency

Excellent article by some of our friends. http://www.allaboutyou.com/health/is...

Sukiwarrior

•9 years ago

4 Replies

Working life and B12 Deficiency

Hi I was wondering if anyone has had to cut down on their working hours at all? I was diagnosed in the summer and I am finding even after my injection that by...

Hi I was wondering if anyone has had to cut down on their working hours at all? ...

lal2502

•9 years ago

9 Replies

Where to buy the needles.

http://www.medisave.co.uk/consumables-general-supplies/injection-infusion/needles-syringes/insulin-syringes.html Can someone advise me which of these insulin...

http://www.medisave.co.uk/consumables-general-supplies/injection-infusion/needle...

Sukiwarrior

•9 years ago

11 Replies

Parkinson's Disease

Just thought I'd mention this because it's been more on my mind recently: I've had increasing bouts of tremor - most particularly over the last 8 months or...

Just thought I'd mention this because it's been more on my mind recently: I've ...

Poppet11

•9 years ago

11 Replies

Problem absorbing/ storing b12

Hi, does any one have any idea why I might not be absorbing/ storing b12, i recently decided to try IM Methyl instead of SC, it did seem to work better ( only...

Hi, does any one have any idea why I might not be absorbing/ storing b12, i rece...

Jcwg

•9 years ago

13 Replies

Long term b12 user

Hi everyone , I am new to this so hope you can understand what I am trying to say about myself , I was 28 yrs and working 8.30 til 5.30 when I felt so ill,...

Hi everyone , I am new to this so hope you can understand what I am trying to sa...

A1l1s

•9 years ago

8 Replies

Vit b 12 injections

Hi I had 6 loading injections 8 was ago and mine is not due for another 4 weeks. I felt really well after these but am now going down hill again. No energy...

Hi I had 6 loading injections 8 was ago and mine is not due for another 4 weeks...

Chocolate41

•9 years ago

5 Replies

When did you start to notice a difference after receiving B12 injections?

I know the general advice seems to be that everybody is different but I just wanted to hear about others experiences with the b12 injections like how long it...

I know the general advice seems to be that everybody is different but I just wan...

Ctb567

•9 years ago

20 Replies

Dead end with diagnosis

Hi, I will try not to sound too down as I know I will perk up and I know there are many people on here who are suffering healthwise a lot worse than I am but I...

Hi, I will try not to sound too down as I know I will perk up and I know there a...

jsteg65

•9 years ago

9 Replies

Reflux or angina

My doctors are trying to work out if I have a problem with my heart because of pain in chest and once it spread from my elbows to my jaw, but only once. I...

My doctors are trying to work out if I have a problem with my heart because of ...

winschild

•9 years ago

3 Replies

Stomach problems

I have been having stomach problems over the last 5 mths. I get really bad stomach cramps then diarrhoea. The pain is that bad I am doubled up on the floor....

I have been having stomach problems over the last 5 mths. I get really bad stom...

Happy-go-lucky

•9 years ago

6 Replies

Encephalitis Lethargica and Functional Disorder

Just to give an idea of how wrong the medical profession can get things: Back in 1917 the 'sleeping sickness' took hold, it was a pandemic that raged for 10...

Just to give an idea of how wrong the medical profession can get things: Back i...

Poppet11

•9 years ago

4 Replies

Methyl cobalamin

Hi Guys, Can you advise me where I can buy Methylcobalamin and has anyone had an infusion and how much do they cost? Bee

Hi Guys, Can you advise me where I can buy Methylcobalamin and has anyone had a...

Sukiwarrior

•9 years ago

4 Replies

Filming Fasciculations for You Tube?

A major problem with this illness is that physical injury is not believed. Many people leave neurologists or GPs offices with a vote of 'no injury' despite...

A major problem with this illness is that physical injury is not believed. Many ...

Poppet11

•9 years ago

13 Replies

dr riar

hi all i used to be on here years ago and was receiving my B12 from Dr Riar. I heard that he had a stroke earlier this year. i have tried contacting his clinic...

hi all i used to be on here years ago and was receiving my B12 from Dr Riar. I h...

x76238

•9 years ago

4 Replies

Continuing hair loss 15 months after starting injections

Hi Everyone I was diagnosed with PA back in 2012 after a few months of extreme tiredness, mental fog, forgetfulness and hair loss. I was started on injections...

