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Pernicious Anaemia Society

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All posts for September 2017

Dessicated Liver Capsules

Hi. I just purchased some Dessicated Liver capsules to help build up b12 and iron. Has anyone taken Dessicated Liver capsules to their regime?

Hi. I just purchased some Dessicated Liver capsules to help build up b12 and iro...

jpar

•7 years ago

4 Replies

Woo Yay I Self Injected Today!

After what I'd describe as a less-than-satisfactory Doctor's appointment on Tuesday I decided to order B12 from Germany on Wednesday, it arrived today...

After what I'd describe as a less-than-satisfactory Doctor's appointment on Tues...

Hidden

•7 years ago

69 Replies

Professor John Hooper

I think I have his name right. He was researching, so I recall, the impact of bacterial imbalance, rather than SIBO, on B12 malabsorption in the ileum. Does...

I think I have his name right. He was researching, so I recall, the impact of ba...

GGourmet

•7 years ago

15 Replies

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Am I burning through my B 12,,,

Hello All,,,five months ago I found out about my PA. Beening an overachiever I also had to have an iron absorption disorder along with it. I had all the...

Hello All,,,five months ago I found out about my PA. Beening an overachiever I a...

4154

•7 years ago

7 Replies

B12 and Hashimoto's

My GP phoned to say that half my blood tests were back, and as well as low B12 (I've started self-injecting and am waiting/hoping for it to kick in) I've got...

My GP phoned to say that half my blood tests were back, and as well as low B12 (...

Pingo

•7 years ago

16 Replies

Hashimotos? Blood test results

Hi I’m new here would be really grateful for any help . Since 2014 I have suffered with many symptoms the main ones being memory loss confusion, fatigue where...

Hi I’m new here would be really grateful for any help . Since 2014 I have suffer...

Gemzxx

•7 years ago

6 Replies

Advice on obtaining a b12 deficiency diagnosis please

Hi all, I really could do with some more advice please. I recently had a neurology appointment as I am trying to investigate a diagnosis of B12 deficiency. I...

Hi all, I really could do with some more advice please. I recently had a neurol...

Cn13

•7 years ago

31 Replies

Flying down south.. UK internal... Is there any protocol re taking my syringes / needles/ampoules???

Anyone know if there's a problem with taking my meds on a BA flight... Hand luggage only.. ☺

Anyone know if there's a problem with taking my meds on a BA flight... Hand lugg...

Frances55

•7 years ago

9 Replies

Searching self administered B12 injections info

I've read so much on here, that I've lost track (and can't find!) those who've written and been courageous enough to follow their own path to recovery, by...

I've read so much on here, that I've lost track (and can't find!) those who've ...

LadyBarb

•7 years ago

27 Replies

Children and b12

I can not find my book regarding b12 symptoms in children especially around the age of six. My grandson is having tests Monday especially after hey heard I...

I can not find my book regarding b12 symptoms in children especially around the ...

Patjamber

•7 years ago

4 Replies

Can you drink alcohol two weeks after loading dose?

Hi all, me again 🙄😊 I'm just curious as I'm sat here fancying a glass of red. Now I have this horrid condition does that mean you can't drink anymore??? Dnt...

Hi all, me again 🙄😊 I'm just curious as I'm sat here fancying a glass of red. ...

Dani82

•7 years ago

18 Replies

Low B12 levels, not sure why.

I had some standard blood test done about 8 months ago with my GP. Not looking for anything in particular, just part of a medical checkup. My B12 came out at...

I had some standard blood test done about 8 months ago with my GP. Not looking f...

Mefzs123

•7 years ago

7 Replies

Grumpy and Happy after GP appointment

Just back from GP: Grumpy bit first : Finally, after 14 weeks, this from neurology: MRI brain scan results: "There are scattered patches of white matter T2...

Just back from GP: Grumpy bit first : Finally, after 14 weeks, this from neurol...

Cherylclaire

Forum Support•7 years ago

5 Replies

Hoping my B12 was low

I have been feeling so tired and lethargic and asked for a another blood test. I am hypothyroid taking 125 Levo. In the past year I have twice been given B12...

I have been feeling so tired and lethargic and asked for a another blood test. I...

RoniB

•7 years ago

8 Replies

Testing

I have been advised from thyroid uk to get advice from here. Under active thyroid, nutrient levels deficient. Gp not helping.

I have been advised from thyroid uk to get advice from here. Under active thyroi...

Michelle82

•7 years ago

9 Replies

Help with first self-induction. Please!!

I'm a first time poster! I've had the B12 ampoules in the fridge for 3 months now. I look at them often, but I'm just terrified of injecting myself....I know,...

I'm a first time poster! I've had the B12 ampoules in the fridge for 3 months no...

Hidden

•7 years ago

30 Replies

First B12 injection ... Side effects or normal to feel bad??

Hi Had my 1st B12 injection on Tuesday all seemed well but yesterday started feeling a bit weird, having horrible hot flushes and sweating (been having those...

Hi Had my 1st B12 injection on Tuesday all seemed well but yesterday started fe...

Alesia

•7 years ago

9 Replies

Regaine hair foam for hair loss due to b12 deficiency?

Hi all..... I've posted a few times about my hair loss but I have to say I have noticed alot more has fallen out in the last two weeks. Keep finding it on my...

Hi all..... I've posted a few times about my hair loss but I have to say I have ...

mdoh1918

•7 years ago

20 Replies

Blood results

Bloods done august since had my loading shots doc says all other levels are fine any advice pls xx

Bloods done august since had my loading shots doc says all other levels are fine...

Glitterbug83

•7 years ago

6 Replies

Flu jab.....

I'm thinking of getting a flu jab this year now I've been diagnosed with PA... Just wondering if that's a good idea or not... My PA was caused by my autoimmune...

I'm thinking of getting a flu jab this year now I've been diagnosed with PA... J...

Frances55

•7 years ago

17 Replies

Tingling in bottom of leg and stiff thigh for 6 months

One day suddenly while waking up my legs kind of felt like locked. I went to doctor who checked my blood and found b12 as 180 and prescribed me monthly shots...

One day suddenly while waking up my legs kind of felt like locked. I went to do...

Thisisit1

•7 years ago

6 Replies

Hello

Been directed here by the helpful people on the Thyroid UK forum, these are my girlfriend's results for B12 and folate. Her iron deficiency is still by the...

Been directed here by the helpful people on the Thyroid UK forum, these are my g...

ADC79

•7 years ago

4 Replies

Update on treatment

Hi all and GetTheJDIn, I saw your enquiry. Well after having one B12 shot before my holiday, ( as the GP still thinks I don't have PA ) but after my little...

Hi all and GetTheJDIn, I saw your enquiry. Well after having one B12 shot before...

Cali25

•7 years ago

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Gradual decline

I now find myself two weeks away from my loading doses and starting to feel myself getting through the days again instead of living them. Every morning I get...

I now find myself two weeks away from my loading doses and starting to feel mys...

Av42

•7 years ago

15 Replies

Come from thyroid forum

Hollie118

•7 years ago

3 Replies

Advice on B12 levels following on from blood tests

Hi, I was referred over to this forum from the very helpful people on the thyroid forums. I had major surgery earlier in the year, including a blood...

Hi, I was referred over to this forum from the very helpful people on the thyroi...

helbels1972

•7 years ago

5 Replies

Ferritin...

Hi, For the last few months I've been experiencing symptoms of fatigue etc. and decided to have my iron levels checked in July. Iron Serum: 128 (40-190) TIBC...

Hi, For the last few months I've been experiencing symptoms of fatigue etc. and ...

LizHealth1

•7 years ago

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B12 treatment guidelines

Hello all, I am new to all this and I was looking for some help, I have been denied treatment for a possible b12 deficiency. My b12 levels are 215 range...

Hello all, I am new to all this and I was looking for some help, I have been de...

Hidden

•7 years ago

4 Replies

B12- Injections & Supplements

Hello. I was curious about a couple of things regarding B12 repletion. When it comes to Supplement I've been using a spray and pills.(Both Garden of life)....

Hello. I was curious about a couple of things regarding B12 repletion. When it c...

LizHealth1

•7 years ago

4 Replies

VB12

Hi I have been having VB12 injections for three years. My last injection was 01/08/17 at the same time I had my blood done and the result came back as VB12...

Hi I have been having VB12 injections for three years. My last injection was 01/...

roBstecar

•7 years ago

2 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2017

Dessicated Liver Capsules

Woo Yay I Self Injected Today!

Professor John Hooper

Am I burning through my B 12,,,

B12 and Hashimoto's

Hashimotos? Blood test results

Advice on obtaining a b12 deficiency diagnosis please

Flying down south.. UK internal... Is there any protocol re taking my syringes / needles/ampoules???

Searching self administered B12 injections info

Children and b12

Can you drink alcohol two weeks after loading dose?

Low B12 levels, not sure why.

Grumpy and Happy after GP appointment

Hoping my B12 was low

Testing

Help with first self-induction. Please!!

First B12 injection ... Side effects or normal to feel bad??

Regaine hair foam for hair loss due to b12 deficiency?

Blood results

Flu jab.....

Tingling in bottom of leg and stiff thigh for 6 months

Hello

Update on treatment

Gradual decline

Come from thyroid forum

Advice on B12 levels following on from blood tests

Ferritin...

B12 treatment guidelines

B12- Injections & Supplements

VB12

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive