Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,933 members • 23,074 posts

All posts for January 2019

Update on loading

Hi guys nearly 2 weeks has passed since 6th loading injection, head clearer but still getting heavy legs arms etc which did not have prior to injections also...

Hi guys nearly 2 weeks has passed since 6th loading injection, head clearer but...

sbadd

•5 years ago

1 Reply

To see a specialist ...?

I wonder if anyone on here has seen a specialist in the field of B12 in particular caused by PA? My very kind Mum has offered to pay for me to see one and she...

I wonder if anyone on here has seen a specialist in the field of B12 in particul...

Mandymoos8

•5 years ago

2 Replies

B12 Injections while on Antibiotics

Hello, This may be a silly question, but do you think t is ok to have B12 injections while on an antibiotic (Doxycycline)? Thank you!

Hello, This may be a silly question, but do you think t is ok to have B12 injec...

HelloSun

•5 years ago

1 Reply

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Sources for Hydroxocobalamin ... particularly in USA

Does anyone know anything about www.eumed.ro as a distributor of Rotexmedica's HO-cobalamin? Versanderpo the well known distributor has been back-ordered for...

Does anyone know anything about www.eumed.ro as a distributor of Rotexmedica's H...

cHi13

•5 years ago

5 Replies

Got Homocysteine lab back

Lab result of Homocysteine: 12.9 range: 0.0-15.0 Still waiting on the others. I couldn’t wait four months to check b12 but have been off b12 for atleast 2...

Lab result of Homocysteine: 12.9 range: 0.0-15.0 Still waiting on the others. ...

JennaShi

•5 years ago

7 Replies

Shakey achey arms and legs

Hey all - I have developed very achey arms and legs which at times feel shakey made worse by just carrying even a handbag and laptop around for work. Generally...

Hey all - I have developed very achey arms and legs which at times feel shakey m...

Mandymoos8

•5 years ago

6 Replies

Blood in saliva

Just a quick one, does anyone else get a bit of blood in there saliva randomly. Not coughing it up or in phlegm, just in my mouth? Thanks all.

Just a quick one, does anyone else get a bit of blood in there saliva randomly. ...

ukb12

•5 years ago

10 Replies

Concerned if Getting Right Treatment

Hi Everyone, I hope you can help... A month ago my blood tests came back as being low in Vitamin D, B12 (borderline low but out of range) and low folate. My...

Hi Everyone, I hope you can help... A month ago my blood tests came back as bein...

sleepyowl

•5 years ago

8 Replies

Some Levels low and high

Okay to start with my B12 level is 147 my glucose level is only 102 my vitamin D level is 23 and my thyroid TSH level is 0.04 I feel like crud and I have not...

Okay to start with my B12 level is 147 my glucose level is only 102 my vitamin D...

Catapillar

•5 years ago

6 Replies

Loosing weight

Does anyone have problem with there weight I've lost a lot lately and I'm not actually the not the biggest person so my DR is keeping eye on it I'm eating...

Does anyone have problem with there weight I've lost a lot lately and I'm not ac...

Budsha

•5 years ago

3 Replies

trying to find what works for me

Iv been taking my injections weekly and been doing ok but can’t seem to get the correct folic acid supplement to keep levels up . Any help from anyone . I was...

Iv been taking my injections weekly and been doing ok but can’t seem to get the ...

Andypandy30

•5 years ago

1 Reply

Update - Victory is mine!

Hi all, I dont post often but have done a couple of times for advice so thought I would update my story. I started self injecting a couple of years ago as the...

Hi all, I dont post often but have done a couple of times for advice so thought ...

gemssea

•5 years ago

6 Replies

May I ask why..

Sorry to be a pain but, may I ask why, when we have injections of B12 at Dr's that they always alternate sides? I'm right handed & find it way easier to SI...

Sorry to be a pain but, may I ask why, when we have injections of B12 at Dr's th...

Ritchie1268

•5 years ago

9 Replies

Documents to take to the doctor

Hi all, I have recently read a post where a link was added for someone to print and take to the dr to show what the BSH guilines are. Can anyone please post...

Hi all, I have recently read a post where a link was added for someone to print ...

Jessie8

•5 years ago

9 Replies

What can this mean?

Hi New here so please forgive me if I ask stupid questions. I’ve been experiencing feet and hand pains, numbness and pins and needles on and off for a number...

Hi New here so please forgive me if I ask stupid questions. I’ve been experienc...

Skerrywherry

•5 years ago

6 Replies

Cause of my b12 deficiency

Hi everyone I posted here a few months back after getting b12 deficiency diagnosis and am now on 3 monthly injections. I was confused as to what caused this as...

Hi everyone I posted here a few months back after getting b12 deficiency diagnos...

Ningy13

•5 years ago

16 Replies

Hot Face & b12!?

I keep randomly getting hot/flushed face .. my face will get super red and hot to the touch. However, it does not seem to be when I need an injection. I just...

I keep randomly getting hot/flushed face .. my face will get super red and hot t...

kjl3

•5 years ago

20 Replies

B12 (348) with symptoms? Could it be?

Hello, I have been battling ongoing symptoms for the last 7 months. Brain fog, disorientation, daily tension headaches, muscle weakness, Hot flashes, diarrhea...

Hello, I have been battling ongoing symptoms for the last 7 months. Brain fog, d...

bkerch55

•5 years ago

10 Replies

Tongue pain

Hi. I have tongue pain and I'm wondering whether this is possibly a result of increased sensation after B12 injections (I've been injecting for six months), or...

Hi. I have tongue pain and I'm wondering whether this is possibly a result of in...

fionasloane

•5 years ago

1 Reply

How do I join the society

How can I join the society?

Hawkshaw2609

•5 years ago

2 Replies

Some advice please.

Hello all, hope you're all well. I did every other day SI around just before Christmas & felt the benefits. However, since then, my aching legs, burning feet...

Hello all, hope you're all well. I did every other day SI around just before C...

Ritchie1268

•5 years ago

30 Replies

Can B12 Deficiency lower immunity

Hi. I've noticed that my immunity this last few years has become lowered. Since diagnosed with B12 if anything else goes amiss with health, e.g. Repeated...

Hi. I've noticed that my immunity this last few years has become lowered. Since...

JillMaryC

•5 years ago

15 Replies

Feeling worse before feeling better?

Hey, hope you’re all well! I found out last week that I’m severely deficient in vitamin D and have started on 20,000IU twice a week, with which I also take...

Hey, hope you’re all well! I found out last week that I’m severely deficient in ...

peach_sapphire

•5 years ago

2 Replies

new to PA

hi all was diagnosed with PA in november and had loading doses over 2 weeks. started to feel well over Christmas but in decline already. Tingling in fingers,...

hi all was diagnosed with PA in november and had loading doses over 2 weeks. st...

Blundermum

•5 years ago

2 Replies

Methyl cobalamin spray side effects.

I've been taking b12 spray, 1200mcg a day, for the past 2 weeks as my levels were at the lower end of normal. In the last week I have been suffering quite...

I've been taking b12 spray, 1200mcg a day, for the past 2 weeks as my levels wer...

Awil

•5 years ago

3 Replies

B12 deficiency symptoms

Hi just wanted some advice really, it’s my 4th week of injections for my b12 deficiency I’m still having difficulty with my breathing, how long does it take...

Hi just wanted some advice really, it’s my 4th week of injections for my b12 def...

Antstarr

•5 years ago

6 Replies

What to do now.................?

Feeling absolutely shocking!! all i want to do is SLEEP just lately had laryngitis and a cold virus a week before Christmas and ive still got laryngitis cus...

Feeling absolutely shocking!! all i want to do is SLEEP just lately had laryngit...

deede72

•5 years ago

3 Replies

B12 tablet warning for UK vegans.

I've just been browsing the BNF (as you do) and came across an interesting bit. One growing cause of a B12 deficiency is a dietary insufficiency caused by a...

I've just been browsing the BNF (as you do) and came across an interesting bit. ...

fbirder

•5 years ago

1 Reply

Maybe pernicious anemia

Hi I've been having lots of health problems, low b12, they think I have pernicious anemia but it was never confirmed, I had colonscopy and gastrocopy, but they...

Hi I've been having lots of health problems, low b12, they think I have pernicio...

Janeylou69

•5 years ago

8 Replies

Vitamin deficiency and POTS

I haven’t been diagnosed with POTS so let me start there. Just got diagnosed with Vit D and vit b12 deficiency a little over a week ago. I have since been...

I haven’t been diagnosed with POTS so let me start there. Just got diagnosed wit...

dingusgirl

•5 years ago

7 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2019

Update on loading

To see a specialist ...?

B12 Injections while on Antibiotics

Sources for Hydroxocobalamin ... particularly in USA

Got Homocysteine lab back

Shakey achey arms and legs

Blood in saliva

Concerned if Getting Right Treatment

Some Levels low and high

Loosing weight

trying to find what works for me

Update - Victory is mine!

May I ask why..

Documents to take to the doctor

What can this mean?

Cause of my b12 deficiency

Hot Face & b12!?

B12 (348) with symptoms? Could it be?

Tongue pain

How do I join the society

Some advice please.

Can B12 Deficiency lower immunity

Feeling worse before feeling better?

new to PA

Methyl cobalamin spray side effects.

B12 deficiency symptoms

What to do now.................?

B12 tablet warning for UK vegans.

Maybe pernicious anemia

Vitamin deficiency and POTS

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive