Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

33,313 members•24,543 posts

All posts for November 2015

Journalist wants PA stories.

Hi, Earlier today I looked at the PAS website. They were asking if any PA sufferers had stories about difficulties in getting a diagnosis and would be...

Hi, Earlier today I looked at the PAS website. They were asking if any PA suff...

•9 years ago

Help.........sorry it's so long

Hello everyone, I am back for some more advice but first I will give you a brief history; In march of this year I was finally diagnosed with B12 deficiency...

Hello everyone, I am back for some more advice but first I will give you a brie...

•9 years ago

B-12

Hello everyone, I have had a B12 deficiency for years I am very confused I take B-12 injections every other week, I have brain fog, I can not remember things I...

Hello everyone, I have had a B12 deficiency for years I am very confused I take ...

•9 years ago

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Can't Apply for PIP (DLA) Must Be Attendance Allowance Because I'm too old. Anyone Applied for Attendance Allowance in UK

HI, Just wondered if anyone has applied for attendance allowance; in place of PIP (DLA) because of age; over 65. ?? I'm in the process of filling in the...

HI, Just wondered if anyone has applied for attendance allowance; in place of P...

•9 years ago

Injections not working

My doctor agreed to give me loading doses, 5 doses, one every other day. I usually have to take 5 mg just to feel okay, so I'm not surprised that after having...

My doctor agreed to give me loading doses, 5 doses, one every other day. I usual...

•9 years ago

Vitamins for pregnancy

Hello all I have b12 deficiency but my GP refused injections I tested negative for pa but I'm told that could be inaccurate but anyways I supplement with...

Hello all I have b12 deficiency but my GP refused injections I tested negative f...

•9 years ago

Martyn Hooper's Blog

Hi, Martyn Hooper is the chair of the PAS (Pernicious Anaemia society). On his blog he said recently that he is going to post something every day....

Hi, Martyn Hooper is the chair of the PAS (Pernicious Anaemia society). On his...

•9 years ago

Self injecting b12 uk

So after months and months of feeling dreadful and being fully aware myself I need b12. My doctor is still not listening as I am in range at 180. I have bad...

So after months and months of feeling dreadful and being fully aware myself I ne...

•9 years ago

Please someone help?

I have posted my blood results before but know one has replied and could really do with some help. I am suffering hairloss and generally feel awful. My...

I have posted my blood results before but know one has replied and could really ...

•9 years ago

Reduced B12 for MMA test and symptoms much, much worse

I'm waiting for a test kit to arrive from the States for an uMMA test, so I've substantially reduced my B12 supplementation. I'd thought that it would be...

I'm waiting for a test kit to arrive from the States for an uMMA test, so I've s...

•9 years ago

Homo cysteine test results ....along with Malymalonic result .

Hello sorry not to have got back sooner been in hospital .and A/E. and lots going on health wise .will post on relevant forum soon . But today I chased up my...

Hello sorry not to have got back sooner been in hospital .and A/E. and lots goin...

•9 years ago

Could I be deficient in b12 or folate?? Bad hairloss!

I've had more results back my total white cell count - is 3.9/l on a reference 4.00- 11.00 And mean corpus haemoglobin (MCH) 32.6 pg on reference 27 - 32 I...

I've had more results back my total white cell count - is 3.9/l on a reference 4...

•9 years ago

B12

Is there any specialist out there who, knows more about this?

Is there any specialist out there who, knows more about this?

•9 years ago

Taking the plunge and going to self inject...help!

I have read a number of posts on here and looked on line at a number of links regarding where/what to purchase but now I am as confused as ever! I need 1mg of...

I have read a number of posts on here and looked on line at a number of links re...

•9 years ago

Long term B12 maintenance

Hi! I'm struggling with my GP and B12... I was diagnosed as deficient about ten years ago and have been having quarterly jabs. I've also had lots of 'mystery...

Hi! I'm struggling with my GP and B12... I was diagnosed as deficient about te...

•9 years ago

Active B12 test

Hi everyone I have a strong family history of PA and what I suspect are symptoms but as my results are low but in range the doctors have refused to treat me....

Hi everyone I have a strong family history of PA and what I suspect are symptom...

•9 years ago

Gastritis due to PA, how are you treating this problem?

Hello Everyone, I'm posting about Gastritis as I'm in a bad flare up and I'm getting quite desperate. I tried Licorice in the Summer and thought I'd found the...

Hello Everyone, I'm posting about Gastritis as I'm in a bad flare up and I'm ge...

•9 years ago

Help interpret my results... Bad hairloss!

Hi everyone, I have recently had my blood test results back Vitamin b6 - 419 nmol on reference 35-100 ( very high) Vitamin b12 - 411 nmol ref 187 - 883...

Hi everyone, I have recently had my blood test results back Vitamin b6 - 419...

•9 years ago

Feeling terrible 3 weeks after loading injections

Hi new to this, where do i start. Well my symptoms are back i shall list them Tremors of hands and jaw Weak limbs Tense neck amd shoulder muscles Vision...

Hi new to this, where do i start. Well my symptoms are back i shall list them T...

•9 years ago

B12 Deficency

Hi I am Phil 53 years of age and have been on 3 monthly injections for about 5 years. I saw my blood test results Mean Platement Volume was low 6.8fl which...

Hi I am Phil 53 years of age and have been on 3 monthly injections for about 5 y...

•9 years ago

Injections

I have been supplementing for a while now, I need to take 5000 mcg a day to feel okay. My doctor has just started me on injections, but they are only 1mg every...

I have been supplementing for a while now, I need to take 5000 mcg a day to feel...

•9 years ago

Subcutaneous vs Intramuscular injections?

I am looking for information that explores the benefits of subcutaneous vs intramuscular injections. I self inject, subcutaneously with a needless pen. Is...

I am looking for information that explores the benefits of subcutaneous vs intra...

•9 years ago

Groin Shingles and PHN

Hi everybody, I contracted shingles in my groin some 5 months ago and am now suffering from Post Herpetic neuralgia. I have numbness in my buttocks, legs,...

Hi everybody, I contracted shingles in my groin some 5 months ago and am now su...

•9 years ago

A bit confused

Hi I have recently been told that I have PA my b12 is 117 and my folate is 3. I tested strong positive for parietal cell antibodies , I don't start my loading...

Hi I have recently been told that I have PA my b12 is 117 and my folate is 3. I ...

•9 years ago

Tinnitus

Hi I have PA, I have 3mnthly injections and have started taking B12 tablets. My main problem is tinnitus , it is driving me mad, it is constant,and am now...

Hi I have PA, I have 3mnthly injections and have started taking B12 tablets. My ...

•9 years ago

Could i have b12 deficiency ?

Hallo everyone. I am a 44 years old guy from Norway. Been seeking for some answers for a couple of years. After years of stress and high work pressure, i had...

Hallo everyone. I am a 44 years old guy from Norway. Been seeking for some answe...

•9 years ago

Has anyone had Active B12 test via post at St Thomas please, bit confused by instructions!

Hi, just wondering if anyone has had their Active B12 tested via this hospital please? My tub has arrived today ( presuming my doctor supplies the yellow top...

Hi, just wondering if anyone has had their Active B12 tested via this hospital p...

•9 years ago

B12 Help

Hi Can anyone help me please. I have purchased B12 in dry formula from Oxford Biosciences.I am a bit confused on how to mix with Saline. I have purchased...

Hi Can anyone help me please. I have purchased B12 in dry formula from Oxford...

•9 years ago

b12 deficiency

I have just finished B12 jabs and been told nothing more for 3 months but I feel just as tired if not more so. I had these symptoms for 2yrs before Doctors...

I have just finished B12 jabs and been told nothing more for 3 months but I feel...

•9 years ago

My Son Joshua

Hi My Name is Kelly and for anyone who has followed my sons story JJ from pernicious anaemia society site . i just want to update everyone . I know its been a...

Hi My Name is Kelly and for anyone who has followed my sons story JJ from pernic...

Kelly_Joshua_Maria

•9 years ago

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