Hi Everyone I was diagnosed with PA back in 2012 after a few months of extreme t...

A-A1

•9 years ago

17 Replies

Serum results from the GP

My serum results came through today. The result is: 1177. Range 130 - 1,130. (I think the range might be wrong, as the receptionist seemed vague). The lady...

My serum results came through today. The result is: 1177. Range 130 - 1,130. (I...

BrecklandRanger

•9 years ago

9 Replies

So where do I go from here?

Newest blood test shows: B12 over 2000 (I said that was because I'd just had 6 injections & you shouldn't test again that soon) Folate over 20 (which is a...

Newest blood test shows: B12 over 2000 (I said that was because I'd just had 6 ...

KTMac

•9 years ago

5 Replies

Has anyone tried

Hi all, Just wondered if anyone has tried the Vita Science B12 Patch? if so how did you get on with it, any improvements? I've also heard there is a spray as...

Hi all, Just wondered if anyone has tried the Vita Science B12 Patch? if so how ...

fidgetter

•9 years ago

7 Replies

High serum B12, but feel awful,opinions please

Serum B12 1099, max 1100 whilst supplementing. Low MCV&MCH. Was diag. with iron deficiency anaemia now just in range whilst on ferrous sulphate. If I...

Serum B12 1099, max 1100 whilst supplementing. Low MCV&MCH. Was diag. with iron...

siskin

•9 years ago

22 Replies

Help: PA test, hyperosmia & B12

Hi all, I recently had blood tests done for possible Hashimoto's & one thing that popped up was a serum B12 level of 248 (180-2000 range). My GP said this was...

Hi all, I recently had blood tests done for possible Hashimoto's & one thing tha...

kittysmummy

•9 years ago

9 Replies

Essential /Familial Tremors & B12

F.Y.I. I have a family history of tremors. My head tremors started approximately 2 years ago. My Dr. recommended B12 shots every 30 days, Immunocal Whey...

F.Y.I. I have a family history of tremors. My head tremors started approximatel...

Arleen1943

•9 years ago

4 Replies

The Final Chapter...

I've been knocking about on the forums for a few years now - but it's time to close. Before I do I want to explain a few things which may, help other sufferers...

I've been knocking about on the forums for a few years now - but it's time to cl...

Poppet11

•9 years ago

22 Replies

Blown Vein and no anaemia....

Just thought I'd pop this up here for illnesswhatillness as I couldn't put it in the other thread. Doctor had never blown a vein before, I'd never blown a...

Just thought I'd pop this up here for illnesswhatillness as I couldn't put it in...

Poppet11

•9 years ago

Be the first to reply

How much does a child have to suffer before being given B12 injections ?

My child , who is now 14 , has from birth , been diagnosed with every symptom of B12 deficiency and pernicious anemia which includes : Low birth weight ,...

My child , who is now 14 , has from birth , been diagnosed with every symptom of...

illnesswhatillness

•9 years ago

14 Replies

Our Medical Records May be in danger again

The following is an excerpt from 38 degrees. " Did you see this email about our NHS? The poll closes in 48 hours. The government are planning to sneak...

The following is an excerpt from 38 degrees. " Did you see this email about our...

shaws

•9 years ago

Be the first to reply

Search posts

Pinned Posts

See all

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

See all polls

How Often do you feel you actually need your B12 injection?

Vote

Topics

All posts(75)

All things Pernicious Anaemia Society(75)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2014

New Worries After Many OK Years -- What to Do?

Just had my 3rd injection and I feel awful...?

Looking for advice / help

A bad night

Excellent article.

Working life and B12 Deficiency

Where to buy the needles.

Parkinson's Disease

Problem absorbing/ storing b12

Long term b12 user

Vit b 12 injections

When did you start to notice a difference after receiving B12 injections?

Dead end with diagnosis

Reflux or angina

Stomach problems

Encephalitis Lethargica and Functional Disorder

Methyl cobalamin

Filming Fasciculations for You Tube?

dr riar

Continuing hair loss 15 months after starting injections

Serum results from the GP

So where do I go from here?

Has anyone tried

High serum B12, but feel awful,opinions please

Help: PA test, hyperosmia & B12

Essential /Familial Tremors & B12

The Final Chapter...

Blown Vein and no anaemia....

How much does a child have to suffer before being given B12 injections ?

Our Medical Records May be in danger again

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive